Re: 10th casting canceled

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Patty, was lil Isabella’s initial main curve above T-8? Just curious…Thanks,HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Patty BowenSent: Thursday, May 26, 2011 9:46 PMinfantile scoliosis treatment Subject: Re: 10th casting canceled Beth,Thanks so much! Where are you with 's curve now? We were really upset at the casting in February because Isabella's main curve has been the same for so many casts and of course it didn't change but then she developed a curve above the main curve and had to go into an over the shoulder cast. I've learned to quit asking myself " Why? " Patty, mom of Isabella, 3 years old, in 8th scoli cast (Rochester) & mom to (9) & Evan(6) From: Leeper <bethanney05@...>infantile scoliosis treatment Sent: Thu, May 26, 2011 11:11:02 AMSubject: Re: 10th casting canceled That is one of the main reasons I don't post a lot on here too. is not getting good news and it is so hard to here about the kids that Started after us and are already done with casting, it is depressing for me as his mom. I have always said that it is so hard to be in control of someone else's life. You are not alone through any of this. Keep your head up.Beth RettingerMother of In Eighth Cast From SLCWill be in brace for the summer.From: heather@... <heather@...>Subject: Re: 10th casting canceledinfantile scoliosis treatment Date: Thursday, May 26, 2011, 11:13 AM Great post. We are all struggling through this together in a way. Notonly do we have our children's medical challenges, but we must also dealw/ everything that comes along w/ that, ~and~ typical everyday challenges.Like tornados, bills, financial hardships, loss of employment,relationships, etc..It will get easier. It always does. Just when you think you're reallyloosing it, something brings it all together again.Hang tough.HRH> You are always welcome to have a pity party! My first child was born with> Albinism and is legally blind and then after struggling for 2 1/2 years> with> infertility we had Jake and he has scoliosis. I was one of the ones doing> great> until he was out of his cast for 10 weeks and regressed from 3 degrees to> 13> down from 50. His doctor said that his vertebrae are " wedged " and are> curved> down on one side. Jake is 22 months and is in his 4th cast. On the day> of his> casting on the ride home he spiked a 104 degree fever and threw up all> over> himself and my car! Just want you to know we are all in this together and> it is> ok to feel upset, frustrated, mad, etc. You have been through a lot and> it will> get better. I had Jake's cast cut off at our local Children's hospital in> Seattle by calling our Ortho's nurse and we had 2 months of fun baths and> swimming. I don't know if that is an option for you but it sounds like it> might> be time to get it off. Take care of you and your family- best wishes!!> Sonja>>>> ________________________________> From: Patty Bowen <bowenpatty@...>> " infantile scoliosis treatment " > <infantile scoliosis treatment >> Sent: Wed, May 25, 2011 9:38:57 PM> Subject: 10th casting canceled>>> So, I haven't been on here for quite some time and I hate to admit it's> because> I was having a tough time because so many people were getting good news as> I> continued to get the news I didn't want. It's not that I'm not happy for> each> and every one of you that has beaten scoli because I am, it's just that I> want> the same thing for my daughter. What made things even harder was my son> having a> seizure on Christmas Eve and finding out shortly after that he has> epilepsy.> I've been very frustrated that I now have 2 kids with health issues after> going> through so much to get the 3 kids I do have. Sorry for my pity party!> Anyway, we> just canceled Isabella's 10th casting because she had a cough for a few> days and> I had a bad feeling that something else was going on. I'm so glad I> listened to> my gut because she had a high fever on and off all day Wednesday, which> would've> been casting day. The only problem is now to get squeezed into the docs> schedule> because> we've been in this cast for 14 weeks and it's beginning to stink! I can't> wait> to get caught up on posts and to read about those who have joined the> group> since I was last on.>> Sent from my iPhone>>

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Well 's curve is at 25* now. I am feeling hopeful that maybe it has gotten better this time. He has outgrown his under shirt and i am hoping that with all the growth has come change!! I am excited for his brace this summer, but still very nervous that I am being selfish. I just hope that he does not get worse in the brace. Our PA told us that if he stays at 25* for ever he will not have to get surgery, but that just means we have to cast/brace until he is done growing.Beth RettingerMother of In Eighth Cast From SLCFrom: heather@... <heather@...>Subject:

Re: 10th casting canceledinfantile scoliosis treatment Date: Thursday, May 26, 2011, 11:13 AM Great post. We are all struggling through this together in a way. Notonly do we have our children's medical challenges, but we must also dealw/ everything that comes along w/ that, ~and~ typical everyday challenges.Like tornados, bills, financial hardships, loss of employment,relationships, etc..It will get easier. It always does. Just when you think you're reallyloosing it, something brings it all together again.Hang tough.HRH> You are always welcome to have a pity party! My first child was born with> Albinism and is legally blind and then after struggling for 2 1/2 years>

with> infertility we had Jake and he has scoliosis. I was one of the ones doing> great> until he was out of his cast for 10 weeks and regressed from 3 degrees to> 13> down from 50. His doctor said that his vertebrae are "wedged" and are> curved> down on one side. Jake is 22 months and is in his 4th cast. On the day> of his> casting on the ride home he spiked a 104 degree fever and threw up all> over> himself and my car! Just want you to know we are all in this together and> it is> ok to feel upset, frustrated, mad, etc. You have been through a lot and> it will> get better. I had Jake's cast cut off at our local Children's hospital in> Seattle by calling our Ortho's nurse and we had 2 months of fun baths and> swimming. I don't know if that is an option for you but it sounds like it> might> be time to get it off. Take care

of you and your family- best wishes!!> Sonja>>>> ________________________________> From: Patty Bowen <bowenpatty@...>> "infantile scoliosis treatment "> <infantile scoliosis treatment >> Sent: Wed, May 25, 2011 9:38:57 PM> Subject: 10th casting canceled>>> So, I haven't been on here for quite some time and I hate to admit it's> because> I was having a tough time because so many people were getting good news as> I> continued to get the news I didn't want. It's not that I'm not happy for> each> and every one of you that has beaten scoli because I am, it's just that I> want> the same thing for my daughter. What made things even harder was my son> having a> seizure on Christmas Eve and finding out shortly after that he has>

epilepsy.> I've been very frustrated that I now have 2 kids with health issues after> going> through so much to get the 3 kids I do have. Sorry for my pity party!> Anyway, we> just canceled Isabella's 10th casting because she had a cough for a few> days and> I had a bad feeling that something else was going on. I'm so glad I> listened to> my gut because she had a high fever on and off all day Wednesday, which> would've> been casting day. The only problem is now to get squeezed into the docs> schedule> because> we've been in this cast for 14 weeks and it's beginning to stink! I can't> wait> to get caught up on posts and to read about those who have joined the> group> since I was last on.>> Sent from my iPhone>>