Re: dry suits for swimming

May 23, 2011

Hi Tammy,

When will you be back in Rochester? We're due back in July.....- Noelle's mommy, 4 years oldRochester NYCasted 8 times for 1 1/2 years9 months in braceRegressed and went into cast 9Back in brace at 8 degrees supine, 13 standing! reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: Tammy- <johnnyc1966@...>Subject: dry suits for swimminginfantile scoliosis treatment Date: Sunday, May 22, 2011, 5:10 PM

With summer soon approaching we decided to try a waterproof cast. We are casted at Strong Memorial in Rochester and Dr. R and I discussed bracing for the summer but I wanted to stick with casting so we went with this one. Amaya is able to take baths, go in swimming pools and water parks. She can not go in lakes, rivers, or oceans. I like the cast as it is lighter then the other however, when she takes a bath or shower she is wet for hours, she drips from the bottom of the cast. I guess this is something I can deal with to enable her to enjoy summer. Seeing as I don't want to keep this type of cast on again I was doing research and found what is called a Hickman Drysuit, this is available through Hammond Drysuits. My husband and I have decided to order one for Amaya to be able to take swimming lessons this fall. They are quite pricey but I feel it will be money well spent in the long run. Amaya is in her 5th cast and we have seen

minimum improvement however I feel this is the best treatment to hold off what might be surgery. We have also decided to not x-ray her at every casting and cast removal. This will limit her exposure to radiation and possible side effects of that. She seems to have adjusted well to her cast and life with it. I remember when she was diagnosed with progressive infantile scoliosis in June of 2010, how scared and alone I felt. Then I found this group and without all of you I don't know what I would have done. I would love to be able to raise awareness of infantile scoliosis and hopefully Amaya and I will be in a local magazine to let others out there know they are not alone and that resources are available, as well as treatment options.Tammy Mullins, mom to Amaya almost 3diagnosed by mom in April 2010 and finally by pediatrician in Junecasting at Strong Memorial, Rochester, NY

May 23, 2011

Hi Tammy,

When will you be back in Rochester? We're due back in July.....- Noelle's mommy, 4 years oldRochester NYCasted 8 times for 1 1/2 years9 months in braceRegressed and went into cast 9Back in brace at 8 degrees supine, 13 standing! reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: Tammy- <johnnyc1966@...>Subject: dry suits for swimminginfantile scoliosis treatment Date: Sunday, May 22, 2011, 5:10 PM

With summer soon approaching we decided to try a waterproof cast. We are casted at Strong Memorial in Rochester and Dr. R and I discussed bracing for the summer but I wanted to stick with casting so we went with this one. Amaya is able to take baths, go in swimming pools and water parks. She can not go in lakes, rivers, or oceans. I like the cast as it is lighter then the other however, when she takes a bath or shower she is wet for hours, she drips from the bottom of the cast. I guess this is something I can deal with to enable her to enjoy summer. Seeing as I don't want to keep this type of cast on again I was doing research and found what is called a Hickman Drysuit, this is available through Hammond Drysuits. My husband and I have decided to order one for Amaya to be able to take swimming lessons this fall. They are quite pricey but I feel it will be money well spent in the long run. Amaya is in her 5th cast and we have seen

minimum improvement however I feel this is the best treatment to hold off what might be surgery. We have also decided to not x-ray her at every casting and cast removal. This will limit her exposure to radiation and possible side effects of that. She seems to have adjusted well to her cast and life with it. I remember when she was diagnosed with progressive infantile scoliosis in June of 2010, how scared and alone I felt. Then I found this group and without all of you I don't know what I would have done. I would love to be able to raise awareness of infantile scoliosis and hopefully Amaya and I will be in a local magazine to let others out there know they are not alone and that resources are available, as well as treatment options.Tammy Mullins, mom to Amaya almost 3diagnosed by mom in April 2010 and finally by pediatrician in Junecasting at Strong Memorial, Rochester, NY

May 23, 2011

Does this dry suit really work? This will be Timmy's 2nd summer with casting, and we know it is going to be tough. I emailed his Dr. about the Hickman drysuit, and he didn't think that it would work. Has anyone else used it? I would love for Timmy to be able to get into the pool a few times. Opinions???????

From: Tammy- <johnnyc1966@...>Subject: dry suits for swimminginfantile scoliosis treatment Date: Sunday, May 22, 2011, 5:10 PM

With summer soon approaching we decided to try a waterproof cast. We are casted at Strong Memorial in Rochester and Dr. R and I discussed bracing for the summer but I wanted to stick with casting so we went with this one. Amaya is able to take baths, go in swimming pools and water parks. She can not go in lakes, rivers, or oceans. I like the cast as it is lighter then the other however, when she takes a bath or shower she is wet for hours, she drips from the bottom of the cast. I guess this is something I can deal with to enable her to enjoy summer. Seeing as I don't want to keep this type of cast on again I was doing research and found what is called a Hickman Drysuit, this is available through Hammond Drysuits. My husband and I have decided to order one for Amaya to be able to take swimming lessons this fall. They are quite pricey but I feel it will be money well spent in the long run. Amaya is in her 5th cast and we have seen

minimum improvement however I feel this is the best treatment to hold off what might be surgery. We have also decided to not x-ray her at every casting and cast removal. This will limit her exposure to radiation and possible side effects of that. She seems to have adjusted well to her cast and life with it. I remember when she was diagnosed with progressive infantile scoliosis in June of 2010, how scared and alone I felt. Then I found this group and without all of you I don't know what I would have done. I would love to be able to raise awareness of infantile scoliosis and hopefully Amaya and I will be in a local magazine to let others out there know they are not alone and that resources are available, as well as treatment options.Tammy Mullins, mom to Amaya almost 3diagnosed by mom in April 2010 and finally by pediatrician in Junecasting at Strong Memorial, Rochester, NY

May 23, 2011

Does this dry suit really work? This will be Timmy's 2nd summer with casting, and we know it is going to be tough. I emailed his Dr. about the Hickman drysuit, and he didn't think that it would work. Has anyone else used it? I would love for Timmy to be able to get into the pool a few times. Opinions???????

From: Tammy- <johnnyc1966@...>Subject: dry suits for swimminginfantile scoliosis treatment Date: Sunday, May 22, 2011, 5:10 PM

With summer soon approaching we decided to try a waterproof cast. We are casted at Strong Memorial in Rochester and Dr. R and I discussed bracing for the summer but I wanted to stick with casting so we went with this one. Amaya is able to take baths, go in swimming pools and water parks. She can not go in lakes, rivers, or oceans. I like the cast as it is lighter then the other however, when she takes a bath or shower she is wet for hours, she drips from the bottom of the cast. I guess this is something I can deal with to enable her to enjoy summer. Seeing as I don't want to keep this type of cast on again I was doing research and found what is called a Hickman Drysuit, this is available through Hammond Drysuits. My husband and I have decided to order one for Amaya to be able to take swimming lessons this fall. They are quite pricey but I feel it will be money well spent in the long run. Amaya is in her 5th cast and we have seen

minimum improvement however I feel this is the best treatment to hold off what might be surgery. We have also decided to not x-ray her at every casting and cast removal. This will limit her exposure to radiation and possible side effects of that. She seems to have adjusted well to her cast and life with it. I remember when she was diagnosed with progressive infantile scoliosis in June of 2010, how scared and alone I felt. Then I found this group and without all of you I don't know what I would have done. I would love to be able to raise awareness of infantile scoliosis and hopefully Amaya and I will be in a local magazine to let others out there know they are not alone and that resources are available, as well as treatment options.Tammy Mullins, mom to Amaya almost 3diagnosed by mom in April 2010 and finally by pediatrician in Junecasting at Strong Memorial, Rochester, NY

May 23, 2011

here is a link that shows a child who is in a cast using the pool with drysuit.http://www.youtube.com/user/mrdylanator100#p/a/u/2/5UO0vXHpdcUit does work.From: Baker <tkbaker05@...>infantile scoliosis treatment Sent: Mon, May 23, 2011 11:53:54

AMSubject: Re: dry suits for swimming

Does this dry suit really work? This will be Timmy's 2nd summer with casting, and we know it is going to be tough. I emailed his Dr. about the Hickman drysuit, and he didn't think that it would work. Has anyone else used it? I would love for Timmy to be able to get into the pool a few times. Opinions???????

From: Tammy- <johnnyc1966@...>Subject: dry suits for swimminginfantile scoliosis treatment Date: Sunday, May 22, 2011, 5:10 PM

With summer soon approaching we decided to try a waterproof cast. We are casted at Strong Memorial in Rochester and Dr. R and I discussed bracing for the summer but I wanted to stick with casting so we went with this one. Amaya is able to take baths, go in swimming pools and water parks. She can not go in lakes, rivers, or oceans. I like the cast as it is lighter then the other however, when she takes a bath or shower she is wet for hours, she drips from the bottom of the cast. I guess this is something I can deal with to enable her to enjoy summer. Seeing as I don't want to keep this type of cast on again I was doing research and found what is called a Hickman Drysuit, this is available through Hammond Drysuits. My husband and I have decided to order one for Amaya to be able to take swimming lessons this fall. They are quite pricey but I feel it will be money well spent in the long run. Amaya is in her 5th cast and we have seen

minimum improvement however I feel this is the best treatment to hold off what might be surgery. We have also decided to not x-ray her at every casting and cast removal. This will limit her exposure to radiation and possible side effects of that. She seems to have adjusted well to her cast and life with it. I remember when she was diagnosed with progressive infantile scoliosis in June of 2010, how scared and alone I felt. Then I found this group and without all of you I don't know what I would have done. I would love to be able to raise awareness of infantile scoliosis and hopefully Amaya and I will be in a local magazine to let others out there know they are not alone and that resources are available, as well as treatment options.Tammy Mullins, mom to Amaya almost 3diagnosed by mom in April 2010 and finally by pediatrician in Junecasting at Strong Memorial, Rochester,

NY

May 23, 2011

We have one for our son Kieran. We bought it at White's Diving. We love it!!

It works great. Kieran takes swim lessons. Will be swimming monday - thursday

the entire summer. You can't find pictures or a description of it on their web

site as a drysuit for medical purposes, but I believe it is called the Discovery

Dry Suit for kids, and I know that my son Kieran is not the only kid to have one

and wear one from about age 2 (or even younger) onward. Size the body extra big

to allow for growth. Make sure you get the seal areas sizes right, such as the

ankles, wrists, neck, elbows, knees, etc, depending on how it is make for your

child, I am told the seals can be trimmed but we have only had it for a couple

of months now and have not yet had to trim the seals so due to Kieran's growth

as of yet. We think it will last him about a year from the size we got it, and

the next one we get probably two years. Depending on how you size it, it may

only last 6 months. It cost us $500 + tax Canadian, and I am told if the seals

are damaged and need replacing they are around $130 each (or maybe that was both

leg seals...) So completely worth it!!! It has given our son so much. And we

did get the idea from the video of Dylan and from messaging his dad, who bought

his son Dylan the same suits from the same company. My son's is blue, but that

is the only difference from the one in the video.

Shauna

Kelsey, Kieran and 's mom

>

> >From: Tammy- <johnnyc1966@...>

> >Subject: dry suits for swimming

> >infantile scoliosis treatment

> >Date: Sunday, May 22, 2011, 5:10 PM

> >

> >With summer soon approaching we decided to try a waterproof cast. We are

casted

> >at Strong Memorial in Rochester and Dr. R and I discussed bracing for the

summer

> >but I wanted to stick with casting so we went with this one. Amaya is able to

> >take baths, go in swimming pools and water parks. She can not go in lakes,

> >rivers, or oceans. I like the cast as it is lighter then the other however,

when

> >she takes a bath or shower she is wet for hours, she drips from the bottom of

> >the cast. I guess this is something I can deal with to enable her to enjoy

> >summer.

> >

> >Seeing as I don't want to keep this type of cast on again I was doing

research

> >and found what is called a Hickman Drysuit, this is available through Hammond

> >Drysuits. My husband and I have decided to order one for Amaya to be able to

> >take swimming lessons this fall. They are quite pricey but I feel it will be

> >money well spent in the long run.

> >

> >Amaya is in her 5th cast and we have seen minimum improvement however I feel

> >this is the best treatment to hold off what might be surgery. We have also

> >decided to not x-ray her at every casting and cast removal. This will limit

her

> >exposure to radiation and possible side effects of that. She seems to have

> >adjusted well to her cast and life with it. I remember when she was diagnosed

> >with progressive infantile scoliosis in June of 2010, how scared and alone I

> >felt. Then I found this group and without all of you I don't know what I

would

> >have done. I would love to be able to raise awareness of infantile scoliosis

and

> >hopefully Amaya and I will be in a local magazine to let others out there

know

> >they are not alone and that resources are available, as well as treatment

> >options.

> >

> >Tammy Mullins, mom to Amaya almost 3

> >diagnosed by mom in April 2010 and finally by pediatrician in June

> >casting at Strong Memorial, Rochester, NY

> >

>

May 24, 2011

I can see how the legs and arms stay dry..but how does it keep the water from

going down the neck when he goes underwater???...

-Ami

> >

> > >From: Tammy- <johnnyc1966@>

> > >Subject: dry suits for swimming

> > >infantile scoliosis treatment

> > >Date: Sunday, May 22, 2011, 5:10 PM

> > >

> > >With summer soon approaching we decided to try a waterproof cast. We are

casted

> > >at Strong Memorial in Rochester and Dr. R and I discussed bracing for the

summer

> > >but I wanted to stick with casting so we went with this one. Amaya is able

to

> > >take baths, go in swimming pools and water parks. She can not go in lakes,

> > >rivers, or oceans. I like the cast as it is lighter then the other however,

when

> > >she takes a bath or shower she is wet for hours, she drips from the bottom

of

> > >the cast. I guess this is something I can deal with to enable her to enjoy

> > >summer.

> > >

> > >Seeing as I don't want to keep this type of cast on again I was doing

research

> > >and found what is called a Hickman Drysuit, this is available through

Hammond

> > >Drysuits. My husband and I have decided to order one for Amaya to be able

to

> > >take swimming lessons this fall. They are quite pricey but I feel it will

be

> > >money well spent in the long run.

> > >

> > >Amaya is in her 5th cast and we have seen minimum improvement however I

feel

> > >this is the best treatment to hold off what might be surgery. We have also

> > >decided to not x-ray her at every casting and cast removal. This will limit

her

> > >exposure to radiation and possible side effects of that. She seems to have

> > >adjusted well to her cast and life with it. I remember when she was

diagnosed

> > >with progressive infantile scoliosis in June of 2010, how scared and alone

I

> > >felt. Then I found this group and without all of you I don't know what I

would

> > >have done. I would love to be able to raise awareness of infantile

scoliosis and

> > >hopefully Amaya and I will be in a local magazine to let others out there

know

> > >they are not alone and that resources are available, as well as treatment

> > >options.

> > >

> > >Tammy Mullins, mom to Amaya almost 3

> > >diagnosed by mom in April 2010 and finally by pediatrician in June

> > >casting at Strong Memorial, Rochester, NY

> > >

> >

>

May 24, 2011

There is also a seal around the neck, just like the ones for the arms and legs.

It needs a special lubricant applied, I think it is silicone, to make it go on

and off easier, and there is a zipper in the back that is done up to close the

dry suit. A wax is applied to the seal to ensure it's waterproof, although it

is designed to be waterproof all on it's own. I think the wax also helps the

zipper open and close easier. Let your child into the water with the zipper

mostly done up and this will squeeze the air out of the drysuit. Let some more

air out with your hands around the shoulders as you do the suit up and in they

go, complete submersion. There are pictures of my son in a drysuit in the

Kieran album on this group.

Scuba divers use drysuits to keep their body dry, and therefore easier to keep

warm, while diving to deep depths, under pressure even. So drysuits are very

well tested and have been used for many years to keep the body completely dry.

White's Diving is a good manufacturer of drysuits. They are local to where I

live, as we have some of North America's excellent diving, with lots of little

Islands and everything else needed for good diving and lots of ocean life. Seen

two giant octopuses myself while scuba diving -- on the same dive!! It was

amazing, and so very close to my own front door. I know so many divers and the

suits they wear and what they think of them from different companies that

White's was a very good choice for us, plus they do make a kid's suit perfect

for scoliosis casts. And all their suits are custom made, it takes about 6

weeks to get one delivered. And I know they ship internationally. Other

drysuit manufacturers likely also make custom kid's drysuits, so if you have

another one in mind, maybe closer to where you are, give them a try.

Another word of advice -- wear a short sleeve shirt under the drysuit. It will

keep the plaster on the cast from rubbing on the suit and wearing it out. Also

sometimes a very little bit of water gets into the drysuit, especially when

taking it off, just a couple of drips or so. It shouldn't hurt the cast, just

wipe them off, but if wearing a short sleeve shirt then it won't even touch the

cast. Plus the shirt is comfortable and familiar and softer than the drysuit to

wear.

My son loves his drysuit so much, I highly recommend it, and I did check with

the doctor before I put Kieran in one so he could swim in a cast.

Shauna

mother of Kieran, Kelsey, and

> > >

> > > >From: Tammy- <johnnyc1966@>

> > > >Subject: dry suits for swimming

> > > >infantile scoliosis treatment

> > > >Date: Sunday, May 22, 2011, 5:10 PM

> > > >

> > > >With summer soon approaching we decided to try a waterproof cast. We are

casted

> > > >at Strong Memorial in Rochester and Dr. R and I discussed bracing for the

summer

> > > >but I wanted to stick with casting so we went with this one. Amaya is

able to

> > > >take baths, go in swimming pools and water parks. She can not go in

lakes,

> > > >rivers, or oceans. I like the cast as it is lighter then the other

however, when

> > > >she takes a bath or shower she is wet for hours, she drips from the

bottom of

> > > >the cast. I guess this is something I can deal with to enable her to

enjoy

> > > >summer.

> > > >

> > > >Seeing as I don't want to keep this type of cast on again I was doing

research

> > > >and found what is called a Hickman Drysuit, this is available through

Hammond

> > > >Drysuits. My husband and I have decided to order one for Amaya to be able

to

> > > >take swimming lessons this fall. They are quite pricey but I feel it will

be

> > > >money well spent in the long run.

> > > >

> > > >Amaya is in her 5th cast and we have seen minimum improvement however I

feel

> > > >this is the best treatment to hold off what might be surgery. We have

also

> > > >decided to not x-ray her at every casting and cast removal. This will

limit her

> > > >exposure to radiation and possible side effects of that. She seems to

have

> > > >adjusted well to her cast and life with it. I remember when she was

diagnosed

> > > >with progressive infantile scoliosis in June of 2010, how scared and

alone I

> > > >felt. Then I found this group and without all of you I don't know what I

would

> > > >have done. I would love to be able to raise awareness of infantile

scoliosis and

> > > >hopefully Amaya and I will be in a local magazine to let others out there

know

> > > >they are not alone and that resources are available, as well as treatment

> > > >options.

> > > >

> > > >Tammy Mullins, mom to Amaya almost 3

> > > >diagnosed by mom in April 2010 and finally by pediatrician in June

> > > >casting at Strong Memorial, Rochester, NY

> > > >

> > >

> >

>

May 24, 2011

Shauna,How old is your son and how long do you anticipate he will fit in his dry suit? Our Doc gave us the ok :)Kylie is 6 days in cast ... She's asked 4 times to take her cast off but with each no, she went on to play. She is doing quite well. Some challenges for sure but she's overall happy. Prior to cast, she was a child that didn't always nap, and stayed up later than most kids her age ... With the cast she is tuckered out and puts herself down for a nap and for bed. It gives me a break I have been happy to get!! Her daddy says she's definitely more whiny and demanding than usual but everyday is better. BeckyMom to Kylie 26 months - 6 days in cast 1. One inch taller since casting!!!Becky Stuckless, Sign Language InterpreterDoug Reimneitz519.818.3203 From: "Shauna" <scolimail@...>Sender: infantile scoliosis treatment Date: Mon, 23 May 2011 23:25:40 -0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: dry suits for swimming There is also a seal around the neck, just like the ones for the arms and legs. It needs a special lubricant applied, I think it is silicone, to make it go on and off easier, and there is a zipper in the back that is done up to close the dry suit. A wax is applied to the seal to ensure it's waterproof, although it is designed to be waterproof all on it's own. I think the wax also helps the zipper open and close easier. Let your child into the water with the zipper mostly done up and this will squeeze the air out of the drysuit. Let some more air out with your hands around the shoulders as you do the suit up and in they go, complete submersion. There are pictures of my son in a drysuit in the Kieran album on this group.Scuba divers use drysuits to keep their body dry, and therefore easier to keep warm, while diving to deep depths, under pressure even. So drysuits are very well tested and have been used for many years to keep the body completely dry. White's Diving is a good manufacturer of drysuits. They are local to where I live, as we have some of North America's excellent diving, with lots of little Islands and everything else needed for good diving and lots of ocean life. Seen two giant octopuses myself while scuba diving -- on the same dive!! It was amazing, and so very close to my own front door. I know so many divers and the suits they wear and what they think of them from different companies that White's was a very good choice for us, plus they do make a kid's suit perfect for scoliosis casts. And all their suits are custom made, it takes about 6 weeks to get one delivered. And I know they ship internationally. Other drysuit manufacturers likely also make custom kid's drysuits, so if you have another one inmind, maybe closer to where you are, give them a try.Another word of advice -- wear a short sleeve shirt under the drysuit. It will keep the plaster on the cast from rubbing on the suit and wearing it out. Also sometimes a very little bit of water gets into the drysuit, especially when taking it off, just a couple of drips or so. It shouldn't hurt the cast, just wipe them off, but if wearing a short sleeve shirt then it won't even touch the cast. Plus the shirt is comfortable and familiar and softer than the drysuit to wear.My son loves his drysuit so much, I highly recommend it, and I did check with the doctor before I put Kieran in one so he could swim in a cast.Shaunamother of Kieran, Kelsey, and > > > > > > > > > >From: Tammy- <johnnyc1966@>> > > >Subject: dry suits for swimming> > > >infantile scoliosis treatment > > > >Date: Sunday, May 22, 2011, 5:10 PM> > > >> > > >> > > > > > > >With summer soon approaching we decided to try a waterproof cast. We are casted > > > >at Strong Memorial in Rochester and Dr. R and I discussed bracing for the summer > > > >but I wanted to stick with casting so we went with this one. Amaya is able to > > > >take baths, go in swimming pools and water parks. She can not go in lakes, > > > >rivers, or oceans. I like the cast as it is lighter then the other however, when > > > >she takes a bath or shower she is wet for hours, she drips from the bottom of > > > >the cast. I guess this is something I can deal with to enable her to enjoy > > > >summer. > > > >> > > >> > > >Seeing as I don't want to keep this type of cast on again I was doing research > > > >and found what is called a Hickman Drysuit, this is available through Hammond > > > >Drysuits. My husband and I have decided to order one for Amaya to be able to > > > >take swimming lessons this fall. They are quite pricey but I feel it will be > > > >money well spent in the long run. > > > >> > > >> > > >Amaya is in her 5th cast and we have seen minimum improvement however I feel > > > >this is the best treatment to hold off what might be surgery. We have also > > > >decided to not x-ray her at every casting and cast removal. This will limit her > > > >exposure to radiation and possible side effects of that. She seems to have > > > >adjusted well to her cast and life with it. I remember when she was diagnosed > > > >with progressive infantile scoliosis in June of 2010, how scared and alone I > > > >felt. Then I found this group and without all of you I don't know what I would > > > >have done. I would love to be able to raise awareness of infantile scoliosis and > > > >hopefully Amaya and I will be in a local magazine to let others out there know > > > >they are not alone and that resources are available, as well as treatment > > > >options.> > > >> > > >Tammy Mullins, mom to Amaya almost 3> > > >diagnosed by mom in April 2010 and finally by pediatrician in June> > > >casting at Strong Memorial, Rochester, NY> > > >> > > >> > >> >>

May 24, 2011

Thanks for the great info! Should I call White's to ask about them? (I did not

see them on the website..) Hammonds I see has been suggested too, but we are in

th U.S and they are in the U.K. We live in the " Lakes Region " and much of our

summer life used to be centered around water. Do you know if they can make the

dry suit in any color?(like Pink) I think that might be the only way I can get

her to wear it! *l* ..I showed her a picture and she told me she would just wait

until her cast came off to go swimming..she's 4 and we are looking at casting a

very long time so this would be great! Thanks!

> > > >

> > > > >From: Tammy- <johnnyc1966@>

> > > > >Subject: dry suits for swimming

> > > > >infantile scoliosis treatment

> > > > >Date: Sunday, May 22, 2011, 5:10 PM

> > > > >

> > > > >With summer soon approaching we decided to try a waterproof cast. We

are casted

> > > > >at Strong Memorial in Rochester and Dr. R and I discussed bracing for

the summer

> > > > >but I wanted to stick with casting so we went with this one. Amaya is

able to

> > > > >take baths, go in swimming pools and water parks. She can not go in

lakes,

> > > > >rivers, or oceans. I like the cast as it is lighter then the other

however, when

> > > > >she takes a bath or shower she is wet for hours, she drips from the

bottom of

> > > > >the cast. I guess this is something I can deal with to enable her to

enjoy

> > > > >summer.

> > > > >

> > > > >Seeing as I don't want to keep this type of cast on again I was doing

research

> > > > >and found what is called a Hickman Drysuit, this is available through

Hammond

> > > > >Drysuits. My husband and I have decided to order one for Amaya to be

able to

> > > > >take swimming lessons this fall. They are quite pricey but I feel it

will be

> > > > >money well spent in the long run.

> > > > >

> > > > >Amaya is in her 5th cast and we have seen minimum improvement however

I feel

> > > > >this is the best treatment to hold off what might be surgery. We have

also

> > > > >decided to not x-ray her at every casting and cast removal. This will

limit her

> > > > >exposure to radiation and possible side effects of that. She seems to

have

> > > > >adjusted well to her cast and life with it. I remember when she was

diagnosed

> > > > >with progressive infantile scoliosis in June of 2010, how scared and

alone I

> > > > >felt. Then I found this group and without all of you I don't know what

I would

> > > > >have done. I would love to be able to raise awareness of infantile

scoliosis and

> > > > >hopefully Amaya and I will be in a local magazine to let others out

there know

> > > > >they are not alone and that resources are available, as well as

treatment

> > > > >options.

> > > > >

> > > > >Tammy Mullins, mom to Amaya almost 3

> > > > >diagnosed by mom in April 2010 and finally by pediatrician in June

> > > > >casting at Strong Memorial, Rochester, NY

> > > > >

> > > >

> > >

> >

>

May 24, 2011

My son is a little over 2 and a half (33 months old) and we sized his drysuit

more than 4 inches longer in the body, we just added 4 inches to the size, and

then I know White's added more, so I suspect it will fit him for around a year

or more. I am happy if we can get a summer out if it as we are less likely to

swim all that much in the winter time. Two summers would be great, but I will

just have to wait and see how it fits him next year and the year after. $500 to

me isn't a whole lot for unlimited swimming opportunities for a

spring/summer/fall season, even it is outgrown by winter, which I am sure we

would get at least from it. We got the drysuit in early April and he swims one

to three times a week in it.

Glad to hear Kylie is sleeping better!!

Shauna

Kelsey, Kieran and 's mom

> > > >

> > > > >From: Tammy- <johnnyc1966@>

> > > > >Subject: dry suits for swimming

> > > > >infantile scoliosis treatment

> > > > >Date: Sunday, May 22, 2011, 5:10 PM

> > > > >

> > > > >With summer soon approaching we decided to try a waterproof cast. We

are casted

> > > > >at Strong Memorial in Rochester and Dr. R and I discussed bracing for

the summer

> > > > >but I wanted to stick with casting so we went with this one. Amaya is

able to

> > > > >take baths, go in swimming pools and water parks. She can not go in

lakes,

> > > > >rivers, or oceans. I like the cast as it is lighter then the other

however, when

> > > > >she takes a bath or shower she is wet for hours, she drips from the

bottom of

> > > > >the cast. I guess this is something I can deal with to enable her to

enjoy

> > > > >summer.

> > > > >

> > > > >Seeing as I don't want to keep this type of cast on again I was doing

research

> > > > >and found what is called a Hickman Drysuit, this is available through

Hammond

> > > > >Drysuits. My husband and I have decided to order one for Amaya to be

able to

> > > > >take swimming lessons this fall. They are quite pricey but I feel it

will be

> > > > >money well spent in the long run.

> > > > >

> > > > >Amaya is in her 5th cast and we have seen minimum improvement however

I feel

> > > > >this is the best treatment to hold off what might be surgery. We have

also

> > > > >decided to not x-ray her at every casting and cast removal. This will

limit her

> > > > >exposure to radiation and possible side effects of that. She seems to

have

> > > > >adjusted well to her cast and life with it. I remember when she was

diagnosed

> > > > >with progressive infantile scoliosis in June of 2010, how scared and

alone I

> > > > >felt. Then I found this group and without all of you I don't know what

I would

> > > > >have done. I would love to be able to raise awareness of infantile

scoliosis and

> > > > >hopefully Amaya and I will be in a local magazine to let others out

there know

> > > > >they are not alone and that resources are available, as well as

treatment

> > > > >options.

> > > > >

> > > > >Tammy Mullins, mom to Amaya almost 3

> > > > >diagnosed by mom in April 2010 and finally by pediatrician in June

> > > > >casting at Strong Memorial, Rochester, NY

> > > > >

> > > >

> > >

> >

>

May 24, 2011

What is the drysuit name that you order?

From: Shauna <scolimail@...>Subject: Re: dry suits for swimminginfantile scoliosis treatment Date: Monday, May 23, 2011, 11:25 PM

There is also a seal around the neck, just like the ones for the arms and legs. It needs a special lubricant applied, I think it is silicone, to make it go on and off easier, and there is a zipper in the back that is done up to close the dry suit. A wax is applied to the seal to ensure it's waterproof, although it is designed to be waterproof all on it's own. I think the wax also helps the zipper open and close easier. Let your child into the water with the zipper mostly done up and this will squeeze the air out of the drysuit. Let some more air out with your hands around the shoulders as you do the suit up and in they go, complete submersion. There are pictures of my son in a drysuit in the Kieran album on this group.Scuba divers use drysuits to keep their body dry, and therefore easier to keep warm, while diving to deep depths, under pressure even. So drysuits are very well tested and have been used for many years to keep the body

completely dry. White's Diving is a good manufacturer of drysuits. They are local to where I live, as we have some of North America's excellent diving, with lots of little Islands and everything else needed for good diving and lots of ocean life. Seen two giant octopuses myself while scuba diving -- on the same dive!! It was amazing, and so very close to my own front door. I know so many divers and the suits they wear and what they think of them from different companies that White's was a very good choice for us, plus they do make a kid's suit perfect for scoliosis casts. And all their suits are custom made, it takes about 6 weeks to get one delivered. And I know they ship internationally. Other drysuit manufacturers likely also make custom kid's drysuits, so if you have another one in mind, maybe closer to where you are, give them a try.Another word of advice -- wear a short sleeve shirt under the drysuit. It will keep the plaster on the cast

from rubbing on the suit and wearing it out. Also sometimes a very little bit of water gets into the drysuit, especially when taking it off, just a couple of drips or so. It shouldn't hurt the cast, just wipe them off, but if wearing a short sleeve shirt then it won't even touch the cast. Plus the shirt is comfortable and familiar and softer than the drysuit to wear.My son loves his drysuit so much, I highly recommend it, and I did check with the doctor before I put Kieran in one so he could swim in a cast.Shaunamother of Kieran, Kelsey, and > > > > > > > > > >From: Tammy- <johnnyc1966@>> > > >Subject: dry suits for swimming> > > >infantile scoliosis treatment > > > >Date: Sunday, May 22, 2011, 5:10 PM> > > >> > > >> > > > > > > >With summer soon approaching we decided to try a waterproof cast. We are casted > > > >at Strong Memorial in Rochester and Dr. R and I discussed bracing for the summer > > > >but I wanted to stick with casting so we went with this one. Amaya is able to > > > >take baths, go in swimming pools and water parks. She can not go in lakes, > > > >rivers, or oceans. I like the cast as it is lighter then the other however, when > > > >she takes a bath or shower she is wet for hours, she drips from the bottom of > >

> >the cast. I guess this is something I can deal with to enable her to enjoy > > > >summer. > > > >> > > >> > > >Seeing as I don't want to keep this type of cast on again I was doing research > > > >and found what is called a Hickman Drysuit, this is available through Hammond > > > >Drysuits. My husband and I have decided to order one for Amaya to be able to > > > >take swimming lessons this fall. They are quite pricey but I feel it will be > > > >money well spent in the long run. > > > >> > > >> > > >Amaya is in her 5th cast and we have seen minimum improvement however I feel > > > >this is the best treatment to hold off what might be surgery. We have also > > > >decided to not x-ray her at every casting and cast removal. This will limit her

> > > >exposure to radiation and possible side effects of that. She seems to have > > > >adjusted well to her cast and life with it. I remember when she was diagnosed > > > >with progressive infantile scoliosis in June of 2010, how scared and alone I > > > >felt. Then I found this group and without all of you I don't know what I would > > > >have done. I would love to be able to raise awareness of infantile scoliosis and > > > >hopefully Amaya and I will be in a local magazine to let others out there know > > > >they are not alone and that resources are available, as well as treatment > > > >options.> > > >> > > >Tammy Mullins, mom to Amaya almost 3> > > >diagnosed by mom in April 2010 and finally by pediatrician in June> > > >casting at Strong Memorial, Rochester,

NY> > > >> > > >> > >> >>

May 24, 2011

here is White's web address

http://www.whitesdiving.com/

their info from the bottom of the page:

Whites Manufacturing • 6820 Kirkpatrick Crescent • Saanichton, BC, • V8M 1Z9 •

Canada

Phone:250.652.8554 • Fax:250.652.8553 • email: whitesale@...

I've actually been to their office and manufacturing center, as Saanichton is

part of the metropolitan area we live in.

I would give them a call or send them an email. Or both. We spoke to Doug

there, if that helps, but they have many sales reps as they are a large company.

Shauna

Kelsey, Kieran and 's mom

> > > > >

> > > > > >From: Tammy- <johnnyc1966@>

> > > > > >Subject: dry suits for swimming

> > > > > >infantile scoliosis treatment

> > > > > >Date: Sunday, May 22, 2011, 5:10 PM

> > > > > >

> > > > > >With summer soon approaching we decided to try a waterproof cast. We

are casted

> > > > > >at Strong Memorial in Rochester and Dr. R and I discussed bracing for

the summer

> > > > > >but I wanted to stick with casting so we went with this one. Amaya is

able to

> > > > > >take baths, go in swimming pools and water parks. She can not go in

lakes,

> > > > > >rivers, or oceans. I like the cast as it is lighter then the other

however, when

> > > > > >she takes a bath or shower she is wet for hours, she drips from the

bottom of

> > > > > >the cast. I guess this is something I can deal with to enable her to

enjoy

> > > > > >summer.

> > > > > >

> > > > > >Seeing as I don't want to keep this type of cast on again I was doing

research

> > > > > >and found what is called a Hickman Drysuit, this is available through

Hammond

> > > > > >Drysuits. My husband and I have decided to order one for Amaya to be

able to

> > > > > >take swimming lessons this fall. They are quite pricey but I feel it

will be

> > > > > >money well spent in the long run.

> > > > > >

> > > > > >Amaya is in her 5th cast and we have seen minimum improvement

however I feel

> > > > > >this is the best treatment to hold off what might be surgery. We have

also

> > > > > >decided to not x-ray her at every casting and cast removal. This will

limit her

> > > > > >exposure to radiation and possible side effects of that. She seems to

have

> > > > > >adjusted well to her cast and life with it. I remember when she was

diagnosed

> > > > > >with progressive infantile scoliosis in June of 2010, how scared and

alone I

> > > > > >felt. Then I found this group and without all of you I don't know

what I would

> > > > > >have done. I would love to be able to raise awareness of infantile

scoliosis and

> > > > > >hopefully Amaya and I will be in a local magazine to let others out

there know

> > > > > >they are not alone and that resources are available, as well as

treatment

> > > > > >options.

> > > > > >

> > > > > >Tammy Mullins, mom to Amaya almost 3

> > > > > >diagnosed by mom in April 2010 and finally by pediatrician in June

> > > > > >casting at Strong Memorial, Rochester, NY

> > > > > >

> > > > >

> > > >

> > >

> >

>

May 24, 2011

here is White's web address

http://www.whitesdiving.com/

their info from the bottom of the page:

Whites Manufacturing • 6820 Kirkpatrick Crescent • Saanichton, BC, • V8M 1Z9 •

Canada

Phone:250.652.8554 • Fax:250.652.8553 • email: whitesale@...

I've actually been to their office and manufacturing center, as Saanichton is

part of the metropolitan area we live in.

I would give them a call or send them an email. Or both. We spoke to Doug

there, if that helps, but they have many sales reps as they are a large company.

Shauna

Kelsey, Kieran and 's mom

> > > > >

> > > > > >From: Tammy- <johnnyc1966@>

> > > > > >Subject: dry suits for swimming

> > > > > >infantile scoliosis treatment

> > > > > >Date: Sunday, May 22, 2011, 5:10 PM

> > > > > >

> > > > > >With summer soon approaching we decided to try a waterproof cast. We

are casted

> > > > > >at Strong Memorial in Rochester and Dr. R and I discussed bracing for

the summer

> > > > > >but I wanted to stick with casting so we went with this one. Amaya is

able to

> > > > > >take baths, go in swimming pools and water parks. She can not go in

lakes,

> > > > > >rivers, or oceans. I like the cast as it is lighter then the other

however, when

> > > > > >she takes a bath or shower she is wet for hours, she drips from the

bottom of

> > > > > >the cast. I guess this is something I can deal with to enable her to

enjoy

> > > > > >summer.

> > > > > >

> > > > > >Seeing as I don't want to keep this type of cast on again I was doing

research

> > > > > >and found what is called a Hickman Drysuit, this is available through

Hammond

> > > > > >Drysuits. My husband and I have decided to order one for Amaya to be

able to

> > > > > >take swimming lessons this fall. They are quite pricey but I feel it

will be

> > > > > >money well spent in the long run.

> > > > > >

> > > > > >Amaya is in her 5th cast and we have seen minimum improvement

however I feel

> > > > > >this is the best treatment to hold off what might be surgery. We have

also

> > > > > >decided to not x-ray her at every casting and cast removal. This will

limit her

> > > > > >exposure to radiation and possible side effects of that. She seems to

have

> > > > > >adjusted well to her cast and life with it. I remember when she was

diagnosed

> > > > > >with progressive infantile scoliosis in June of 2010, how scared and

alone I

> > > > > >felt. Then I found this group and without all of you I don't know

what I would

> > > > > >have done. I would love to be able to raise awareness of infantile

scoliosis and

> > > > > >hopefully Amaya and I will be in a local magazine to let others out

there know

> > > > > >they are not alone and that resources are available, as well as

treatment

> > > > > >options.

> > > > > >

> > > > > >Tammy Mullins, mom to Amaya almost 3

> > > > > >diagnosed by mom in April 2010 and finally by pediatrician in June

> > > > > >casting at Strong Memorial, Rochester, NY

> > > > > >

> > > > >

> > > >

> > >

> >

>

May 24, 2011

I am not really sure what the name of the suit is. I explained what I wanted

and I seem to remember that the invoice called it a " Discovery Drysuit. " I

believe it is actually for kids doing a " Discover Scuba Diving " certification.

http://www.whitesdiving.com

I don't know if you can ask for a specific color, for whomever asked, I am

getting lost in these posts, sorry, and the kids are looking for me, I thought

they only did black ones for kids, but then Kieran's was blue when we got it.

The seals I believe are always black and all the suits are custom made.

> > > >

> > > > >From: Tammy- <johnnyc1966@>

> > > > >Subject: dry suits for swimming

> > > > >infantile scoliosis treatment

> > > > >Date: Sunday, May 22, 2011, 5:10 PM

> > > > >

> > > > >With summer soon approaching we decided to try a waterproof cast. We

are casted

> > > > >at Strong Memorial in Rochester and Dr. R and I discussed bracing for

the summer

> > > > >but I wanted to stick with casting so we went with this one. Amaya is

able to

> > > > >take baths, go in swimming pools and water parks. She can not go in

lakes,

> > > > >rivers, or oceans. I like the cast as it is lighter then the other

however, when

> > > > >she takes a bath or shower she is wet for hours, she drips from the

bottom of

> > > > >the cast. I guess this is something I can deal with to enable her to

enjoy

> > > > >summer.

> > > > >

> > > > >Seeing as I don't want to keep this type of cast on again I was doing

research

> > > > >and found what is called a Hickman Drysuit, this is available through

Hammond

> > > > >Drysuits. My husband and I have decided to order one for Amaya to be

able to

> > > > >take swimming lessons this fall. They are quite pricey but I feel it

will be

> > > > >money well spent in the long run.

> > > > >

> > > > >Amaya is in her 5th cast and we have seen minimum improvement however I

feel

> > > > >this is the best treatment to hold off what might be surgery. We have

also

> > > > >decided to not x-ray her at every casting and cast removal. This will

limit her

> > > > >exposure to radiation and possible side effects of that. She seems to

have

> > > > >adjusted well to her cast and life with it. I remember when she was

diagnosed

> > > > >with progressive infantile scoliosis in June of 2010, how scared and

alone I

> > > > >felt. Then I found this group and without all of you I don't know what

I would

> > > > >have done. I would love to be able to raise awareness of infantile

scoliosis and

> > > > >hopefully Amaya and I will be in a local magazine to let others out

there know

> > > > >they are not alone and that resources are available, as well as

treatment

> > > > >options.

> > > > >

> > > > >Tammy Mullins, mom to Amaya almost 3

> > > > >diagnosed by mom in April 2010 and finally by pediatrician in June

> > > > >casting at Strong Memorial, Rochester, NY

> > > > >

> > > >

> > >

> >

>

May 24, 2011

I am not really sure what the name of the suit is. I explained what I wanted

and I seem to remember that the invoice called it a " Discovery Drysuit. " I

believe it is actually for kids doing a " Discover Scuba Diving " certification.

http://www.whitesdiving.com

I don't know if you can ask for a specific color, for whomever asked, I am

getting lost in these posts, sorry, and the kids are looking for me, I thought

they only did black ones for kids, but then Kieran's was blue when we got it.

The seals I believe are always black and all the suits are custom made.

> > > >

> > > > >From: Tammy- <johnnyc1966@>

> > > > >Subject: dry suits for swimming

> > > > >infantile scoliosis treatment

> > > > >Date: Sunday, May 22, 2011, 5:10 PM

> > > > >

> > > > >With summer soon approaching we decided to try a waterproof cast. We

are casted

> > > > >at Strong Memorial in Rochester and Dr. R and I discussed bracing for

the summer

> > > > >but I wanted to stick with casting so we went with this one. Amaya is

able to

> > > > >take baths, go in swimming pools and water parks. She can not go in

lakes,

> > > > >rivers, or oceans. I like the cast as it is lighter then the other

however, when

> > > > >she takes a bath or shower she is wet for hours, she drips from the

bottom of

> > > > >the cast. I guess this is something I can deal with to enable her to

enjoy

> > > > >summer.

> > > > >

> > > > >Seeing as I don't want to keep this type of cast on again I was doing

research

> > > > >and found what is called a Hickman Drysuit, this is available through

Hammond

> > > > >Drysuits. My husband and I have decided to order one for Amaya to be

able to

> > > > >take swimming lessons this fall. They are quite pricey but I feel it

will be

> > > > >money well spent in the long run.

> > > > >

> > > > >Amaya is in her 5th cast and we have seen minimum improvement however I

feel

> > > > >this is the best treatment to hold off what might be surgery. We have

also

> > > > >decided to not x-ray her at every casting and cast removal. This will

limit her

> > > > >exposure to radiation and possible side effects of that. She seems to

have

> > > > >adjusted well to her cast and life with it. I remember when she was

diagnosed

> > > > >with progressive infantile scoliosis in June of 2010, how scared and

alone I

> > > > >felt. Then I found this group and without all of you I don't know what

I would

> > > > >have done. I would love to be able to raise awareness of infantile

scoliosis and

> > > > >hopefully Amaya and I will be in a local magazine to let others out

there know

> > > > >they are not alone and that resources are available, as well as

treatment

> > > > >options.

> > > > >

> > > > >Tammy Mullins, mom to Amaya almost 3

> > > > >diagnosed by mom in April 2010 and finally by pediatrician in June

> > > > >casting at Strong Memorial, Rochester, NY

> > > > >

> > > >

> > >

> >

>

May 24, 2011

I don't know if you can get it in any color. My understanding is that it was

always black, as the seals are, but then when we got Kieran's it was blue. You

could ask and see what they say. If they get enough demand for a specific

product they will get it in for sure. I am sure their primary goal will be to

get a quality product well made and out but that they will start their research

on requests and if they can get it next time around I know they would for sure.

I was so super impressed with them. We walked into their office/manufacturing

center in Saanichton, which is part of the metropolitan area we live in and they

were so excellent!

They let us use their room for fitting, fit Kieran in it, answered all and every

sort of question, and where so super friendly and helpful all the time. And so

genuinely interested in our needs and concerns. They where sincerely delighted

to help get Kieran into a drysuit, and he wasn't their first two year old

scoliosis customer. They have made many drysuits for very young children to

swim in for other medical conditions that require staying dry. I have nothing

but praise for White's Diving. Even if they weren't able to give us any color

we wanted, the way the Hammond's Hickman suit seems to be able to.

Shauna

Kelsey, Kieran, and 's mom

> > > > >

> > > > > >From: Tammy- <johnnyc1966@>

> > > > > >Subject: dry suits for swimming

> > > > > >infantile scoliosis treatment

> > > > > >Date: Sunday, May 22, 2011, 5:10 PM

> > > > > >

> > > > > >With summer soon approaching we decided to try a waterproof cast. We

are casted

> > > > > >at Strong Memorial in Rochester and Dr. R and I discussed bracing for

the summer

> > > > > >but I wanted to stick with casting so we went with this one. Amaya is

able to

> > > > > >take baths, go in swimming pools and water parks. She can not go in

lakes,

> > > > > >rivers, or oceans. I like the cast as it is lighter then the other

however, when

> > > > > >she takes a bath or shower she is wet for hours, she drips from the

bottom of

> > > > > >the cast. I guess this is something I can deal with to enable her to

enjoy

> > > > > >summer.

> > > > > >

> > > > > >Seeing as I don't want to keep this type of cast on again I was doing

research

> > > > > >and found what is called a Hickman Drysuit, this is available through

Hammond

> > > > > >Drysuits. My husband and I have decided to order one for Amaya to be

able to

> > > > > >take swimming lessons this fall. They are quite pricey but I feel it

will be

> > > > > >money well spent in the long run.

> > > > > >

> > > > > >Amaya is in her 5th cast and we have seen minimum improvement

however I feel

> > > > > >this is the best treatment to hold off what might be surgery. We have

also

> > > > > >decided to not x-ray her at every casting and cast removal. This will

limit her

> > > > > >exposure to radiation and possible side effects of that. She seems to

have

> > > > > >adjusted well to her cast and life with it. I remember when she was

diagnosed

> > > > > >with progressive infantile scoliosis in June of 2010, how scared and

alone I

> > > > > >felt. Then I found this group and without all of you I don't know

what I would

> > > > > >have done. I would love to be able to raise awareness of infantile

scoliosis and

> > > > > >hopefully Amaya and I will be in a local magazine to let others out

there know

> > > > > >they are not alone and that resources are available, as well as

treatment

> > > > > >options.

> > > > > >

> > > > > >Tammy Mullins, mom to Amaya almost 3

> > > > > >diagnosed by mom in April 2010 and finally by pediatrician in June

> > > > > >casting at Strong Memorial, Rochester, NY

> > > > > >

> > > > >

> > > >

> > >

> >

>

May 24, 2011