Re: Cast #3 Applied (But what a horror)

[Guest guest]

So sorry that happened! I agree with others, I think it was an adverse reaction to one of the sedation meds. I would call your care coordinator and make sure she is aware what happened. Also know that whatever works the last time may not work for future times. As our kids grow and their systems change, some meds don't respond in their system the same. Most importantly, don't blame yourself or your son. Keep reminding yourself and him that its ok, things will be different next time.My daughter responds like you described if she DOESN'T have the Versed. I even request it when we have MRI's and they never want to give it to her because its so short of procedure. They can never believe that Grace as tiny and petite as she is

can fight like she's 10x's her size! It takes 3 or more of us to hold her down for blood draws or anything. Its amazing what strength their little bodies can come up with.Hugs to you! Please let us know if there is anything else we can do to help!Oh, btw, why don't they feed him before you leave the hospital? We always wake up, drink some water or apple juice, move on to chicken soup and crackers, then order a meal from the kitchen (usually mac and cheese, broccoli, chocolate pudding) before we go home. Do they rush you out the door? I don't go home until I am confident she's ok and fully awake. We've been there up to 18 hours from start to finish before. JaneFrom: "suzy3333@..." <suzy3333@...>infantile scoliosis treatment Sent: Saturday, July 9, 2011 4:56 AMSubject: Cast #3 Applied (But what a horror)

Good morning all. Shane had his 3rd cast applied yesterday at Shriners Philly by Dr. C. It was such a horror this time around and I'm just waiting for the letter from them asking us to NEVER come back.

It started with the fact that he had to get up a 4am to get ready to leave. He had nothing to eat since 6pm the night before (so I have a tired, hungry and thirsty 3 year old). Then in the PACU, they hand me the "happy juice" that they give him to make him dopey. It doesn't work. It never has. So, although I tried to explain that to them, they had me forcefully give it to him. That started the problem. He didn't want to swallow it. So, while I had to force his mouth to stay closed with one hand, I had to rub his throat with the other (to get him to swallow it). He hated it, he was dry heaving and screaming at me all while everyone looked on. Did I mention that it never makes him dopey anyway?

Then, he comes back to the PACU unit after the procedure and he is totally out of control. He is flaring around, screaming and cursing everyone out. (It was like Blair took over his body and I was just waiting for his head to spin around). He was screaming that he wanted to go home (which we couldn't do at that moment because he still needed to be petaled and have his in-cast x-ray). He wanted his juice bottle but they told him he couldn't have it. He wanted to eat and they said he had to wait until he got home. I tried to comfort him (while he was on the bed) by rubbing his legs and telling him it was going to be okay. He then, open handed, with his left hand, smacked me in the face (on my right cheek). Then I tried to sit in a chair and hold him (which was hard since he was still flaring around) to comfort him so he would be closer to me and he bit down on my right arm. He bit me so hard that I started to scream, "YOU'RE HURTING ME". At that point, a nurse heard me and came running over and with one hand, pulled his head back and the other hand she squeezed his cheeks so that he could release the hold his had on my arm. I never knew the skin on my arm could stretch so much. Had that nurse not come when she did, he would've had bitten off the chunk of my arm that he had a grip of and I would've required stitches.

At that point, I put him (still connected to all the wires and iv) in his stroller and told them I was leaving and that I was not taking him while he was like that. I really needed to use the bathroom and I also wanted to wash off my arm and cool off. (I was afraid that if I didn't remove myself from that situation, that I might hurt him the way he had just hurt me and I didn't want that to happen). So, I went to the bathroom and went right back.

When I returned (about 3 minutes later), he was no better. He was telling everyone who tried to help, "f*** you". Even Dr. C., when he came over to check on Shane, he told him, "f*** you". I was mortified. I was trying to stop it but the more I did, the more and louder he would say it. They did get a social worker to come and stay with us. I couldn't stop crying. It was so hard to see my baby like that. He has NEVER acted like that and it hurt me so much to see him like that.

I finally, against what the nurse had said, gave him his juice bottle and a Rice Krispie treat. After all, after cast #2, the nurses gave him chicken nuggets and mashed potatoes. So, I figured a juice bottle and Rice Krispie treat would be okay. Boy, what a difference. He was completely calmed down and instead of saying "f*** you" to everyone that came to help, he started saying, "thank you". I now got my Shane back.

I am so afraid that because of his behavior, especially to Dr. C., that they are going to send us a letter or call us and tell us to never come back. If that were to happen, I don't know where we would go for his treatment. I really love it at Shriner's and Dr. C is great (as well as his staff).

And even if they allow us to continue treatment there, how do I face all of these people again (especially Dr. C.) after Shane had cursed them out with his "f*** you" rant?

Has anything like this ever happened to anyone else? Shane has NEVER acted like this before (or even remotely close to acting like this before). I am mortified and afraid we will not be welcomed back.

By the way, Dr. C. told me that Shane had woken up before they even left the operating room (which has also never happened). He usually wakes up with me next to him. This time, he didn't.

Please help. What should I do? What would you guys do?

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