Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 Great news that Damian has adjusted well to expandable rod life. Which type does he have, growing rods or Veptr’s? My daughter had only Veptr’s attached to her iliac crests and we found distractions to go fairly smooth. One day of recovery, usually. Def. not as bad as the original procedure! My best advice for the younger kiddos is to always keep on top of the pain….Because once it gets out of control, it takes a long time to recover. If the pain was managed well, the recovery always went more smoothly for us.We’ll send best wishes on the 18th!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Sent: Thursday, April 07, 2011 10:56 AMinfantile scoliosis treatment Subject: Update on Damian Hello, everyone! It has been a while since I last did an update on my son, Damian. It has been a little over a year since Damian had his rod put in. He is doing very well! On April 18 Damian is going to be getting his first lengthening. We are all very nervous because since it is his first one, we don't really know what to expect. Are there any parents out there that have children that have had their rods lengthened? Can you give me any advise or any insights of what to expect? The Doctors and Nurses have all said that this is an easy procedure, which I'm sure it is. It would just be much easier to know what to expect from a parents point of view. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 Great news that Damian has adjusted well to expandable rod life. Which type does he have, growing rods or Veptr’s? My daughter had only Veptr’s attached to her iliac crests and we found distractions to go fairly smooth. One day of recovery, usually. Def. not as bad as the original procedure! My best advice for the younger kiddos is to always keep on top of the pain….Because once it gets out of control, it takes a long time to recover. If the pain was managed well, the recovery always went more smoothly for us.We’ll send best wishes on the 18th!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Sent: Thursday, April 07, 2011 10:56 AMinfantile scoliosis treatment Subject: Update on Damian Hello, everyone! It has been a while since I last did an update on my son, Damian. It has been a little over a year since Damian had his rod put in. He is doing very well! On April 18 Damian is going to be getting his first lengthening. We are all very nervous because since it is his first one, we don't really know what to expect. Are there any parents out there that have children that have had their rods lengthened? Can you give me any advise or any insights of what to expect? The Doctors and Nurses have all said that this is an easy procedure, which I'm sure it is. It would just be much easier to know what to expect from a parents point of view. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 HRH: Damian has veptr's in and one titanium rod, they did call his rod a growing rod. They are waiting to put in the other rod in when his curve gets better. at the time of his first surgery his curve was too bad to put in the other one. Thank you so much for responding. > > Great news that Damian has adjusted well to expandable rod life. Which type > does he have, growing rods or Veptr's? My daughter had only Veptr's > attached to her iliac crests and we found distractions to go fairly smooth. > One day of recovery, usually. Def. not as bad as the original procedure! > My best advice for the younger kiddos is to always keep on top of the > pain..Because once it gets out of control, it takes a long time to recover. > If the pain was managed well, the recovery always went more smoothly for us. > > We'll send best wishes on the 18th! > > HRH > > > > From: infantile scoliosis treatment > [mailto:infantile scoliosis treatment ] On Behalf Of > Sent: Thursday, April 07, 2011 10:56 AM > infantile scoliosis treatment > Subject: Update on Damian > > > > > > Hello, everyone! It has been a while since I last did an update on my son, > Damian. It has been a little over a year since Damian had his rod put in. He > is doing very well! On April 18 Damian is going to be getting his first > lengthening. We are all very nervous because since it is his first one, we > don't really know what to expect. Are there any parents out there that have > children that have had their rods lengthened? Can you give me any advise or > any insights of what to expect? The Doctors and Nurses have all said that > this is an easy procedure, which I'm sure it is. It would just be much > easier to know what to expect from a parents point of view. Thank you. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2011 Report Share Posted April 8, 2011 Very best wishes and best of luck to Damian!!! Heidi, Bexon's Mommy, (3.5 years old, in 10th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)From: Hyatt <heather@...>To: infantile scoliosis treatment Sent: Thu, April 7, 2011 10:19:08 AMSubject: RE: Update on Damian Great news that Damian has adjusted well to expandable rod life. Which type does he have, growing rods or Veptr’s? My daughter had only Veptr’s attached to her iliac crests and we found distractions to go fairly smooth. One day of recovery, usually. Def. not as bad as the original procedure! My best advice for the younger kiddos is to always keep on top of the pain….Because once it gets out of control, it takes a long time to recover. If the pain was managed well, the recovery always went more smoothly for us.We’ll send best wishes on the 18th!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Sent: Thursday, April 07, 2011 10:56 AMinfantile scoliosis treatment Subject: Update on Damian Hello, everyone! It has been a while since I last did an update on my son, Damian. It has been a little over a year since Damian had his rod put in. He is doing very well! On April 18 Damian is going to be getting his first lengthening. We are all very nervous because since it is his first one, we don't really know what to expect. Are there any parents out there that have children that have had their rods lengthened? Can you give me any advise or any insights of what to expect? The Doctors and Nurses have all said that this is an easy procedure, which I'm sure it is. It would just be much easier to know what to expect from a parents point of view. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 Got it....One growing and one Veptr. Livs curves were also too high for veptrs to fit, so prior to the initial, dual rod installation she received 6 wks of halo gravity traction. The gentle traction corrected her from 104 to the low 60's and we were able to do both veptrs in one surgery. Just food for thought for those out there who have children w/ high curves. Check into halo gravity traction as way to gently correct curves prior to hardware surgery. Properly applied Halo gravity traction for severe cases gently straightens the spine prior to hardware installation, which can improve lung space, improves appearance and can allow the dual rod V's to be done simultaneously which may decrease the risks of revisions in many severe cases. I know Halos have been life savers for many here. Please read the veptr handbook on the Resource page as it def. has more info on distractions. We'll be thinking of you and Damian on the 18th! Hang tough lil dude! HRH > HRH: > Damian has veptr's in and one titanium rod, they did call his rod a > growing rod. They are waiting to put in the other rod in when his curve > gets better. at the time of his first surgery his curve was too bad to put > in the other one. Thank you so much for responding. > > >> >> Great news that Damian has adjusted well to expandable rod life. Which >> type >> does he have, growing rods or Veptr's? My daughter had only Veptr's >> attached to her iliac crests and we found distractions to go fairly >> smooth. >> One day of recovery, usually. Def. not as bad as the original >> procedure! >> My best advice for the younger kiddos is to always keep on top of the >> pain..Because once it gets out of control, it takes a long time to >> recover. >> If the pain was managed well, the recovery always went more smoothly for >> us. >> >> We'll send best wishes on the 18th! >> >> HRH >> >> >> >> From: infantile scoliosis treatment >> [mailto:infantile scoliosis treatment ] On Behalf Of >> Sent: Thursday, April 07, 2011 10:56 AM >> infantile scoliosis treatment >> Subject: Update on Damian >> >> >> >> >> >> Hello, everyone! It has been a while since I last did an update on my >> son, >> Damian. It has been a little over a year since Damian had his rod put >> in. He >> is doing very well! On April 18 Damian is going to be getting his first >> lengthening. We are all very nervous because since it is his first one, >> we >> don't really know what to expect. Are there any parents out there that >> have >> children that have had their rods lengthened? Can you give me any advise >> or >> any insights of what to expect? The Doctors and Nurses have all said >> that >> this is an easy procedure, which I'm sure it is. It would just be much >> easier to know what to expect from a parents point of view. Thank you. >> >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 Got it....One growing and one Veptr. Livs curves were also too high for veptrs to fit, so prior to the initial, dual rod installation she received 6 wks of halo gravity traction. The gentle traction corrected her from 104 to the low 60's and we were able to do both veptrs in one surgery. Just food for thought for those out there who have children w/ high curves. Check into halo gravity traction as way to gently correct curves prior to hardware surgery. Properly applied Halo gravity traction for severe cases gently straightens the spine prior to hardware installation, which can improve lung space, improves appearance and can allow the dual rod V's to be done simultaneously which may decrease the risks of revisions in many severe cases. I know Halos have been life savers for many here. Please read the veptr handbook on the Resource page as it def. has more info on distractions. We'll be thinking of you and Damian on the 18th! Hang tough lil dude! HRH > HRH: > Damian has veptr's in and one titanium rod, they did call his rod a > growing rod. They are waiting to put in the other rod in when his curve > gets better. at the time of his first surgery his curve was too bad to put > in the other one. Thank you so much for responding. > > >> >> Great news that Damian has adjusted well to expandable rod life. Which >> type >> does he have, growing rods or Veptr's? My daughter had only Veptr's >> attached to her iliac crests and we found distractions to go fairly >> smooth. >> One day of recovery, usually. Def. not as bad as the original >> procedure! >> My best advice for the younger kiddos is to always keep on top of the >> pain..Because once it gets out of control, it takes a long time to >> recover. >> If the pain was managed well, the recovery always went more smoothly for >> us. >> >> We'll send best wishes on the 18th! >> >> HRH >> >> >> >> From: infantile scoliosis treatment >> [mailto:infantile scoliosis treatment ] On Behalf Of >> Sent: Thursday, April 07, 2011 10:56 AM >> infantile scoliosis treatment >> Subject: Update on Damian >> >> >> >> >> >> Hello, everyone! It has been a while since I last did an update on my >> son, >> Damian. It has been a little over a year since Damian had his rod put >> in. He >> is doing very well! On April 18 Damian is going to be getting his first >> lengthening. We are all very nervous because since it is his first one, >> we >> don't really know what to expect. Are there any parents out there that >> have >> children that have had their rods lengthened? Can you give me any advise >> or >> any insights of what to expect? The Doctors and Nurses have all said >> that >> this is an easy procedure, which I'm sure it is. It would just be much >> easier to know what to expect from a parents point of view. Thank you. >> >> >> > > > Quote Link to comment Share on other sites More sharing options...
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