Guest guest Posted August 19, 2011 Report Share Posted August 19, 2011 This is weird, I only posted this reply once and it came through this morning. Why would it come through, again, on it's home? When shopping online, use this linkhttp://www.ebates.com/rf.do?referrerid=uQZMsFDxy5I%3Dand help me earn my referral bonuswhich will get donated tothe Infantile Scoliosis Outreach Program(a 501c3 organization) that is helpingme since my 3 year old has been diagnosed withINFANTILE IDIOPATHIC SCOLIOSIS.You will also earn CASH BACK.SUZY ºOºsuzy3333 In a message dated 8/19/2011 4:10:39 P.M. Eastern Daylight Time, suzy3333@... writes: I would definitely request an x-ray. If nothing else, than to ease your mind. I can tell you that my 16 year old (who is severely special needs) came home with his prom picture, I freaked out (to myself of course). It was in that picture that I noticed that one should was much higher than the other. I figured that an x-ray couldn't hurt, so I asked the pediatrician to send me for one. Well, it turns out that I was right. It showed mild scoliosis. I even asked Shane's doctor (at his last casting in July) if he could take a look at tell me what he thought. He confirmed that, yes, my oldest has a slight curve (he figured about 12-16 degree) but told me that, "due to his age and the maturity of his bones, it won't progress any more and that because it's so minor, I have nothing to worry about." He wasn't born with the curve (like Shane was). His curve started when puberty started. Also, I had to take my 13 year old for a physical (for school sports) and the pediatrician noticed a small curve in his spine as well. But, we know that when he had his physical last year, it was not there. Did I mention that he just started puberty about 6 months ago? In any case, his is even more mild than my 16 year old. So, I'm not concerned. Plus, their neurologist (who is the head of their pediatric area) is aware of all their curves now and has noted them in their charts and will keep an eye on if they change (but they don't expect it to). Again, I don't believe in "being paranoid". I do believe in being overly concerned especially when you have reason to be (a previous child with any medical condition). Keep your sanity and get that x-ray. You will have peace of mind if it is nothing. You can get early treatment if there is something. In either case, DON'T SECOND GUESS YOURSELF. DO WHAT YOU FEEL IS BEST FOR YOU. It's better to have the x-ray and it be nothing, than to not have and finding out at a later time that it was something. And, you'll also have it as a base x-ray for future comparisions. Just my opinion. Mother's know best. When shopping online, use this linkhttp://www.ebates.com/rf.do?referrerid=uQZMsFDxy5I%3Dand help me earn my referral bonuswhich will get donated tothe Infantile Scoliosis Outreach Program(a 501c3 organization) that is helpingme since my 3 year old has been diagnosed withINFANTILE IDIOPATHIC SCOLIOSIS.You will also earn CASH BACK.SUZY ºOºsuzy3333 In a message dated 8/18/2011 9:35:44 P.M. Eastern Daylight Time, mimi12899@... writes: Heres my issue my daughter Ariana has had scoliosis since she was born diagnosed at 4 months(now 2yrs old),she is now in the cast as of July,but heres the thing I also have an 8 1/2 month old named Alani and things have been bothering me for a few months.Everyone says I'm paranoid but I'm not sure of this.Anyways I'm thinking that Alani might have scoliosis too.Has this happened to anyone before with a sibling having it? Ok I'll tell you why I think she has it.First I'll tell you she is a very chunky baby so that is one of the reasons i'm not totally sure,but she leans to one side,she has a shoulder lean, and to me it seem shes growing some bumps on her back not bad like Arianas but it is so hard to tell cause she has such a chubby back.She also clenthes her fists all the time with her arms up to the side not sure if that has anything to do with it.But she also has an issue with laying on her tummy for long periods of time just like Ariana.I don't know what to do I'm so frustrated cause it's hard dealing with one child having scoliosis but two I think I might just lose it.Well I know she has a 9 month check up coming up so I'm gonna have her doctor check it out he is the same doctor that Ariana has.I'm just worried that he'll think I'm paranoid too.And with her being so chubby it's hard to see her spine. So please give me some advice or what you think.I just need to talk to people that is going through this too.Ariana has double curve 26* and 34 with rotation!Thanks,Mandy,Adam,Ariana, & Alani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 Thank you so much for sharing this! It's perfect. From: Jane Bigler <janemhar@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Friday, August 19, 2011 12:20 PMSubject: Re: Re: Frustrated! I've often wondered the same thing about God giving us our extra special kiddos and I really don't have an answer. But a mom on one of my other support groups posted these (The Brave Little Soul and Welcome to Holland) a long time ago and I thought I'd share. When I'm feeling down I read them again and they seem to help me, so maybe they will help you too. Jane The Brave Little Soulby AlessiNot too long ago in Heaven there was a little soul who took wonder in observing the world. He especially enjoyed the love he saw there and often expressed this joy with God. One day however the little soul was sad, for on this day he saw suffering in the world. He approached God and sadly asked, “Why do bad things happen; why is there suffering in the world?†God paused for a moment and replied, "Little soul, do not be sad, for the suffering you see, unlocks the love in people’s hearts.†The little soul was confused. “What do you mean,†he asked.†God replied, “Have you not noticed the goodness and love that is the offspring of that suffering? Look at how people come together, drop their differences and show their love and compassion for those who suffer. All their other motivations disappear and they become motivated by love alone.†The little soul began to understand and listened attentively as God continued, “The suffering soul unlocks the love in people’s hearts much like the sun and the rain unlock the flower within the seed. I created everyone with endless love in their heart, but unfortunately most people keep it locked up and hardly share it with anyone. They are afraid to let their love shine freely, because they are afraid of being hurt. But a suffering soul unlocks that love. I tell you this - it is the greatest miracle of all. Many souls have bravely chosen to go into the world and suffer - to unlock this love – to create this miracle - for the good of all humanity." Just then the little soul got a wonderful idea and could hardly contain himself. With his wings fluttering, bouncing up and down, the little soul excitedly replied, "I am brave; let me go! I would like to go into the world and suffer so that I can unlock the goodness and love in people’s hearts! I want to create that miracle!" God smiled and said, "You are a brave soul I know, and thus I will grant your request. But even though you are very brave you will not be able to do this alone. I have known since the beginning of time that you would ask for this and so I have carefully selected many souls to care for you on your journey. Those souls will help you create your miracle; however they will also share in your suffering. Two of these souls are most special and will care for you, help you and suffer along with you, far beyond the others. They have already chosen a name for you.†God and the brave little soul shared a smile, and then embraced. In parting, God said, “Do not forget little soul that I will be with you always. Although you have agreed to bear the pain, you will do so through my strength. And if the time should come when you feel that you have suffered enough, just say the word, think the thought, and you will be healed.†Thus at that moment the brave little soul was born into the world, and through his suffering and God’s strength, he unlocked the goodness and love in people’s hearts. For so many people dropped their differences and came together to show their love. Priorities became properly aligned. People gave from their hearts. Those that were always too busy found time. Many began new spiritual journeys – some regained lost faith – many came back to God. Parents hugged their children tighter. Friends and family grew closer. Old friends got together and new friendships were made. Distant family reunited, and every family spent more time together. Everyone prayed. Peace and love reigned. Lives changed forever. It was good. The world was a better place. The miracle had happened. God was pleased. Welcome To Holland by Perl Kingsleyc1987 by Perl Kingsley. All rights reserved. I am often asked to describe the experience of raisinga child with a disability - to try to help people whohave not shared that unique experience to understandit, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning afabulous vacation trip - to Italy. You buy a bunch ofguide books and make your wonderful plans. TheColiseum. The Michelangelo . The gondolas inVenice. You may learn some handy phrases in Italian.It's all very exciting.After months of eager anticipation, the day finallyarrives. You pack your bags and off you go. Severalhours later, the plane lands. The stewardess comes inand says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? Isigned up for Italy! I'm supposed to be in Italy. Allmy life I've dreamed of going to Italy."But there's been a change in the flight plan. They'velanded in Holland and there you must stay.The important thing is that they haven't taken you toa horrible, disgusting, filthy place, full ofpestilence, famine and disease. It's just a differentplace.So you must go out and buy new guide books. And youmust learn a whole new language. And you will meet awhole new group of people you would never have met.It's just a different place. It's slower-paced thanItaly, less flashy than Italy. But after you've beenthere for a while and you catch your breath, you lookaround.... and you begin to notice that Holland haswindmills... .and Holland has tulips. Holland even hasRembrandts.But everyone you know is busy coming and going fromItaly... and they're all bragging about what awonderful time they had there. And for the rest ofyour life, you will say "Yes, that's where I wassupposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever goaway... because the loss of that dream is a very verysignificant loss.But... if you spend your life mourning the fact thatyou didn't get to Italy, you may never be free toenjoy the very special, the very lovely things ...about Holland. From: MIMI <mimi12899@...>infantile scoliosis treatment Sent: Friday, August 19, 2011 9:07 AMSubject: Re: Frustrated! I just want to thank everyone for making me feel better.At least I'm not the only one that scans everyone elses kids too,cause in my family we had a total of 10 babies in 2 1/2 years so I be checking them all.I do think that it makes you stronger in ways but then again being paranoid comes back.Now I will always worry about the scoliosis in my children.One has it and my lil one is giving me a scare and then Now I have to worry about my son Adam who is 12 and is about to hit puburety so they'll be checking him and he also has ADHD which is definently a struggle with school work and his home life.I tell ya I dont know why things turn out this way.All three of my children have asthma on top of it my 8 month old has it the worst she has to take a nebulizer at home.Why does god do this to these small children and then he puts them all in one family it crazy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2011 Report Share Posted August 21, 2011 no se...But anyone shopping on line pls use this link as it will earn $ for ISOP!!! Thanks Suzy. HRH > This is weird, I only posted this reply once and it came through this > morning. Why would it come through, again, on it's home? > > > When shopping online, use this link > _http://www.ebates.com/rf.do?referrerid=uQZMsFDxy5I%3D_ > (http://www.ebates.com/rf.do?referrerid=uQZMsFDxy5I=) > and help me earn my referral bonus > which will get donated to > the Infantile Scoliosis Outreach Program > (a 501c3 organization) that is helping > me since my 3 year old has been diagnosed with > INFANTILE IDIOPATHIC SCOLIOSIS. > > You will also earn CASH BACK. > > SUZY ºOº > suzy3333 > > > > > > In a message dated 8/19/2011 4:10:39 P.M. Eastern Daylight Time, > suzy3333@... writes: > > > > > I would definitely request an x-ray. If nothing else, than to ease your > mind. > > I can tell you that my 16 year old (who is severely special needs) came > home with his prom picture, I freaked out (to myself of course). It was > in > that picture that I noticed that one should was much higher than the > other. > I figured that an x-ray couldn't hurt, so I asked the pediatrician to > send > me for one. Well, it turns out that I was right. It showed mild > scoliosis. I even asked Shane's doctor (at his last casting in July) if > he could > take a look at tell me what he thought. He confirmed that, yes, my > oldest > has a slight curve (he figured about 12-16 degree) but told me that, " due > to > his age and the maturity of his bones, it won't progress any more and > that > because it's so minor, I have nothing to worry about. " He wasn't born > with the curve (like Shane was). His curve started when puberty > started. > > Also, I had to take my 13 year old for a physical (for school sports) and > the pediatrician noticed a small curve in his spine as well. But, we > know > that when he had his physical last year, it was not there. Did I mention > that he just started puberty about 6 months ago? In any case, his is > even > more mild than my 16 year old. So, I'm not concerned. > > Plus, their neurologist (who is the head of their pediatric area) is > aware > of all their curves now and has noted them in their charts and will keep > an eye on if they change (but they don't expect it to). > > Again, I don't believe in " being paranoid " . I do believe in being overly > concerned especially when you have reason to be (a previous child with > any > medical condition). > > Keep your sanity and get that x-ray. You will have peace of mind if it > is > nothing. You can get early treatment if there is something. In either > case, DON'T SECOND GUESS YOURSELF. DO WHAT YOU FEEL IS BEST FOR YOU. > It's > better to have the x-ray and it be nothing, than to not have and finding > out > at a later time that it was something. And, you'll also have it as a > base > x-ray for future comparisions. > > Just my opinion. Mother's know best. > > > When shopping online, use this link > _http://www.ebates.com/rf.do?referrerid=uQZMsFDxy5I%3D_ > (http://www.ebates.com/rf.do?referrerid=uQZMsFDxy5I=) > and help me earn my referral bonus > which will get donated to > the Infantile Scoliosis Outreach Program > (a 501c3 organization) that is helping > me since my 3 year old has been diagnosed with > INFANTILE IDIOPATHIC SCOLIOSIS. > > You will also earn CASH BACK. > > SUZY ºOº > suzy3333 > > > > > > In a message dated 8/18/2011 9:35:44 P.M. Eastern Daylight Time, > mimi12899@... writes: > > > Heres my issue my daughter Ariana has had scoliosis since she was born > diagnosed at 4 months(now 2yrs old),she is now in the cast as of July,but > heres the thing I also have an 8 1/2 month old named Alani and things have > been > bothering me for a few months.Everyone says I'm paranoid but I'm not sure > of this.Anyways I'm thinking that Alani might have scoliosis too.Has this > happened to anyone before with a sibling having it? Ok I'll tell you why > I > think she has it.First I'll tell you she is a very chunky baby so that is > one of the reasons i'm not totally sure,but she leans to one side,she has > a > shoulder lean, and to me it seem shes growing some bumps on her back not > bad > like Arianas but it is so hard to tell cause she has such a chubby > back.She also clenthes her fists all the time with her arms up to the side > not > sure if that has anything to do with it.But she also has an issue with > laying > on her tummy for long periods of time just like Ariana.I don't know what > to > do I'm so frustrated cause it's hard dealing with one child having > scoliosis but two I think I might just lose it.Well I know she has a 9 > month check > up coming up so I'm gonna have her doctor check it out he is the same > doctor that Ariana has.I'm just worried that he'll think I'm paranoid > too.And > with her being so chubby it's hard to see her spine. So please give me > some > advice or what you think.I just need to talk to people that is going > through this too. > > Ariana has double curve 26* and 34 with rotation! > Thanks, > Mandy,Adam,Ariana, & Alani > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2011 Report Share Posted August 21, 2011 Just to update everyone When I scheduled Ariana's second cast on and off I spoke with the sectrotary about Alani and she said schedule her for an appointment with Dr. at strong ortho so we got the same doctor for her on November 1st.So I will let you all know what happens but I'm still gonna discuss this with her pediatrian anyways. Thanks, Mandy Motzer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2011 Report Share Posted August 22, 2011 Your darlings are in great hands. Please keep us posted. HRH > > > Just to update everyone When I scheduled Ariana's second cast on and off I > spoke with the sectrotary about Alani and she said schedule her for an > appointment with Dr. at strong ortho so we got the same doctor for > her on November 1st.So I will let you all know what happens but I'm still > gonna discuss this with her pediatrian anyways. > > > Thanks, > Mandy Motzer > > Quote Link to comment Share on other sites More sharing options...
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