Back from Erie

[Guest guest]

That sounds like encouraging news. Thanks for sharing w/us.....

Still wish we could've met up this time....

and Evan 18m

Claflin wrote:

We just got back from Erie. It's late and we are exhausted, so forgive

me for any typos that I might make.

Well, Ian did not get any more correction and he remains at 10 degrees (was 11

last time). His rotation is pretty much nil which is great though and his RVAD

was 2. Soooo, Dr. K said he didn't think Ian was going to get much benefit from

the casting anymore and that this will be his last cast. I do hope for some more

correction however since he was able to get him down to 0 degrees this time in

cast which we've never gotten before. So, we are scheduled to have him braced

during Dr. K's last week at Shriners on May 25th.

He did tell me, like Abigail mentioned in an earlier post, that he is now going

more conservative and would like his patients to be 5 degrees or less before

going to a brace. I asked him why and he said because he had two kids that got

worse after moving to a brace at 10 degrees. This makes me hope Ian gets some

improvement this time.

Yes, he is definitely going to continue casting. Shriners is really hoping that

many of his patients will be able to follow him to Alabama. I asked if

Children's in Alabama is open to the idea of casting and he said yes. I also

asked if he would have the correct table. He said they are currently working on

that. There is a problem and they cannot obtain the table from the company that

made the one in Erie, so they are trying to modify or make their own table in

Alabama (or something along those lines). I also asked about insurance. He said

obviously that each person's insurance is different, but a lot of insurances

would pay since the treatment wouldn't be available in the home state of the

patient. In talking to one of the nurses though, she told me that some times the

casting is covered, but not the anesthesia which is super expensive.

I also asked if they are replacing him and going to train someone else to cast.

He told me pediatric orthopedists are hard to find, so replacing him may take a

while (plus, I was thinking that it might be hard to find a doc who would want

to relocate to Erie). I think this is why they are really hoping some people can

follow him to Alabama, because that leaves Dr. as the only orthopedist

at the hospital. I can't imagine how busy he is going to be! The staff seem

really sad that he is leaving as am I!

I have some other things questions about bracing and anesthesia to ask, but it

will have to wait until tomorrow. I need to get some sleep after this trip!

Lastly, it was great meeting , (I think that was your husband's name

- hope I got that right!) and sweet little Rylie! She was such a trooper

today!!

Noelle (12-2-01)

Ian (8-15-04)

[Guest guest]

AWWWW-That sounds like really good news. Evan got really good correction in his

first cast as well. Evan's balance is off at first in and out of his casts,

she'll adjust fine, I " m sure.

Let us know how she's adjusting!

and Evan-18m

kelly shearer wrote:

Hello Everyone,

This is , Rylie's mom. We just got back from erie as well. Rylie did much

better than we could have expected. First of all Dr> khoury did a x-ray lying

down to compare rylie's curve from her last x-ray back in november (standing).

The standing x-ray in november showed her curve at 45 degrees and could not

measure her RVAD. This xray showed her curve at 27 degrees and her RVAD was 25

degrees. WOW, what difference. We did the casting yesterday morning and Rylie's

curve in the cast is now 7 degrees and RVAD is 7 degrees as well!!!!! and

I were super excited, it was like Christmas morning for us. We never could have

expected that. I know you usually get the most correction out of the 1st cast,

but I'm still amazed.

I was wondering if any of your childeren had a hard time getting up into a

sitting position from lying down? I know it has only been 24 hours, but I feel

so bad when she is struggling to get up. She just looks at me like, what is

going on. She already is getting around much better than lastnight. When we 1st

got home I sat her on the floor and she was like a weeble wobble. I'm hoping

that with time she will be able to get around as well as before.

is was so nice to meet you and your family. I'm happty to hear that Ian

is finally down to 0 in cast. I know this has been a super long road for you and

Glen. and I are grateful to have you two there to bounce questions off of

you. You were a huge help and comfort. I apologize if I seemed a little off, I

was a little overwelmed.

Sincerley,

---------------------------------

8:00? 8:25? 8:40? Find a flick in no time

with the Search movie showtime shortcut.

[Guest guest]

,

I am happy things went well for Ian. Hopefully he will make a little more

improvement in this cast before his brace.

I can just imagine how busy Erie will be now with Dr. K leaving.

Makes me wonder if we should go to SLC, but I don't want to go back to the cast

over the shoulder.

Anyway good to hear the news and glad you are home safely.

Take care,

Tasha

Mommy of twin boys- and 23mths

Fort Wort, Texas

Claflin wrote:

We just got back from Erie. It's late and we are exhausted, so forgive me for

any typos that I might make.

Well, Ian did not get any more correction and he remains at 10 degrees (was 11

last time). His rotation is pretty much nil which is great though and his RVAD

was 2. Soooo, Dr. K said he didn't think Ian was going to get much benefit from

the casting anymore and that this will be his last cast. I do hope for some

more correction however since he was able to get him down to 0 degrees this time

in cast which we've never gotten before. So, we are scheduled to have him

braced during Dr. K's last week at Shriners on May 25th.

He did tell me, like Abigail mentioned in an earlier post, that he is now going

more conservative and would like his patients to be 5 degrees or less before

going to a brace. I asked him why and he said because he had two kids that got

worse after moving to a brace at 10 degrees. This makes me hope Ian gets some

improvement this time.

Yes, he is definitely going to continue casting. Shriners is really hoping

that many of his patients will be able to follow him to Alabama. I asked if

Children's in Alabama is open to the idea of casting and he said yes. I also

asked if he would have the correct table. He said they are currently working on

that. There is a problem and they cannot obtain the table from the company that

made the one in Erie, so they are trying to modify or make their own table in

Alabama (or something along those lines). I also asked about insurance. He

said obviously that each person's insurance is different, but a lot of

insurances would pay since the treatment wouldn't be available in the home state

of the patient. In talking to one of the nurses though, she told me that some

times the casting is covered, but not the anesthesia which is super expensive.

I also asked if they are replacing him and going to train someone else to cast.

He told me pediatric orthopedists are hard to find, so replacing him may take a

while (plus, I was thinking that it might be hard to find a doc who would want

to relocate to Erie). I think this is why they are really hoping some people

can follow him to Alabama, because that leaves Dr. as the only

orthopedist at the hospital. I can't imagine how busy he is going to be! The

staff seem really sad that he is leaving as am I!

I have some other things questions about bracing and anesthesia to ask, but it

will have to wait until tomorrow. I need to get some sleep after this trip!

Lastly, it was great meeting , (I think that was your husband's name

- hope I got that right!) and sweet little Rylie! She was such a trooper

today!!

Noelle (12-2-01)

Ian (8-15-04)

[Guest guest]

,

Yes, Ian also had the same difficulty of getting up from laying down. He also

had trouble picking things up off the floor and sitting in high chairs/shopping

carts. I'd say all of those things took about 2 weeks for him to figure out how

to compensate with the cast on and then he was off and running! The only thing

that took a really long time for him to be able to do is to sit on the floor.

It was always uncomfortable for him and even now he'll usually sit on his knees

versus sitting cross legged (or crisscross applesauce as they say in preschool,

lol). But, I remember Jake who is Ian's little cast buddy being able to sit on

the floor with no problem, so each kid is different.

I thought you did really great with it being the first time! And, what a

trooper Rylie is. She seemed take it all in stride.

Noelle (12-2-01)

Ian (8-15-04)

back from erie

Hello Everyone,

This is , Rylie's mom. We just got back from erie as well. Rylie did much

better than we could have expected. First of all Dr> khoury did a x-ray lying

down to compare rylie's curve from her last x-ray back in november (standing).

The standing x-ray in november showed her curve at 45 degrees and could not

measure her RVAD. This xray showed her curve at 27 degrees and her RVAD was 25

degrees. WOW, what difference. We did the casting yesterday morning and Rylie's

curve in the cast is now 7 degrees and RVAD is 7 degrees as well!!!!! and

I were super excited, it was like Christmas morning for us. We never could have

expected that. I know you usually get the most correction out of the 1st cast,

but I'm still amazed.

I was wondering if any of your childeren had a hard time getting up into a

sitting position from lying down? I know it has only been 24 hours, but I feel

so bad when she is struggling to get up. She just looks at me like, what is

going on. She already is getting around much better than lastnight. When we 1st

got home I sat her on the floor and she was like a weeble wobble. I'm hoping

that with time she will be able to get around as well as before.

is was so nice to meet you and your family. I'm happty to hear that

Ian is finally down to 0 in cast. I know this has been a super long road for you

and Glen. and I are grateful to have you two there to bounce questions off

of you. You were a huge help and comfort. I apologize if I seemed a little off,

I was a little overwelmed.

Sincerley,

---------------------------------

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with the Search movie showtime shortcut.

[Guest guest]

,

How wonderful!!

I am sure you were very excited.

As far as sitting..............it did take a few days to be comfortable. I

did everything from putting a pack-n-play(with pillows behind him.....sorta

leaning back)in front of the TV, bean bag chair and lots of holding. was

more comfortable at first walking around and standing to play.

By 2 weeks into the cast he was sitting on the floor by himself. He still

wasn't happy in his stroller or shopping carts. Lots of carrying for Mom and

Dad.

Every child adjust to different things at different times, but she will do fine.

Just sit back and watch how strong your little girl is................it will

amaze you.

Take care and let us know how she is coming along.

Tasha

Mommy of twin boys- and 23mths

Fort Worth, Texas

kelly shearer wrote:

Hello Everyone,

This is , Rylie's mom. We just got back from erie as well. Rylie did

much better than we could have expected. First of all Dr> khoury did a x-ray

lying down to compare rylie's curve from her last x-ray back in november

(standing). The standing x-ray in november showed her curve at 45 degrees and

could not measure her RVAD. This xray showed her curve at 27 degrees and her

RVAD was 25 degrees. WOW, what difference. We did the casting yesterday

morning and Rylie's curve in the cast is now 7 degrees and RVAD is 7 degrees as

well!!!!! and I were super excited, it was like Christmas morning for us.

We never could have expected that. I know you usually get the most correction

out of the 1st cast, but I'm still amazed.

I was wondering if any of your childeren had a hard time getting up into a

sitting position from lying down? I know it has only been 24 hours, but I feel

so bad when she is struggling to get up. She just looks at me like, what is

going on. She already is getting around much better than lastnight. When we 1st

got home I sat her on the floor and she was like a weeble wobble. I'm hoping

that with time she will be able to get around as well as before.

is was so nice to meet you and your family. I'm happty to hear that

Ian is finally down to 0 in cast. I know this has been a super long road for

you and Glen. and I are grateful to have you two there to bounce

questions off of you. You were a huge help and comfort. I apologize if I

seemed a little off, I was a little overwelmed.

Sincerley,

---------------------------------

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with the Search movie showtime shortcut.

[Guest guest]

,

One thing I can suggest to you for the " weeble wobble " syndrome of learning to

sit in the cast is a beanbag. We got one for Lexi when she came home in her

first brace and it helped tremendously. At first while she was learning to

balance herself in it and also for those times when she just wanted to hang out

and watch cartoons for a bit. It helped her not have to sit up and hold that

weight all on her own. They also learn to get themselves up off the floor

too...with each child the time depends but Lexi had her way figured out in a

matter of days. They do adapt very well and usually very quickly too.

Good luck :-)

Tracey

back from erie

Hello Everyone,

This is , Rylie's mom. We just got back from erie as well. Rylie did much

better than we could have expected. First of all Dr> khoury did a x-ray lying

down to compare rylie's curve from her last x-ray back in november (standing).

The standing x-ray in november showed her curve at 45 degrees and could not

measure her RVAD. This xray showed her curve at 27 degrees and her RVAD was 25

degrees. WOW, what difference. We did the casting yesterday morning and Rylie's

curve in the cast is now 7 degrees and RVAD is 7 degrees as well!!!!! and

I were super excited, it was like Christmas morning for us. We never could have

expected that. I know you usually get the most correction out of the 1st cast,

but I'm still amazed.

I was wondering if any of your childeren had a hard time getting up into a

sitting position from lying down? I know it has only been 24 hours, but I feel

so bad when she is struggling to get up. She just looks at me like, what is

going on. She already is getting around much better than lastnight. When we 1st

got home I sat her on the floor and she was like a weeble wobble. I'm hoping

that with time she will be able to get around as well as before.

is was so nice to meet you and your family. I'm happty to hear that

Ian is finally down to 0 in cast. I know this has been a super long road for you

and Glen. and I are grateful to have you two there to bounce questions off

of you. You were a huge help and comfort. I apologize if I seemed a little off,

I was a little overwelmed.

Sincerley,

---------------------------------

8:00? 8:25? 8:40? Find a flick in no time

with the Search movie showtime shortcut.

[Guest guest]

,

Woohoo...Last cast! He'll be done by summer! You should reread Madison's story

on the ISOP site. I think she completed casting at 12 degrees, and continued

making progress in the brace. But I know, sometimes numbers are so frustrating.

I've been thinking about you lately. I knew Ian's appt. was coming up and was

wondering what would happen. At least you'll be able to complete the major

treatment with Dr. K. I can't believe he's leaving. First Dr. Kisham, and now

Dr. K. Hopefully these docs will take their knowledge of casting and use it in

their new hospitals.

Take care.

Claflin wrote:

We just got back from Erie. It's late and we are exhausted, so forgive me for

any typos that I might make.

Well, Ian did not get any more correction and he remains at 10 degrees (was 11

last time). His rotation is pretty much nil which is great though and his RVAD

was 2. Soooo, Dr. K said he didn't think Ian was going to get much benefit from

the casting anymore and that this will be his last cast. I do hope for some

more correction however since he was able to get him down to 0 degrees this time

in cast which we've never gotten before. So, we are scheduled to have him

braced during Dr. K's last week at Shriners on May 25th.

He did tell me, like Abigail mentioned in an earlier post, that he is now going

more conservative and would like his patients to be 5 degrees or less before

going to a brace. I asked him why and he said because he had two kids that got

worse after moving to a brace at 10 degrees. This makes me hope Ian gets some

improvement this time.

Yes, he is definitely going to continue casting. Shriners is really hoping

that many of his patients will be able to follow him to Alabama. I asked if

Children's in Alabama is open to the idea of casting and he said yes. I also

asked if he would have the correct table. He said they are currently working on

that. There is a problem and they cannot obtain the table from the company that

made the one in Erie, so they are trying to modify or make their own table in

Alabama (or something along those lines). I also asked about insurance. He

said obviously that each person's insurance is different, but a lot of

insurances would pay since the treatment wouldn't be available in the home state

of the patient. In talking to one of the nurses though, she told me that some

times the casting is covered, but not the anesthesia which is super expensive.

I also asked if they are replacing him and going to train someone else to cast.

He told me pediatric orthopedists are hard to find, so replacing him may take a

while (plus, I was thinking that it might be hard to find a doc who would want

to relocate to Erie). I think this is why they are really hoping some people

can follow him to Alabama, because that leaves Dr. as the only

orthopedist at the hospital. I can't imagine how busy he is going to be! The

staff seem really sad that he is leaving as am I!

I have some other things questions about bracing and anesthesia to ask, but it

will have to wait until tomorrow. I need to get some sleep after this trip!

Lastly, it was great meeting , (I think that was your husband's name

- hope I got that right!) and sweet little Rylie! She was such a trooper

today!!

Noelle (12-2-01)

Ian (8-15-04)

[Guest guest]

,

Sounds like you're almost to the weaning period, that's great. Ten degrees is

really small, with any luck if he gets some more correction before a brace, I'm

sure he'll be in good shape. One thing that I've been reading about is the

importance of growth and the muscles in the back. We notice that Marissa's back

is very much straighter out of cast then when we started the whole process a

year ago, but I'm a firm believer she needs muscle growth to help hold the spine

in place. Good luck in this cast and I bet the summer will be great with a

brace. Take care,

Jerry

Marissa's Dad

Back from Erie

We just got back from Erie. It's late and we are exhausted, so forgive me for

any typos that I might make.

Well, Ian did not get any more correction and he remains at 10 degrees (was 11

last time). His rotation is pretty much nil which is great though and his RVAD

was 2. Soooo, Dr. K said he didn't think Ian was going to get much benefit from

the casting anymore and that this will be his last cast. I do hope for some more

correction however since he was able to get him down to 0 degrees this time in

cast which we've never gotten before. So, we are scheduled to have him braced

during Dr. K's last week at Shriners on May 25th.

He did tell me, like Abigail mentioned in an earlier post, that he is now

going more conservative and would like his patients to be 5 degrees or less

before going to a brace. I asked him why and he said because he had two kids

that got worse after moving to a brace at 10 degrees. This makes me hope Ian

gets some improvement this time.

Yes, he is definitely going to continue casting. Shriners is really hoping

that many of his patients will be able to follow him to Alabama. I asked if

Children's in Alabama is open to the idea of casting and he said yes. I also

asked if he would have the correct table. He said they are currently working on

that. There is a problem and they cannot obtain the table from the company that

made the one in Erie, so they are trying to modify or make their own table in

Alabama (or something along those lines). I also asked about insurance. He said

obviously that each person's insurance is different, but a lot of insurances

would pay since the treatment wouldn't be available in the home state of the

patient. In talking to one of the nurses though, she told me that some times the

casting is covered, but not the anesthesia which is super expensive.

I also asked if they are replacing him and going to train someone else to

cast. He told me pediatric orthopedists are hard to find, so replacing him may

take a while (plus, I was thinking that it might be hard to find a doc who would

want to relocate to Erie). I think this is why they are really hoping some

people can follow him to Alabama, because that leaves Dr. as the only

orthopedist at the hospital. I can't imagine how busy he is going to be! The

staff seem really sad that he is leaving as am I!

I have some other things questions about bracing and anesthesia to ask, but it

will have to wait until tomorrow. I need to get some sleep after this trip!

Lastly, it was great meeting , (I think that was your husband's

name - hope I got that right!) and sweet little Rylie! She was such a

trooper today!!

Noelle (12-2-01)

Ian (8-15-04)

[Guest guest]

Did they do an underarm cast or over the shoulder on Riley? Does anyone

know what Dr. kson in Denver does?

>

> Hello Everyone,

>

> This is , Rylie's mom. We just got back from erie as well. Rylie

did much better than we could have expected. First of all Dr> khoury did

a x-ray lying down to compare rylie's curve from her last x-ray back in

november (standing). The standing x-ray in november showed her curve at

45 degrees and could not measure her RVAD. This xray showed her curve at

27 degrees and her RVAD was 25 degrees. WOW, what difference. We did the

casting yesterday morning and Rylie's curve in the cast is now 7 degrees

and RVAD is 7 degrees as well!!!!! and I were super excited, it

was like Christmas morning for us. We never could have expected that. I

know you usually get the most correction out of the 1st cast, but I'm

still amazed.

>

> I was wondering if any of your childeren had a hard time getting up

into a sitting position from lying down? I know it has only been 24

hours, but I feel so bad when she is struggling to get up. She just

looks at me like, what is going on. She already is getting around much

better than lastnight. When we 1st got home I sat her on the floor and

she was like a weeble wobble. I'm hoping that with time she will be able

to get around as well as before.

>

> is was so nice to meet you and your family. I'm happty to

hear that Ian is finally down to 0 in cast. I know this has been a super

long road for you and Glen. and I are grateful to have you two

there to bounce questions off of you. You were a huge help and comfort.

I apologize if I seemed a little off, I was a little overwelmed.

>

> Sincerley,

>

>

>

>

> ---------------------------------

> 8:00? 8:25? 8:40? Find a flick in no time

> with the Search movie showtime shortcut.

>

>

[Guest guest]

Rylie has under the arm cast. I'm not sure about Dr. kson.

Mohr wrote:

Did they do an underarm cast or over the shoulder on Riley? Does anyone

know what Dr. kson in Denver does?

>

> Hello Everyone,

>

> This is , Rylie's mom. We just got back from erie as well. Rylie

did much better than we could have expected. First of all Dr> khoury did

a x-ray lying down to compare rylie's curve from her last x-ray back in

november (standing). The standing x-ray in november showed her curve at

45 degrees and could not measure her RVAD. This xray showed her curve at

27 degrees and her RVAD was 25 degrees. WOW, what difference. We did the

casting yesterday morning and Rylie's curve in the cast is now 7 degrees

and RVAD is 7 degrees as well!!!!! and I were super excited, it

was like Christmas morning for us. We never could have expected that. I

know you usually get the most correction out of the 1st cast, but I'm

still amazed.

>

> I was wondering if any of your childeren had a hard time getting up

into a sitting position from lying down? I know it has only been 24

hours, but I feel so bad when she is struggling to get up. She just

looks at me like, what is going on. She already is getting around much

better than lastnight. When we 1st got home I sat her on the floor and

she was like a weeble wobble. I'm hoping that with time she will be able

to get around as well as before.

>

> is was so nice to meet you and your family. I'm happty to

hear that Ian is finally down to 0 in cast. I know this has been a super

long road for you and Glen. and I are grateful to have you two

there to bounce questions off of you. You were a huge help and comfort.

I apologize if I seemed a little off, I was a little overwelmed.

>

> Sincerley,

>

>

>

>

> ---------------------------------

> 8:00? 8:25? 8:40? Find a flick in no time

> with the Search movie showtime shortcut.

>

>

[Guest guest]

Glad to hear how well your trip to Erie went. I can understand not switching

when you are so close to Erie. I think being conservative is great...better to

err on the side of caution.

Noelle (12-2-01)

Ian (8-15-04)

Back from Erie

Hello All,

Well, is in another cast because Dr. Khoury said he just

wants to be conservative. The out of cast X-ray showed 8 degree

curve and 5 degree rotation. He likes the out of cast degree to be

less than 6!! So.... is in cast now BUT the GOOD NEWS is she

is at 0 degree curve and rotation in this (hopefully) last cast

before the brace. They scheduled us with Dr. on June 12,

Tuesday 6:00am BUT we meet with him June 11, Monday afternoon since

we never formally met him. I was very sad when we said good-bye to

Dr. K. but he promises to stay in touch with Shriner of Erie and

previous cases. He also said that Children's of AL is going to get

him the table needed to cast since there are enough kids from Erie

following him to that hospital. I feel guilty for not following him

there but Erie is only 2 hours away and she is close to the end.

I asked several questions about the brace. He said that our kids

should only have to wear the brace for 1 full year and then

be " cured " . It just sounds to good to be true because he then said

children do not stop growing until 15 yrs. old. would then

supposedly be done someone around 5 years old. NINE or TEN YEARS

just seems very long without any correction and it stays straight.

But I guess one step at a time.

Thanks,

Sue Cappelli

(02-23-04), Alayna(08-03-99), (07-19-97)

[Guest guest]

,

This is great news! We too just got a new brace and are dealing with

the tightness issues, especially on the potty, which really stinks! We

however, were not told anything about picking her up. We pick her up

under the armpits, not on the brace, but I am curious as to whether they

said that was a no no and why?

E

________________________________

From: infantile_scoliosis

[mailto:infantile_scoliosis ] On Behalf Of

Claflin

Sent: Friday, June 01, 2007 1:35 PM

To: infantile scoliosis

Subject: back from Erie

Ian and I got back from Erie last night. It was a long couple of days,

but Ian is " essentially straight " . The radiology report said he is

essentially straight. Dr. did not give me a number, but said

there was a very slight curve. I told him he was 10 degrees last time we

were there and he said definitely less than that. I assume that it was

so slight that they did not measure it.

He was put in to a brace. Wow. I think it is so much harder to deal with

than the cast. I had no idea how hard it was going to be to get him in

and out of it CORRECTLY. It just seems to me that there is so much room

for error! I am afraid to take him out of it now! I also hate the fact

that I can't pick him up by the brace. I didn't realize that I wouldn't

be able to do that and what a pain it would be. We're supposed to scoop

him up under his legs and carry him like we did when he was a baby.

Well, I have been trying to break him of the being picked up all the

time habit, so I guess this will do the trick, lol! It's more or a less

a pain trying to help him get on a public potty. It's so tight too. He's

been asking me to take it off, but I am sure he will adjust to it.

I am glad that we stayed the extra day because I ended up having to go

back to the brace shop and have them do more modifications to the brace

before we left for home. So, I advise anyone getting a brace to plan for

an extra day. I was glad too because when they pulled off the brace,

there was an area that was really red and they were able to fix the

problem spot for us.

He's actually overcorrected in the brace going the opposite direction of

6 degrees. Dr. felt comfortable with that as did the guy working

on our brace (he wasn't the one that molded Ian, so I don't know what

his official title is). It makes me a bit nervous, but I guess I need to

trust Dr. S. I am sure that he wouldn't take any chances.

I will post pics later today in Ian's album. He got a cute vehicle

pattern on his brace.

I know I sound negative and I don't mean to. I am happy that he is in

his brace and on to the next phase of treatment. It will just take some

adjusting for all of us. The cast was such a breeze once it was on that

this will just take me some time to get acclimated to getting him in and

out of it.

Oh, we did have one incident today that ticked me off. At the gym, they

have the Kidzone which is a babysitting service that I use for both kids

while I work out. I was explaining about how to pick Ian up if he needed

to use the potty so that they would know what to do. The girl told me

that if he needed to use the bathroom that they would just call me from

my work out to do it and that she would not pick him up due to liability

reasons. Finally one of the other workers came over and said they would

be willing to help him with the bathroom. I wish I would have said

something at the time. I was just so taken aback by it that I didn't

really react.

Noelle (12-2-01)

Ian (8-15-04)

[Guest guest]

Jenifer,

You should count your blessings that was the only problem you had with the

Kidzone at your gym. A few months ago here where I live there was a news

story about a woman who was working out at the gym and she was paged 10

minutes into her workout to report to the front desk, she went and there at

the desk was her son who she had dropped off at the daycare there at the

gym, not sure what that daycare was called, her son wandered off and went

outside and was wandering around the parking lot. She was mad and she had

filed a complaint against the gym and the daycare that was there. Not sure

what the outcome was though, they never followed up on it. This gym is a

very popular place so it’s busy all the time. Luckily a customer saw him

and took him back in and the person at the front door recognized him.

Betty

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.8.0/821 - Release Date: 5/27/2007

3:05 PM

[Guest guest]

He told me picking him up by the brace would reposition him and then he wouldn't

be in it correctly. He showed me to pick him up the way I described, so I was

thinking that if I picked him up under his armpits that it would reposition him

too??? Maybe I should call and ask because that would definitely be easier than

what we are doing now.

Yeah, the potty issue is not so much fun. It's not so bad if there is a stool

for him to step on, but in public places that is pretty rare.

Noelle (12-2-01)

Ian (8-15-04)

back from Erie

Ian and I got back from Erie last night. It was a long couple of days,

but Ian is " essentially straight " . The radiology report said he is

essentially straight. Dr. did not give me a number, but said

there was a very slight curve. I told him he was 10 degrees last time we

were there and he said definitely less than that. I assume that it was

so slight that they did not measure it.

He was put in to a brace. Wow. I think it is so much harder to deal with

than the cast. I had no idea how hard it was going to be to get him in

and out of it CORRECTLY. It just seems to me that there is so much room

for error! I am afraid to take him out of it now! I also hate the fact

that I can't pick him up by the brace. I didn't realize that I wouldn't

be able to do that and what a pain it would be. We're supposed to scoop

him up under his legs and carry him like we did when he was a baby.

Well, I have been trying to break him of the being picked up all the

time habit, so I guess this will do the trick, lol! It's more or a less

a pain trying to help him get on a public potty. It's so tight too. He's

been asking me to take it off, but I am sure he will adjust to it.

I am glad that we stayed the extra day because I ended up having to go

back to the brace shop and have them do more modifications to the brace

before we left for home. So, I advise anyone getting a brace to plan for

an extra day. I was glad too because when they pulled off the brace,

there was an area that was really red and they were able to fix the

problem spot for us.

He's actually overcorrected in the brace going the opposite direction of

6 degrees. Dr. felt comfortable with that as did the guy working

on our brace (he wasn't the one that molded Ian, so I don't know what

his official title is). It makes me a bit nervous, but I guess I need to

trust Dr. S. I am sure that he wouldn't take any chances.

I will post pics later today in Ian's album. He got a cute vehicle

pattern on his brace.

I know I sound negative and I don't mean to. I am happy that he is in

his brace and on to the next phase of treatment. It will just take some

adjusting for all of us. The cast was such a breeze once it was on that

this will just take me some time to get acclimated to getting him in and

out of it.

Oh, we did have one incident today that ticked me off. At the gym, they

have the Kidzone which is a babysitting service that I use for both kids

while I work out. I was explaining about how to pick Ian up if he needed

to use the potty so that they would know what to do. The girl told me

that if he needed to use the bathroom that they would just call me from

my work out to do it and that she would not pick him up due to liability

reasons. Finally one of the other workers came over and said they would

be willing to help him with the bathroom. I wish I would have said

something at the time. I was just so taken aback by it that I didn't

really react.

Noelle (12-2-01)

Ian (8-15-04)

[Guest guest]

OMG Betty! That is scary!! I am glad he is okay though. Heads would be

rolling if I was that mom.

I used to work in special ed, so I don't have a lot of tolerance for things

like what happened today. I know she was afraid of him, but she needs to

get over that because I am sure there will be other kids with special needs

besides him going in to that Kidzone.

How are YOU holding up these days? I've been thinking of you.

Noelle (12-2-01)

Ian (8-15-04)

RE: back from Erie

Jenifer,

You should count your blessings that was the only problem you had with the

Kidzone at your gym. A few months ago here where I live there was a news

story about a woman who was working out at the gym and she was paged 10

minutes into her workout to report to the front desk, she went and there at

the desk was her son who she had dropped off at the daycare there at the

gym, not sure what that daycare was called, her son wandered off and went

outside and was wandering around the parking lot. She was mad and she had

filed a complaint against the gym and the daycare that was there. Not sure

what the outcome was though, they never followed up on it. This gym is a

very popular place so it's busy all the time. Luckily a customer saw him

and took him back in and the person at the front door recognized him.

Betty

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.8.0/821 - Release Date: 5/27/2007

3:05 PM

[Guest guest]

jennifer,

congrats on the next stage! very hard to change what was normal.

i'm sure that you will get used to it in time. i love the pictures.

ian always looks so happy!

we have an appointment in montreal on monday for lucas' next spinecor

appointment. it's been 11 months since he's been in this brace (post

cast). i'm hopeful, but you never know. i'll update when we return.

my best,

deshea

> Ian and I got back from Erie last night. It was a long couple of

> days, but Ian is " essentially straight " . The radiology report said

> he is essentially straight. Dr. did not give me a number,

> but said there was a very slight curve. I told him he was 10

> degrees last time we were there and he said definitely less than

> that. I assume that it was so slight that they did not measure it.

>

> He was put in to a brace. Wow. I think it is so much harder to deal

> with than the cast. I had no idea how hard it was going to be to

> get him in and out of it CORRECTLY. It just seems to me that there

> is so much room for error! I am afraid to take him out of it now! I

> also hate the fact that I can't pick him up by the brace. I didn't

> realize that I wouldn't be able to do that and what a pain it would

> be. We're supposed to scoop him up under his legs and carry him

> like we did when he was a baby. Well, I have been trying to break

> him of the being picked up all the time habit, so I guess this will

> do the trick, lol! It's more or a less a pain trying to help him

> get on a public potty. It's so tight too. He's been asking me to

> take it off, but I am sure he will adjust to it.

>

> I am glad that we stayed the extra day because I ended up having to

> go back to the brace shop and have them do more modifications to

> the brace before we left for home. So, I advise anyone getting a

> brace to plan for an extra day. I was glad too because when they

> pulled off the brace, there was an area that was really red and

> they were able to fix the problem spot for us.

>

> He's actually overcorrected in the brace going the opposite

> direction of 6 degrees. Dr. felt comfortable with that as

> did the guy working on our brace (he wasn't the one that molded

> Ian, so I don't know what his official title is). It makes me a bit

> nervous, but I guess I need to trust Dr. S. I am sure that he

> wouldn't take any chances.

>

> I will post pics later today in Ian's album. He got a cute vehicle

> pattern on his brace.

>

> I know I sound negative and I don't mean to. I am happy that he is

> in his brace and on to the next phase of treatment. It will just

> take some adjusting for all of us. The cast was such a breeze once

> it was on that this will just take me some time to get acclimated

> to getting him in and out of it.

>

> Oh, we did have one incident today that ticked me off. At the gym,

> they have the Kidzone which is a babysitting service that I use for

> both kids while I work out. I was explaining about how to pick Ian

> up if he needed to use the potty so that they would know what to

> do. The girl told me that if he needed to use the bathroom that

> they would just call me from my work out to do it and that she

> would not pick him up due to liability reasons. Finally one of the

> other workers came over and said they would be willing to help him

> with the bathroom. I wish I would have said something at the time.

> I was just so taken aback by it that I didn't really react.

>

>

> Noelle (12-2-01)

> Ian (8-15-04)

>

>

[Guest guest]

Hi ,

I am soo happy for Ian. But it does sound very scary. gets

molded for her brace on June 11 with Dr. .

How was it without Dr. K???

Is there a whole in the brace (front and back) just like our casts??

Do you velcro it to close it??

Why is it so tight because I thought they were adjustable??

So they can wear it up to a year???

When do they want to see Ian again???

Do they want him to wear it 23 hours a day????

Sorry soo many questions but I have been just so excited to get the

brace so can take a bath and swim this summer but it sounds

like if we take it off our kiddies might not do so well putting it

back on!!!! is 3yrs old and very independent (mind of her

own) with two older sisters to learn from.

Very Nervous Now,

Sue Cappelli

(7-19-97)

Alayna(8-3-99)

(2-23-04)

>

> Ian and I got back from Erie last night. It was a long couple of

days, but Ian is " essentially straight " . The radiology report said

he is essentially straight. Dr. did not give me a number,

but said there was a very slight curve. I told him he was 10

degrees last time we were there and he said definitely less than

that. I assume that it was so slight that they did not measure it.

>

> He was put in to a brace. Wow. I think it is so much harder to

deal with than the cast. I had no idea how hard it was going to be

to get him in and out of it CORRECTLY. It just seems to me that

there is so much room for error! I am afraid to take him out of it

now! I also hate the fact that I can't pick him up by the brace. I

didn't realize that I wouldn't be able to do that and what a pain it

would be. We're supposed to scoop him up under his legs and carry

him like we did when he was a baby. Well, I have been trying to

break him of the being picked up all the time habit, so I guess this

will do the trick, lol! It's more or a less a pain trying to help

him get on a public potty. It's so tight too. He's been asking me

to take it off, but I am sure he will adjust to it.

>

> I am glad that we stayed the extra day because I ended up having

to go back to the brace shop and have them do more modifications to

the brace before we left for home. So, I advise anyone getting a

brace to plan for an extra day. I was glad too because when they

pulled off the brace, there was an area that was really red and they

were able to fix the problem spot for us.

>

> He's actually overcorrected in the brace going the opposite

direction of 6 degrees. Dr. felt comfortable with that as

did the guy working on our brace (he wasn't the one that molded Ian,

so I don't know what his official title is). It makes me a bit

nervous, but I guess I need to trust Dr. S. I am sure that he

wouldn't take any chances.

>

> I will post pics later today in Ian's album. He got a cute

vehicle pattern on his brace.

>

> I know I sound negative and I don't mean to. I am happy that he

is in his brace and on to the next phase of treatment. It will just

take some adjusting for all of us. The cast was such a breeze once

it was on that this will just take me some time to get acclimated to

getting him in and out of it.

>

> Oh, we did have one incident today that ticked me off. At the

gym, they have the Kidzone which is a babysitting service that I use

for both kids while I work out. I was explaining about how to pick

Ian up if he needed to use the potty so that they would know what to

do. The girl told me that if he needed to use the bathroom that

they would just call me from my work out to do it and that she would

not pick him up due to liability reasons. Finally one of the other

workers came over and said they would be willing to help him with

the bathroom. I wish I would have said something at the time. I

was just so taken aback by it that I didn't really react.

>

>

> Noelle (12-2-01)

> Ian (8-15-04)

>

>

[Guest guest]

Well, it was different without Dr. K. I really missed him. I liked Dr. S well

enough - he's really outgoing & friendly. I just have an attachment to Dr. K

because he has seen Ian since he was 8 months old.

The brace looks exactly like the cast.

Yes, the straps are made of velcro to close it.

It's not really adjustable other than you use the straps to close it up and

tighten it more than it already is. I actually have to have my husband help me

to open it up so that I can get Ian in and out of it without hurting him.

The brace guy seemed to think if Ian grew enough that he would get another brace

at our next appt., but the next appt is not scheduled for the OR, so I have to

call Jane to find out what happens at the next appt. They messed up our

last appointment because they had Ian scheduled to be molded without sedation,

so I need to make sure another error hasn't been made since they have us coming

in on a Friday when I know they don't have any OR staff on site.

Yup, he wears it 23 hours a day. I didn't take him out of it at all yesterday

though. I am trying to cut down on how much he is out of it.

Make sure you are very comfortable with everything before you leave Erie. I am

really glad I stayed an extra day. Be prepared - it is an all day experience.

Good luck to ! Be sure to post when you get back from Erie.

Noelle (12-2-01)

Ian (8-15-04)

Re: back from Erie

Hi ,

I am soo happy for Ian. But it does sound very scary. gets

molded for her brace on June 11 with Dr. .

How was it without Dr. K???

Is there a whole in the brace (front and back) just like our casts??

Do you velcro it to close it??

Why is it so tight because I thought they were adjustable??

So they can wear it up to a year???

When do they want to see Ian again???

Do they want him to wear it 23 hours a day????

Sorry soo many questions but I have been just so excited to get the

brace so can take a bath and swim this summer but it sounds

like if we take it off our kiddies might not do so well putting it

back on!!!! is 3yrs old and very independent (mind of her

own) with two older sisters to learn from.

Very Nervous Now,

Sue Cappelli

(7-19-97)

Alayna(8-3-99)

(2-23-04)

>

> Ian and I got back from Erie last night. It was a long couple of

days, but Ian is " essentially straight " . The radiology report said

he is essentially straight. Dr. did not give me a number,

but said there was a very slight curve. I told him he was 10

degrees last time we were there and he said definitely less than

that. I assume that it was so slight that they did not measure it.

>

> He was put in to a brace. Wow. I think it is so much harder to

deal with than the cast. I had no idea how hard it was going to be

to get him in and out of it CORRECTLY. It just seems to me that

there is so much room for error! I am afraid to take him out of it

now! I also hate the fact that I can't pick him up by the brace. I

didn't realize that I wouldn't be able to do that and what a pain it

would be. We're supposed to scoop him up under his legs and carry

him like we did when he was a baby. Well, I have been trying to

break him of the being picked up all the time habit, so I guess this

will do the trick, lol! It's more or a less a pain trying to help

him get on a public potty. It's so tight too. He's been asking me

to take it off, but I am sure he will adjust to it.

>

> I am glad that we stayed the extra day because I ended up having

to go back to the brace shop and have them do more modifications to

the brace before we left for home. So, I advise anyone getting a

brace to plan for an extra day. I was glad too because when they

pulled off the brace, there was an area that was really red and they

were able to fix the problem spot for us.

>

> He's actually overcorrected in the brace going the opposite

direction of 6 degrees. Dr. felt comfortable with that as

did the guy working on our brace (he wasn't the one that molded Ian,

so I don't know what his official title is). It makes me a bit

nervous, but I guess I need to trust Dr. S. I am sure that he

wouldn't take any chances.

>

> I will post pics later today in Ian's album. He got a cute

vehicle pattern on his brace.

>

> I know I sound negative and I don't mean to. I am happy that he

is in his brace and on to the next phase of treatment. It will just

take some adjusting for all of us. The cast was such a breeze once

it was on that this will just take me some time to get acclimated to

getting him in and out of it.

>

> Oh, we did have one incident today that ticked me off. At the

gym, they have the Kidzone which is a babysitting service that I use

for both kids while I work out. I was explaining about how to pick

Ian up if he needed to use the potty so that they would know what to

do. The girl told me that if he needed to use the bathroom that

they would just call me from my work out to do it and that she would

not pick him up due to liability reasons. Finally one of the other

workers came over and said they would be willing to help him with

the bathroom. I wish I would have said something at the time. I

was just so taken aback by it that I didn't really react.

>

>

> Noelle (12-2-01)

> Ian (8-15-04)

>

>

[Guest guest]

,

Thanks for asking.

We had ’s funeral yesterday and I had never felt so much anxiety before

until ’s funeral. I was so nervous and scared that something was going

to go wrong. And I also found out that ’s ex girlfriend may show up

which she did and after all these years she still would not acknowledge that

and I were a couple, I guess she had high hopes that he would drop me

and go back to her. ’s own mom told her at the funeral that and

I were talking about marriage, all she said was I didn’t know that. My

closest friends were there which helped me a lot and one of them I didn’t

even tell mainly because there were just so many people to tell, but she

came with the friend I did tell and when I saw her I just broke down which I

have been doing a lot. Today I had to tell 2 friends of ’s who haven’t

been around for a long time and they both took it very hard. I think the

only thing that saved me from going completely these last 2 weeks is that

the knowledge that I was getting this pendant necklace with Some of the

ashes from inside, this way I knew he will always be with me one way

or another. Now I just got to get my life on again but it won’t be easy.

Right now I just don’t want to do anything.

Thanks,

Betty

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.8.7/830 - Release Date: 6/3/2007

12:47 PM

[Guest guest]

Hi ,

How is brace life treating you and Ian. I found it iteresting that they said

if Ian grew fast he would get another brace. They told us that Cole would grow

out of it 6-12 months, and that would be it as far as bracing.

The brace is an adjustment. I also had a tough time getting it on and off. But

I think it gets more flexable. Cole has been in it for 5 1/2 months, and it is

much easier to get on/off now even though he has grown. I can tell it is getting

a little short in the torso and the closing with the velcro is a much wider

opening.

For the first few months we only bathed Cole ever other or third day. I didn't

want us (parents) or Cole to get used to having it off. Once the bath was over,

it went right back on. He didn't get an hour out of it until a couple of months

later when I felt more comfortable. Now, I can tell his back is stronger and

still very straight (I make him bend over so I can look at the spine better), so

I feel more comfortable with it off for swimming, baths, etc.

I think Cole was over corrected too. Sometimes when Cole takes the brace off,

I feel like he leans the opposite direction of the original curve, but within

the hour he looks great. I don't think the spine would create a new curve if it

is predisposition for rotation and curve the other way.

Anyways, best of luck with this new phase and congratulations.

/Cole

cast.net> wrote:

Ian and I got back from Erie last night. It was a long couple of days,

but Ian is " essentially straight " . The radiology report said he is essentially

straight. Dr. did not give me a number, but said there was a very slight

curve. I told him he was 10 degrees last time we were there and he said

definitely less than that. I assume that it was so slight that they did not

measure it.

He was put in to a brace. Wow. I think it is so much harder to deal with than

the cast. I had no idea how hard it was going to be to get him in and out of it

CORRECTLY. It just seems to me that there is so much room for error! I am afraid

to take him out of it now! I also hate the fact that I can't pick him up by the

brace. I didn't realize that I wouldn't be able to do that and what a pain it

would be. We're supposed to scoop him up under his legs and carry him like we

did when he was a baby. Well, I have been trying to break him of the being

picked up all the time habit, so I guess this will do the trick, lol! It's more

or a less a pain trying to help him get on a public potty. It's so tight too.

He's been asking me to take it off, but I am sure he will adjust to it.

I am glad that we stayed the extra day because I ended up having to go back to

the brace shop and have them do more modifications to the brace before we left

for home. So, I advise anyone getting a brace to plan for an extra day. I was

glad too because when they pulled off the brace, there was an area that was

really red and they were able to fix the problem spot for us.

He's actually overcorrected in the brace going the opposite direction of 6

degrees. Dr. felt comfortable with that as did the guy working on our

brace (he wasn't the one that molded Ian, so I don't know what his official

title is). It makes me a bit nervous, but I guess I need to trust Dr. S. I am

sure that he wouldn't take any chances.

I will post pics later today in Ian's album. He got a cute vehicle pattern on

his brace.

I know I sound negative and I don't mean to. I am happy that he is in his brace

and on to the next phase of treatment. It will just take some adjusting for all

of us. The cast was such a breeze once it was on that this will just take me

some time to get acclimated to getting him in and out of it.

Oh, we did have one incident today that ticked me off. At the gym, they have the

Kidzone which is a babysitting service that I use for both kids while I work

out. I was explaining about how to pick Ian up if he needed to use the potty so

that they would know what to do. The girl told me that if he needed to use the

bathroom that they would just call me from my work out to do it and that she

would not pick him up due to liability reasons. Finally one of the other workers

came over and said they would be willing to help him with the bathroom. I wish I

would have said something at the time. I was just so taken aback by it that I

didn't really react.

Noelle (12-2-01)

Ian (8-15-04)

[Guest guest]

Hi ,

How is brace life treating you and Ian. I found it iteresting that they said

if Ian grew fast he would get another brace. They told us that Cole would grow

out of it 6-12 months, and that would be it as far as bracing.

The brace is an adjustment. I also had a tough time getting it on and off. But

I think it gets more flexable. Cole has been in it for 5 1/2 months, and it is

much easier to get on/off now even though he has grown. I can tell it is getting

a little short in the torso and the closing with the velcro is a much wider

opening.

For the first few months we only bathed Cole ever other or third day. I didn't

want us (parents) or Cole to get used to having it off. Once the bath was over,

it went right back on. He didn't get an hour out of it until a couple of months

later when I felt more comfortable. Now, I can tell his back is stronger and

still very straight (I make him bend over so I can look at the spine better), so

I feel more comfortable with it off for swimming, baths, etc.

I think Cole was over corrected too. Sometimes when Cole takes the brace off,

I feel like he leans the opposite direction of the original curve, but within

the hour he looks great. I don't think the spine would create a new curve if it

is predisposition for rotation and curve the other way.

Anyways, best of luck with this new phase and congratulations.

/Cole

cast.net> wrote:

Ian and I got back from Erie last night. It was a long couple of days,

but Ian is " essentially straight " . The radiology report said he is essentially

straight. Dr. did not give me a number, but said there was a very slight

curve. I told him he was 10 degrees last time we were there and he said

definitely less than that. I assume that it was so slight that they did not

measure it.

He was put in to a brace. Wow. I think it is so much harder to deal with than

the cast. I had no idea how hard it was going to be to get him in and out of it

CORRECTLY. It just seems to me that there is so much room for error! I am afraid

to take him out of it now! I also hate the fact that I can't pick him up by the

brace. I didn't realize that I wouldn't be able to do that and what a pain it

would be. We're supposed to scoop him up under his legs and carry him like we

did when he was a baby. Well, I have been trying to break him of the being

picked up all the time habit, so I guess this will do the trick, lol! It's more

or a less a pain trying to help him get on a public potty. It's so tight too.

He's been asking me to take it off, but I am sure he will adjust to it.

I am glad that we stayed the extra day because I ended up having to go back to

the brace shop and have them do more modifications to the brace before we left

for home. So, I advise anyone getting a brace to plan for an extra day. I was

glad too because when they pulled off the brace, there was an area that was

really red and they were able to fix the problem spot for us.

He's actually overcorrected in the brace going the opposite direction of 6

degrees. Dr. felt comfortable with that as did the guy working on our

brace (he wasn't the one that molded Ian, so I don't know what his official

title is). It makes me a bit nervous, but I guess I need to trust Dr. S. I am

sure that he wouldn't take any chances.

I will post pics later today in Ian's album. He got a cute vehicle pattern on

his brace.

I know I sound negative and I don't mean to. I am happy that he is in his brace

and on to the next phase of treatment. It will just take some adjusting for all

of us. The cast was such a breeze once it was on that this will just take me

some time to get acclimated to getting him in and out of it.

Oh, we did have one incident today that ticked me off. At the gym, they have the

Kidzone which is a babysitting service that I use for both kids while I work

out. I was explaining about how to pick Ian up if he needed to use the potty so

that they would know what to do. The girl told me that if he needed to use the

bathroom that they would just call me from my work out to do it and that she

would not pick him up due to liability reasons. Finally one of the other workers

came over and said they would be willing to help him with the bathroom. I wish I

would have said something at the time. I was just so taken aback by it that I

didn't really react.

Noelle (12-2-01)

Ian (8-15-04)

[Guest guest]

Hi ,

How is brace life treating you and Ian. I found it iteresting that they said

if Ian grew fast he would get another brace. They told us that Cole would grow

out of it 6-12 months, and that would be it as far as bracing.

The brace is an adjustment. I also had a tough time getting it on and off. But

I think it gets more flexable. Cole has been in it for 5 1/2 months, and it is

much easier to get on/off now even though he has grown. I can tell it is getting

a little short in the torso and the closing with the velcro is a much wider

opening.

For the first few months we only bathed Cole ever other or third day. I didn't

want us (parents) or Cole to get used to having it off. Once the bath was over,

it went right back on. He didn't get an hour out of it until a couple of months

later when I felt more comfortable. Now, I can tell his back is stronger and

still very straight (I make him bend over so I can look at the spine better), so

I feel more comfortable with it off for swimming, baths, etc.

I think Cole was over corrected too. Sometimes when Cole takes the brace off,

I feel like he leans the opposite direction of the original curve, but within

the hour he looks great. I don't think the spine would create a new curve if it

is predisposition for rotation and curve the other way.

Anyways, best of luck with this new phase and congratulations.

/Cole

cast.net> wrote:

Ian and I got back from Erie last night. It was a long couple of days,

but Ian is " essentially straight " . The radiology report said he is essentially

straight. Dr. did not give me a number, but said there was a very slight

curve. I told him he was 10 degrees last time we were there and he said

definitely less than that. I assume that it was so slight that they did not

measure it.

He was put in to a brace. Wow. I think it is so much harder to deal with than

the cast. I had no idea how hard it was going to be to get him in and out of it

CORRECTLY. It just seems to me that there is so much room for error! I am afraid

to take him out of it now! I also hate the fact that I can't pick him up by the

brace. I didn't realize that I wouldn't be able to do that and what a pain it

would be. We're supposed to scoop him up under his legs and carry him like we

did when he was a baby. Well, I have been trying to break him of the being

picked up all the time habit, so I guess this will do the trick, lol! It's more

or a less a pain trying to help him get on a public potty. It's so tight too.

He's been asking me to take it off, but I am sure he will adjust to it.

I am glad that we stayed the extra day because I ended up having to go back to

the brace shop and have them do more modifications to the brace before we left

for home. So, I advise anyone getting a brace to plan for an extra day. I was

glad too because when they pulled off the brace, there was an area that was

really red and they were able to fix the problem spot for us.

He's actually overcorrected in the brace going the opposite direction of 6

degrees. Dr. felt comfortable with that as did the guy working on our

brace (he wasn't the one that molded Ian, so I don't know what his official

title is). It makes me a bit nervous, but I guess I need to trust Dr. S. I am

sure that he wouldn't take any chances.

I will post pics later today in Ian's album. He got a cute vehicle pattern on

his brace.

I know I sound negative and I don't mean to. I am happy that he is in his brace

and on to the next phase of treatment. It will just take some adjusting for all

of us. The cast was such a breeze once it was on that this will just take me

some time to get acclimated to getting him in and out of it.

Oh, we did have one incident today that ticked me off. At the gym, they have the

Kidzone which is a babysitting service that I use for both kids while I work

out. I was explaining about how to pick Ian up if he needed to use the potty so

that they would know what to do. The girl told me that if he needed to use the

bathroom that they would just call me from my work out to do it and that she

would not pick him up due to liability reasons. Finally one of the other workers

came over and said they would be willing to help him with the bathroom. I wish I

would have said something at the time. I was just so taken aback by it that I

didn't really react.

Noelle (12-2-01)

Ian (8-15-04)

[Guest guest]

Missed this post. Congratulations to you and your family, ! Great

news! Enjoy your 1st cast-free summer!

HRH

back from Erie

Ian and I got back from Erie last night. It was a long couple of days, but Ian

is " essentially straight " . The radiology report said he is essentially straight.

Dr. did not give me a number, but said there was a very slight curve. I

told him he was 10 degrees last time we were there and he said definitely less

than that. I assume that it was so slight that they did not measure it.

He was put in to a brace. Wow. I think it is so much harder to deal with than

the cast. I had no idea how hard it was going to be to get him in and out of it

CORRECTLY. It just seems to me that there is so much room for error! I am afraid

to take him out of it now! I also hate the fact that I can't pick him up by the

brace. I didn't realize that I wouldn't be able to do that and what a pain it

would be. We're supposed to scoop him up under his legs and carry him like we

did when he was a baby. Well, I have been trying to break him of the being

picked up all the time habit, so I guess this will do the trick, lol! It's more

or a less a pain trying to help him get on a public potty. It's so tight too.

He's been asking me to take it off, but I am sure he will adjust to it.

I am glad that we stayed the extra day because I ended up having to go back to

the brace shop and have them do more modifications to the brace before we left

for home. So, I advise anyone getting a brace to plan for an extra day. I was

glad too because when they pulled off the brace, there was an area that was

really red and they were able to fix the problem spot for us.

He's actually overcorrected in the brace going the opposite direction of 6

degrees. Dr. felt comfortable with that as did the guy working on our

brace (he wasn't the one that molded Ian, so I don't know what his official

title is). It makes me a bit nervous, but I guess I need to trust Dr. S. I am

sure that he wouldn't take any chances.

I will post pics later today in Ian's album. He got a cute vehicle pattern on

his brace.

I know I sound negative and I don't mean to. I am happy that he is in his

brace and on to the next phase of treatment. It will just take some adjusting

for all of us. The cast was such a breeze once it was on that this will just

take me some time to get acclimated to getting him in and out of it.

Oh, we did have one incident today that ticked me off. At the gym, they have

the Kidzone which is a babysitting service that I use for both kids while I work

out. I was explaining about how to pick Ian up if he needed to use the potty so

that they would know what to do. The girl told me that if he needed to use the

bathroom that they would just call me from my work out to do it and that she

would not pick him up due to liability reasons. Finally one of the other workers

came over and said they would be willing to help him with the bathroom. I wish I

would have said something at the time. I was just so taken aback by it that I

didn't really react.

Noelle (12-2-01)

Ian (8-15-04)

[Guest guest]

Hi ,

Fantastic news on the correction out of cast!!! Awesome!! Seems like she just

had her first cast not long ago.

Some connective tissue disorders are associated with eye conditions such as

dislocated lenses which is probably why he wants her checked out. Glad to hear

that the surgery went well and that she is recovering nicely.

Noelle (12-2-01)

Ian (8-15-04)

back from erie

Hello Everyone,

I just wanted to give an update on Rylie. We just got back from Erie on

thursday. Rylie was put into her 4th cast. She looks great. Her curve is down to

12 degrees out of cast. She was at 17 degrees last time. Dr. said he

feels strongly that she will be put into a brace next time! We are thrilled,

however I do realize there is a chance she could be casted again. I was

wondering if anyone else had a child that had a strabisimus also. Rylie had eye

surgery on aug. 6th, they diagnosed her with left Fourth nerve palsy. The

surgery was succesful and she does not seem to have the " wondering eye " anymore.

Dr. thinks we should have genetice testing done to see if there is any

connection with everything?

---------------------------------

Moody friends. Drama queens. Your life? Nope! - their life, your story.

Play Sims Stories at Yahoo! Games.

[Guest guest]

Hi ,

Fantastic news on the correction out of cast!!! Awesome!! Seems like she just

had her first cast not long ago.

Some connective tissue disorders are associated with eye conditions such as

dislocated lenses which is probably why he wants her checked out. Glad to hear

that the surgery went well and that she is recovering nicely.

Noelle (12-2-01)

Ian (8-15-04)

back from erie

Hello Everyone,

I just wanted to give an update on Rylie. We just got back from Erie on

thursday. Rylie was put into her 4th cast. She looks great. Her curve is down to

12 degrees out of cast. She was at 17 degrees last time. Dr. said he

feels strongly that she will be put into a brace next time! We are thrilled,

however I do realize there is a chance she could be casted again. I was

wondering if anyone else had a child that had a strabisimus also. Rylie had eye

surgery on aug. 6th, they diagnosed her with left Fourth nerve palsy. The

surgery was succesful and she does not seem to have the " wondering eye " anymore.

Dr. thinks we should have genetice testing done to see if there is any

connection with everything?

---------------------------------

Moody friends. Drama queens. Your life? Nope! - their life, your story.

Play Sims Stories at Yahoo! Games.