Re: Anyone encountered this?

[Guest guest]

Doc self- resolved after only 2 casts and lots of PT. He was only casted b/c he was so high on his curve and continuously getting pneumonia. He's holding under 20 currently.aFrom: lucyrichmondsmom <lucyrichmondsmom@...>infantile scoliosis treatment Sent: Monday, August 15, 2011 7:58 PMSubject:

Anyone encountered this?

Hi! I am Lucy's mom. Lucy is 7 months old today and completely adorable.

We just went for our checkup x-rays today. A little background: we noticed her curve at 7 weeks. Her Cobb angle measured 39 degrees at 3 months old and 22 degrees at 4-1/2 months old. Her RVAD was always measured at almost 0. Today, at 7 months old, she is still at 22 degrees. She seems so much better because we have been doing PT, so we were disappointed to see her curve had stalled out. Her doc still thinks she is the self-resolving infantile scoliosis, but now I am worried again. We took her to a Mehta trained doc (dr.s in Cincinnati) and he thought she was self- resolving, too)

Anyone experienced this?

[Guest guest]

yes this happened to my daughter at first.But they basically have to wait and

watch cause my daughters would get better then get bad again so just keep

praying and hopefully she wont be like my daughter cause she started with a

single curve now is a double curve and has rotation.So now she is in a cast but

dr. doesnt know if it will work because double curves can be hard to manage.Just

stay on top of it and if you are still concerned you can try bracing like we did

since she was 5 months till recently. She wass in the brace 23 and one and the

one was for bathing, but its a huge commintment and can be difficult to do

diaper changes especially as they get older and dont want to sit still it took

two of us to change her diaper so i had to become a stay at home mom and

srtuggle sometimes but it well worth it.

Good louck and best wishes!

>

> Hi! I am Lucy's mom. Lucy is 7 months old today and completely adorable.

>

> We just went for our checkup x-rays today. A little background: we noticed

her curve at 7 weeks. Her Cobb angle measured 39 degrees at 3 months old and 22

degrees at 4-1/2 months old. Her RVAD was always measured at almost 0. Today,

at 7 months old, she is still at 22 degrees. She seems so much better because

we have been doing PT, so we were disappointed to see her curve had stalled out.

Her doc still thinks she is the self-resolving infantile scoliosis, but now I am

worried again. We took her to a Mehta trained doc (dr.s in Cincinnati) and he

thought she was self- resolving, too)

>

> Anyone experienced this?

>

>

>

[Guest guest]

We go back in 5 months at her first birthday. He said bring her back if we see anything change before then. I plan to start taking weekly pictures of her back to make sure nothing gets worse in the mean time. Nervous!Sent from my iPadOn Aug 16, 2011, at 10:29 AM, heather@... wrote:

I know others have experienced this as well....I know that you will be

watching her back like a hawk and am releived to hear that you are going

to CCMH. If she doesnt self resolve she is in great hands and the doc

there will also be keeping a close eye on her.

Try not to worry...easier said than done I know. When do you go back for

an eval?

HRH

> Hi! I am Lucy's mom. Lucy is 7 months old today and completely adorable.

>

> We just went for our checkup x-rays today. A little background: we

> noticed her curve at 7 weeks. Her Cobb angle measured 39 degrees at 3

> months old and 22 degrees at 4-1/2 months old. Her RVAD was always

> measured at almost 0. Today, at 7 months old, she is still at 22 degrees.

> She seems so much better because we have been doing PT, so we were

> disappointed to see her curve had stalled out. Her doc still thinks she

> is the self-resolving infantile scoliosis, but now I am worried again. We

> took her to a Mehta trained doc (dr.s in Cincinnati) and he thought she

> was self- resolving, too)

>

> Anyone experienced this?

>

>

>

>

[Guest guest]

Taking pics is an effective way to see progression.  GOOD IDEA!!!!  Please keep us posted.  I would love to add a “resolving story†to the site!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Sent: Tuesday, August 16, 2011 7:34 PMinfantile scoliosis treatment Subject: Re: Anyone encountered this? We go back in 5 months at her first birthday. He said bring her back if we see anything change before then. I plan to start taking weekly pictures of her back to make sure nothing gets worse in the mean time. Nervous!Sent from my iPadOn Aug 16, 2011, at 10:29 AM, heather@... wrote: I know others have experienced this as well....I know that you will bewatching her back like a hawk and am releived to hear that you are goingto CCMH. If she doesnt self resolve she is in great hands and the docthere will also be keeping a close eye on her.Try not to worry...easier said than done I know. When do you go back foran eval?HRH> Hi! I am Lucy's mom. Lucy is 7 months old today and completely adorable.>> We just went for our checkup x-rays today. A little background: we> noticed her curve at 7 weeks. Her Cobb angle measured 39 degrees at 3> months old and 22 degrees at 4-1/2 months old. Her RVAD was always> measured at almost 0. Today, at 7 months old, she is still at 22 degrees.> She seems so much better because we have been doing PT, so we were> disappointed to see her curve had stalled out. Her doc still thinks she> is the self-resolving infantile scoliosis, but now I am worried again. We> took her to a Mehta trained doc (dr.s in Cincinnati) and he thought she> was self- resolving, too)>> Anyone experienced this?>> >>