Could my baby have scoliosis?

[Guest guest]

My baby is six weeks old and I have noticed for a while now that she always

appears curved the same way all the time. I think it's just getting more

noticeable because she's getting bigger. Her left middle section protrudes and

her head tilts to her right. I've googled infantile scoliosis and the symptoms

seem to be what I'm seeing in my daughter.

The pediatrician is going to look at her at her two month appointment. Thinking

about her having this problem is worrying me a lot.

Did anyone notice their baby having the symptoms before two months? Does anyone

here have experience with scoliosis that actually self-corrected? I have not

been able to find any experiences about self resolving cases other than most

self resolve.

[Guest guest]

I noticed something with my daughter at 7 weeks. Her tummy seemed to bulge out to one side. I have gotten 2 diagnoses - 1 progressive and 1 positional. I wish I knew who to believe. You are doing the right thing by researching. I would try to figure out in your area who specializes in infantile scoliosis and go see that person after your pediatrician checks her out.Sent from my iPadOn May 16, 2011, at 7:07 PM, "Beer4Clare" <shaunabingham@...> wrote:

My baby is six weeks old and I have noticed for a while now that she always appears curved the same way all the time. I think it's just getting more noticeable because she's getting bigger. Her left middle section protrudes and her head tilts to her right. I've googled infantile scoliosis and the symptoms seem to be what I'm seeing in my daughter.

The pediatrician is going to look at her at her two month appointment. Thinking about her having this problem is worrying me a lot.

Did anyone notice their baby having the symptoms before two months? Does anyone here have experience with scoliosis that actually self-corrected? I have not been able to find any experiences about self resolving cases other than most self resolve.

[Guest guest]

I noticed something with my daughter at 7 weeks. Her tummy seemed to bulge out to one side. I have gotten 2 diagnoses - 1 progressive and 1 positional. I wish I knew who to believe. You are doing the right thing by researching. I would try to figure out in your area who specializes in infantile scoliosis and go see that person after your pediatrician checks her out.Sent from my iPadOn May 16, 2011, at 7:07 PM, "Beer4Clare" <shaunabingham@...> wrote:

My baby is six weeks old and I have noticed for a while now that she always appears curved the same way all the time. I think it's just getting more noticeable because she's getting bigger. Her left middle section protrudes and her head tilts to her right. I've googled infantile scoliosis and the symptoms seem to be what I'm seeing in my daughter.

The pediatrician is going to look at her at her two month appointment. Thinking about her having this problem is worrying me a lot.

Did anyone notice their baby having the symptoms before two months? Does anyone here have experience with scoliosis that actually self-corrected? I have not been able to find any experiences about self resolving cases other than most self resolve.

[Guest guest]

I noticed something with my daughter at 7 weeks. Her tummy seemed to bulge out to one side. I have gotten 2 diagnoses - 1 progressive and 1 positional. I wish I knew who to believe. You are doing the right thing by researching. I would try to figure out in your area who specializes in infantile scoliosis and go see that person after your pediatrician checks her out.Sent from my iPadOn May 16, 2011, at 7:07 PM, "Beer4Clare" <shaunabingham@...> wrote:

My baby is six weeks old and I have noticed for a while now that she always appears curved the same way all the time. I think it's just getting more noticeable because she's getting bigger. Her left middle section protrudes and her head tilts to her right. I've googled infantile scoliosis and the symptoms seem to be what I'm seeing in my daughter.

The pediatrician is going to look at her at her two month appointment. Thinking about her having this problem is worrying me a lot.

Did anyone notice their baby having the symptoms before two months? Does anyone here have experience with scoliosis that actually self-corrected? I have not been able to find any experiences about self resolving cases other than most self resolve.

[Guest guest]

We could tell on my son at around 3 weeks old. BUT none of us knew what it was. We just knew something was weird about his ribs and the way he seemed to curl up. He also had torticollis, but again we did not know it at the time..

His was indeed Progressive Idiopathic Infantile Scoliosis. And a geneticist felt it was from positioning in utero. He is a twin so that could be, but no one really knows.I can remember a few cases of self correction. I am not sure the moms are still on the group though.

Keep us posted.

TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, Texas. After being treated in a series of 6 casts for 14 months he is now in a brace and has been since September 2007.

EARLY Treatment does work if done properly.

You can read 's story at.... http://www.infantilescoliosis.org/stories.html

Or follow our family one day at a time......http://thefontenotslife.blogspot.com/

From: <lucyrichmondsmom@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Mon, May 16, 2011 7:14:10 PMSubject: Re: Could my baby have scoliosis?

I noticed something with my daughter at 7 weeks. Her tummy seemed to bulge out to one side. I have gotten 2 diagnoses - 1 progressive and 1 positional. I wish I knew who to believe. You are doing the right thing by researching. I would try to figure out in your area who specializes in infantile scoliosis and go see that person after your pediatrician checks her out.Sent from my iPad

On May 16, 2011, at 7:07 PM, "Beer4Clare" <shaunabingham@...> wrote:

My baby is six weeks old and I have noticed for a while now that she always appears curved the same way all the time. I think it's just getting more noticeable because she's getting bigger. Her left middle section protrudes and her head tilts to her right. I've googled infantile scoliosis and the symptoms seem to be what I'm seeing in my daughter. The pediatrician is going to look at her at her two month appointment. Thinking about her having this problem is worrying me a lot.Did anyone notice their baby having the symptoms before two months? Does anyone here have experience with scoliosis that actually self-corrected? I have not been able to find any experiences about self resolving cases other than most self resolve.

[Guest guest]

We could tell on my son at around 3 weeks old. BUT none of us knew what it was. We just knew something was weird about his ribs and the way he seemed to curl up. He also had torticollis, but again we did not know it at the time..

His was indeed Progressive Idiopathic Infantile Scoliosis. And a geneticist felt it was from positioning in utero. He is a twin so that could be, but no one really knows.I can remember a few cases of self correction. I am not sure the moms are still on the group though.

Keep us posted.

TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, Texas. After being treated in a series of 6 casts for 14 months he is now in a brace and has been since September 2007.

EARLY Treatment does work if done properly.

You can read 's story at.... http://www.infantilescoliosis.org/stories.html

Or follow our family one day at a time......http://thefontenotslife.blogspot.com/

From: <lucyrichmondsmom@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Mon, May 16, 2011 7:14:10 PMSubject: Re: Could my baby have scoliosis?

I noticed something with my daughter at 7 weeks. Her tummy seemed to bulge out to one side. I have gotten 2 diagnoses - 1 progressive and 1 positional. I wish I knew who to believe. You are doing the right thing by researching. I would try to figure out in your area who specializes in infantile scoliosis and go see that person after your pediatrician checks her out.Sent from my iPad

On May 16, 2011, at 7:07 PM, "Beer4Clare" <shaunabingham@...> wrote:

My baby is six weeks old and I have noticed for a while now that she always appears curved the same way all the time. I think it's just getting more noticeable because she's getting bigger. Her left middle section protrudes and her head tilts to her right. I've googled infantile scoliosis and the symptoms seem to be what I'm seeing in my daughter. The pediatrician is going to look at her at her two month appointment. Thinking about her having this problem is worrying me a lot.Did anyone notice their baby having the symptoms before two months? Does anyone here have experience with scoliosis that actually self-corrected? I have not been able to find any experiences about self resolving cases other than most self resolve.

[Guest guest]

My son had tortocollis early.... You would think the doc wouldve checked for

scoliosis. I think you can roll a towel and place it by her head reinforcing the

other direction. I did that .... PT said it was okay. My do. Is 4 now and it's

hard for me to remember but there were excercizes we did. I would find a GOOD

ped pt and make am apt.

Sent from my iPhone

On May 16, 2011, at 7:07 PM, " Beer4Clare " <shaunabingham@...> wrote:

My baby is six weeks old and I have noticed for a while now that she always

appears curved the same way all the time. I think it's just getting more

noticeable because she's getting bigger. Her left middle section protrudes and

her head tilts to her right. I've googled infantile scoliosis and the symptoms

seem to be what I'm seeing in my daughter.

The pediatrician is going to look at her at her two month appointment. Thinking

about her having this problem is worrying me a lot.

Did anyone notice their baby having the symptoms before two months? Does anyone

here have experience with scoliosis that actually self-corrected? I have not

been able to find any experiences about self resolving cases other than most

self resolve.

------------------------------------

[Guest guest]

Sorry I wasn't done. Anyway.... I really think you should follow up on it.

There is so much I wished I would have done when my baby was that little...... I

k ow for a fact my son was trapped under a rib (head) which most likely caused

the tortocollis. He was treated at about 6 months. He had a sacral dimple, low

tone, and a large head and no one seemed to think to check for scoliosis:(

please do not be alarmed just use caution....My so. Could have been treated MUCH

earlier, and I regret that he wasn't. Your child could be completely healthy

and I sincerely hope this is the case, but don't take the chance.

Best wishes;)

Tame

Sent from my iPhone

On May 16, 2011, at 7:07 PM, " Beer4Clare " <shaunabingham@...> wrote:

My baby is six weeks old and I have noticed for a while now that she always

appears curved the same way all the time. I think it's just getting more

noticeable because she's getting bigger. Her left middle section protrudes and

her head tilts to her right. I've googled infantile scoliosis and the symptoms

seem to be what I'm seeing in my daughter.

The pediatrician is going to look at her at her two month appointment. Thinking

about her having this problem is worrying me a lot.

Did anyone notice their baby having the symptoms before two months? Does anyone

here have experience with scoliosis that actually self-corrected? I have not

been able to find any experiences about self resolving cases other than most

self resolve.

------------------------------------

[Guest guest]

She actually had an x-ray of her lungs the day after she was born at the hospital because they thought she had an infection and there was meconium in my amniotic fluid and her respirations were high but her oxygen was low. Would that x-ray show her spine?

On Mon, May 16, 2011 at 10:07 PM, <pkfamily7@...> wrote:

 

I concur with Jane about getting the x-ray.  My daughter was always " curved " - we noticed it within the first 2 weeks - and we were told to simply reposition her.  Although we kept pointing it out (not forcefully enough though since we didn't know any better ourselves), her curve had progressed to over 60* before people really started listening to us -- including friends and family who felt we were just being paranoid.  Mind you, I have 5 kids ... I definitely knew something was different.  Long story short, when you get x-rays make sure someone who knows something about scoli reads it.  When had chest x-rays due to repeated hospitalizations for breathing problems, the curve was definitely evident.  We asked the doctors who were looking at her then about it and they told us it was simply a " positional thing " when the x-rays were taken.  So NOT the case.  According to our ortho the curve evident during her chest x-ray was 56* 

 

Good luck to you as you go forward in this journey

 

Becky

mom to (currently 26*)

also mom to , , Hannah, and

 

Could my baby have scoliosis?

 

My baby is six weeks old and I have noticed for a while now that she always appears curved the same way all the time. I think it's just getting more noticeable because she's getting bigger. Her left middle section protrudes and her head tilts to her right. I've googled infantile scoliosis and the symptoms seem to be what I'm seeing in my daughter.

The pediatrician is going to look at her at her two month appointment. Thinking about her having this problem is worrying me a lot.Did anyone notice their baby having the symptoms before two months? Does anyone here have experience with scoliosis that actually self-corrected? I have not been able to find any experiences about self resolving cases other than most self resolve.

[Guest guest]

We started to notice 's scoliosis right away, at about two weeks. We noticed that when we laid him on his back his stomach would bulge a little more on his one side. That being said we didn't act on our suspicions until he was about 4 months. You can always take her to your doctor and see what they say. It might be torticollis, I am sure that is spelled wrong. My nephew had this and they found it pretty early and he just had to have physical therapy. Beth RettingerMother of In Eighth Cast From SLCWill be in brace for the summer!!From: Beer4Clare <shaunabingham@...>Subject: Could my baby have scoliosis?infantile scoliosis treatment Date: Monday, May 16, 2011, 8:07 PM

My baby is six weeks old and I have noticed for a while now that she always appears curved the same way all the time. I think it's just getting more noticeable because she's getting bigger. Her left middle section protrudes and her head tilts to her right. I've googled infantile scoliosis and the symptoms seem to be what I'm seeing in my daughter.

The pediatrician is going to look at her at her two month appointment. Thinking about her having this problem is worrying me a lot.

Did anyone notice their baby having the symptoms before two months? Does anyone here have experience with scoliosis that actually self-corrected? I have not been able to find any experiences about self resolving cases other than most self resolve.

[Guest guest]

Did torticollis cause a bulge also? I notice the bulge more than anything else. Also, when she is on her tummy, she tends to get wrinkles on one side of her back and not so much on the other side. This is just very frustrating to know if she has scoliosis, I will most likely get the waiting game from the doctor and not knowing what is to come is the worst. Since she was born, she is my life. I can't stand for something to be " wrong " with her.

On Tue, May 17, 2011 at 4:45 AM, Leeper <bethanney05@...> wrote:

 

We started to notice 's scoliosis right away, at about two weeks. We noticed that when we laid him on his back his stomach would bulge a little more on his one side. That being said we didn't act on our suspicions until he was about 4 months. You can always take her to your doctor and see what they say.  It might be torticollis, I am sure that is spelled wrong.  My nephew had this and they found it pretty early and he just had to have physical therapy.  

Beth RettingerMother of

In Eighth Cast From SLCWill be in brace for the summer!!

From: Beer4Clare <shaunabingham@...>

Subject: Could my baby have scoliosis?infantile scoliosis treatment

Date: Monday, May 16, 2011, 8:07 PM

 

My baby is six weeks old and I have noticed for a while now that she always appears curved the same way all the time. I think it's just getting more noticeable because she's getting bigger. Her left middle section protrudes and her head tilts to her right. I've googled infantile scoliosis and the symptoms seem to be what I'm seeing in my daughter.

The pediatrician is going to look at her at her two month appointment. Thinking about her having this problem is worrying me a lot.

Did anyone notice their baby having the symptoms before two months? Does anyone here have experience with scoliosis that actually self-corrected? I have not been able to find any experiences about self resolving cases other than most self resolve.

[Guest guest]

Do you have a copy of the films? If not, see if you can get them. Of course, as I refer to them as "films", you can tell I'm old school ... From back in the day when x-rays literally were films and it was like pulling teeth to get a hospital to release them to you! Now so much is save in digital form it should be relatively easy to at least get a printout of the x-ray to look at. Whenever my daughter has had chest x-rays (and she has had several) the curve has always been visible as well.

Certainly if it is congenital scoli the curve would possible be present in that x-ray on the first day. My pregnancies were high risk and I had what seems like a zillion (at least 2 a week) of the high resolution sonos. My OB went back and looked through all of those to see if there was a curve present but there wasn't ... and there were definitely some great views of the spine. Who knows what "position" played in possibly hindering detection of an early curve in that case.

Good luck! It could be really good information to see those pictures for comparison purposes if nothing else. You might be able to actually get a doctor to NOT wait and see if you can show with new x-rays that there has already been progression.

Becky

mom to (currently 26*)

and mom to , , Hannah, and

Could my baby have scoliosis?

My baby is six weeks old and I have noticed for a while now that she always appears curved the same way all the time. I think it's just getting more noticeable because she's getting bigger. Her left middle section protrudes and her head tilts to her right. I've googled infantile scoliosis and the symptoms seem to be what I'm seeing in my daughter. The pediatrician is going to look at her at her two month appointment. Thinking about her having this problem is worrying me a lot.Did anyone notice their baby having the symptoms before two months? Does anyone here have experience with scoliosis that actually self-corrected? I have not been able to find any experiences about self resolving cases other than most self resolve.

[Guest guest]

If her head tilts to one side and she seems unable to easily turn her head to the other side she might very well have torticollis. Torticollis is often associated with infantile scoliosis,but having one does not necessarily mean that you have the other. My son had pretty bad torticollis. If your daughter has torticollis you will want to get her started with physical therapy soon (they will teach you some neck stretching exercises to do with her). My son had infantile scoliosis as well and his rib cage did protrude on one side. It's good that you are getting this looked into right away. Hopefully, it will not end up being scoliosis, but if it is, it is great that you are getting her checked out early.

Thanks,

From: Shauna Spencer <shaunabingham@...>infantile scoliosis treatment Sent: Tue, May 17, 2011 7:06:20 AMSubject: Re: Could my baby have scoliosis?

Did torticollis cause a bulge also? I notice the bulge more than anything else. Also, when she is on her tummy, she tends to get wrinkles on one side of her back and not so much on the other side. This is just very frustrating to know if she has scoliosis, I will most likely get the waiting game from the doctor and not knowing what is to come is the worst. Since she was born, she is my life. I can't stand for something to be "wrong" with her.

On Tue, May 17, 2011 at 4:45 AM, Leeper <bethanney05@...> wrote:

We started to notice 's scoliosis right away, at about two weeks. We noticed that when we laid him on his back his stomach would bulge a little more on his one side. That being said we didn't act on our suspicions until he was about 4 months. You can always take her to your doctor and see what they say. It might be torticollis, I am sure that is spelled wrong. My nephew had this and they found it pretty early and he just had to have physical therapy. Beth RettingerMother of In Eighth

Cast From SLC Will be in brace for the summer!!

From: Beer4Clare <shaunabingham@...>

Subject: Could my baby have scoliosis?

infantile scoliosis treatment Date: Monday, May 16, 2011, 8:07 PM

My baby is six weeks old and I have noticed for a while now that she always appears curved the same way all the time. I think it's just getting more noticeable because she's getting bigger. Her left middle section protrudes and her head tilts to her right. I've googled infantile scoliosis and the symptoms seem to be what I'm seeing in my daughter. The pediatrician is going to look at her at her two month appointment. Thinking about her having this problem is worrying me a lot.Did anyone notice their baby having the symptoms before two months? Does anyone here have experience with scoliosis that actually self-corrected? I have not been able to find any experiences about self resolving cases other than most self resolve.

[Guest guest]

If her head tilts to one side and she seems unable to easily turn her head to the other side she might very well have torticollis. Torticollis is often associated with infantile scoliosis,but having one does not necessarily mean that you have the other. My son had pretty bad torticollis. If your daughter has torticollis you will want to get her started with physical therapy soon (they will teach you some neck stretching exercises to do with her). My son had infantile scoliosis as well and his rib cage did protrude on one side. It's good that you are getting this looked into right away. Hopefully, it will not end up being scoliosis, but if it is, it is great that you are getting her checked out early.

Thanks,

From: Shauna Spencer <shaunabingham@...>infantile scoliosis treatment Sent: Tue, May 17, 2011 7:06:20 AMSubject: Re: Could my baby have scoliosis?

Did torticollis cause a bulge also? I notice the bulge more than anything else. Also, when she is on her tummy, she tends to get wrinkles on one side of her back and not so much on the other side. This is just very frustrating to know if she has scoliosis, I will most likely get the waiting game from the doctor and not knowing what is to come is the worst. Since she was born, she is my life. I can't stand for something to be "wrong" with her.

On Tue, May 17, 2011 at 4:45 AM, Leeper <bethanney05@...> wrote:

We started to notice 's scoliosis right away, at about two weeks. We noticed that when we laid him on his back his stomach would bulge a little more on his one side. That being said we didn't act on our suspicions until he was about 4 months. You can always take her to your doctor and see what they say. It might be torticollis, I am sure that is spelled wrong. My nephew had this and they found it pretty early and he just had to have physical therapy. Beth RettingerMother of In Eighth

Cast From SLC Will be in brace for the summer!!

From: Beer4Clare <shaunabingham@...>

Subject: Could my baby have scoliosis?

infantile scoliosis treatment Date: Monday, May 16, 2011, 8:07 PM

My baby is six weeks old and I have noticed for a while now that she always appears curved the same way all the time. I think it's just getting more noticeable because she's getting bigger. Her left middle section protrudes and her head tilts to her right. I've googled infantile scoliosis and the symptoms seem to be what I'm seeing in my daughter. The pediatrician is going to look at her at her two month appointment. Thinking about her having this problem is worrying me a lot.Did anyone notice their baby having the symptoms before two months? Does anyone here have experience with scoliosis that actually self-corrected? I have not been able to find any experiences about self resolving cases other than most self resolve.

[Guest guest]

I'm in complete agreement with you! I know it isn't funny but your explaination of the spine deciding one day to grow the other way and reach 0 made me smile... Umm no is right for almost all of us on here! I'm so glad Logan continues to do so well!TSent from my iPhoneOn May 16, 2011, at 11:19 PM, Medlin <amanda.medlin@...> wrote:

We noticed logans ribs felt a little off about a week after bringing him home. He always loooked to the right therefore giving him torticollis. He ended up having a left c curve at 30 degrees by the time he was 5 months old. Do not wait and see. Our ped ortho also said " most correct themselves". My answer...yeah right, the spine desides one day that it wants to turn the other way because its board and will become 0 just because? ummm no.

we casted logan at 9 months old and 45 degrees at this time. He is now 23 months old and is down to 9 degrees. We get the 8th cast on wednesday. He is doing great and reached all his milestones on time and in the cast. we think we are now in the homestretch but only time and prayers will tell. Go with your gut on this one. Sometimes mama's end up being thier child's only advocate.

Good luck!

Logan's mama (45 down to 9 awaiting 8th cast, 23 months old)

From: Beer4Clare <shaunabingham@...>infantile scoliosis treatment Sent: Mon, May 16, 2011 8:07:45 PMSubject: Could my baby have scoliosis?

My baby is six weeks old and I have noticed for a while now that she always appears curved the same way all the time. I think it's just getting more noticeable because she's getting bigger. Her left middle section protrudes and her head tilts to her right. I've googled infantile scoliosis and the symptoms seem to be what I'm seeing in my daughter. The pediatrician is going to look at her at her two month appointment. Thinking about her having this problem is worrying me a lot.Did anyone notice their baby having the symptoms before two months? Does anyone here have experience with scoliosis that actually self-corrected? I have not been able to find any experiences about self resolving cases other than most self resolve.

[Guest guest]

It could possibly show part I think but sometimes if the tech isn't looking for that it won't be picked up. Get a copy of the xray and report.TSent from my iPhoneOn May 17, 2011, at 12:20 AM, Shauna Spencer <shaunabingham@...> wrote:

She actually had an x-ray of her lungs the day after she was born at the hospital because they thought she had an infection and there was meconium in my amniotic fluid and her respirations were high but her oxygen was low. Would that x-ray show her spine?

On Mon, May 16, 2011 at 10:07 PM, <pkfamily7@...> wrote:

I concur with Jane about getting the x-ray. My daughter was always "curved" - we noticed it within the first 2 weeks - and we were told to simply reposition her. Although we kept pointing it out (not forcefully enough though since we didn't know any better ourselves), her curve had progressed to over 60* before people really started listening to us -- including friends and family who felt we were just being paranoid. Mind you, I have 5 kids ... I definitely knew something was different. Long story short, when you get x-rays make sure someone who knows something about scoli reads it. When had chest x-rays due to repeated hospitalizations for breathing problems, the curve was definitely evident. We asked the doctors who were looking at her then about it and they told us it was simply a "positional thing" when the

x-rays were taken. So NOT the case. According to our ortho the curve evident during her chest x-ray was 56*

Good luck to you as you go forward in this journey

Becky

mom to (currently 26*)

also mom to , , Hannah, and

Could my baby have scoliosis?

My baby is six weeks old and I have noticed for a while now that she always appears curved the same way all the time. I think it's just getting more noticeable because she's getting bigger. Her left middle section protrudes and her head tilts to her right. I've googled infantile scoliosis and the symptoms seem to be what I'm seeing in my daughter.

The pediatrician is going to look at her at her two month appointment. Thinking about her having this problem is worrying me a lot.Did anyone notice their baby having the symptoms before two months? Does anyone here have experience with scoliosis that actually self-corrected? I have not been able to find any experiences about self resolving cases other than most self resolve.

[Guest guest]

I noticed it early...maybe around 3 or 4 months.  Her head tilt was an issue early on as well.  No one would really listen until the head tilt got worse instead of better with therapy, ect.  They didn't actually diagnose her until after she was a year old.  I agree with getting it checked out and making sure with an orthopedic doctor.

On Tue, May 17, 2011 at 4:59 PM, Tame Olson <dazies2001@...> wrote:

It could possibly show part I think but sometimes if the tech isn't looking for that it won't be picked up. Get a copy of the xray and report.TSent from my iPhone

On May 17, 2011, at 12:20 AM, Shauna Spencer <shaunabingham@...> wrote:

She actually had an x-ray of her lungs the day after she was born at the hospital because they thought she had an infection and there was meconium in my amniotic fluid and her respirations were high but her oxygen was low. Would that x-ray show her spine?

On Mon, May 16, 2011 at 10:07 PM, <pkfamily7@...> wrote:

 

I concur with Jane about getting the x-ray.  My daughter was always " curved " - we noticed it within the first 2 weeks - and we were told to simply reposition her.  Although we kept pointing it out (not forcefully enough though since we didn't know any better ourselves), her curve had progressed to over 60* before people really started listening to us -- including friends and family who felt we were just being paranoid.  Mind you, I have 5 kids ... I definitely knew something was different.  Long story short, when you get x-rays make sure someone who knows something about scoli reads it.  When had chest x-rays due to repeated hospitalizations for breathing problems, the curve was definitely evident.  We asked the doctors who were looking at her then about it and they told us it was simply a " positional thing " when the

x-rays were taken.  So NOT the case.  According to our ortho the curve evident during her chest x-ray was 56* 

 

Good luck to you as you go forward in this journey

 

Becky

mom to (currently 26*)

also mom to , , Hannah, and

 

Could my baby have scoliosis?

 

My baby is six weeks old and I have noticed for a while now that she always appears curved the same way all the time. I think it's just getting more noticeable because she's getting bigger. Her left middle section protrudes and her head tilts to her right. I've googled infantile scoliosis and the symptoms seem to be what I'm seeing in my daughter.

The pediatrician is going to look at her at her two month appointment. Thinking about her having this problem is worrying me a lot.Did anyone notice their baby having the symptoms before two months? Does anyone here have experience with scoliosis that actually self-corrected? I have not been able to find any experiences about self resolving cases other than most self resolve.

-- Leah Jeffries

[Guest guest]

Hi,

I rarely see self resolving cases, but they are out there. Ive seen

littles that looked like they would never resolve, and they did. Its

really unbelievable to see. Please read " Growth as corrective force in

the early treatment of progressive infantile scoliosis, by Mehta and view

A New Directio DVD, when you get a chance. These 2 items will help you to

better understand the Early Treatment w/ EDF/Mehta casting treatment

modality.

Good indicators of scoli are uneven shoulders & pelvis, developing rib

hump, flank creases in the back on the concavity side, and in many cases

torticollis & sometimes plagiocephaly.

A great way to help decifer if this is a self resolving or progressive

case is to have the ped. ortho measure your babes RVAD. This measuring

technique will help determine if its a progressive case, or ot. If the

RVAD is above 20, then it may be progressive. If below, then it could be

self resolving. There is an article on the RVAD in the files section of

cast.

Welcome to CAST and keep the questions coming!

Sincerely,

HRH

> My baby is six weeks old and I have noticed for a while now that she

> always appears curved the same way all the time. I think it's just getting

> more noticeable because she's getting bigger. Her left middle section

> protrudes and her head tilts to her right. I've googled infantile

> scoliosis and the symptoms seem to be what I'm seeing in my daughter.

>

> The pediatrician is going to look at her at her two month appointment.

> Thinking about her having this problem is worrying me a lot.

>

> Did anyone notice their baby having the symptoms before two months? Does

> anyone here have experience with scoliosis that actually self-corrected? I

> have not been able to find any experiences about self resolving cases

> other than most self resolve.

>

>

[Guest guest]

I think thats why we rarely see self resolving cases. Once their babes

are straight there is no need to be here. Lucky little babes!

HRH

> We could tell on my son at around 3 weeks old.  BUT none of us knew what

> it

> was.  We just knew something was weird about his ribs and the way he

> seemed to

> curl up.  He also had torticollis, but again we did not know it at the

> time.. 

>

> His was indeed Progressive Idiopathic Infantile Scoliosis.  And a

> geneticist

> felt it was from positioning in utero.  He is a twin so that could be,

> but no

> one really knows.

> I can remember a few cases of self correction.  I am not sure the moms

> are still

> on the group though. 

>

> Keep us posted.  

>

> Tasha

> Mommy of 5 year old twin boys- and

> Fort Worth, Texas

> is treated at Texas ish Rite Hospital in Dallas, Texas.  After

> being

> treated in a series of 6 casts for 14 months he is now in a brace and

> has been

> since September 2007.

>

> EARLY Treatment does work if done properly.

> You can read 's story at....

> http://www.infantilescoliosis.org/stories.html

> Or follow our family one day at a

> time......http://thefontenotslife.blogspot.com/

>

>

>

>

>  

>

>

>

>

> ________________________________

> From: <lucyrichmondsmom@...>

> " infantile scoliosis treatment "

> <infantile scoliosis treatment >

> Sent: Mon, May 16, 2011 7:14:10 PM

> Subject: Re: Could my baby have scoliosis?

>

>  

> I noticed something with my daughter at 7 weeks.  Her tummy seemed to

> bulge out

> to one side.  I have gotten 2 diagnoses - 1 progressive and 1 positional.

>  I

> wish I knew who to believe.  You are doing the right thing by

> researching.  I

> would try to figure out in your area who specializes in infantile

> scoliosis and

> go see that person after your pediatrician checks her out.

>

> Sent from my iPad

>

> On May 16, 2011, at 7:07 PM, " Beer4Clare " <shaunabingham@...> wrote:

>

>

>  

>>My baby is six weeks old and I have noticed for a while now that she

>> always

>>appears curved the same way all the time. I think it's just getting more

>>noticeable because she's getting bigger. Her left middle section

>> protrudes and

>>her head tilts to her right. I've googled infantile scoliosis and the

>> symptoms

>>seem to be what I'm seeing in my daughter.

>>

>>

>>The pediatrician is going to look at her at her two month appointment.

>> Thinking

>>about her having this problem is worrying me a lot.

>>

>>Did anyone notice their baby having the symptoms before two months? Does

>> anyone

>>here have experience with scoliosis that actually self-corrected? I have

>> not

>>been able to find any experiences about self resolving cases other than

>> most

>>self resolve.

>>

>>

>

[Guest guest]

Ditto, Jane!

> Another thing to consider if it is showing at that young of age is

> congenital

> scoliosis.  My daughter was born with (she had a wedge shaped partial

> vertebrae

> between T8 and T9).  She had other medical issues she was born with so

> it was

> diagnosed at 1 day old.  That said, I could feel her " curve " from day

> one, even

> though her first orthopedist said there was no way to feel it from the

> outside

> NOT!

>

> Anyway, I would highly suggest insisting on an x-ray and go from

> there.  If an

> abnormality is noted, I'd get in to see a pediatric orthopedist asap.

>

> Welcome to the group!

>  

> Jane

>

>

>

>

> ________________________________

> From: Beer4Clare <shaunabingham@...>

> infantile scoliosis treatment

> Sent: Mon, May 16, 2011 5:07:45 PM

> Subject: Could my baby have scoliosis?

>

>  

> My baby is six weeks old and I have noticed for a while now that she

> always

> appears curved the same way all the time. I think it's just getting more

> noticeable because she's getting bigger. Her left middle section protrudes

> and

> her head tilts to her right. I've googled infantile scoliosis and the

> symptoms

> seem to be what I'm seeing in my daughter.

>

>

> The pediatrician is going to look at her at her two month appointment.

> Thinking

> about her having this problem is worrying me a lot.

>

> Did anyone notice their baby having the symptoms before two months? Does

> anyone

> here have experience with scoliosis that actually self-corrected? I have

> not

> been able to find any experiences about self resolving cases other than

> most

> self resolve.

>

>

>

[Guest guest]

Way to grow Logan!! Way to listen to your matermal intuition and advocate

for your babe, !

> We noticed logans ribs felt a little off about a week after bringing him

> home.

> He always loooked to the right therefore giving him torticollis. He

> ended up

> having a left c curve at 30 degrees by the time he was 5 months old. Do

> not wait

> and see. Our ped ortho also said " most correct themselves " . My

> answer...yeah

> right, the spine desides one day that it wants to turn the other way

> because its

> board and will become 0 just because? ummm no.

> we casted logan at 9 months old and 45 degrees at this time. He is now 23

> months

> old and is down to 9 degrees. We get the 8th cast on wednesday. He is

> doing

> great and reached all his milestones on time and in the cast. we think we

> are

> now in the homestretch but only time and prayers will tell. Go with your

> gut on

> this one. Sometimes mama's end up being thier child's only advocate.

>

>

> Good luck!

>

> Logan's mama (45 down to 9 awaiting 8th cast, 23 months old)

>

>  

>

>

>

> ________________________________

> From: Beer4Clare <shaunabingham@...>

> infantile scoliosis treatment

> Sent: Mon, May 16, 2011 8:07:45 PM

> Subject: Could my baby have scoliosis?

>

>  

> My baby is six weeks old and I have noticed for a while now that she

> always

> appears curved the same way all the time. I think it's just getting more

> noticeable because she's getting bigger. Her left middle section protrudes

> and

> her head tilts to her right. I've googled infantile scoliosis and the

> symptoms

> seem to be what I'm seeing in my daughter.

>

>

> The pediatrician is going to look at her at her two month appointment.

> Thinking

> about her having this problem is worrying me a lot.

>

> Did anyone notice their baby having the symptoms before two months? Does

> anyone

> here have experience with scoliosis that actually self-corrected? I have

> not

> been able to find any experiences about self resolving cases other than

> most

> self resolve.

>

>

>

[Guest guest]

It should at least show a partial thoracic view....(?)

She actually had an x-ray of her lungs the day after she was born at the

> hospital because they thought she had an infection and there was meconium

> in

> my amniotic fluid and her respirations were high but her oxygen was low.

> Would that x-ray show her spine?

>

> On Mon, May 16, 2011 at 10:07 PM, <pkfamily7@...> wrote:

>

>>

>>

>> I concur with Jane about getting the x-ray. My daughter was always

>> " curved " - we noticed it within the first 2 weeks - and we were told to

>> simply reposition her. Although we kept pointing it out (not forcefully

>> enough though since we didn't know any better ourselves), her curve had

>> progressed to over 60* before people really started listening to us --

>> including friends and family who felt we were just being paranoid. Mind

>> you, I have 5 kids ... I definitely knew something was different. Long

>> story short, when you get x-rays make sure someone who knows something

>> about

>> scoli reads it. When had chest x-rays due to repeated

>> hospitalizations for breathing problems, the curve was definitely

>> evident.

>> We asked the doctors who were looking at her then about it and they told

>> us

>> it was simply a " positional thing " when the x-rays were taken. So NOT

>> the

>> case. According to our ortho the curve evident during her chest x-ray

>> was 56*

>>

>>

>>

>> Good luck to you as you go forward in this journey

>>

>>

>>

>> Becky

>>

>> mom to (currently 26*)

>>

>> also mom to , , Hannah, and

>>

>>

>>

>>

>> Could my baby have scoliosis?

>>

>>

>>

>> My baby is six weeks old and I have noticed for a while now that she

>> always appears curved the same way all the time. I think it's just

>> getting

>> more noticeable because she's getting bigger. Her left middle section

>> protrudes and her head tilts to her right. I've googled infantile

>> scoliosis

>> and the symptoms seem to be what I'm seeing in my daughter.

>>

>> The pediatrician is going to look at her at her two month appointment.

>> Thinking about her having this problem is worrying me a lot.

>>

>> Did anyone notice their baby having the symptoms before two months? Does

>> anyone here have experience with scoliosis that actually self-corrected?

>> I

>> have not been able to find any experiences about self resolving cases

>> other

>> than most self resolve.

>>

>>

>>

>