Breesimo's first appointment!

[Guest guest]

Breese is almost 11 months old and had her first orthopaedic appointment this

afternoon. She has congenital scoliosis with a 30 degree curve. The xrays we

have are from about a month ago that the urgent care took and noticed her curve

by chance. Dr. Katz told us that she does not want to do anything with her but

observe her with xrays every six months. I requested a sooner check so she

agreed with four months. She said that Breese has extra bone in her spine that

is on one side but not the other and with these xrays she could not tell if

there was a disk or not. She also could not tell if there were any problems

further down in her spine because the xray was not clear. She also refused to do

an MRI with the reasoning that the negative our ways the posative. We August so

hopefully they will have more of an interest in finding out where she is now

instead of waiting months. Does anyone else have experience with congenetal

scoliosis?

[Guest guest]

This is a sneaky underhanded trick I have learned.... Take it or leave it:) In

the past when our doc has wanted to wait a certain time period and we felt it

was too long, I politely take the apt card but call back in a week or so and

tell them I made a scheduling error and need to move the apt up.... 4 or 6

months can be a long time! I feel that docs like to take their time waiting to

see what happens- I guess they hope everything will get better but it seems like

most of the time the situation progresses. Your baby is at the perfect age to

get the ball rolling on MRIs or whatever else is needed to pinpoint the best

course of treatment. I hope your august apt goes better. Maybe the doc will be

more agressive designing a treatment plan for your tot:) Eventually you will be

required to get an MRI and more xrays so you might as well get the ball rolling

is my personal opinion. If there is uncertainty w the extra bone and/or clarity

of lower back and disk

then I would think that needs to be cleared up so you know as a parent what you

are dealing with and can help decide what the vest course of treatment is. My

son is 4 and is in his 3rd cast. He wore a brace for 2 yrs prior to Mehta. It

took us a long time to find an agressive ortho surgeon who supported Mehta and

helped us get accepted into a hospital in Dallas. We wasted sooooo much precious

time getting him treatment he needed and it was so very very, VERY frustrating!

I'm sure you will be happy to compare the august apt to this one. Doctors can be

so different it's crazy! Best wishes!

Tame

Sent from my iPhone

On Jul 14, 2011, at 2:48 PM, " cardear4l " <cardear4l@...> wrote:

Breese is almost 11 months old and had her first orthopaedic appointment this

afternoon. She has congenital scoliosis with a 30 degree curve. The xrays we

have are from about a month ago that the urgent care took and noticed her curve

by chance. Dr. Katz told us that she does not want to do anything with her but

observe her with xrays every six months. I requested a sooner check so she

agreed with four months. She said that Breese has extra bone in her spine that

is on one side but not the other and with these xrays she could not tell if

there was a disk or not. She also could not tell if there were any problems

further down in her spine because the xray was not clear. She also refused to do

an MRI with the reasoning that the negative our ways the posative. We August so

hopefully they will have more of an interest in finding out where she is now

instead of waiting months. Does anyone else have experience with congenetal

scoliosis?

------------------------------------

[Guest guest]

Please check out the group for congenital scoliosis that’s moderated/owned by Carmell. You will find this group a great resource in your congenital scoli journey.HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of cardear4lSent: Thursday, July 14, 2011 2:48 PMinfantile scoliosis treatment Subject: Breesimo's first appointment! Breese is almost 11 months old and had her first orthopaedic appointment this afternoon. She has congenital scoliosis with a 30 degree curve. The xrays we have are from about a month ago that the urgent care took and noticed her curve by chance. Dr. Katz told us that she does not want to do anything with her but observe her with xrays every six months. I requested a sooner check so she agreed with four months. She said that Breese has extra bone in her spine that is on one side but not the other and with these xrays she could not tell if there was a disk or not. She also could not tell if there were any problems further down in her spine because the xray was not clear. She also refused to do an MRI with the reasoning that the negative our ways the posative. We August so hopefully they will have more of an interest in finding out where she is now instead of waiting months. Does anyone else have experience with congenetal scoliosis?

[Guest guest]

I have a good feeling about Dr. . I have heard nothing but great things

about him and it sounds like he is more agressive with the treatments which I

hope means he will support the need for the testing to be done ASAP. It is

frustrating, especially not knowing! I am glad to hear that you pushed for the

treatment you wanted for your son. I have heard all great things about the mehta

casting and this was the treatment I wanted for my daughter when I thought she

had infantile scoliosis. Is your son getting good results even though he didn't

get the cast for a while?

>

> Breese is almost 11 months old and had her first orthopaedic appointment this

afternoon. She has congenital scoliosis with a 30 degree curve. The xrays we

have are from about a month ago that the urgent care took and noticed her curve

by chance. Dr. Katz told us that she does not want to do anything with her but

observe her with xrays every six months. I requested a sooner check so she

agreed with four months. She said that Breese has extra bone in her spine that

is on one side but not the other and with these xrays she could not tell if

there was a disk or not. She also could not tell if there were any problems

further down in her spine because the xray was not clear. She also refused to do

an MRI with the reasoning that the negative our ways the posative. We August so

hopefully they will have more of an interest in finding out where she is now

instead of waiting months. Does anyone else have experience with congenetal

scoliosis?

>

>

>

> ------------------------------------

>

>

[Guest guest]

I have a good feeling about Dr. . I have heard nothing but great things

about him and it sounds like he is more agressive with the treatments which I

hope means he will support the need for the testing to be done ASAP. It is

frustrating, especially not knowing! I am glad to hear that you pushed for the

treatment you wanted for your son. I have heard all great things about the mehta

casting and this was the treatment I wanted for my daughter when I thought she

had infantile scoliosis. Is your son getting good results even though he didn't

get the cast for a while?

>

> Breese is almost 11 months old and had her first orthopaedic appointment this

afternoon. She has congenital scoliosis with a 30 degree curve. The xrays we

have are from about a month ago that the urgent care took and noticed her curve

by chance. Dr. Katz told us that she does not want to do anything with her but

observe her with xrays every six months. I requested a sooner check so she

agreed with four months. She said that Breese has extra bone in her spine that

is on one side but not the other and with these xrays she could not tell if

there was a disk or not. She also could not tell if there were any problems

further down in her spine because the xray was not clear. She also refused to do

an MRI with the reasoning that the negative our ways the posative. We August so

hopefully they will have more of an interest in finding out where she is now

instead of waiting months. Does anyone else have experience with congenetal

scoliosis?

>

>

>

> ------------------------------------

>

>

[Guest guest]

Yes he is:) We get our next cast on August 8th and are hoping for continued

improvement. Cast #3 xray showed upper curve 28 lower curve 21. When we started

his numbers were in the high 40's. His rib cage is alligning and becoming more

symetrical so we are hoping to see a bigger improvement in the upper curve. We

will take what we can get.... If we can get his incast numbers below 20 and

eventually hold him there outa cast we will have waged a good war:) Hes older so

I knew going in he probably won't be cured, but no one knows that for sure and

he MIGHT be! Our goal is to manage his curve in the high teens to avoid surgery

and right now we are on target w that. As for his first ortho I could still tie

him to a tree and leave him there w no food or water for a week. Yah, I hold

grudges.... I think if docs aren't willing to get out of old school practices

they need to refer you to someone else or retire. As far as I'm concerned

everything that came out of

his mouth was close to a lie. What if it was his kid? Anyway, best of luck!

August is almost here!

T

Sent from my iPhone

On Jul 20, 2011, at 3:53 PM, " cardear4l " <cardear4l@...> wrote:

I have a good feeling about Dr. . I have heard nothing but great things

about him and it sounds like he is more agressive with the treatments which I

hope means he will support the need for the testing to be done ASAP. It is

frustrating, especially not knowing! I am glad to hear that you pushed for the

treatment you wanted for your son. I have heard all great things about the mehta

casting and this was the treatment I wanted for my daughter when I thought she

had infantile scoliosis. Is your son getting good results even though he didn't

get the cast for a while?

Breese is almost 11 months old and had her first orthopaedic appointment this

afternoon. She has congenital scoliosis with a 30 degree curve. The xrays we

have are from about a month ago that the urgent care took and noticed her curve

by chance. Dr. Katz told us that she does not want to do anything with her but

observe her with xrays every six months. I requested a sooner check so she

agreed with four months. She said that Breese has extra bone in her spine that

is on one side but not the other and with these xrays she could not tell if

there was a disk or not. She also could not tell if there were any problems

further down in her spine because the xray was not clear. She also refused to do

an MRI with the reasoning that the negative our ways the posative. We August so

hopefully they will have more of an interest in finding out where she is now

instead of waiting months. Does anyone else have experience with congenetal

scoliosis?

------------------------------------

[Guest guest]

Yes he is:) We get our next cast on August 8th and are hoping for continued

improvement. Cast #3 xray showed upper curve 28 lower curve 21. When we started

his numbers were in the high 40's. His rib cage is alligning and becoming more

symetrical so we are hoping to see a bigger improvement in the upper curve. We

will take what we can get.... If we can get his incast numbers below 20 and

eventually hold him there outa cast we will have waged a good war:) Hes older so

I knew going in he probably won't be cured, but no one knows that for sure and

he MIGHT be! Our goal is to manage his curve in the high teens to avoid surgery

and right now we are on target w that. As for his first ortho I could still tie

him to a tree and leave him there w no food or water for a week. Yah, I hold

grudges.... I think if docs aren't willing to get out of old school practices

they need to refer you to someone else or retire. As far as I'm concerned

everything that came out of

his mouth was close to a lie. What if it was his kid? Anyway, best of luck!

August is almost here!

T

Sent from my iPhone

On Jul 20, 2011, at 3:53 PM, " cardear4l " <cardear4l@...> wrote:

I have a good feeling about Dr. . I have heard nothing but great things

about him and it sounds like he is more agressive with the treatments which I

hope means he will support the need for the testing to be done ASAP. It is

frustrating, especially not knowing! I am glad to hear that you pushed for the

treatment you wanted for your son. I have heard all great things about the mehta

casting and this was the treatment I wanted for my daughter when I thought she

had infantile scoliosis. Is your son getting good results even though he didn't

get the cast for a while?

Breese is almost 11 months old and had her first orthopaedic appointment this

afternoon. She has congenital scoliosis with a 30 degree curve. The xrays we

have are from about a month ago that the urgent care took and noticed her curve

by chance. Dr. Katz told us that she does not want to do anything with her but

observe her with xrays every six months. I requested a sooner check so she

agreed with four months. She said that Breese has extra bone in her spine that

is on one side but not the other and with these xrays she could not tell if

there was a disk or not. She also could not tell if there were any problems

further down in her spine because the xray was not clear. She also refused to do

an MRI with the reasoning that the negative our ways the posative. We August so

hopefully they will have more of an interest in finding out where she is now

instead of waiting months. Does anyone else have experience with congenetal

scoliosis?

------------------------------------

[Guest guest]

That is great that he has had improvement. Hopefully there will be more

improvement before he is grown and he does not need surgery. I can not imagine

having to have surgery on my back, let alone a child. I agree about doctors. So

many people now days are just out to make a buck and don't care about the

quality of their work. If you are involved with human services especially they

need to be 100% involved in the care being provided! I hear you about holding

the grudges...it is hard to let some things go and something that is not in the

best interest of our children is especially long lasting.

>

> Breese is almost 11 months old and had her first orthopaedic appointment this

afternoon. She has congenital scoliosis with a 30 degree curve. The xrays we

have are from about a month ago that the urgent care took and noticed her curve

by chance. Dr. Katz told us that she does not want to do anything with her but

observe her with xrays every six months. I requested a sooner check so she

agreed with four months. She said that Breese has extra bone in her spine that

is on one side but not the other and with these xrays she could not tell if

there was a disk or not. She also could not tell if there were any problems

further down in her spine because the xray was not clear. She also refused to do

an MRI with the reasoning that the negative our ways the posative. We August so

hopefully they will have more of an interest in finding out where she is now

instead of waiting months. Does anyone else have experience with congenetal

scoliosis?

>

>

>

> ------------------------------------

>

>