Re: A reason to celebrate..long

[Guest guest]

, how brilliant for him, and for all of you. It is good that the staff are

seeing positive results too, coz they will be encouraged to do it well.

Beaming smiles from UK Sue

>

> Last week my son was supposed to have an EEG. I really didn't want to go

through with it and posted a while back about it. Our Neurologist in Sweden

reassured me that we should do it and that the sedation was very mild and she

used it all of the time without a problem. I wanted to use melatonin as I knew

what I was dealing with but she really wanted to keep that one for night time.

> Anyway we went to the hospital and they gave him the sedation in the form of

drops. After ten minutes my sons eyes started twitching and his hands were

flapping about just like they were a year ago. I was so angry and upset and he

was so active they couldn't do the EEG anyway.

> The effects of the medicine soon wore off but it took two days of good food

and supps to get my boy back.

> I'm furious with the neurologist and have asked for an explanation but she's

on holidays...lucky her.

> Anyway my point is that I have been angry and upset for a week now and today

that changed.

> We do a type of behavioural therapy which I would say is like RDI. We had a

meeting today with the head therapist and the day care teachers that help with

the program. Six months ago I was in tears as we weren't getting anywhere. Our

son wouldn't sit at the table and the day care teachers weren't able to/or doing

the required training. Then today I actually sat back and read the notes on our

beautiful boy. He now sits on the stool at the table, he understands how the

training process works, he responds to prompting, he knows how to take turns, he

can train with other children, he's curious, he has fantastic eye contact, he

loves being praised, he's started to follow verbal instructions given without

prompting, he is great with colours/forms and categories and he's begun to use

fantasy when playing.

> I'm sure there are more and I won't go on as many of you do far more advanced

training then us in sleepy old Sweden but honestly, I had tears running down my

face today! When we started in August he couldn't even sit at the table but

today I feel the need to celebrate his achievements and know that the diet has

helped, that all the supps have helped and that it's all worth it.

> I know that this is only the beginning but today I really feel I have reason

to be thankful and although it was long, thanks for letting me share this with

you.

> x

>

[Guest guest]

, how brilliant for him, and for all of you. It is good that the staff are

seeing positive results too, coz they will be encouraged to do it well.

Beaming smiles from UK Sue

>

> Last week my son was supposed to have an EEG. I really didn't want to go

through with it and posted a while back about it. Our Neurologist in Sweden

reassured me that we should do it and that the sedation was very mild and she

used it all of the time without a problem. I wanted to use melatonin as I knew

what I was dealing with but she really wanted to keep that one for night time.

> Anyway we went to the hospital and they gave him the sedation in the form of

drops. After ten minutes my sons eyes started twitching and his hands were

flapping about just like they were a year ago. I was so angry and upset and he

was so active they couldn't do the EEG anyway.

> The effects of the medicine soon wore off but it took two days of good food

and supps to get my boy back.

> I'm furious with the neurologist and have asked for an explanation but she's

on holidays...lucky her.

> Anyway my point is that I have been angry and upset for a week now and today

that changed.

> We do a type of behavioural therapy which I would say is like RDI. We had a

meeting today with the head therapist and the day care teachers that help with

the program. Six months ago I was in tears as we weren't getting anywhere. Our

son wouldn't sit at the table and the day care teachers weren't able to/or doing

the required training. Then today I actually sat back and read the notes on our

beautiful boy. He now sits on the stool at the table, he understands how the

training process works, he responds to prompting, he knows how to take turns, he

can train with other children, he's curious, he has fantastic eye contact, he

loves being praised, he's started to follow verbal instructions given without

prompting, he is great with colours/forms and categories and he's begun to use

fantasy when playing.

> I'm sure there are more and I won't go on as many of you do far more advanced

training then us in sleepy old Sweden but honestly, I had tears running down my

face today! When we started in August he couldn't even sit at the table but

today I feel the need to celebrate his achievements and know that the diet has

helped, that all the supps have helped and that it's all worth it.

> I know that this is only the beginning but today I really feel I have reason

to be thankful and although it was long, thanks for letting me share this with

you.

> x

>

[Guest guest]

, how brilliant for him, and for all of you. It is good that the staff are

seeing positive results too, coz they will be encouraged to do it well.

Beaming smiles from UK Sue

>

> Last week my son was supposed to have an EEG. I really didn't want to go

through with it and posted a while back about it. Our Neurologist in Sweden

reassured me that we should do it and that the sedation was very mild and she

used it all of the time without a problem. I wanted to use melatonin as I knew

what I was dealing with but she really wanted to keep that one for night time.

> Anyway we went to the hospital and they gave him the sedation in the form of

drops. After ten minutes my sons eyes started twitching and his hands were

flapping about just like they were a year ago. I was so angry and upset and he

was so active they couldn't do the EEG anyway.

> The effects of the medicine soon wore off but it took two days of good food

and supps to get my boy back.

> I'm furious with the neurologist and have asked for an explanation but she's

on holidays...lucky her.

> Anyway my point is that I have been angry and upset for a week now and today

that changed.

> We do a type of behavioural therapy which I would say is like RDI. We had a

meeting today with the head therapist and the day care teachers that help with

the program. Six months ago I was in tears as we weren't getting anywhere. Our

son wouldn't sit at the table and the day care teachers weren't able to/or doing

the required training. Then today I actually sat back and read the notes on our

beautiful boy. He now sits on the stool at the table, he understands how the

training process works, he responds to prompting, he knows how to take turns, he

can train with other children, he's curious, he has fantastic eye contact, he

loves being praised, he's started to follow verbal instructions given without

prompting, he is great with colours/forms and categories and he's begun to use

fantasy when playing.

> I'm sure there are more and I won't go on as many of you do far more advanced

training then us in sleepy old Sweden but honestly, I had tears running down my

face today! When we started in August he couldn't even sit at the table but

today I feel the need to celebrate his achievements and know that the diet has

helped, that all the supps have helped and that it's all worth it.

> I know that this is only the beginning but today I really feel I have reason

to be thankful and although it was long, thanks for letting me share this with

you.

> x

>

[Guest guest]

That is such a great story to hear! Thanks for sharing it . It's an amazing

feeling isnt it when you can see that all the hard work pays off. Well done to

you and your son.

>

> Last week my son was supposed to have an EEG. I really didn't want to go

through with it and posted a while back about it. Our Neurologist in Sweden

reassured me that we should do it and that the sedation was very mild and she

used it all of the time without a problem. I wanted to use melatonin as I knew

what I was dealing with but she really wanted to keep that one for night time.

> Anyway we went to the hospital and they gave him the sedation in the form of

drops. After ten minutes my sons eyes started twitching and his hands were

flapping about just like they were a year ago. I was so angry and upset and he

was so active they couldn't do the EEG anyway.

> The effects of the medicine soon wore off but it took two days of good food

and supps to get my boy back.

> I'm furious with the neurologist and have asked for an explanation but she's

on holidays...lucky her.

> Anyway my point is that I have been angry and upset for a week now and today

that changed.

> We do a type of behavioural therapy which I would say is like RDI. We had a

meeting today with the head therapist and the day care teachers that help with

the program. Six months ago I was in tears as we weren't getting anywhere. Our

son wouldn't sit at the table and the day care teachers weren't able to/or doing

the required training. Then today I actually sat back and read the notes on our

beautiful boy. He now sits on the stool at the table, he understands how the

training process works, he responds to prompting, he knows how to take turns, he

can train with other children, he's curious, he has fantastic eye contact, he

loves being praised, he's started to follow verbal instructions given without

prompting, he is great with colours/forms and categories and he's begun to use

fantasy when playing.

> I'm sure there are more and I won't go on as many of you do far more advanced

training then us in sleepy old Sweden but honestly, I had tears running down my

face today! When we started in August he couldn't even sit at the table but

today I feel the need to celebrate his achievements and know that the diet has

helped, that all the supps have helped and that it's all worth it.

> I know that this is only the beginning but today I really feel I have reason

to be thankful and although it was long, thanks for letting me share this with

you.

> x

>

[Guest guest]

that is wonderful, lovely to hear. Well done to you and to him!

Charlotte

> >

> > Last week my son was supposed to have an EEG. I really didn't want to go

through with it and posted a while back about it. Our Neurologist in Sweden

reassured me that we should do it and that the sedation was very mild and she

used it all of the time without a problem. I wanted to use melatonin as I knew

what I was dealing with but she really wanted to keep that one for night time.

> > Anyway we went to the hospital and they gave him the sedation in the form of

drops. After ten minutes my sons eyes started twitching and his hands were

flapping about just like they were a year ago. I was so angry and upset and he

was so active they couldn't do the EEG anyway.

> > The effects of the medicine soon wore off but it took two days of good food

and supps to get my boy back.

> > I'm furious with the neurologist and have asked for an explanation but she's

on holidays...lucky her.

> > Anyway my point is that I have been angry and upset for a week now and today

that changed.

> > We do a type of behavioural therapy which I would say is like RDI. We had a

meeting today with the head therapist and the day care teachers that help with

the program. Six months ago I was in tears as we weren't getting anywhere. Our

son wouldn't sit at the table and the day care teachers weren't able to/or doing

the required training. Then today I actually sat back and read the notes on our

beautiful boy. He now sits on the stool at the table, he understands how the

training process works, he responds to prompting, he knows how to take turns, he

can train with other children, he's curious, he has fantastic eye contact, he

loves being praised, he's started to follow verbal instructions given without

prompting, he is great with colours/forms and categories and he's begun to use

fantasy when playing.

> > I'm sure there are more and I won't go on as many of you do far more

advanced training then us in sleepy old Sweden but honestly, I had tears running

down my face today! When we started in August he couldn't even sit at the table

but today I feel the need to celebrate his achievements and know that the diet

has helped, that all the supps have helped and that it's all worth it.

> > I know that this is only the beginning but today I really feel I have reason

to be thankful and although it was long, thanks for letting me share this with

you.

> > x

> >

>