Upsetting Visit to Shriners

[Guest guest]

Abby had her 3rd cast applied today. Her doctor told us that her curve today in

cast is 20* We are confused because after her 2nd cast was taken off, her curve

was 14*. Her doctor said it is normal for the numbers to go back up a little at

times. Anyway, here is my concern - Abby's doctor told us today that Abby's

spine will never be 0 degrees. And in fact, he expects her to maybe have to

have some type of harrington Rods or spinal fusion later on. He said that when

a child's curve starts out at 40 degrees or higher, that they don't usually

reach 0 degrees. What is confusing to me is that I have read about many kids on

this chat group that have went from even higher numbers (50's and 60's) and now

are either at 0 degrees or very close to it. Were any of you told this same

thing before? (about harrington rods/surgery). I am just wondering if he is

maybe just not wanting to get our hopes up. But, for him to sit there and look

me in the eyes and say " Abby will never reach 0 degrees. " That was very

upsetting. I mean, her scoliosis is not the congenital type and she has no

other underlying conditions. I am just so upset and concerned.

- , mom of Abby (19 months)