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RE: immune systems, & my MRI

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ithink its a, b, and c, hep c, treatment, and old age as a topper. conniesuzie <suzieandsandy@...> wrote:

Glad it helped Connie. It also comes in pill form which is the way I take it. My doc prescribed Celebrex - it didn't even touch the back pain so I stopped taking it & tried the glucosamine. It worked better for me than anything else I've tried.

Man there are a lot of arthritics in the group - you think it's the hep or just that we're none of us getting any younger?

SuZieconnie mcclain <crochetlady1001@...> wrote:

ok, try liquid glucosamine, and i know its not gonna cure but after about a week it takes some of the pain out, my friend suzie turned me on to the stuff and its helpin my arthritis immensely

connie Motley <dmotley@...> wrote:

I have a lot more lower back pain now than before tx. I have mild deterioration of 2 lumbar disks.

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of gailSent: Saturday, October 01, 2005

7:27 PMHepatitis CSupportGroupForDummies Subject: RE: immune systems, & my MRI

ask the doctor to do a bone density exray on you spine.I think that between having hep c, probably the change of life and treatment it all causes our bones to get ostioparosis.If I don't rest when I need it or if I get sick,I feel like my back is breaking in half.Ask for the test hon,Bone Density Exray.It will how thin your bones have gotton.

Gail

The light at the end of the tunnel may be you

Next time I'm coming back as a cat

The light at the end of the tunnel may be you

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The doctor put me on 50,000units of vitamin D once a wk and calcium every day.There is another treatment that will build up your bones but is very liver unfriendly so I have to stay with trying to maintain what bones I have left.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of connie mcclainSent: October 2, 2005 11:10 AMHepatitis CSupportGroupForDummies Subject: RE: immune systems, & my MRI

aint life grand?? any day above ground is a good day. thats what my cherokee gramma used to say. conniegail <gaila@...> wrote:

As I was informed that hep causes thining of the bones,change of life causes thing of the bones,treatment causes thining of the bones.You get all three go for a bone desity exray and you will find you probably have ostiparosis. thats what happened to me.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of suzieSent: October 2, 2005 4:01 AMHepatitis CSupportGroupForDummies Subject: RE: immune systems, & my MRI

Glad it helped Connie. It also comes in pill form which is the way I take it. My doc prescribed Celebrex - it didn't even touch the back pain so I stopped taking it & tried the glucosamine. It worked better for me than anything else I've tried.

Man there are a lot of arthritics in the group - you think it's the hep or just that we're none of us getting any younger?

SuZieconnie mcclain <crochetlady1001@...> wrote:

ok, try liquid glucosamine, and i know its not gonna cure but after about a week it takes some of the pain out, my friend suzie turned me on to the stuff and its helpin my arthritis immensely

connie Motley <dmotley@...> wrote:

I have a lot more lower back pain now than before tx. I have mild deterioration of 2 lumbar disks.

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of gailSent: Saturday, October 01, 2005 7:27 PMHepatitis CSupportGroupForDummies Subject: RE: immune systems, & my MRI

ask the doctor to do a bone density exray on you spine.I think that between having hep c, probably the change of life and treatment it all causes our bones to get ostioparosis.If I don't rest when I need it or if I get sick,I feel like my back is breaking in half.Ask for the test hon,Bone Density Exray.It will how thin your bones have gotton.

Gail

The light at the end of the tunnel may be you

Next time I'm coming back as a cat

The light at the end of the tunnel may be you

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Just follow the package dierctions. I've got glucosamine & chondroitin - 599/400 - it says 2 or 3 daily, I take 2. You can find it in most pharmacies & health food stores & it's pretty cheap. Try it for a month, it sometimes takes a few weeks to work kinda like anti d's.

SuZie Motley <dmotley@...> wrote:

I think it’s both the hep & age. I’m not sure about the other forms of arthritis, but rheumatoid is an autoimmune disease, which tend to run in groups and are exacerbated by the hep.

How much glucosamine?

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of suzieSent: Sunday, October 02, 2005 7:01 AMHepatitis CSupportGroupForDummies Subject: RE: immune systems, & my MRI

Glad it helped Connie. It also comes in pill form which is the way I take it. My doc prescribed Celebrex - it didn't even touch the back pain so I stopped taking it & tried the glucosamine. It worked better for me than anything else I've tried.

Man there are a lot of arthritics in the group - you think it's the hep or just that we're none of us getting any younger?

SuZie

Next time I'm coming back as a cat

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Sometimes I feel like I traded on evil for another - after clearing Hep, 9 months later I was diagnosed with Rhuematiod Athritis. They Rhumatoligist told me that I could have activated my RA because my body faught so hard to fight off the hep and then the immune system doesn't stop fighting and eventually turn on our own bodies. First attacking our joints then if left untreated, attacking our major organs. He wants me to treat with Methotrexate - which he says is a for of chemotherapy, kind of like tx , simular side affects - I just can't bring myself to do it yet. Maybe someday.

Is anyone else here with RA treating?

I am also on a immune suppressent called plaquinel, anyone heard of it?

connie mcclain <crochetlady1001@...> wrote:

De, Exacerbated, yup. one ounce or two tablespoons a day of the liquid, which works more quickly than the capsules. It relubes the joints. Helps my knees a LOT. Connie Motley <dmotley@...> wrote:

I think it’s both the hep & age. I’m not sure about the other forms of arthritis, but rheumatoid is an autoimmune disease, which tend to run in groups and are exacerbated by the hep.

How much glucosamine?

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of suzieSent: Sunday, October 02, 2005 7:01 AMHepatitis CSupportGroupForDummies Subject: RE: immune systems, & my MRI

Glad it helped Connie. It also comes in pill form which is the way I take it. My doc prescribed Celebrex - it didn't even touch the back pain so I stopped taking it & tried the glucosamine. It worked better for me than anything else I've tried.

Man there are a lot of arthritics in the group - you think it's the hep or just that we're none of us getting any younger?

SuZie

The light at the end of the tunnel may be you

for Good Click here to donate to the Hurricane Katrina relief effort.

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I

got tested for RA when I did my 6 month post tx viral load because my hands,

feet & ankles were hurting so bad when I woke up, but it was negative.

De

RE:

immune systems, & my MRI

Sometimes I feel like I traded on evil for another - after

clearing Hep, 9 months later I was diagnosed with Rhuematiod Athritis.

They Rhumatoligist told me that I could have activated my RA because my body

faught so hard to fight off the hep and then the immune system doesn't

stop fighting and eventually turn on our own bodies. First attacking our

joints then if left untreated, attacking our major organs. He wants me to

treat with Methotrexate - which he says is a for of chemotherapy, kind of like

tx , simular side affects - I just can't bring myself to do it yet. Maybe

someday.

Is anyone else here with RA treating?

I am also on a immune suppressent called plaquinel, anyone heard

of it?

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Share on other sites

, your doc is nuts.

Methotrexate is highly toxic to the liver and can cause cirrhosis even in a healthy liver.

I'm in the same quandrey and have not been thru trmt.

They want me to make a choice as to what I want to be treated for.

Your doc should read about the sides in the PDR not on his lunch menu.

danny Davies <lisamarie64@...> wrote:

Sometimes I feel like I traded on evil for another - after clearing Hep, 9 months later I was diagnosed with Rhuematiod Athritis. They Rhumatoligist told me that I could have activated my RA because my body faught so hard to fight off the hep and then the immune system doesn't stop fighting and eventually turn on our own bodies. First attacking our joints then if left untreated, attacking our major organs. He wants me to treat with Methotrexate - which he says is a for of chemotherapy, kind of like tx , simular side affects - I just can't bring myself to do it yet. Maybe someday.

Is anyone else here with RA treating?

I am also on a immune suppressent called plaquinel, anyone heard of it?

connie mcclain <crochetlady1001@...> wrote:

De, Exacerbated, yup. one ounce or two tablespoons a day of the liquid, which works more quickly than the capsules. It relubes the joints. Helps my knees a LOT. Connie Motley <dmotley@...> wrote:

I think it’s both the hep & age. I’m not sure about the other forms of arthritis, but rheumatoid is an autoimmune disease, which tend to run in groups and are exacerbated by the hep.

How much glucosamine?

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of suzieSent: Sunday, October 02, 2005 7:01 AMHepatitis CSupportGroupForDummies Subject: RE: immune systems, & my MRI

Glad it helped Connie. It also comes in pill form which is the way I take it. My doc prescribed Celebrex - it didn't even touch the back pain so I stopped taking it & tried the glucosamine. It worked better for me than anything else I've tried.

Man there are a lot of arthritics in the group - you think it's the hep or just that we're none of us getting any younger?

SuZie

The light at the end of the tunnel may be you

for GoodClick here to donate to the Hurricane Katrina relief effort.

for Good Click here to donate to the Hurricane Katrina relief effort.

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Share on other sites

There's no way on the face of this earth that you should ever take methotrexate !!! It is incredibly liver unfreindly. My Dad was on it for years for psorriasis & had to have LFTs done every three months. He was not supposed to drink because of the liver damage that could result from the drug but now, several years later he has liver spots & his skin is so thin that all he has to is scratch himself & he bruises.

I don't understand how your doctor could even suggest that yu take it.

SuZie Davies <lisamarie64@...> wrote:

Sometimes I feel like I traded on evil for another - after clearing Hep, 9 months later I was diagnosed with Rhuematiod Athritis. They Rhumatoligist told me that I could have activated my RA because my body faught so hard to fight off the hep and then the immune system doesn't stop fighting and eventually turn on our own bodies. First attacking our joints then if left untreated, attacking our major organs. He wants me to treat with Methotrexate - which he says is a for of chemotherapy, kind of like tx , simular side affects - I just can't bring myself to do it yet. Maybe someday.

Is anyone else here with RA treating?

I am also on a immune suppressent called plaquinel, anyone heard of it?

connie mcclain <crochetlady1001@...> wrote:

De, Exacerbated, yup. one ounce or two tablespoons a day of the liquid, which works more quickly than the capsules. It relubes the joints. Helps my knees a LOT. Connie Motley <dmotley@...> wrote:

I think it’s both the hep & age. I’m not sure about the other forms of arthritis, but rheumatoid is an autoimmune disease, which tend to run in groups and are exacerbated by the hep.

How much glucosamine?

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of suzieSent: Sunday, October 02, 2005 7:01 AMHepatitis CSupportGroupForDummies Subject: RE: immune systems, & my MRI

Glad it helped Connie. It also comes in pill form which is the way I take it. My doc prescribed Celebrex - it didn't even touch the back pain so I stopped taking it & tried the glucosamine. It worked better for me than anything else I've tried.

Man there are a lot of arthritics in the group - you think it's the hep or just that we're none of us getting any younger?

SuZie

The light at the end of the tunnel may be you

for GoodClick here to donate to the Hurricane Katrina relief effort.

Next time I'm coming back as a cat

Link to comment
Share on other sites

There's no way on the face of this earth that you should ever take methotrexate !!! It is incredibly liver unfreindly. My Dad was on it for years for psorriasis & had to have LFTs done every three months. He was not supposed to drink because of the liver damage that could result from the drug but now, several years later he has liver spots & his skin is so thin that all he has to is scratch himself & he bruises.

I don't understand how your doctor could even suggest that yu take it.

SuZie Davies <lisamarie64@...> wrote:

Sometimes I feel like I traded on evil for another - after clearing Hep, 9 months later I was diagnosed with Rhuematiod Athritis. They Rhumatoligist told me that I could have activated my RA because my body faught so hard to fight off the hep and then the immune system doesn't stop fighting and eventually turn on our own bodies. First attacking our joints then if left untreated, attacking our major organs. He wants me to treat with Methotrexate - which he says is a for of chemotherapy, kind of like tx , simular side affects - I just can't bring myself to do it yet. Maybe someday.

Is anyone else here with RA treating?

I am also on a immune suppressent called plaquinel, anyone heard of it?

connie mcclain <crochetlady1001@...> wrote:

De, Exacerbated, yup. one ounce or two tablespoons a day of the liquid, which works more quickly than the capsules. It relubes the joints. Helps my knees a LOT. Connie Motley <dmotley@...> wrote:

I think it’s both the hep & age. I’m not sure about the other forms of arthritis, but rheumatoid is an autoimmune disease, which tend to run in groups and are exacerbated by the hep.

How much glucosamine?

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of suzieSent: Sunday, October 02, 2005 7:01 AMHepatitis CSupportGroupForDummies Subject: RE: immune systems, & my MRI

Glad it helped Connie. It also comes in pill form which is the way I take it. My doc prescribed Celebrex - it didn't even touch the back pain so I stopped taking it & tried the glucosamine. It worked better for me than anything else I've tried.

Man there are a lot of arthritics in the group - you think it's the hep or just that we're none of us getting any younger?

SuZie

The light at the end of the tunnel may be you

for GoodClick here to donate to the Hurricane Katrina relief effort.

Next time I'm coming back as a cat

Link to comment
Share on other sites

  • 4 weeks later...

I have ostopaosis from treatment and the hep.I also have rumatism but thats it and quite enough.

Gail

RE: immune systems, & my MRI

Sometimes I feel like I traded on evil for another - after clearing Hep, 9 months later I was diagnosed with Rhuematiod Athritis. They Rhumatoligist told me that I could have activated my RA because my body faught so hard to fight off the hep and then the immune system doesn't stop fighting and eventually turn on our own bodies. First attacking our joints then if left untreated, attacking our major organs. He wants me to treat with Methotrexate - which he says is a for of chemotherapy, kind of like tx , simular side affects - I just can't bring myself to do it yet. Maybe someday.

Is anyone else here with RA treating?

I am also on a immune suppressent called plaquinel, anyone heard of it?

connie mcclain <crochetlady1001@...> wrote:

De, Exacerbated, yup. one ounce or two tablespoons a day of the liquid, which works more quickly than the capsules. It relubes the joints. Helps my knees a LOT. Connie Motley <dmotley@...> wrote:

I think it’s both the hep & age. I’m not sure about the other forms of arthritis, but rheumatoid is an autoimmune disease, which tend to run in groups and are exacerbated by the hep.

How much glucosamine?

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of suzieSent: Sunday, October 02, 2005 7:01 AMHepatitis CSupportGroupForDummies Subject: RE: immune systems, & my MRI

Glad it helped Connie. It also comes in pill form which is the way I take it. My doc prescribed Celebrex - it didn't even touch the back pain so I stopped taking it & tried the glucosamine. It worked better for me than anything else I've tried.

Man there are a lot of arthritics in the group - you think it's the hep or just that we're none of us getting any younger?

SuZie

The light at the end of the tunnel may be you

for GoodClick here to donate to the Hurricane Katrina relief effort.

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Share on other sites

I've taken plaquinel for a long time. Went off of it when we lost our insurance. Does it seem to help you? I could never tell. I was on high dosages of prednisone for over 2 year's and no one want's to see a picture of what I looked like then. Well, except my daughter-in-law who has a picture in her living room. She loves me, huh? Half the doctor's say I have RA, half say I don't. I do have polymyositis which is an auto immune disease - a form of Muscular Dystrophy - muscle deteriation. That's why I was on the prednisone. I have to use a cane for step's and such since I can't lift my leg's very high. Some food's are really hard to swallow - most people that die from it is because they can't swallow. I won't get to start treatment for my hep until March or April. I think the smoking will kill me before anything. Can't quit, no matter how much I want to. Some have been talking about diabetes. I had steroid induced diabetes when I was on the prednisone and had to take 3 to 4 insulin shot's a day. Seem's okay now, tho. Is anyone familiar with neuropathy? Also, I had carpal tunnel surgery on both wrist's and now my left one seem's to be starting again. Has anyone been through that and do they do the surgery again? I'm losing muscle tone - is that the hep or the other? Anyone know? I'm starting to wrinkle like crazy and it's scary !!! Enough for now. Talk to you later.

SuSie

-- Re: immune systems, & my MRI

I have ostopaosis from treatment and the hep.I also have rumatism but thats it and quite enough.

Gail

RE: immune systems, & my MRI

Sometimes I feel like I traded on evil for another - after clearing Hep, 9 months later I was diagnosed with Rhuematiod Athritis. They Rhumatoligist told me that I could have activated my RA because my body faught so hard to fight off the hep and then the immune system doesn't stop fighting and eventually turn on our own bodies. First attacking our joints then if left untreated, attacking our major organs. He wants me to treat with Methotrexate - which he says is a for of chemotherapy, kind of like tx , simular side affects - I just can't bring myself to do it yet. Maybe someday.

Is anyone else here with RA treating?

I am also on a immune suppressent called plaquinel, anyone heard of it?

connie mcclain <crochetlady1001@...> wrote:

De, Exacerbated, yup. one ounce or two tablespoons a day of the liquid, which works more quickly than the capsules. It relubes the joints. Helps my knees a LOT. Connie Motley <dmotley@...> wrote:

I think it’s both the hep & age. I’m not sure about the other forms of arthritis, but rheumatoid is an autoimmune disease, which tend to run in groups and are exacerbated by the hep.

How much glucosamine?

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of suzieSent: Sunday, October 02, 2005 7:01 AMHepatitis CSupportGroupForDummies Subject: RE: immune systems, & my MRI

Glad it helped Connie. It also comes in pill form which is the way I take it. My doc prescribed Celebrex - it didn't even touch the back pain so I stopped taking it & tried the glucosamine. It worked better for me than anything else I've tried.

Man there are a lot of arthritics in the group - you think it's the hep or just that we're none of us getting any younger?

SuZie

The light at the end of the tunnel may be you

for GoodClick here to donate to the Hurricane Katrina relief effort.

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