Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 In a message dated 18/02/2010 23:20:55 GMT Standard Time, sandyandtim@... writes: Oh wow!! He's talking!!! Lots's of good things too - but oh wow he's finding words how amazing!! >>yeah He didn't mean to talk, its was one of those falls out his mouth moments, I think he stopped because it worried him, that's what we have seen in the past but I'll take what I can get! Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Oh wow!! He's talking!!! Lots's of good things too - but oh wow he's finding words how amazing!! Sandyxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Singing! That is so fabulous Mandi. God, could use all the good news I can get today, and this is really the best news. Don't crash the car though! Bravo Sam. Bravo Mandi. Anita > > He is 13 now - arghhhhhhhhhhhhhhhhhhhhhhh and I think his voice is breaking > - making new lower tone sounds which often end in a squeak - OMG! > > Tonight he was 'singing' along with CD in car, for only about 20 seconds, > wheels on the bus, he said round and round I nearly crashed! > > Had yeast flare after last round of TD DMPS coupled with sneaking sweet > things, his problem solving skills must be more than age appropriate! > > We had 10 days of heaven following starting Kirkman Amino Support (4 caps > at night) but the yeast flare after chelation messed that up > > Just finished day 4 of planned 7 day daily dosing of KIB 500 - we have > definitely had die off this time, as evidenced by behaviour (implusive, > intense), red ear and some real spooky looking stools, frogspawn type texture, > tan coloured but still kinda holding together, like its been aerated. Not > seen anything change much skin wise - he is a known Herpes kid. No smell to > poop or pee........ > > Most recently resisting HANDLE exercises he was cool with before but loving > hug and tug on toes as well as hands but only if he chooses which limb you > start on and which end of the hand, we start on little on the feet. Likes > jiggle bridge but squirming with skull and face tapping Anyways change > is good I reckon that means its doing summat > > Has two sessions of intense academics at school in a day now, one of which > is independant, he does it well after shakey start but he still can't see > the point, (most of the time neither can I) but self occupation is a biggie > here. > > Enjoying his weekly gym session, prefers the eliptical trainer to the > treadmill which gave him a shock when he decided to stop dead lol > > Off to learn Scotson on 8th March, nervous and excited and hopeful at the > same time > > Mandi x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Love it - that he's singing, not you nearly crashing car! Great idea about the updates, it's always encouraging to hear wonderful things happening and great to spread a smile. xx Autism Treatment From: Mum231ASD@...Date: Thu, 18 Feb 2010 18:16:03 -0500Subject: Sam R Update He is 13 now - arghhhhhhhhhhhhhhhhhhhhhhh and I think his voice is breaking - making new lower tone sounds which often end in a squeak - OMG! Tonight he was 'singing' along with CD in car, for only about 20 seconds, wheels on the bus, he said round and round I nearly crashed! Had yeast flare after last round of TD DMPS coupled with sneaking sweet things, his problem solving skills must be more than age appropriate! We had 10 days of heaven following starting Kirkman Amino Support (4 caps at night) but the yeast flare after chelation messed that up Just finished day 4 of planned 7 day daily dosing of KIB 500 - we have definitely had die off this time, as evidenced by behaviour (implusive, intense), red ear and some real spooky looking stools, frogspawn type texture, tan coloured but still kinda holding together, like its been aerated. Not seen anything change much skin wise - he is a known Herpes kid. No smell to poop or pee........ Most recently resisting HANDLE exercises he was cool with before but loving hug and tug on toes as well as hands but only if he chooses which limb you start on and which end of the hand, we start on little on the feet. Likes jiggle bridge but squirming with skull and face tapping Anyways change is good I reckon that means its doing summat Has two sessions of intense academics at school in a day now, one of which is independant, he does it well after shakey start but he still can't see the point, (most of the time neither can I) but self occupation is a biggie here. Enjoying his weekly gym session, prefers the eliptical trainer to the treadmill which gave him a shock when he decided to stop dead lol Off to learn Scotson on 8th March, nervous and excited and hopeful at the same time Mandi x We want to hear all your funny, exciting and crazy Hotmail stories. Tell us now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Oh wow Mandi that sounds significant. Tom's still on single words but before he got (back) to that stage he'd have words of songs " pop out " . I.e. when he wasn't really thinking about it and was relaxed (or conversely really stressed) words would just materialise but he couldn't summon them at will. That's what Sam's done, his brain has found the connection. Tom can now deliberately vocalise (mostly demands LOL) and sounds like Sam can do that (but now in deeper, sexier voice) Very excited for you xx > > He is 13 now - arghhhhhhhhhhhhhhhhhhhhhhh and I think his voice is breaking > - making new lower tone sounds which often end in a squeak - OMG! > > Tonight he was 'singing' along with CD in car, for only about 20 seconds, > wheels on the bus, he said round and round I nearly crashed! > > Had yeast flare after last round of TD DMPS coupled with sneaking sweet > things, his problem solving skills must be more than age appropriate! > > We had 10 days of heaven following starting Kirkman Amino Support (4 caps > at night) but the yeast flare after chelation messed that up > > Just finished day 4 of planned 7 day daily dosing of KIB 500 - we have > definitely had die off this time, as evidenced by behaviour (implusive, > intense), red ear and some real spooky looking stools, frogspawn type texture, > tan coloured but still kinda holding together, like its been aerated. Not > seen anything change much skin wise - he is a known Herpes kid. No smell to > poop or pee........ > > Most recently resisting HANDLE exercises he was cool with before but loving > hug and tug on toes as well as hands but only if he chooses which limb you > start on and which end of the hand, we start on little on the feet. Likes > jiggle bridge but squirming with skull and face tapping Anyways change > is good I reckon that means its doing summat > > Has two sessions of intense academics at school in a day now, one of which > is independant, he does it well after shakey start but he still can't see > the point, (most of the time neither can I) but self occupation is a biggie > here. > > Enjoying his weekly gym session, prefers the eliptical trainer to the > treadmill which gave him a shock when he decided to stop dead lol > > Off to learn Scotson on 8th March, nervous and excited and hopeful at the > same time > > Mandi x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Hi Mandi, What a warm up to date about Sam.It's great!It's is fascinating to watch them grow, isn't it? I'm glad he is doing great.. I'm looking forward to hear your new experiences with either any therapy or new supplements.. Do you mind reminding me what was KIB 500?I must have read it somewhere? Thanks nevin > > He is 13 now - arghhhhhhhhhhhhhhhhhhhhhhh and I think his voice is breaking > - making new lower tone sounds which often end in a squeak - OMG! > > Tonight he was 'singing' along with CD in car, for only about 20 seconds, > wheels on the bus, he said round and round I nearly crashed! > > Had yeast flare after last round of TD DMPS coupled with sneaking sweet > things, his problem solving skills must be more than age appropriate! > > We had 10 days of heaven following starting Kirkman Amino Support (4 caps > at night) but the yeast flare after chelation messed that up > > Just finished day 4 of planned 7 day daily dosing of KIB 500 - we have > definitely had die off this time, as evidenced by behaviour (implusive, > intense), red ear and some real spooky looking stools, frogspawn type texture, > tan coloured but still kinda holding together, like its been aerated. Not > seen anything change much skin wise - he is a known Herpes kid. No smell to > poop or pee........ > > Most recently resisting HANDLE exercises he was cool with before but loving > hug and tug on toes as well as hands but only if he chooses which limb you > start on and which end of the hand, we start on little on the feet. Likes > jiggle bridge but squirming with skull and face tapping Anyways change > is good I reckon that means its doing summat > > Has two sessions of intense academics at school in a day now, one of which > is independant, he does it well after shakey start but he still can't see > the point, (most of the time neither can I) but self occupation is a biggie > here. > > Enjoying his weekly gym session, prefers the eliptical trainer to the > treadmill which gave him a shock when he decided to stop dead lol > > Off to learn Scotson on 8th March, nervous and excited and hopeful at the > same time > > Mandi x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 What a huge huge breakthrough – well done Mandi and Sam! L x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 On 19 February 2010 10:26, <lucindamiller@...> wrote: What a huge huge breakthrough – well done Mandi and Sam! Well done both of you, great hes communicating better with you :-) -- is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Hi Mandi, I'm grinning from ear to ear, Love it and here's to more singing, talking, everything crossed for your young man :-)))) With voice breaking, I never even knew when Norman's broke, he's been oh so silent for years. Just recently out of the blue started " yelping " - definitely made me jump! then he goes silent.... and then out of nowhere he starts vocalising " ahhh " sound in a deep throaty voice and then the silence continues. Something funny, when he was younger 3-4yrs old (doing ABA), he'd learnt to say " ma " and " da " and few other sounds/words, we started working on joining sounds and from nowhere he came up with " ma-da " . From then he went round screaming " mada " (sounding like " murder " ) everywhere we went, had to keep making quick exits when yelling out " murder (mada) " in the shops and if it wasn't this, he would go round making donald duck sounds, you can just imagine the looks we got. emily > > He is 13 now - arghhhhhhhhhhhhhhhhhhhhhhh and I think his voice is breaking > - making new lower tone sounds which often end in a squeak - OMG! > > Tonight he was 'singing' along with CD in car, for only about 20 seconds, > wheels on the bus, he said round and round I nearly crashed! > > Had yeast flare after last round of TD DMPS coupled with sneaking sweet > things, his problem solving skills must be more than age appropriate! > > We had 10 days of heaven following starting Kirkman Amino Support (4 caps > at night) but the yeast flare after chelation messed that up > > Just finished day 4 of planned 7 day daily dosing of KIB 500 - we have > definitely had die off this time, as evidenced by behaviour (implusive, > intense), red ear and some real spooky looking stools, frogspawn type texture, > tan coloured but still kinda holding together, like its been aerated. Not > seen anything change much skin wise - he is a known Herpes kid. No smell to > poop or pee........ > > Most recently resisting HANDLE exercises he was cool with before but loving > hug and tug on toes as well as hands but only if he chooses which limb you > start on and which end of the hand, we start on little on the feet. Likes > jiggle bridge but squirming with skull and face tapping Anyways change > is good I reckon that means its doing summat > > Has two sessions of intense academics at school in a day now, one of which > is independant, he does it well after shakey start but he still can't see > the point, (most of the time neither can I) but self occupation is a biggie > here. > > Enjoying his weekly gym session, prefers the eliptical trainer to the > treadmill which gave him a shock when he decided to stop dead lol > > Off to learn Scotson on 8th March, nervous and excited and hopeful at the > same time > > Mandi x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Hi Mandi, I'm grinning from ear to ear, Love it and here's to more singing, talking, everything crossed for your young man :-)))) With voice breaking, I never even knew when Norman's broke, he's been oh so silent for years. Just recently out of the blue started " yelping " - definitely made me jump! then he goes silent.... and then out of nowhere he starts vocalising " ahhh " sound in a deep throaty voice and then the silence continues. Something funny, when he was younger 3-4yrs old (doing ABA), he'd learnt to say " ma " and " da " and few other sounds/words, we started working on joining sounds and from nowhere he came up with " ma-da " . From then he went round screaming " mada " (sounding like " murder " ) everywhere we went, had to keep making quick exits when yelling out " murder (mada) " in the shops and if it wasn't this, he would go round making donald duck sounds, you can just imagine the looks we got. emily > > He is 13 now - arghhhhhhhhhhhhhhhhhhhhhhh and I think his voice is breaking > - making new lower tone sounds which often end in a squeak - OMG! > > Tonight he was 'singing' along with CD in car, for only about 20 seconds, > wheels on the bus, he said round and round I nearly crashed! > > Had yeast flare after last round of TD DMPS coupled with sneaking sweet > things, his problem solving skills must be more than age appropriate! > > We had 10 days of heaven following starting Kirkman Amino Support (4 caps > at night) but the yeast flare after chelation messed that up > > Just finished day 4 of planned 7 day daily dosing of KIB 500 - we have > definitely had die off this time, as evidenced by behaviour (implusive, > intense), red ear and some real spooky looking stools, frogspawn type texture, > tan coloured but still kinda holding together, like its been aerated. Not > seen anything change much skin wise - he is a known Herpes kid. No smell to > poop or pee........ > > Most recently resisting HANDLE exercises he was cool with before but loving > hug and tug on toes as well as hands but only if he chooses which limb you > start on and which end of the hand, we start on little on the feet. Likes > jiggle bridge but squirming with skull and face tapping Anyways change > is good I reckon that means its doing summat > > Has two sessions of intense academics at school in a day now, one of which > is independant, he does it well after shakey start but he still can't see > the point, (most of the time neither can I) but self occupation is a biggie > here. > > Enjoying his weekly gym session, prefers the eliptical trainer to the > treadmill which gave him a shock when he decided to stop dead lol > > Off to learn Scotson on 8th March, nervous and excited and hopeful at the > same time > > Mandi x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 Hi Mandi, I have just been catching up on here and saw your update on Sam....He's singing...you must be jumping for joy....I hope this is just the start and I wish you a lovely time at the Advance centre learning Scotson. We go for our third training session there in April. I love every parent we meet there it is such a lovely atmosphere it is only us that cause mayhem there...we create chaos wherever we seem to go lol. Adam is thriving and is so much calmer which I am sure is TST. This has had a knock on effect in every other therapy we do. I hope it is the one for Sam. Hope it all goes well. X Georgina and Adam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Hi Georgina. So lovely to hear about even more families who are noticing such significant benefits on TST... Best wishes Tracey On Sun, Feb 21, 2010 at 11:06 PM, georgina_n_adam <georgina_n_adam@...> wrote: Hi Mandi, I have just been catching up on here and saw your update on Sam....He's singing...you must be jumping for joy....I hope this is just the start and I wish you a lovely time at the Advance centre learning Scotson. We go for our third training session there in April. I love every parent we meet there it is such a lovely atmosphere it is only us that cause mayhem there...we create chaos wherever we seem to go lol. Adam is thriving and is so much calmer which I am sure is TST. This has had a knock on effect in every other therapy we do. I hope it is the one for Sam. Hope it all goes well.X Georgina and Adam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Hi Georgina. So lovely to hear about even more families who are noticing such significant benefits on TST... Best wishes Tracey On Sun, Feb 21, 2010 at 11:06 PM, georgina_n_adam <georgina_n_adam@...> wrote: Hi Mandi, I have just been catching up on here and saw your update on Sam....He's singing...you must be jumping for joy....I hope this is just the start and I wish you a lovely time at the Advance centre learning Scotson. We go for our third training session there in April. I love every parent we meet there it is such a lovely atmosphere it is only us that cause mayhem there...we create chaos wherever we seem to go lol. Adam is thriving and is so much calmer which I am sure is TST. This has had a knock on effect in every other therapy we do. I hope it is the one for Sam. Hope it all goes well.X Georgina and Adam Quote Link to comment Share on other sites More sharing options...
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