RE: Is it only me thats a TST Numpty?

[Guest guest]

In a message dated 16/03/2010 14:08:16 GMT Standard Time, thelifechangers@... writes:

You have done well.. some parents are only able to lay a hand on their child for a few seconds at a time initially...

>>Oh thankyou, that makes me feel better!

I got only one time (as in 1 x depression/back up and hold) done awake yesterday and that was with him laying on one hand while I held the other up and chanted his favourite script of the moment, he was REALLY thinking hard about what I was doing on his chest rather than I was technically holding him down for it. Then he was having none of it........

Fingers crossed for tonight!

Mandi x

[Guest guest]

In a message dated 16/03/2010 16:48:59 GMT Standard Time, michelle0471@... writes:

Just thinking, would the ABA approach work, give them a reward for co-operating? Thats how i got Harry to take his CLO when we first started biomedical, now he will do anything for a raisen, a small piece of soya choc, a small piece of GF biscuit or to watch sesame street on the lap top.

>He'd do it for somebody else but not me, too late now. But I have got a MP3/4/5 player tiny one that looks like iphone but cheap which Joe is going to put his favourite clips on and hopefully the novelty of that might keep him still. The hand on top of mine and pressing is a sensory need. I haven;t tried TST after a squishy session, maybe try that later with my new fancy flannels

Mandi x

[Guest guest]

Dear Mandi

 

You have done well.. some parents are only able to lay a hand on their child for a few seconds at a time initially... and then as their body realises the goodness in the TST parents can work longer and longer... even these few seconds at a time will begin to make a difference.

 

The reason I am in favour of the parents doing TST on themselves is that I found I became less anxious and less stressed.. Tatijana picks up on my stress as efficiently as a barometer.. and this impacts on her.. so by being in a more relaxed state, and getting better sleep as a result, I found Tatijana was more in tune to get the most from the TST.

 

It can take several weeks for the child to willingly accept TST.. One little ASD kid I know ran off every time his Mum tried to massage him... and he never stood still he constantly ran around.. when he went back for his second visit, he actually sat quietly on the carpet playing with his toys whilst his Mum learned the new massage sequences.. He was a different little boy... TST helped he get proper sleep so he was not hyper tired... resulting in hyper activity.

 

The soft handtowels give a gentler pressure to a wider area, so this may be less noticeable to Sam..  It will work out fine.. even if initially Sam needs you to do it Sam's way.

 

Best wishes

 

 

 

Tracey

On Tue, Mar 16, 2010 at 1:55 PM, <Mum231ASD@...> wrote:

 

Been back from East Grinstead for a week tomorrow and only JUST managed 4 mins of the exercises.

 

Tried asleep 30mins, 45 mins, 2 hours, 4 hours, when he is sleepy, when he's awake.................what he does is put his hand on top of mine and press HARD. When he asleep he moves his hand under mine to flick it off or tunrs over and lays his whole arm across his chest.

 

Today the new extra bouncy Christy flannels arrived, perhaps they can magic summat for me?

 

No worries, I hear Tracey thinking, do them on yourself - well every time I try that I fall asleep

 

Everybody else makes it sound so easy and it would be I guess if Sam were unconscious...........

 

Hoping the proper rhythm I got for the 4 mins last night might make his body like it for tonight

 

Mand x

[Guest guest]

I promise you that the first month of getting Joe to accept the exercises was terrible. I was lucky if I managed five minutes in total per day. I started by just aiming for 1 minute of each exercise. I kept telling him that mummy was doing this to make him better and gradually he accepted that this was now part of the routine. Five months down the line he will still only accept 3 minutes. I worked out that I could get 12 compressions done in that time and he likes to count them. The minute we reach 12 my hand gets knocked away. The routine now is that he comes into my bed in the morning for "cuddles" and I have one arm round him and one arm doing TST. I aim to get four lots of 3 minutes done then. I then try to get another two 3 minute sessions done in between teeth cleaning (him) and hair drying (me). The other two 3 minute sessions only happen if he's feeling really cooperative, but if I don't manage the whole thing one day I just make sure I start with the ones I missed the next day. He will not tolerate the flannels.

We are still seeing results. School tell me that he is less prone to outbursts, that they can now negotiate with him when he's starting to get uptight. I've noticed that his language is improving. He has lots of learned phrases and uses them appropriately, but is now able to turn them round so that he's using "I" and "me" instead of "you".

I do the exercises on me in between doing them on him, also in the morning, but usually keep one to do at bedtime because it does help me go to sleep.

Nic

From: Mum231ASD@...

Sent: Tuesday, March 16, 2010 1:55 PM

Autism Treatment

Subject: Is it only me thats a TST Numpty?

Been back from East Grinstead for a week tomorrow and only JUST managed 4 mins of the exercises.

Tried asleep 30mins, 45 mins, 2 hours, 4 hours, when he is sleepy, when he's awake.................what he does is put his hand on top of mine and press HARD. When he asleep he moves his hand under mine to flick it off or tunrs over and lays his whole arm across his chest.

Today the new extra bouncy Christy flannels arrived, perhaps they can magic summat for me?

No worries, I hear Tracey thinking, do them on yourself - well every time I try that I fall asleep

Everybody else makes it sound so easy and it would be I guess if Sam were unconscious...........

Hoping the proper rhythm I got for the 4 mins last night might make his body like it for tonight

Mand x

[Guest guest]

HI Nic

 

LOvely to hear your joy too with TST. I think you have shown beautifully how each Mum is in tune with their child and KNOWs how to work with them to achieve these gains.

 

We had to do shorter periods initially as they were making big changes very quickly and Tatijana needed to adjust a little more slowly.. and within two weeks she was tolerating the full five minutes.. as that is what she wanted to do...

 

Like you I have really benefitted with far better sleep since doing TST on myself.

 

 

Best wishes

 

 

 

Tracey

On Tue, Mar 16, 2010 at 3:39 PM, nicweed <nicweed@...> wrote:

 

I promise you that the first month of getting Joe to accept the exercises was terrible.  I was lucky if I managed five minutes in total per day.  I started by just aiming for 1 minute of each exercise.  I kept telling him that mummy was doing this to make him better and gradually he accepted that this was now part of the routine.  Five months down the line he will still only accept 3 minutes.  I worked out that I could get 12 compressions done in that time and he likes to count them.  The minute we reach 12 my hand gets knocked away.  The routine now is that he comes into my bed in the morning for " cuddles " and I have one arm round him and one arm doing TST.  I aim to get four lots of 3 minutes done then.  I then try to get another two 3 minute sessions done in between teeth cleaning (him) and hair drying (me).  The other two 3 minute sessions only happen if he's feeling really cooperative, but if I don't manage the whole thing one day I just make sure I start with the ones I missed the next day.  He will not tolerate the flannels. 

 

We are still seeing results.  School tell me that he is less prone to outbursts, that they can now negotiate with him when he's starting to get uptight.  I've noticed that his language is improving.  He has lots of learned phrases and uses them appropriately, but is now able to turn them round so that he's using " I " and " me " instead of " you " .

 

I do the exercises on me in between doing them on him, also in the morning, but usually keep one to do at bedtime because it does help me go to sleep.

 

Nic

 

 

 

From: Mum231ASD@...

Sent: Tuesday, March 16, 2010 1:55 PM

Autism Treatment

Subject: Is it only me thats a TST Numpty?

 

Been back from East Grinstead for a week tomorrow and only JUST managed 4 mins of the exercises.

 

Tried asleep 30mins, 45 mins, 2 hours, 4 hours, when he is sleepy, when he's awake.................what he does is put his hand on top of mine and press HARD. When he asleep he moves his hand under mine to flick it off or tunrs over and lays his whole arm across his chest.

 

Today the new extra bouncy Christy flannels arrived, perhaps they can magic summat for me?

 

No worries, I hear Tracey thinking, do them on yourself - well every time I try that I fall asleep

 

Everybody else makes it sound so easy and it would be I guess if Sam were unconscious...........

 

Hoping the proper rhythm I got for the 4 mins last night might make his body like it for tonight

 

Mand x

[Guest guest]

Hi Mandi Thank god it is not just me either, I am with you ..... trying to get my hand on charlie during the day is a no go zone and at night he turns away. I will take light from what the others and aim to slowly build up! I think anytime we get to sit or lay down .... I need immediate rest so have also found that it is one cycle on me if i am lucky and I am asleep! Massive congrats on the DP win, you have to love the good days when everything seems to be going your way! I believe i am having my DP doubled next month due to having another baby, wished they had helped earlier and i may not be this ill pre baby! Love to know any ideas on DP or DLA as they seem to be an ongoing battle.KateOn 16 Mar 2010, at 13:55, Mum231ASD@... wrote:Been back from East Grinstead for a week tomorrow and only JUST managed 4 mins of the exercises. Tried asleep 30mins, 45 mins, 2 hours, 4 hours, when he is sleepy, when he's awake.................what he does is put his hand on top of mine and press HARD. When he asleep he moves his hand under mine to flick it off or tunrs over and lays his whole arm across his chest. Today the new extra bouncy Christy flannels arrived, perhaps they can magic summat for me? No worries, I hear Tracey thinking, do them on yourself - well every time I try that I fall asleep Everybody else makes it sound so easy and it would be I guess if Sam were unconscious........... Hoping the proper rhythm I got for the 4 mins last night might make his body like it for tonight Mand x

[Guest guest]

Just thinking, would the ABA approach work, give them a reward for co-operating? Thats how i got Harry to take his CLO when we first started biomedical, now he will do anything for a raisen, a small piece of soya choc, a small piece of GF biscuit or to watch sesame street on the lap top.Just an idea xxAutism Treatment From: Mum231ASD@...Date: Tue, 16 Mar 2010 10:13:13 -0400Subject: Re: Is it only me thats a TST Numpty?

In a message dated 16/03/2010 14:08:16 GMT Standard Time, thelifechangersgooglemail writes:

You have done well.. some parents are only able to lay a hand on their child for a few seconds at a time initially...

>>Oh thankyou, that makes me feel better!

I got only one time (as in 1 x depression/back up and hold) done awake yesterday and that was with him laying on one hand while I held the other up and chanted his favourite script of the moment, he was REALLY thinking hard about what I was doing on his chest rather than I was technically holding him down for it. Then he was having none of it........

Fingers crossed for tonight!

Mandi x

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[Guest guest]

Good luck Mandi, I'm sure that you will get there in the end. I'm sure that I

pressed too hard to start with for a while and it didn't seem to be a problem.

Hopefully, he will start to tolerate it better soon.

I agree that doing the exercises on yourself really do help you as a person to

feel better as well.

x

>

>

> In a message dated 16/03/2010 16:48:59 GMT Standard Time,

> michelle0471@... writes:

>

> Just thinking, would the ABA approach work, give them a reward for

> co-operating? Thats how i got Harry to take his CLO when we first started

> biomedical, now he will do anything for a raisen, a small piece of soya choc,

a

> small piece of GF biscuit or to watch sesame street on the lap top.

>

>

>

> >He'd do it for somebody else but not me, too late now. But I have got a

> MP3/4/5 player tiny one that looks like iphone but cheap which Joe is going

> to put his favourite clips on and hopefully the novelty of that might keep

> him still. The hand on top of mine and pressing is a sensory need. I haven;t

> tried TST after a squishy session, maybe try that later with my new fancy

> flannels

>

> Mandi x

>

[Guest guest]

Allowed 3 compressions while he was awake, not altogether but its a start

Mandi x

[Guest guest]

Hi Mandi

 

I remember the osteo saying that sometimes ASD kids are more irritated by gentle pressure than firmer pressure.. he says it is a bit like being tickled... the light pressure is more ticklish than harder pressure.

 

It is interesting that Sam wants harder pressure, I recall you saying he was pressing on her hand.. and I wonder if initially he needs this whilst his sensory system adjusts to the new therapy...

 

Using slightly greaterpressure than you learned at Advance will make some difference.. and then perhaps this could become a lighter and lighter touch as Sam calibrates the massage?

 

Three compressions is good.. it is two more than one!.. so 200% improvement there already this week!

 

Best wishes

 

 

 

Tracey

On Thu, Mar 18, 2010 at 1:03 PM, <Mum231ASD@...> wrote:

 

Allowed 3 compressions while he was awake, not altogether but its a start

 

Mandi x

 

 

[Guest guest]

In a message dated 18/03/2010 13:22:48 GMT Standard Time, thelifechangers@... writes:

Three compressions is good.. it is two more than one!.. so 200% improvement there already this week!

>>>Now I'm hopeless at Math but I actually did 3 min + 3 min + 2 min last night about midnight, the quilt was thrown off, hands behind his head on his back - what a wonderful sight, I rushed for the flannels!!

I tried counting when he was awake, after Nic's post, I think he prefers that. I still want to close my eyes while I'm doing it, so tryin to practise on me with eyes open

Also, I said lets get flannels and he went and laid on the bed, only let me do one that time. The trick with Sam is to make him think its his idea................

Mandi x

[Guest guest]

I love TST- if child is willing... then they must feel the benefits... I think...

 

Huge gains already ... just imagine what else lies ahead!

 

Best wishes

 

 

 

Tracey

On Fri, Mar 19, 2010 at 9:28 PM, <Mum231ASD@...> wrote:

 

In a message dated 18/03/2010 13:22:48 GMT Standard Time, thelifechangers@... writes:

Three compressions is good.. it is two more than one!.. so 200% improvement there already this week!

>>>Now I'm hopeless at Math but I actually did 3 min + 3 min + 2 min last night about midnight, the quilt was thrown off, hands behind his head on his back - what a wonderful sight, I rushed for the flannels!!

 

I tried counting when he was awake, after Nic's post, I think he prefers that. I still want to close my eyes while I'm doing it, so tryin to practise on me with eyes open

 

Also, I said lets get flannels and he went and laid on the bed, only let me do one that time. The trick with Sam is to make him think its his idea................

 

Mandi x

[Guest guest]

Hi Mandi,

Haven't been on the c'puter since our return from Advance and just saw

this.

I'd agree that it somehow sounds so easy when you hear from everyone

else.... but we struggled a lot at the beginning of TST! I really did

not think we would ever get through the first 3 months .... but we did.

Norman found it very hard tolerating the excercises and exactly like Sam

he would constantly be flicking my hand away or swiping the flannels

from under my hand (I really never expected this of him, especially the

sneaky way and the speed at which he did this). He'd also purposely lay

his elbow on top of my hand (whilst doing the excercises) but I think

this was to intentionally stop me from doing the compressions.

Now (after 3rd visit) - He still does all this now but a whole lot less

..... His much more tolerant of the compressions and is more patient

but he is very quick to turn over the minute he hears the timer go off

as he seems to have made the connection that he has a five minute break!

We still struggle with the back excercises here, as he cannot tolerate

laying on his belly for any reasonable length of time, so these hardly

ever get done, but have learnt from not to stress over it.

We have made it this far and have seen some small improvements (still

waiting for better sleep though!). You will get there - try not to

stress.

emily

>

> Been back from East Grinstead for a week tomorrow and only JUST

managed 4

> mins of the exercises.

>

> Tried asleep 30mins, 45 mins, 2 hours, 4 hours, when he is sleepy,

when

> he's awake.................what he does is put his hand on top of mine

and

> press HARD. When he asleep he moves his hand under mine to flick it

off or

> tunrs over and lays his whole arm across his chest.

>

> Today the new extra bouncy Christy flannels arrived, perhaps they can

magic

> summat for me?

>

> No worries, I hear Tracey thinking, do them on yourself - well every

time I

> try that I fall asleep

>

> Everybody else makes it sound so easy and it would be I guess if Sam

were

> unconscious...........

>

> Hoping the proper rhythm I got for the 4 mins last night might make

his

> body like it for tonight

>

> Mand x

>