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Jonas down to 25.7!

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Jonas got his 6th cast in SLC on Monday. Dr. D' was able to get him from 33

degrees in his last cast down to 25.7 in his new " Buzz Armor. " (It is lime

green w/ 2 Buzz Lightyears modge podged to the sides) We are very excited to see

any correction at this point since we started at 73 degrees and this is only our

2nd true Mehta cast.

While we were in SLC we got the results of Jonas' MRI from last Thursday. It

had been a year since his spinal cord detethering surgery. The results showed

that the spinal cord has NOT retethered and his syrinx and minor Chiari have

remained the same! We are excited b/c this means we can keep casting and not

have to worry about another neurosurgery at least at this point!

The best part of our trip to SLC this time was that Jonas was able to see & play

with 2 other children in casts just like his! There were also some very

encouraging stories to hear from other families on this particular day.

Hollie

Mama of Jonas 2 1/2 yo. 25.7 degrees down from 73 in cast #6 SLC.

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