Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 Damn Connie... what a ride! I have no idea how I got hcv... snorting coke is a possibility, never shared a needle with anyone and that part of my misguided youth has long been gone. I am one of the lucky ones for sure. Was dx'd about 1.5 years ago and Bx showed minimal damage. Doc thinks that may mean I contracted fairly recently but you know how that goes. Now only the one shot left of Peg and a week of Riba afterwards. Virus was undetectable at 12 weeks and at 22, I am confident it will stay that way. The longer I am a part of this group the more I realize how lucky I am. Not just in view of hcv and my condition, but because of how I have gotten to know so many amazing people. Yup... you're one of them. I had better get back to cleaning... the damn maid didn't show up again leaving me the weekly ritual. I am still coughing up a storm but fever is down. I have to go back to work tomorrow and am hoping for the best there. At least hubby will be home again tomorrow night and can take some of the load off me. Oh... I thought I was safe from pneumonia, but as part of the doc's 'take care of yourself' speech, I was told there are many kinds of the bug that the vaccine does not cover. I feel like such a dolt sometimes with how much I don't know about illness. Take care, Llinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 linda i had the most horrid time with respiratory during tx, but its mostly gone now too, youre almost done!!! yay!!!! betcha cant wait to cross that finish line. get better toots. love ya connieLlinda <2llama@...> wrote: Damn Connie... what a ride! I have no idea how I got hcv... snorting coke is a possibility, never shared a needle with anyone and that part of my misguided youth has long been gone. I am one of the lucky ones for sure. Was dx'd about 1.5 years ago and Bx showed minimal damage. Doc thinks that may mean I contracted fairly recently but you know how that goes. Now only the one shot left of Peg and a week of Riba afterwards. Virus was undetectable at 12 weeks and at 22, I am confident it will stay that way. The longer I am a part of this group the more I realize how lucky I am. Not just in view of hcv and my condition, but because of how I have gotten to know so many amazing people. Yup... you're one of them. I had better get back to cleaning... the damn maid didn't show up again leaving me the weekly ritual. I am still coughing up a storm but fever is down. I have to go back to work tomorrow and am hoping for the best there. At least hubby will be home again tomorrow night and can take some of the load off me. Oh... I thought I was safe from pneumonia, but as part of the doc's 'take care of yourself' speech, I was told there are many kinds of the bug that the vaccine does not cover. I feel like such a dolt sometimes with how much I don't know about illness. Take care, Llinda The light at the end of the tunnel may be you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 I've heard that a lot of folks have problems with itching.. And other skin problems.. And the depression is always an issue too huh??? I remember all of us teasing De when she started to lose her hair..Told her to paint her scalp and such..We also touched on the wig issue.Heck if Dolly can wear them De can too.Boo -- Re: RE: Connie's ride linda i had the most horrid time with respiratory during tx, but its mostly gone now too, youre almost done!!! yay!!!! betcha cant wait to cross that finish line. get better toots. love ya connieLlinda <2llama@...> wrote: Damn Connie... what a ride! I have no idea how I got hcv... snorting coke is a possibility, never shared a needle with anyone and that part of my misguided youth has long been gone. I am one of the lucky ones for sure. Was dx'd about 1.5 years ago and Bx showed minimal damage. Doc thinks that may mean I contracted fairly recently but you know how that goes. Now only the one shot left of Peg and a week of Riba afterwards. Virus was undetectable at 12 weeks and at 22, I am confident it will stay that way. The longer I am a part of this group the more I realize how lucky I am. Not just in view of hcv and my condition, but because of how I have gotten to know so many amazing people. Yup... you're one of them. I had better get back to cleaning... the damn maid didn't show up again leaving me the weekly ritual. I am still coughing up a storm but fever is down. I have to go back to work tomorrow and am hoping for the best there. At least hubby will be home again tomorrow night and can take some of the load off me. Oh... I thought I was safe from pneumonia, but as part of the doc's 'take care of yourself' speech, I was told there are many kinds of the bug that the vaccine does not cover. I feel like such a dolt sometimes with how much I don't know about illness. Take care, Llinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 I've heard that a lot of folks have problems with itching.. And other skin problems.. And the depression is always an issue too huh??? I remember all of us teasing De when she started to lose her hair..Told her to paint her scalp and such..We also touched on the wig issue.Heck if Dolly can wear them De can too.Boo -- Re: RE: Connie's ride linda i had the most horrid time with respiratory during tx, but its mostly gone now too, youre almost done!!! yay!!!! betcha cant wait to cross that finish line. get better toots. love ya connieLlinda <2llama@...> wrote: Damn Connie... what a ride! I have no idea how I got hcv... snorting coke is a possibility, never shared a needle with anyone and that part of my misguided youth has long been gone. I am one of the lucky ones for sure. Was dx'd about 1.5 years ago and Bx showed minimal damage. Doc thinks that may mean I contracted fairly recently but you know how that goes. Now only the one shot left of Peg and a week of Riba afterwards. Virus was undetectable at 12 weeks and at 22, I am confident it will stay that way. The longer I am a part of this group the more I realize how lucky I am. Not just in view of hcv and my condition, but because of how I have gotten to know so many amazing people. Yup... you're one of them. I had better get back to cleaning... the damn maid didn't show up again leaving me the weekly ritual. I am still coughing up a storm but fever is down. I have to go back to work tomorrow and am hoping for the best there. At least hubby will be home again tomorrow night and can take some of the load off me. Oh... I thought I was safe from pneumonia, but as part of the doc's 'take care of yourself' speech, I was told there are many kinds of the bug that the vaccine does not cover. I feel like such a dolt sometimes with how much I don't know about illness. Take care, Llinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 Itching & dry skin is a big problem. You just have to keep yourself greased up all the time. You new people should join out photo group and go look at the way my hair grew back! It’s pure white everywhere it fell out, so it’s all white on top & sides and very dark brown underneath! I was devastated at first & got called Pepe le Pew & skunk girl & other terms of endearment, but now I get SO many compliments on it. Hairdressers stop me in public wanting to know if it’s real because if it’s not, they want the name of the color! Connie, I am so proud of you for how far you’ve come. You are a very strong woman and it’s a good damn thing, cuz you’re gonna need it to raise that baby! Here’s my story: I probably got mine in the late 70’s or early 80’s from IV drugs, or tattoo or who the hell knows? Who cares? I found out because I got really sick the summer of ’03 with left side pain & diarrhea. The gastro thought I probably had a parasite, possibly from some Cuban rum a friend had brought me. I woke up one day in pretty bad pain and took myself to the ER after I dropped my son at school. They found a big kidney stone. I had the lithotripsy to bust it up and after that was over, I was still in pain. So I went to the gyno. He couldn’t find anything. So I went back to the gastro & he did surgery to look for the stone piece that must not have passed. I wasn’t there so he said he was done with me & sent me back to my regular doc. When he looked at my blood work from the ER visit, he noticed my enzymes were elevated and they never had been before. (We’d been checking every 6 months for 10 or more years because of my cholesterol meds). So he starts running all kinds of tests and voila! He found the hep. I got the confirmation on Halloween 03. So he sends me to another gastro (same practice as the other guy) and he wants to investigate the pain before we think about the hep. Since I’d already met my deductible, I said let’s get it done before the end of the year. My colonoscopy revealed some pre-cancerous polyps. So from Sept-Dec that year I had 4 surgeries/procedures and what seemed like 100 gallons of blood drawn. After arguing with the insurance company, I started tx the 1st week of Feb 04. It wasn’t too bad at first, but I had weird sides. My vision changed and I had to postpone my shot for a few days till I could get the go ahead from the ophthalmologist. Ended up with a new pair of glasses. I also had this really peculiar swelling in my legs, with pitting edema. That ended up being this freaky thing called erythema nodosum I had to see the dermatologist for. Turn out that was probably from my thyroid going wacko from tx, because it got better when we tripled my synthroid dose. The fatigue was really bad and I rarely did anything after work or on the weekends except lay around the house. But by golly, I made it to work & worked overtime most of that whole year. Sometimes I wasn’t sure I’d survive it, but I did and it was all worth it because I’m undetectable so far! And I intend to stay that way! De (dragon slayer extrodonaaire) Re: RE: Connie's ride I've heard that a lot of folks have problems with itching.. And other skin problems.. And the depression is always an issue too huh??? I remember all of us teasing De when she started to lose her hair..Told her to paint her scalp and such..We also touched on the wig issue.Heck if Dolly can wear them De can too.Boo Quote Link to comment Share on other sites More sharing options...
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