Guest guest Posted April 26, 2006 Report Share Posted April 26, 2006 > > " I just wanted to add that a lot of information out there on medical > drugs is just theory and yet is often misleadingly taken as fact - > scary stuff indeed. > > I am not totally agaisnt medical drugs either - I have taken prozac > in the past and I did research it - unfortunately I learnt later the > things I found out were possibly false and really just theory peddled > as fact :-( " Theories and falsehoods presented as fact are the very worst problems with this whole issue. They are counting on the fact that the average person will fall for their propaganda. Often they use tactics such as doctor-father figure as misuse of power because we're taught to trust doctors, or the 'surely you want to believe what the smart scientists believe' tactic. And as a last resort they have the 'don't listen to the fanatic conspiracy-theory nuts'. Often their cites say the opposite of what they are saying or are not accessible--they don't think the average person will bother to read the cite or will understand the cite, or have access to some. One can do a lot of research but not get past the wall of information for their side. It takes a commitment and interest in health and a lot of time which most people don't have because it's not one of their interests. Many of the studies done on drugs are falsified because they are paid for by the drug companies. Very few besides the drug companies can afford the millions of dollars needed for studies so must of the studies are funded by these large companies. We are cattle for their profit and the sicker we are the more they can make off of us. That's why I keep speaking up about it though I'm one small voice and I may sound extreme. At least it may get some to dig deeper. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2006 Report Share Posted April 26, 2006 > > " I just wanted to add that a lot of information out there on medical > drugs is just theory and yet is often misleadingly taken as fact - > scary stuff indeed. > > I am not totally agaisnt medical drugs either - I have taken prozac > in the past and I did research it - unfortunately I learnt later the > things I found out were possibly false and really just theory peddled > as fact :-( " Theories and falsehoods presented as fact are the very worst problems with this whole issue. They are counting on the fact that the average person will fall for their propaganda. Often they use tactics such as doctor-father figure as misuse of power because we're taught to trust doctors, or the 'surely you want to believe what the smart scientists believe' tactic. And as a last resort they have the 'don't listen to the fanatic conspiracy-theory nuts'. Often their cites say the opposite of what they are saying or are not accessible--they don't think the average person will bother to read the cite or will understand the cite, or have access to some. One can do a lot of research but not get past the wall of information for their side. It takes a commitment and interest in health and a lot of time which most people don't have because it's not one of their interests. Many of the studies done on drugs are falsified because they are paid for by the drug companies. Very few besides the drug companies can afford the millions of dollars needed for studies so must of the studies are funded by these large companies. We are cattle for their profit and the sicker we are the more they can make off of us. That's why I keep speaking up about it though I'm one small voice and I may sound extreme. At least it may get some to dig deeper. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 Hello there. I haven't been on CAST in quite some time. My son, , was dx with infantile scoli when he was 4 months old. At the time, his curve was around 20 degrees and everyone was cautiously optimistic about it resolving. He is now almost 15 months old and we were told this Thursday that his curve has now progressed to 45 degrees (since April). We have an MRI next week, and a projected first casting at the beginning of September at Shriner's Philly. I am currently working on getting all of his XRays, etc faxed back to Shriner's Philly. We originally began treatment there, but transferred to another hospital for a second opinion--stayed there a few months--and are now returning to Shriner's because they seem to follow Dr. Metha's principles much more closely. I feel like I have most of my p's and q's in line regarding casting from a medical standpoint, but I have another question for you moms/dads out there: How did you get through this process emotionally as a parent? Ever since Thursday I feel like I cannot stop crying. I guess it's because for the last 10 months, 's back has been stable and we thought we were going to be one of the " lucky ones " that self-resolved. Now, I suppose reality has hit that this is real. I know CAST will probably be a good thing, but sometimes reading about all of the struggles and frustrations just makes me dread it even more. I cannot imagine watching be unable to sit up--walk (he just learned)--and play. He's such a happy baby, and I am so fearful that this is going to change his personality and make him angry and scared. Has this been the case for most people? Any words of wisdom that helped you get through this at the beginning? I'm not trying to be negative--just honest. Any thoughts would be greatly appreciated! Thanks so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 Hi Jenn, Our cast kiddos are soooo resiliant. Try not to worry about how it will effect his emotions. He'll be fine...Its harder on us. He will adjust to cast life quickly. You know that his lil spine has the best chance at being corrected gently & permanently by this method, so you are doing the right thing. It wont be easy, but its far better than the alternative of repeated surgeries, premature fusion, pain, severe deformity, etc, etc, etc.... Go ahead and be sad & scared, but then try and realize what a great opportunity lil has. Most infants with scoli around the US & world are not offered a chance at a cure. Lil Jack has a great momma who has found the best treatment in the world for him! Hang tough Jenn. You got this! And, if you need to vent or cry you found the right place to do it. We have all been through this roller coaster of emotions, so you are def. not alone on Jacks scoli/casting journey. Pls keep us posted on how well he does. HRH > Hello there. I haven't been on CAST in quite some time. My son, , > was dx with infantile scoli when he was 4 months old. At the time, his > curve was around 20 degrees and everyone was cautiously optimistic about > it resolving. He is now almost 15 months old and we were told this > Thursday that his curve has now progressed to 45 degrees (since April). > We have an MRI next week, and a projected first casting at the beginning > of September at Shriner's Philly. I am currently working on getting all > of his XRays, etc faxed back to Shriner's Philly. We originally began > treatment there, but transferred to another hospital for a second > opinion--stayed there a few months--and are now returning to Shriner's > because they seem to follow Dr. Metha's principles much more closely. > > I feel like I have most of my p's and q's in line regarding casting from a > medical standpoint, but I have another question for you moms/dads out > there: How did you get through this process emotionally as a parent? > > Ever since Thursday I feel like I cannot stop crying. I guess it's > because for the last 10 months, 's back has been stable and we > thought we were going to be one of the " lucky ones " that self-resolved. > Now, I suppose reality has hit that this is real. I know CAST will > probably be a good thing, but sometimes reading about all of the struggles > and frustrations just makes me dread it even more. I cannot imagine > watching be unable to sit up--walk (he just learned)--and play. > He's such a happy baby, and I am so fearful that this is going to change > his personality and make him angry and scared. Has this been the case for > most people? Any words of wisdom that helped you get through this at the > beginning? I'm not trying to be negative--just honest. Any thoughts > would be greatly appreciated! Thanks so much. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2011 Report Share Posted August 4, 2011 HUGE THANKS too everyone who has written back to me. What an incredible outpouring of support! Today has been good. I think it's been a combo of reading these posts and talking to a friend of mine last night with a " special needs " child. It's funny--but actually proclaiming that I feel negative/angry has somehow made today seem more positive. I like this feeling. I have another quick question--this one more of an opinion. I am a big mom blogger, but until now I have chosen not to share anything about Jax's scoliosis online. I felt that because he originally had a great shot at resolving on his own, it wasn't something that I would share until necessary. Now--we know for sure that he will be casted--hence, there will be some obvious changes in the way he looks in photos. What do you all think: Should I document our scoliosis journey on my blog? Or should I only tell those who know/love and are a part of his life? I have some mixed feelings here--I think blogging would help me process things, would be a stress reliever, would document our journey for the future for Jax to read, and would help loved ones follow our challenges and joys--however, there is another part of me that isn't sure it's the " world's " business, that doesn't want to hate me later for exposing it, and that doesn't want distant friends/family labeling him as " the little boy with scoliosis " instead of the wonderful baby he is! Thoughts? Opinions? Experiences? If you'd like to learn a little more about us as a family--go ahead and check out the blog. The web address is www.jackotaco.blogspot.com Looking forward to your thoughts! Jen > > > > > > > > Hello there. I haven't been on CAST in quite some time. My son, > , was dx with infantile scoli when he was 4 months old. At the time, > his curve was around 20 degrees and everyone was cautiously optimistic about > it resolving. He is now almost 15 months old and we were told this Thursday > that his curve has now progressed to 45 degrees (since April). We have an > MRI next week, and a projected first casting at the beginning of September > at Shriner's Philly. I am currently working on getting all of his XRays, etc > faxed back to Shriner's Philly. We originally began treatment there, but > transferred to another hospital for a second opinion--stayed there a few > months--and are now returning to Shriner's because they seem to follow Dr. > Metha's principles much more closely. > > > > > > > > I feel like I have most of my p's and q's in line regarding casting > from a medical standpoint, but I have another question for you moms/dads out > there: How did you get through this process emotionally as a parent? > > > > > > > > Ever since Thursday I feel like I cannot stop crying. I guess it's > because for the last 10 months, 's back has been stable and we > thought we were going to be one of the " lucky ones " that self-resolved. Now, > I suppose reality has hit that this is real. I know CAST will probably be a > good thing, but sometimes reading about all of the struggles and > frustrations just makes me dread it even more. I cannot imagine watching > be unable to sit up--walk (he just learned)--and play. He's such a > happy baby, and I am so fearful that this is going to change his personality > and make him angry and scared. Has this been the case for most people? Any > words of wisdom that helped you get through this at the beginning? I'm not > trying to be negative--just honest. Any thoughts would be greatly > appreciated! Thanks so much. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2011 Report Share Posted August 4, 2011 Hi Jen,I felt the same way about not sharing anything about my son's journey on FB because if they hadn't reached out to me to help support me during our journey I didn't feel like it was their business to know. I now realize how caught up in my own emotions I was and that everyone has their own way of processing and reaching out to people. I would definitely blog about your son, it is the most important thing that you are going through and it will help you to deal with it. No one will label him that way, they will learn to understand what it all means and how the treatment works. I think that the hardest thing is how rare it is and how hard it is to get the correct diagnosis and treatment.Best of luck, we have all been there and the journey does get easier and more peaceful. These children are here to teach us how to be strong :)Best wishes to you!SonjaFrom: Heath <jaheath86@...>Subject: Re: emotionsinfantile scoliosis treatment Date: Wednesday, August 3, 2011, 5:21 PM HUGE THANKS too everyone who has written back to me. What an incredible outpouring of support! Today has been good. I think it's been a combo of reading these posts and talking to a friend of mine last night with a "special needs" child. It's funny--but actually proclaiming that I feel negative/angry has somehow made today seem more positive. I like this feeling. I have another quick question--this one more of an opinion. I am a big mom blogger, but until now I have chosen not to share anything about Jax's scoliosis online. I felt that because he originally had a great shot at resolving on his own, it wasn't something that I would share until necessary. Now--we know for sure that he will be casted--hence, there will be some obvious changes in the way he looks in photos. What do you all think: Should I document our scoliosis journey on my blog? Or should I only tell those who know/love and are a part of his life? I have some mixed feelings here--I think blogging would help me process things, would be a stress reliever, would document our journey for the future for Jax to read, and would help loved ones follow our challenges and joys--however, there is another part of me that isn't sure it's the "world's" business, that doesn't want to hate me later for exposing it, and that doesn't want distant friends/family labeling him as "the little boy with scoliosis" instead of the wonderful baby he is! Thoughts? Opinions? Experiences? If you'd like to learn a little more about us as a family--go ahead and check out the blog. The web address is www.jackotaco.blogspot.com Looking forward to your thoughts! Jen > > > > > > > > Hello there. I haven't been on CAST in quite some time. My son, > , was dx with infantile scoli when he was 4 months old. At the time, > his curve was around 20 degrees and everyone was cautiously optimistic about > it resolving. He is now almost 15 months old and we were told this Thursday > that his curve has now progressed to 45 degrees (since April). We have an > MRI next week, and a projected first casting at the beginning of September > at Shriner's Philly. I am currently working on getting all of his XRays, etc > faxed back to Shriner's Philly. We originally began treatment there, but > transferred to another hospital for a second opinion--stayed there a few > months--and are now returning to Shriner's because they seem to follow Dr. > Metha's principles much more closely. > > > > > > > > I feel like I have most of my p's and q's in line regarding casting > from a medical standpoint, but I have another question for you moms/dads out > there: How did you get through this process emotionally as a parent? > > > > > > > > Ever since Thursday I feel like I cannot stop crying. I guess it's > because for the last 10 months, 's back has been stable and we > thought we were going to be one of the "lucky ones" that self-resolved. Now, > I suppose reality has hit that this is real. I know CAST will probably be a > good thing, but sometimes reading about all of the struggles and > frustrations just makes me dread it even more. I cannot imagine watching > be unable to sit up--walk (he just learned)--and play. He's such a > happy baby, and I am so fearful that this is going to change his personality > and make him angry and scared. Has this been the case for most people? Any > words of wisdom that helped you get through this at the beginning? I'm not > trying to be negative--just honest. Any thoughts would be greatly > appreciated! Thanks so much. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2011 Report Share Posted August 4, 2011 I think that since you are a big mom blogger already, you should share lil J's journey with your audience. Your blog has the ability to teach another mum how to properly advocate for her child and always trust her intuition as its always right.. It can help another family who may suspect their child has scoliosis. I say put it all out there. Who cares what others may think. If they label him thats their problem..closeminded people arent allowed to be a part of lil J's journey. From a business standpoint, if you're making $ at blogging just dont overdue it. Im sure other bloggers will have experienced input on blogging & scoli sharing.....I always say put it out there. It ALWAYS helps someone down the line whether it be a month from now or a year, lil J's journey will help someone else out there. HRH > HUGE THANKS too everyone who has written back to me. What an incredible > outpouring of support! Today has been good. I think it's been a combo of > reading these posts and talking to a friend of mine last night with a > " special needs " child. It's funny--but actually proclaiming that I feel > negative/angry has somehow made today seem more positive. I like this > feeling. > > I have another quick question--this one more of an opinion. I am a big > mom blogger, but until now I have chosen not to share anything about Jax's > scoliosis online. I felt that because he originally had a great shot at > resolving on his own, it wasn't something that I would share until > necessary. Now--we know for sure that he will be casted--hence, there > will be some obvious changes in the way he looks in photos. What do you > all think: > > Should I document our scoliosis journey on my blog? Or should I only tell > those who know/love and are a part of his life? > > I have some mixed feelings here--I think blogging would help me process > things, would be a stress reliever, would document our journey for the > future for Jax to read, and would help loved ones follow our challenges > and joys--however, there is another part of me that isn't sure it's the > " world's " business, that doesn't want to hate me later for > exposing it, and that doesn't want distant friends/family labeling him as > " the little boy with scoliosis " instead of the wonderful baby he is! > > Thoughts? Opinions? Experiences? > > If you'd like to learn a little more about us as a family--go ahead and > check out the blog. The web address is www.jackotaco.blogspot.com > > Looking forward to your thoughts! > Jen > > >> > > > >> > > > Hello there. I haven't been on CAST in quite some time. My son, >> , was dx with infantile scoli when he was 4 months old. At the >> time, >> his curve was around 20 degrees and everyone was cautiously optimistic >> about >> it resolving. He is now almost 15 months old and we were told this >> Thursday >> that his curve has now progressed to 45 degrees (since April). We have >> an >> MRI next week, and a projected first casting at the beginning of >> September >> at Shriner's Philly. I am currently working on getting all of his XRays, >> etc >> faxed back to Shriner's Philly. We originally began treatment there, but >> transferred to another hospital for a second opinion--stayed there a few >> months--and are now returning to Shriner's because they seem to follow >> Dr. >> Metha's principles much more closely. >> > > > >> > > > I feel like I have most of my p's and q's in line regarding >> casting >> from a medical standpoint, but I have another question for you moms/dads >> out >> there: How did you get through this process emotionally as a parent? >> > > > >> > > > Ever since Thursday I feel like I cannot stop crying. I guess it's >> because for the last 10 months, 's back has been stable and we >> thought we were going to be one of the " lucky ones " that self-resolved. >> Now, >> I suppose reality has hit that this is real. I know CAST will probably >> be a >> good thing, but sometimes reading about all of the struggles and >> frustrations just makes me dread it even more. I cannot imagine watching >> be unable to sit up--walk (he just learned)--and play. He's such >> a >> happy baby, and I am so fearful that this is going to change his >> personality >> and make him angry and scared. Has this been the case for most people? >> Any >> words of wisdom that helped you get through this at the beginning? I'm >> not >> trying to be negative--just honest. Any thoughts would be greatly >> appreciated! Thanks so much. >> > > > >> > > >> > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2011 Report Share Posted August 4, 2011 Jen, I am so behind on posts, but wanted to jump in and SCREAM......YES!!! Document your journey! His story! Your feelings! It helps. Even if no one leaves a comment it helps to write it and think it "out loud". I am also a mommy blogger. I have always shared my son's story on my blog. And just this year started added many of the children's stories here on CAST. I can not tell you the amount of traffic I see from ALL OVER the world looking for answers about Infantile Scoliosis. So for me where it started as a way for me to vent my feelings and share with those that love , it now provides many with info they are looking for. Anyway just wanted to throw that out there. My blog address is below my sig. TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, Texas. After being treated in a series of 6 casts for 14 months he is now in a brace and has been since September 2007. EARLY Treatment does work if done properly. You can read 's story at.... http://www.infantilescoliosis.org/stories.html Or follow our family one day at a time......http://thefontenotslife.blogspot.com/ From: Heath <jaheath86@...>Subject: Re: emotionsinfantile scoliosis treatment Date: Wednesday, August 3, 2011, 5:21 PM HUGE THANKS too everyone who has written back to me. What an incredible outpouring of support! Today has been good. I think it's been a combo of reading these posts and talking to a friend of mine last night with a "special needs" child. It's funny--but actually proclaiming that I feel negative/angry has somehow made today seem more positive. I like this feeling.I have another quick question--this one more of an opinion. I am a big mom blogger, but until now I have chosen not to share anything about Jax's scoliosis online. I felt that because he originally had a great shot at resolving on his own, it wasn't something that I would share until necessary. Now--we know for sure that he will be casted--hence, there will be some obvious changes in the way he looks in photos. What do you all think:Should I document our scoliosis journey on my blog? Or should I only tell those who know/love and are a part of his life?I have some mixed feelings here--I think blogging would help me process things, would be a stress reliever, would document our journey for the future for Jax to read, and would help loved ones follow our challenges and joys--however, there is another part of me that isn't sure it's the "world's" business, that doesn't want to hate me later for exposing it, and that doesn't want distant friends/family labeling him as "the little boy with scoliosis" instead of the wonderful baby he is! Thoughts? Opinions? Experiences?If you'd like to learn a little more about us as a family--go ahead and check out the blog. The web address is www.jackotaco.blogspot.com Looking forward to your thoughts!Jen> > > >> > > > Hello there. I haven't been on CAST in quite some time. My son,> , was dx with infantile scoli when he was 4 months old. At the time,> his curve was around 20 degrees and everyone was cautiously optimistic about> it resolving. He is now almost 15 months old and we were told this Thursday> that his curve has now progressed to 45 degrees (since April). We have an> MRI next week, and a projected first casting at the beginning of September> at Shriner's Philly. I am currently working on getting all of his XRays, etc> faxed back to Shriner's Philly. We originally began treatment there, but> transferred to another hospital for a second opinion--stayed there a few> months--and are now returning to Shriner's because they seem to follow Dr.> Metha's principles much more closely.> > > > > > > > I feel like I have most of my p's and q's in line regarding casting> from a medical standpoint, but I have another question for you moms/dads out> there: How did you get through this process emotionally as a parent? > > > > > > > > Ever since Thursday I feel like I cannot stop crying. I guess it's> because for the last 10 months, 's back has been stable and we> thought we were going to be one of the "lucky ones" that self-resolved. Now,> I suppose reality has hit that this is real. I know CAST will probably be a> good thing, but sometimes reading about all of the struggles and> frustrations just makes me dread it even more. I cannot imagine watching> be unable to sit up--walk (he just learned)--and play. He's such a> happy baby, and I am so fearful that this is going to change his personality> and make him angry and scared. Has this been the case for most people? Any> words of wisdom that helped you get through this at the beginning? I'm not> trying to be negative--just honest. Any thoughts would be greatly> appreciated! Thanks so much.> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2011 Report Share Posted October 27, 2011 Hell My name is Zehava and my husband and I are scheduled to cast our 22 month old son for congenital/compensatory curve scoliosis. We were supposed to do it at Columbia University Hospital THE COMING WEDNESDAY but we just got denied from our insurance. Are you familiar with other docs in NYC? I have two names who are covered under our insurance and want to check them out properly We have an appointment set up next week for Dr. C at Shriners. How long did evaluation appointment until acutal casting take? we are anxious to begin casting but now are set back because of starting the process over again. Sorry to bombard you but just some specific questions if you dont mind: 1) Specifically, how did you bathe your child/sponge bath, etc? 2) you said about pee accidents but how was actual diapering? did you find there were more accidents/leaks because of the cast? i ask this because our son generally doesnt leak out of his diapers. 3) did you have any issues with car seat, stroller, etc? and if so what did you find worked well, not good, etc? 4) what type of clothing fit best over the cast ( dont know if you did summer or winter season)? 5) I know this is body/person specific but did you have to do a lot of adjustements to the cast ( initial or other) . I ask this also because we are about two hours away from Philly and not an option to stay there since we have a 3 and 1/2 year old daughter as well. one more thing- is shriners philly NOT " kid centric " ? thank you in advance....... Zehava > > > > Hello there. I haven't been on CAST in quite some time. My son, , was dx with infantile scoli when he was 4 months old. At the time, his curve was around 20 degrees and everyone was cautiously optimistic about it resolving. He is now almost 15 months old and we were told this Thursday that his curve has now progressed to 45 degrees (since April). We have an MRI next week, and a projected first casting at the beginning of September at Shriner's Philly. I am currently working on getting all of his XRays, etc faxed back to Shriner's Philly. We originally began treatment there, but transferred to another hospital for a second opinion--stayed there a few months--and are now returning to Shriner's because they seem to follow Dr. Metha's principles much more closely. > > > > I feel like I have most of my p's and q's in line regarding casting from a medical standpoint, but I have another question for you moms/dads out there: How did you get through this process emotionally as a parent? > > > > Ever since Thursday I feel like I cannot stop crying. I guess it's because for the last 10 months, 's back has been stable and we thought we were going to be one of the " lucky ones " that self-resolved. Now, I suppose reality has hit that this is real. I know CAST will probably be a good thing, but sometimes reading about all of the struggles and frustrations just makes me dread it even more. I cannot imagine watching be unable to sit up--walk (he just learned)--and play. He's such a happy baby, and I am so fearful that this is going to change his personality and make him angry and scared. Has this been the case for most people? Any words of wisdom that helped you get through this at the beginning? I'm not trying to be negative--just honest. Any thoughts would be greatly appreciated! Thanks so much. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2011 Report Share Posted October 27, 2011 Hell My name is Zehava and my husband and I are scheduled to cast our 22 month old son for congenital/compensatory curve scoliosis. We were supposed to do it at Columbia University Hospital THE COMING WEDNESDAY but we just got denied from our insurance. Are you familiar with other docs in NYC? I have two names who are covered under our insurance and want to check them out properly We have an appointment set up next week for Dr. C at Shriners. How long did evaluation appointment until acutal casting take? we are anxious to begin casting but now are set back because of starting the process over again. Sorry to bombard you but just some specific questions if you dont mind: 1) Specifically, how did you bathe your child/sponge bath, etc? 2) you said about pee accidents but how was actual diapering? did you find there were more accidents/leaks because of the cast? i ask this because our son generally doesnt leak out of his diapers. 3) did you have any issues with car seat, stroller, etc? and if so what did you find worked well, not good, etc? 4) what type of clothing fit best over the cast ( dont know if you did summer or winter season)? 5) I know this is body/person specific but did you have to do a lot of adjustements to the cast ( initial or other) . I ask this also because we are about two hours away from Philly and not an option to stay there since we have a 3 and 1/2 year old daughter as well. one more thing- is shriners philly NOT " kid centric " ? thank you in advance....... Zehava > > > > Hello there. I haven't been on CAST in quite some time. My son, , was dx with infantile scoli when he was 4 months old. At the time, his curve was around 20 degrees and everyone was cautiously optimistic about it resolving. He is now almost 15 months old and we were told this Thursday that his curve has now progressed to 45 degrees (since April). We have an MRI next week, and a projected first casting at the beginning of September at Shriner's Philly. I am currently working on getting all of his XRays, etc faxed back to Shriner's Philly. We originally began treatment there, but transferred to another hospital for a second opinion--stayed there a few months--and are now returning to Shriner's because they seem to follow Dr. Metha's principles much more closely. > > > > I feel like I have most of my p's and q's in line regarding casting from a medical standpoint, but I have another question for you moms/dads out there: How did you get through this process emotionally as a parent? > > > > Ever since Thursday I feel like I cannot stop crying. I guess it's because for the last 10 months, 's back has been stable and we thought we were going to be one of the " lucky ones " that self-resolved. Now, I suppose reality has hit that this is real. I know CAST will probably be a good thing, but sometimes reading about all of the struggles and frustrations just makes me dread it even more. I cannot imagine watching be unable to sit up--walk (he just learned)--and play. He's such a happy baby, and I am so fearful that this is going to change his personality and make him angry and scared. Has this been the case for most people? Any words of wisdom that helped you get through this at the beginning? I'm not trying to be negative--just honest. Any thoughts would be greatly appreciated! Thanks so much. > > > Quote Link to comment Share on other sites More sharing options...
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