Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 Please keep us posted on this....Grrr, how frustrating. I can see why you would be concerned. They'll find answers for you as they have no choice. Go get em, Jane! Let us know. HRH > Well, scratch part of that thought...I called this morning to ask why we > hadn't > been called about a casting date yet. Just heard back, they have put > her > off until 6/1, which will be 13 weeks!  They said it was because she > is over 3 > now, um, yeah, she's been over 3 the entire time she's been casted! Grr. > I told > them I was afraid of skin breakdown as she has zero body fat and by > weight is a > lot smaller than a 3 yr old (she's only 30 lbs WITH her cast). > > She's gonna see what she can do, but didn't seem very helpful as Dr. D is > out of > town most of May >  > Jane > > > > > ________________________________ > From: Jane Bigler <janemhar@...> > infantile scoliosis treatment > Sent: Fri, April 1, 2011 2:54:50 PM > Subject: Re: Countdown is on > >  > Chelsea, I think the " norm " is 8-10 weeks per cast. But I think > part of what > they take into consideration is the child's age (older = longer) and also > travel > needs (further away = more time in each cast?). > > Grace is 4 1/2 and started casting at 3 yrs old and we live 20 minutes > away from > our Shriner's. She has always gone 8-10 weeks between casts. However, > there > was another young girl (2nd or 3rd grader) that was being casted last year > that > we shared a room with and her mom said they go 3-4 months between cast > changes. > I don't know how they stand it that long! >  > Jane > > > > > ________________________________ > From: Chelsea Britain <softballchick105@...> > <infantile scoliosis treatment > > Sent: Fri, April 1, 2011 2:44:04 PM > Subject: RE: Countdown is on > >  > If you dont mind me asking..why does he have the cast on for so long of a > time? > Aubrey has hers replaced every 4-6 weeks. I've noticed quite a few kiddos > have > theirs on longer than aubrey so maybe just the doctor? > > > Chelsea mom to aubrey in 6th cast > > >  > > >  > > ________________________________ > infantile scoliosis treatment > From: dazies2001@... > Date: Fri, 1 Apr 2011 19:19:34 +0000 > Subject: Countdown is on > >  > Hello to all:) > yesterday was benjamins 8th week in cast #1... we have 3 more weeks until > cast # > 2. I think we will make it! The date was pushed back 2 weeks due to a > shoulder > injury (of the doc). Anyway I just wanted to let everyone know that his > 1st cast > has been a total walk in the park. Easy! He's had only 1 small abrasion > and a > little extra soreness in his armpit region but all in all it's been a > breeze! > I'm excited to go for the next procedure and see how things progress. > Hopefully > they will and if not that's ok it's not the end of the world... Just a > glitch in > plans. My baby is a survivor and no matter what happens he IS going to be > okay:) > (remind me I said that in the future) > tame > mom to benjamin 4 yrs old > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 Thanks ! I just think the scheduler didn't know better. I had never talked to her before. She called back at the end of the day with a much different attitude. They are trying to get her in on 4/28, but needed approval from Dr. D first, so I won't know until Monday. The only other date she had available was 5/19 which is the day before and I leave on a MUCH needed vacation and why I had conversations with care coordinator so early on so we could avoid that week. I can't miss another day of work that week!Thanks for the vote of confidence tho JaneFrom: "heather@..." <heather@...>infantile scoliosis treatment Sent: Sat, April 2, 2011 9:32:29 AMSubject: Re: Jane & Grace Please keep us posted on this....Grrr, how frustrating. I can see why you would be concerned. They'll find answers for you as they have no choice. Go get em, Jane! Let us know. HRH > Well, scratch part of that thought...I called this morning to ask why we > hadn't > been called about a casting date yet. Just heard back, they have put > her > off until 6/1, which will be 13 weeks!  They said it was because she > is over 3 > now, um, yeah, she's been over 3 the entire time she's been casted! Grr. > I told > them I was afraid of skin breakdown as she has zero body fat and by > weight is a > lot smaller than a 3 yr old (she's only 30 lbs WITH her cast). > > She's gonna see what she can do, but didn't seem very helpful as Dr. D is > out of > town most of May >  > Jane > > > > > ________________________________ > From: Jane Bigler <janemhar@...> > infantile scoliosis treatment > Sent: Fri, April 1, 2011 2:54:50 PM > Subject: Re: Countdown is on > >  > Chelsea, I think the "norm" is 8-10 weeks per cast. But I think > part of what > they take into consideration is the child's age (older = longer) and also > travel > needs (further away = more time in each cast?). > > Grace is 4 1/2 and started casting at 3 yrs old and we live 20 minutes > away from > our Shriner's. She has always gone 8-10 weeks between casts. However, > there > was another young girl (2nd or 3rd grader) that was being casted last year > that > we shared a room with and her mom said they go 3-4 months between cast > changes. > I don't know how they stand it that long! >  > Jane > > > > > ________________________________ > From: Chelsea Britain <softballchick105@...> > <infantile scoliosis treatment > > Sent: Fri, April 1, 2011 2:44:04 PM > Subject: RE: Countdown is on > >  > If you dont mind me asking..why does he have the cast on for so long of a > time? > Aubrey has hers replaced every 4-6 weeks. I've noticed quite a few kiddos > have > theirs on longer than aubrey so maybe just the doctor? > > > Chelsea mom to aubrey in 6th cast > > >  > > >  > > ________________________________ > infantile scoliosis treatment > From: dazies2001@... > Date: Fri, 1 Apr 2011 19:19:34 +0000 > Subject: Countdown is on > >  > Hello to all:) > yesterday was benjamins 8th week in cast #1... we have 3 more weeks until > cast # > 2. I think we will make it! The date was pushed back 2 weeks due to a > shoulder > injury (of the doc). Anyway I just wanted to let everyone know that his > 1st cast > has been a total walk in the park. Easy! He's had only 1 small abrasion > and a > little extra soreness in his armpit region but all in all it's been a > breeze! > I'm excited to go for the next procedure and see how things progress. > Hopefully > they will and if not that's ok it's not the end of the world... Just a > glitch in > plans. My baby is a survivor and no matter what happens he IS going to be > okay:) > (remind me I said that in the future) > tame > mom to benjamin 4 yrs old > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.