Update and Questions about Tethered Spinal Cord

[Guest guest]

Hello everyone! I haven't been on here to post in so long. I am keeping up on

your posts though and I try to chime in when I have helpful information Tommy

Lee is doing great in cast #2 at about 35*..we go back to SLC in June 20th for

#3. Cast life had been really easy to adjust to and diapering has gotten much

easier. We use nighttime diapers since they have higher absorption areas and

this helps keep any leaking down. We also tuck the diaper up into the cast so

that everything gets caught into diaper we've only had a handfull of

accidents during these 2 casts but nothing we couldn't clean up. I hope everyone

else is doing well and having a nice spring.

I also have some questions regarding tethered spinal cords. Are there any

families whos child has had a tethered cord? And if so did you operate? My niece

was just diagnosed and my sister Is having a hard time dealing withte upcoming

surgery. If anyone has any information or pre/post op stories I would greatly

appreciate your insight. Thank you

, mommy to Tommy Lee, 3, in cast #2 @ 35*, and mom to Logan who is 10

[Guest guest]

Congrats on adjusting to cast life. Please recommend to your sis that she join CAST, as she will find that she is not alone in all of this. Way to grow Tommy Lee!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of crazerachSent: Wednesday, May 11, 2011 2:19 PMinfantile scoliosis treatment Subject: Update and Questions about Tethered Spinal Cord Hello everyone! I haven't been on here to post in so long. I am keeping up on your posts though and I try to chime in when I have helpful information Tommy Lee is doing great in cast #2 at about 35*..we go back to SLC in June 20th for #3. Cast life had been really easy to adjust to and diapering has gotten much easier. We use nighttime diapers since they have higher absorption areas and this helps keep any leaking down. We also tuck the diaper up into the cast so that everything gets caught into diaper we've only had a handfull of accidents during these 2 casts but nothing we couldn't clean up. I hope everyone else is doing well and having a nice spring. I also have some questions regarding tethered spinal cords. Are there any families whos child has had a tethered cord? And if so did you operate? My niece was just diagnosed and my sister Is having a hard time dealing withte upcoming surgery. If anyone has any information or pre/post op stories I would greatly appreciate your insight. Thank you , mommy to Tommy Lee, 3, in cast #2 @ 35*, and mom to Logan who is 10

[Guest guest]

Congrats on adjusting to cast life. Please recommend to your sis that she join CAST, as she will find that she is not alone in all of this. Way to grow Tommy Lee!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of crazerachSent: Wednesday, May 11, 2011 2:19 PMinfantile scoliosis treatment Subject: Update and Questions about Tethered Spinal Cord Hello everyone! I haven't been on here to post in so long. I am keeping up on your posts though and I try to chime in when I have helpful information Tommy Lee is doing great in cast #2 at about 35*..we go back to SLC in June 20th for #3. Cast life had been really easy to adjust to and diapering has gotten much easier. We use nighttime diapers since they have higher absorption areas and this helps keep any leaking down. We also tuck the diaper up into the cast so that everything gets caught into diaper we've only had a handfull of accidents during these 2 casts but nothing we couldn't clean up. I hope everyone else is doing well and having a nice spring. I also have some questions regarding tethered spinal cords. Are there any families whos child has had a tethered cord? And if so did you operate? My niece was just diagnosed and my sister Is having a hard time dealing withte upcoming surgery. If anyone has any information or pre/post op stories I would greatly appreciate your insight. Thank you , mommy to Tommy Lee, 3, in cast #2 @ 35*, and mom to Logan who is 10

[Guest guest]

Congrats on adjusting to cast life. Please recommend to your sis that she join CAST, as she will find that she is not alone in all of this. Way to grow Tommy Lee!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of crazerachSent: Wednesday, May 11, 2011 2:19 PMinfantile scoliosis treatment Subject: Update and Questions about Tethered Spinal Cord Hello everyone! I haven't been on here to post in so long. I am keeping up on your posts though and I try to chime in when I have helpful information Tommy Lee is doing great in cast #2 at about 35*..we go back to SLC in June 20th for #3. Cast life had been really easy to adjust to and diapering has gotten much easier. We use nighttime diapers since they have higher absorption areas and this helps keep any leaking down. We also tuck the diaper up into the cast so that everything gets caught into diaper we've only had a handfull of accidents during these 2 casts but nothing we couldn't clean up. I hope everyone else is doing well and having a nice spring. I also have some questions regarding tethered spinal cords. Are there any families whos child has had a tethered cord? And if so did you operate? My niece was just diagnosed and my sister Is having a hard time dealing withte upcoming surgery. If anyone has any information or pre/post op stories I would greatly appreciate your insight. Thank you , mommy to Tommy Lee, 3, in cast #2 @ 35*, and mom to Logan who is 10

[Guest guest]

Thank you ! I definitely shared the info and encouraged her to join.

Thank you

>

> Congrats on adjusting to cast life. Please recommend to your sis that she

> join CAST, as she will find that she is not alone in all of this.

>

> Way to grow Tommy Lee!

>

> HRH

>

>

>

> From: infantile scoliosis treatment

> [mailto:infantile scoliosis treatment ] On Behalf Of crazerach

> Sent: Wednesday, May 11, 2011 2:19 PM

> infantile scoliosis treatment

> Subject: Update and Questions about Tethered Spinal

> Cord

>

>

>

>

>

> Hello everyone! I haven't been on here to post in so long. I am keeping up

> on your posts though and I try to chime in when I have helpful information

> Tommy Lee is doing great in cast #2 at about 35*..we go back to SLC in

> June 20th for #3. Cast life had been really easy to adjust to and diapering

> has gotten much easier. We use nighttime diapers since they have higher

> absorption areas and this helps keep any leaking down. We also tuck the

> diaper up into the cast so that everything gets caught into diaper we've

> only had a handfull of accidents during these 2 casts but nothing we

> couldn't clean up. I hope everyone else is doing well and having a nice

> spring.

>

> I also have some questions regarding tethered spinal cords. Are there any

> families whos child has had a tethered cord? And if so did you operate? My

> niece was just diagnosed and my sister Is having a hard time dealing withte

> upcoming surgery. If anyone has any information or pre/post op stories I

> would greatly appreciate your insight. Thank you

> , mommy to Tommy Lee, 3, in cast #2 @ 35*, and mom to Logan who is 10

>

>