Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Hi everyone....thanks so much for responding to my frantic emails the past two nights. We just got back from seeing his pediatrician. I am almost disappointed she did not find anything that made her feel it is a hernia. Only because she feels the brace is not allowing his muscles to grow/form and build up like a "normal" child. My husband and I just had this talk recently!!!! I ask her what type of long term damage the brace could do and she had no clue because is her first as far as Infantile Scoliosis. I have sent the picture to his ortho and orthotist and am waiting to hear back from them. , I REALLY want him to have a brace with the tummy cutout!!!!! Who can I put them in contact with since I am pretty sure they have never done one with the cutout. I will call today to get in for a brace check. I talked to his orthotist yesterday and she said maybe we need to flare it more at the bottom. For now that will work, but I am going to push for a tummy cutout brace! *****If you are reading this and go to ish Rite and your child has a brace with a tummy cutout please contact me.***** Also she highly urged me to get him into a swimming and or gymnastic program. ASAP! Thanks again everyone....I'll keep you posted. TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, Texas. After being treated in a series of 6 casts for 14 months he is now in a brace and has been since September 2007. EARLY Treatment does work if done properly. You can read 's story at.... http://www.infantilescoliosis.org/stories.html Or follow our family one day at a time......http://thefontenotslife.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
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