Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Hi Sandy Your Eddie sounds a lot like my Lukas. We have been on Sara's diet for about a year and a half. We also had protein restrictions and I did my own variation of SCD when needed. I am curious. You mentioned Eddie was tolerating some lutein. I have only just started to experiment to see what he can and can't tolerate in this area. I am scared of doing this and that is why it has taken me this long to experiment. I put egg yolk in some Christmas cookies and had major sensory problems for 3 days. He didn't even eat many of them either. Which is unusual in itself...he loves his cookies. I recently tried giving him carrots which he used to love, but he won't go near them with a ten foot pole now. What are some of the things Eddie was able to tolerate, and how long were you restricting lutein before you experimented? much appreciated Sharon From: Sandy and Tim <sandyandtim@...>Autism Treatment Sent: Fri, February 5, 2010 6:35:03 AMSubject: Re: NAC Dave,I should mention we use 1 a day as the max dose (from memory they are 500mg caps which is quite a lot). We used to use only 1-3 per week.Sandyxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Hi Sharon, We are the same with carrots! Eddie used to love them - used to love the carrot puree baby foods. He loved the butternut too guess he was craving the luteins? From memory we were pretty much lutein free for a year (except maybe some meat fat but not much - Eddie could never tolerate chicken fat so we knew to stay away from that. I wonder if the SCD chicken broths are a problem for some other children). We started introducing luteins VERY slowly. At first we just stopped peeling the courgettes and little things like that. Over months we gave a little more colour - for example giving him greener lettuce leaves not just the iceberg type. Mind we still give him the paler ones - we know we have to keep his overall colours on the low side. So it's a slow crawl I'm afraid but we're happy that we're going in the right direction. I forgot to mention we found he was fine with tomatoes and all colours of peppers even the green. I don't think he could have tolerated these before - but now he does and he can have celery too. He usually has a salad each day for one of his meals so he's getting these regularly. For veg we just avoid dark greens and Eddie doesn't like carrot. But we have started peas in the last few months and he's fine with these - but we are always careful with amounts and have got used to kind of adding up all the colours he's had in the day. Sandyxx > > Hi Sandy > Â Â Your Eddie sounds a lot like my Lukas. We have been on Sara's diet for about a year and a half. We also had protein restrictions and I did my own variation of SCD when needed. I am curious. You mentioned Eddie was tolerating some lutein. I have only just started to experiment to see what he can and can't tolerate in this area. I am scared of doing this and that is why it has taken me this long to experiment. I put egg yolk in some Christmas cookies and had major sensory problems for 3 days. He didn't even eat many of them either. Which is unusual in itself...he loves his cookies. I recently tried giving him carrots which he used to love, but he won't go near them with a ten foot pole now. What are some of the things Eddie was able to tolerate, and how long were you restricting lutein before you experimented? > > much appreciated > Sharon > > > > ________________________________ > From: Sandy and Tim <sandyandtim@...> > Autism Treatment > Sent: Fri, February 5, 2010 6:35:03 AM > Subject: Re: NAC > > Â > Dave, > > I should mention we use 1 a day as the max dose (from memory they are 500mg caps which is quite a lot). We used to use only 1-3 per week. > Sandyxx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Sandy Just a note, Lukas never tolerated commercial chicken broth. I make my own just using cerliac, onion, salt and pepper and he loves it. I skim off as much as the fat that floats up top as I can get. Funny, I think Lukas and Eddie run very parallel. Thanks, I think I will expand my experiments a little. I think the next thing I try will be celery or peppers. Lukas also tolerates tomatoes, but I have stayed away from the skin. Sharon From: Sandy and Tim <sandyandtim@...>Autism Treatment Sent: Fri, February 5, 2010 10:17:34 AMnSubject: Re: NAC to Sandy Hi Sharon,We are the same with carrots! Eddie used to love them - used to love the carrot puree baby foods. He loved the butternut too guess he was craving the luteins?From memory we were pretty much lutein free for a year (except maybe some meat fat but not much - Eddie could never tolerate chicken fat so we knew to stay away from that. I wonder if the SCD chicken broths are a problem for some other children). We started introducing luteins VERY slowly. At first we just stopped peeling the courgettes and little things like that. Over months we gave a little more colour - for example giving him greener lettuce leaves not just the iceberg type. Mind we still give him the paler ones - we know we have to keep his overall colours on the low side. So it's a slow crawl I'm afraid but we're happy that we're going in the right direction. I forgot to mention we found he was fine with tomatoes and all colours of peppers even the green. I don't think he could have tolerated these before - but now he does and he can have celery too. He usually has a salad each day for one of his meals so he's getting these regularly. For veg we just avoid dark greens and Eddie doesn't like carrot. But we have started peas in the last few months and he's fine with these - but we are always careful with amounts and have got used to kind of adding up all the colours he's had in the day.Sandyxx>> Hi Sandy> Â Â Your Eddie sounds a lot like my Lukas. We have been on Sara's diet for about a year and a half. We also had protein restrictions and I did my own variation of SCD when needed. I am curious. You mentioned Eddie was tolerating some lutein. I have only just started to experiment to see what he can and can't tolerate in this area. I am scared of doing this and that is why it has taken me this long to experiment. I put egg yolk in some Christmas cookies and had major sensory problems for 3 days. He didn't even eat many of them either. Which is unusual in itself...he loves his cookies. I recently tried giving him carrots which he used to love, but he won't go near them with a ten foot pole now. What are some of the things Eddie was able to tolerate, and how long were you restricting lutein before you experimented? > > much appreciated> Sharon> > > > ____________ _________ _________ __> From: Sandy and Tim <sandyandtim@ ...>> Autism-Biomedical- Europe@grou ps.com> Sent: Fri, February 5, 2010 6:35:03 AM> Subject: Re: NAC> > Â > Dave,> > I should mention we use 1 a day as the max dose (from memory they are 500mg caps which is quite a lot). We used to use only 1-3 per week.> Sandyxx> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Sandy Just a note, Lukas never tolerated commercial chicken broth. I make my own just using cerliac, onion, salt and pepper and he loves it. I skim off as much as the fat that floats up top as I can get. Funny, I think Lukas and Eddie run very parallel. Thanks, I think I will expand my experiments a little. I think the next thing I try will be celery or peppers. Lukas also tolerates tomatoes, but I have stayed away from the skin. Sharon From: Sandy and Tim <sandyandtim@...>Autism Treatment Sent: Fri, February 5, 2010 10:17:34 AMnSubject: Re: NAC to Sandy Hi Sharon,We are the same with carrots! Eddie used to love them - used to love the carrot puree baby foods. He loved the butternut too guess he was craving the luteins?From memory we were pretty much lutein free for a year (except maybe some meat fat but not much - Eddie could never tolerate chicken fat so we knew to stay away from that. I wonder if the SCD chicken broths are a problem for some other children). We started introducing luteins VERY slowly. At first we just stopped peeling the courgettes and little things like that. Over months we gave a little more colour - for example giving him greener lettuce leaves not just the iceberg type. Mind we still give him the paler ones - we know we have to keep his overall colours on the low side. So it's a slow crawl I'm afraid but we're happy that we're going in the right direction. I forgot to mention we found he was fine with tomatoes and all colours of peppers even the green. I don't think he could have tolerated these before - but now he does and he can have celery too. He usually has a salad each day for one of his meals so he's getting these regularly. For veg we just avoid dark greens and Eddie doesn't like carrot. But we have started peas in the last few months and he's fine with these - but we are always careful with amounts and have got used to kind of adding up all the colours he's had in the day.Sandyxx>> Hi Sandy> Â Â Your Eddie sounds a lot like my Lukas. We have been on Sara's diet for about a year and a half. We also had protein restrictions and I did my own variation of SCD when needed. I am curious. You mentioned Eddie was tolerating some lutein. I have only just started to experiment to see what he can and can't tolerate in this area. I am scared of doing this and that is why it has taken me this long to experiment. I put egg yolk in some Christmas cookies and had major sensory problems for 3 days. He didn't even eat many of them either. Which is unusual in itself...he loves his cookies. I recently tried giving him carrots which he used to love, but he won't go near them with a ten foot pole now. What are some of the things Eddie was able to tolerate, and how long were you restricting lutein before you experimented? > > much appreciated> Sharon> > > > ____________ _________ _________ __> From: Sandy and Tim <sandyandtim@ ...>> Autism-Biomedical- Europe@grou ps.com> Sent: Fri, February 5, 2010 6:35:03 AM> Subject: Re: NAC> > Â > Dave,> > I should mention we use 1 a day as the max dose (from memory they are 500mg caps which is quite a lot). We used to use only 1-3 per week.> Sandyxx> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2010 Report Share Posted February 12, 2010 Hi Sharon, That's an idea. Eddie never tolerated our chicken broth. I didn't like to waste the bones so Tim and I had it and Eddie had something else - but I didn't skim it. The last year we've bought just the chicken thighs and not a whole chicken but I may try again with a chicken and skim the broth. Sandyxx > > > > Hi Sandy > >   Your Eddie sounds a lot like my Lukas. We have been on Sara's diet for about a year and a half. We also had protein restrictions and I did my own variation of SCD when needed. I am curious. You mentioned Eddie was tolerating some lutein. I have only just started to experiment to see what he can and can't tolerate in this area. I am scared of doing this and that is why it has taken me this long to experiment. I put egg yolk in some Christmas cookies and had major sensory problems for 3 days. He didn't even eat many of them either. Which is unusual in itself...he loves his cookies. I recently tried giving him carrots which he used to love, but he won't go near them with a ten foot pole now. What are some of the things Eddie was able to tolerate, and how long were you restricting lutein before you experimented? > > > > much appreciated > > Sharon > > > > > > > > ____________ _________ _________ __ > > From: Sandy and Tim <sandyandtim@ ...> > > Autism-Biomedical- Europe@grou ps.com > > Sent: Fri, February 5, 2010 6:35:03 AM > > Subject: Re: NAC > > > >  > > Dave, > > > > I should mention we use 1 a day as the max dose (from memory they are 500mg caps which is quite a lot). We used to use only 1-3 per week. > > Sandyxx > > > Quote Link to comment Share on other sites More sharing options...
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