Re: Rochester 18, 19, 20th

[Guest guest]

Thinking about you Jenn. As you know this has been a long road for so I know all too well what you are going through right now.

I hope and pray for great news for Cole! Keep us posted.

TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, Texas. After being treated in a series of 6 casts for 14 months he is now in a brace and has been since September 2007.

EARLY Treatment does work if done properly.

You can read 's story at.... http://www.infantilescoliosis.org/stories.html

Or follow our family one day at a time......http://thefontenotslife.blogspot.com/

From: genericallyloud <jennifer.leggett@...>infantile scoliosis treatment Sent: Mon, April 11, 2011 12:25:17 PMSubject: Rochester 18, 19, 20th

We are going to Rochester to see Dr. S and (our orthotics guy) on the 18th, 19th and 20th of this month. Are any other families going to be out there any want to get together. We will get there probably late afternoon on the 18th. On the 19th we see at 9am to get a new brace molded and Dr. S at 10:45 to see how our back is holding. Then we will be around the rest of the day on the 19th and most of the day on the 20th while we wait for our new brace. I am very anxious. I have felt like being sick for almost a week now. Cole has been in a brace for 1 year now! We moved into brace at 5 degrees laying down and 11 standing (both out of cast). At our 6 month follow up our numbers were a mix. 0 laying down(!!!) and 18 standing. Cole is terrified of the x-rays and it was a HUGE struggle to get them done. Based on a physical exam our doctor concluded they were likely not accurate since he looked very very straight and he felt that the 18 was

not correct. Based on this we continued to brace. Now, 6 months later, Cole's back still looks amazing, but I am nervous the 18 was accurate and that we will still be there or ever worse and will be looking at another cast. If that needs to happen, it will be fine. Cast life for our family has always been pretty easy. It will however, be a blow to the fact that we were cured and that we may have a longer road ahead of us than I would like. Anyways let us know if you want to meet up! JennMommy to Cole (3) and Max (9 months)

[Guest guest]

Hoping everything gies smoothly and you get an excellent xray to ease your mind!

Sometimes it's so hard to get tots stand still!

Wishing you the best,

T

Sent from my iPhone

On Apr 11, 2011, at 12:25 PM, " genericallyloud " <jennifer.leggett@...>

wrote:

We are going to Rochester to see Dr. S and (our orthotics guy) on the 18th,

19th and 20th of this month. Are any other families going to be out there any

want to get together. We will get there probably late afternoon on the 18th.

On the 19th we see at 9am to get a new brace molded and Dr. S at 10:45 to

see how our back is holding. Then we will be around the rest of the day on the

19th and most of the day on the 20th while we wait for our new brace.

I am very anxious. I have felt like being sick for almost a week now. Cole has

been in a brace for 1 year now! We moved into brace at 5 degrees laying down

and 11 standing (both out of cast). At our 6 month follow up our numbers were a

mix. 0 laying down(!!!) and 18 standing. Cole is terrified of the x-rays and

it was a HUGE struggle to get them done. Based on a physical exam our doctor

concluded they were likely not accurate since he looked very very straight and

he felt that the 18 was not correct. Based on this we continued to brace. Now,

6 months later, Cole's back still looks amazing, but I am nervous the 18 was

accurate and that we will still be there or ever worse and will be looking at

another cast.

If that needs to happen, it will be fine. Cast life for our family has always

been pretty easy. It will however, be a blow to the fact that we were cured and

that we may have a longer road ahead of us than I would like.

Anyways let us know if you want to meet up!

Jenn

Mommy to Cole (3) and Max (9 months)

------------------------------------

[Guest guest]

Waiting to hear how well everything goes! Good luck next week!

Shauna

Kelsey, Kieran and 's mom

>

> We are going to Rochester to see Dr. S and (our orthotics guy) on the

18th, 19th and 20th of this month. Are any other families going to be out there

any want to get together. We will get there probably late afternoon on the

18th. On the 19th we see at 9am to get a new brace molded and Dr. S at

10:45 to see how our back is holding. Then we will be around the rest of the

day on the 19th and most of the day on the 20th while we wait for our new brace.

>

> I am very anxious. I have felt like being sick for almost a week now. Cole

has been in a brace for 1 year now! We moved into brace at 5 degrees laying

down and 11 standing (both out of cast). At our 6 month follow up our numbers

were a mix. 0 laying down(!!!) and 18 standing. Cole is terrified of the

x-rays and it was a HUGE struggle to get them done. Based on a physical exam

our doctor concluded they were likely not accurate since he looked very very

straight and he felt that the 18 was not correct. Based on this we continued to

brace. Now, 6 months later, Cole's back still looks amazing, but I am nervous

the 18 was accurate and that we will still be there or ever worse and will be

looking at another cast.

>

> If that needs to happen, it will be fine. Cast life for our family has always

been pretty easy. It will however, be a blow to the fact that we were cured and

that we may have a longer road ahead of us than I would like.

>

> Anyways let us know if you want to meet up!

>

> Jenn

> Mommy to Cole (3) and Max (9 months)

>

>

>

> ------------------------------------

>

>

[Guest guest]

We will be thinking of you this week! Hope all od your apts go smoothly and Cole

handles it in stride! Who knows, maybe you will even go home without a brace!

T

Sent from my iPhone

On Apr 11, 2011, at 12:25 PM, " genericallyloud " <jennifer.leggett@...>

wrote:

We are going to Rochester to see Dr. S and (our orthotics guy) on the 18th,

19th and 20th of this month. Are any other families going to be out there any

want to get together. We will get there probably late afternoon on the 18th.

On the 19th we see at 9am to get a new brace molded and Dr. S at 10:45 to

see how our back is holding. Then we will be around the rest of the day on the

19th and most of the day on the 20th while we wait for our new brace.

I am very anxious. I have felt like being sick for almost a week now. Cole has

been in a brace for 1 year now! We moved into brace at 5 degrees laying down

and 11 standing (both out of cast). At our 6 month follow up our numbers were a

mix. 0 laying down(!!!) and 18 standing. Cole is terrified of the x-rays and

it was a HUGE struggle to get them done. Based on a physical exam our doctor

concluded they were likely not accurate since he looked very very straight and

he felt that the 18 was not correct. Based on this we continued to brace. Now,

6 months later, Cole's back still looks amazing, but I am nervous the 18 was

accurate and that we will still be there or ever worse and will be looking at

another cast.

If that needs to happen, it will be fine. Cast life for our family has always

been pretty easy. It will however, be a blow to the fact that we were cured and

that we may have a longer road ahead of us than I would like.

Anyways let us know if you want to meet up!

Jenn

Mommy to Cole (3) and Max (9 months)

------------------------------------

[Guest guest]

We will be thinking of you this week! Hope all od your apts go smoothly and Cole

handles it in stride! Who knows, maybe you will even go home without a brace!

T

Sent from my iPhone

On Apr 11, 2011, at 12:25 PM, " genericallyloud " <jennifer.leggett@...>

wrote:

We are going to Rochester to see Dr. S and (our orthotics guy) on the 18th,

19th and 20th of this month. Are any other families going to be out there any

want to get together. We will get there probably late afternoon on the 18th.

On the 19th we see at 9am to get a new brace molded and Dr. S at 10:45 to

see how our back is holding. Then we will be around the rest of the day on the

19th and most of the day on the 20th while we wait for our new brace.

I am very anxious. I have felt like being sick for almost a week now. Cole has

been in a brace for 1 year now! We moved into brace at 5 degrees laying down

and 11 standing (both out of cast). At our 6 month follow up our numbers were a

mix. 0 laying down(!!!) and 18 standing. Cole is terrified of the x-rays and

it was a HUGE struggle to get them done. Based on a physical exam our doctor

concluded they were likely not accurate since he looked very very straight and

he felt that the 18 was not correct. Based on this we continued to brace. Now,

6 months later, Cole's back still looks amazing, but I am nervous the 18 was

accurate and that we will still be there or ever worse and will be looking at

another cast.

If that needs to happen, it will be fine. Cast life for our family has always

been pretty easy. It will however, be a blow to the fact that we were cured and

that we may have a longer road ahead of us than I would like.

Anyways let us know if you want to meet up!

Jenn

Mommy to Cole (3) and Max (9 months)

------------------------------------

[Guest guest]

Thank you everyone for all of your positive thoughts! Looking at him, my gut is

that we will start to wean him. I honestly think my comfort zone is 6 hours a

day out of brace. I think he would love it, and I would feel that he gets the

benefits of the support of a brace and the ability of strengthening his core

muscles associated with time out of the brace.

Cole is VERY excited about getting a new brace. I am going to try to get a

video of them molding the brace so I can share it with everyone so you can see

how it is done. I know I wish I had one to show him.

Jenn

Mommy to Cole

>

> We are going to Rochester to see Dr. S and (our orthotics guy) on the

18th, 19th and 20th of this month. Are any other families going to be out there

any want to get together. We will get there probably late afternoon on the

18th. On the 19th we see at 9am to get a new brace molded and Dr. S at

10:45 to see how our back is holding. Then we will be around the rest of the

day on the 19th and most of the day on the 20th while we wait for our new brace.

>

> I am very anxious. I have felt like being sick for almost a week now. Cole

has been in a brace for 1 year now! We moved into brace at 5 degrees laying

down and 11 standing (both out of cast). At our 6 month follow up our numbers

were a mix. 0 laying down(!!!) and 18 standing. Cole is terrified of the

x-rays and it was a HUGE struggle to get them done. Based on a physical exam

our doctor concluded they were likely not accurate since he looked very very

straight and he felt that the 18 was not correct. Based on this we continued to

brace. Now, 6 months later, Cole's back still looks amazing, but I am nervous

the 18 was accurate and that we will still be there or ever worse and will be

looking at another cast.

>

> If that needs to happen, it will be fine. Cast life for our family has always

been pretty easy. It will however, be a blow to the fact that we were cured and

that we may have a longer road ahead of us than I would like.

>

> Anyways let us know if you want to meet up!

>

> Jenn

> Mommy to Cole (3) and Max (9 months)

>

>

>

> ------------------------------------

>

>