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Re: 10.6 for Bexon!!! Last cast!

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THAT'S AMAZING NEWS!!!!! CONGRATS!!!!!!- Noelle's mommy, 4 years oldRochester NYCasted 8 times for 1 1/2 years9 months in braceRegressed and went into cast 9Back in brace at 8 degrees supine, 13 standing! reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: NIck Guthe <nickguthe@...>Subject: 10.6 for Bexon!!! Last cast!infantile scoliosis treatment Cc: " Montoya" <isop06@...>Date: Tuesday, April 5, 2011, 12:47 AM

Bex got down to 10.6 "in cast" today in cast #10- over 2 years of casting and worth every singe minute of it!!!We're over the moon (he was 14.6 three months ago). Our little buckeroo will be switched to a brace in July. We can't thank you and Liv, Shriners Hospital and of course the miracle workers- the pioneer Dr. Mehta and our beloved Doctor D'A at SLC.And thank you, our CAST friends. Without you we would have been lost and we are so very grateful. Our hearts are full. Yay!!!

Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)

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That is so truly wonderful!! What a journey, and so happy that the past is in

the past so far as the severity goes. Congratulations on Bex's amazing

recovery. 10.6 is no scoliosis at all by some measures!! And it couldn't have

come at a better time. I hope he's all grins -- I'm sure his parents are!

Shauna Leamy

Mother of Kieran, , and Kelsey

>

>

> From: NIck Guthe <nickguthe@...>

> Subject: 10.6 for Bexon!!! Last cast!

> infantile scoliosis treatment

> Cc: " Montoya " <isop06@...>

> Date: Tuesday, April 5, 2011, 12:47 AM

>

>

>  

>

>

>

>

> Bex got down to 10.6 " in cast " today in cast #10- over 2 years of casting and

worth every singe minute of it!!!

>

> We're over the moon (he was 14.6 three months ago). Our little buckeroo will

be switched to a brace in July. We can't thank you and Liv, Shriners

Hospital and of course the miracle workers- the pioneer Dr. Mehta and our

beloved Doctor D'A at SLC.

>

> And thank you, our CAST friends. Without you we would have been lost and we

are so very grateful. Our hearts are full. Yay!!!

>

>  Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City

Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's

Story on www.GirltoMom.com)

>

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This is fabulous news. Much deserved for you and your little Man. GO BEX. Hugs and love to you guys

Joanmom to Hayden 4Treated at ish Rite Hospital Dallas, TX

From: NIck Guthe <nickguthe@...>infantile scoliosis treatment Cc: Montoya <isop06@...>Sent: Mon, April 4, 2011 7:47:24 PMSubject: 10.6 for Bexon!!! Last cast!

Bex got down to 10.6 "in cast" today in cast #10- over 2 years of casting and worth every singe minute of it!!!We're over the moon (he was 14.6 three months ago). Our little buckeroo will be switched to a brace in July. We can't thank you and Liv, Shriners Hospital and of course the miracle workers- the pioneer Dr. Mehta and our beloved Doctor D'A at SLC.And thank you, our CAST friends. Without you we would have been lost and we are so very grateful. Our hearts are full. Yay!!!

Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)

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That's so great!! I knew he would get there!!!Sent from my iPodOn Apr 4, 2011, at 6:47 PM, NIck Guthe <nickguthe@...> wrote:

Bex got down to 10.6 "in cast" today in cast #10- over 2 years of casting and worth every singe minute of it!!!We're over the moon (he was 14.6 three months ago). Our little buckeroo will be switched to a brace in July. We can't thank you and Liv, Shriners Hospital and of course the miracle workers- the pioneer Dr. Mehta and our beloved Doctor D'A at SLC.And thank you, our CAST friends. Without you we would have been lost and we are so very grateful. Our hearts are full. Yay!!! Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)

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Awesome news Heidi! :) Time to celebrate! JaneFrom: NIck Guthe <nickguthe@...>infantile scoliosis treatment Cc: Montoya <isop06@...>Sent: Mon, April 4, 2011 5:47:24 PMSubject: 10.6 for Bexon!!! Last cast!

Bex got down to 10.6 "in cast" today in cast #10- over 2 years of casting and worth every singe minute of it!!!We're over the moon (he was 14.6 three months ago). Our little buckeroo will be switched to a brace in July. We can't thank you and Liv, Shriners Hospital and of course the miracle workers- the pioneer Dr. Mehta and our beloved Doctor D'A at SLC.And thank you, our CAST friends. Without you we would have been lost and we are so very grateful. Our hearts are full. Yay!!! Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)

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That's excellent! Way to go Bex. Sent from my BlackBerry® wireless handheldFrom: Jane Bigler <janemhar@...>Sender: infantile scoliosis treatment Date: Mon, 04 Apr 2011 20:57:57 -0700 (PDT)<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: 10.6 for Bexon!!! Last cast! Awesome news Heidi! :) Time to celebrate! JaneFrom: NIck Guthe <nickguthe@...>infantile scoliosis treatment Cc: Montoya <isop06@...>Sent: Mon, April 4, 2011 5:47:24 PMSubject: 10.6 for Bexon!!! Last cast! Bex got down to 10.6 "in cast" today in cast #10- over 2 years of casting and worth every singe minute of it!!!We're over the moon (he was 14.6 three months ago). Our little buckeroo will be switched to a brace in July. We can't thank you and Liv, Shriners Hospital and of course the miracle workers- the pioneer Dr. Mehta and our beloved Doctor D'A at SLC.And thank you, our CAST friends. Without you we would have been lost and we are so very grateful. Our hearts are full. Yay!!! Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)

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Congrats to the Guthe family! That is amazing news! I'm so happy for your guys and he gets to go into a brace in July which is awesome for CA weather!!! I know you are all thrilled so celebrate this moment!!

(mother to - 2 yrs 10 mths - 2 casts - 1 brace - currently cured and treatment free since Feb 2010 - treated as SLC)

From: NIck Guthe <nickguthe@...>Subject: 10.6 for Bexon!!! Last cast!infantile scoliosis treatment Cc: " Montoya" <isop06@...>Date: Monday, April 4, 2011, 8:47 PM

Bex got down to 10.6 "in cast" today in cast #10- over 2 years of casting and worth every singe minute of it!!!We're over the moon (he was 14.6 three months ago). Our little buckeroo will be switched to a brace in July. We can't thank you and Liv, Shriners Hospital and of course the miracle workers- the pioneer Dr. Mehta and our beloved Doctor D'A at SLC.And thank you, our CAST friends. Without you we would have been lost and we are so very grateful. Our hearts are full. Yay!!!

Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)

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So happy for you guys, YAY BEX!!!!!!!!

Tonya Perkins

Asheboro,NC

mother of ,12 &

Nora,4 scoliosis, acid reflux

10th cast, down to 8-9 degrees

Greenville Shriners,SC

From: NIck Guthe <nickguthe@...>infantile scoliosis treatment Cc: Montoya <isop06@...>Sent: Mon, April 4, 2011 8:47:24 PMSubject: 10.6 for Bexon!!! Last cast!

Bex got down to 10.6 "in cast" today in cast #10- over 2 years of casting and worth every singe minute of it!!!We're over the moon (he was 14.6 three months ago). Our little buckeroo will be switched to a brace in July. We can't thank you and Liv, Shriners Hospital and of course the miracle workers- the pioneer Dr. Mehta and our beloved Doctor D'A at SLC.And thank you, our CAST friends. Without you we would have been lost and we are so very grateful. Our hearts are full. Yay!!!

Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)

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Wow, go Bex! That is amazing news Heidi :)

>

> Bex got down to 10.6 " in cast " today in cast #10- over 2 years of casting and

> worth every singe minute of it!!!

>

> We're over the moon (he was 14.6 three months ago). Our little buckeroo will

be

> switched to a brace in July. We can't thank you and Liv, Shriners

> Hospital and of course the miracle workers- the pioneer Dr. Mehta and our

> beloved Doctor D'A at SLC.

>

> And thank you, our CAST friends. Without you we would have been lost and we

are

> so very grateful. Our hearts are full. Yay!!!

>

> Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City

Shriners,

> currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on

> www.GirltoMom.com)

>

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Aw Heidi! This brought tears to my eyes!! This is awesome news and I am SO happy for Bex!!! (and you!!) What a great summer this will be now for him!!!

Crystalmom to - 3 1/2, 10th cast- at zero in cast, 20 out of cast, started at almost 60and 8- no health issues

From: NIck Guthe <nickguthe@...>Subject: 10.6 for Bexon!!! Last cast!infantile scoliosis treatment Cc: " Montoya" <isop06@...>Date: Monday, April 4, 2011, 8:47 PM

Bex got down to 10.6 "in cast" today in cast #10- over 2 years of casting and worth every singe minute of it!!!We're over the moon (he was 14.6 three months ago). Our little buckeroo will be switched to a brace in July. We can't thank you and Liv, Shriners Hospital and of course the miracle workers- the pioneer Dr. Mehta and our beloved Doctor D'A at SLC.And thank you, our CAST friends. Without you we would have been lost and we are so very grateful. Our hearts are full. Yay!!!

Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)

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Heidi,

Yippeee for Bexon!!! I can't tell you how much Bexon's story means

to me - he is my hero! Thank you for being so transparent in your

scoli journey and sharing with those of us who are following in your

footsteps.

-Patrice

mom to Simon, age 2 yrs. 10 mo., currently 34 degrees in cast, down

from 57

On 04/04/2011 6:47 PM, NIck Guthe wrote:

Bex got down to 10.6

"in cast" today in cast #10- over 2 years of casting and

worth every singe minute of it!!!

We're over the moon (he was 14.6 three months ago). Our

little buckeroo will be switched to a brace in July. We

can't thank you and Liv, Shriners Hospital and of

course the miracle workers- the pioneer Dr. Mehta and our

beloved Doctor D'A at SLC.

And thank you, our CAST friends. Without you we would have

been lost and we are so very grateful. Our hearts are

full. Yay!!!

Heidi, Bexon's Mommy, (3.5 years old, in 9th cast

from Salt Lake City Shriners, currently down from 63

degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)

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Great week for SLC patients! Nick and Heidi, Im over the moon for you

both and am thrilled that your precious darling didnt fall through the

cracks. Thanks to the both of you. You were determined, had faith in the

treatment and doc, and stayed the course. No it wasnt easy, but it was

worth every second of fear, anxiety, etc....

This is what its all about!

Much love to lil Bex! He made it!!!!! You did it!!! Homestretch & a fun

summer!!!!

XXOO

HRH

> Bex got down to 10.6 " in cast " today in cast #10- over 2 years of casting

> and

> worth every singe minute of it!!!

>

> We're over the moon (he was 14.6 three months ago). Our little buckeroo

> will be

> switched to a brace in July. We can't thank you and Liv, Shriners

> Hospital and of course the miracle workers- the pioneer Dr. Mehta and our

> beloved Doctor D'A at SLC.

>

> And thank you, our CAST friends. Without you we would have been lost and

> we are

> so very grateful. Our hearts are full. Yay!!!

>

> Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City

> Shriners,

> currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story

> on

> www.GirltoMom.com)

>

>

>

>

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Congratulations!! That is great news.

>

>

> From: NIck Guthe <nickguthe@...>

> Subject: 10.6 for Bexon!!! Last cast!

> infantile scoliosis treatment

> Cc: " Montoya " <isop06@...>

> Date: Tuesday, April 5, 2011, 12:47 AM

>

>

>  

>

>

>

>

> Bex got down to 10.6 " in cast " today in cast #10- over 2 years of casting and

worth every singe minute of it!!!

>

> We're over the moon (he was 14.6 three months ago). Our little buckeroo will

be switched to a brace in July. We can't thank you and Liv, Shriners

Hospital and of course the miracle workers- the pioneer Dr. Mehta and our

beloved Doctor D'A at SLC.

>

> And thank you, our CAST friends. Without you we would have been lost and we

are so very grateful. Our hearts are full. Yay!!!

>

>  Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City

Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's

Story on www.GirltoMom.com)

>

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That is wonderful news! Way to go Bex!!!!!

From: ryan_condon <ryan_condon@...>infantile scoliosis treatment Sent: Tue, April 5, 2011 2:24:57 PMSubject: Re: 10.6 for Bexon!!! Last cast!

Congratulations!! That is great news.> > > From: NIck Guthe <nickguthe@...>> Subject: 10.6 for Bexon!!! Last cast!> infantile scoliosis treatment > Cc: " Montoya" <isop06@...>> Date: Tuesday, April 5, 2011, 12:47 AM> > > Â > > > > > Bex got down to 10.6 "in cast" today in cast #10- over 2 years of casting and worth every singe minute of it!!!> > We're over the moon (he was 14.6 three months ago). Our little buckeroo will be switched to a brace in July. We can't thank you and Liv, Shriners Hospital and of course the miracle workers- the pioneer Dr. Mehta and our beloved Doctor D'A at SLC.> > And thank you, our CAST friends. Without you we would have been lost and we are so very grateful. Our hearts are full. Yay!!!> > Â Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake

City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)>

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Patrice,I love the word you used- "transparent"- because for sure I am not doing any of this perfectly or with any great deal of grace- ha! : ) My only hope is that it helps to encourage other families to - assuming the casts are properly applied- go the distance, because even though it's hard, it is so worth it.We are now in the potential "cure zone"- wow. And we know how lucky we are for that. 2 years and 2 months of Mehta/EDF casts so far. Heidi, Bexon's Mommy, (3.5 years old, in 10th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: Patrice Scheck <patrice.scheck@...>infantile scoliosis treatment Sent: Tue, April 5, 2011 7:26:47 AMSubject: Re: 10.6 for Bexon!!! Last cast!

Heidi,

Yippeee for Bexon!!! I can't tell you how much Bexon's story means

to me - he is my hero! Thank you for being so transparent in your

scoli journey and sharing with those of us who are following in your

footsteps.

-Patrice

mom to Simon, age 2 yrs. 10 mo., currently 34 degrees in cast, down

from 57

On 04/04/2011 6:47 PM, NIck Guthe wrote:

Bex got down to 10.6

"in cast" today in cast #10- over 2 years of casting and

worth every singe minute of it!!!

We're over the moon (he was 14.6 three months ago). Our

little buckeroo will be switched to a brace in July. We

can't thank you and Liv, Shriners Hospital and of

course the miracle workers- the pioneer Dr. Mehta and our

beloved Doctor D'A at SLC.

And thank you, our CAST friends. Without you we would have

been lost and we are so very grateful. Our hearts are

full. Yay!!!

Heidi, Bexon's Mommy, (3.5 years old, in 9th cast

from Salt Lake City Shriners, currently down from 63

degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)

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We just got home back to L.A. and it is so weird...2 years and 2 months of casts and this is now gonna be the last one...I just want to mention that we had NO correction for over a year of casting- that was a long haul in the middle of our process- but then his spine just opened up. I hope that gives hope to other parents to go the distance with a solid block of casts without long breaks, we have gotten almost 10 degrees of correction in the last 2 casts. No brace breaks because he started at such a high degree.I almost can't believe it- but this time I can celebrate it. Heidi, Bexon's Mommy, (3.5 years old, in 10th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)From: "heather@..." <heather@...>infantile scoliosis treatment Sent: Tue, April 5, 2011 8:56:56 AMSubject: Re: 10.6 for Bexon!!! Last cast!

Great week for SLC patients! Nick and Heidi, Im over the moon for you

both and am thrilled that your precious darling didnt fall through the

cracks. Thanks to the both of you. You were determined, had faith in the

treatment and doc, and stayed the course. No it wasnt easy, but it was

worth every second of fear, anxiety, etc....

This is what its all about!

Much love to lil Bex! He made it!!!!! You did it!!! Homestretch & a fun

summer!!!!

XXOO

HRH

> Bex got down to 10.6 "in cast" today in cast #10- over 2 years of casting

> and

> worth every singe minute of it!!!

>

> We're over the moon (he was 14.6 three months ago). Our little buckeroo

> will be

> switched to a brace in July. We can't thank you and Liv, Shriners

> Hospital and of course the miracle workers- the pioneer Dr. Mehta and our

> beloved Doctor D'A at SLC.

>

> And thank you, our CAST friends. Without you we would have been lost and

> we are

> so very grateful. Our hearts are full. Yay!!!

>

> Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City

> Shriners,

> currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story

> on

> www.GirltoMom.com)

>

>

>

>

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Heidi,

After a year in Risser casts with no correction, we are beginning to

have hope again. Simon just had EDF/Mehta cast #2 cut off and going

for #3 - THANK YOU HEATHER for pointing us in the right direction

with Dr. B.!

-Patrice

On 04/05/2011 5:19 PM, NIck Guthe wrote:

 

Patrice,

I love the word you used- "transparent"- because for sure

I am not doing any of this perfectly or with any great

deal of grace- ha! : ) My only hope is that it helps to

encourage other families to - assuming the casts are

properly applied- go the distance, because even though

it's hard, it is so worth it.

We are now in the potential "cure zone"- wow. And we know

how lucky we are for that. 2 years and 2 months of

Mehta/EDF casts so far.

 

Heidi, Bexon's Mommy, (3.5 years old, in 10th cast

from Salt Lake City Shriners, currently down from 63

degrees to 10.6 in cast. You can read Bexon's Story on www.GirltoMom.com)

From:

Patrice Scheck <patrice.scheck@...>

To:

infantile scoliosis treatment

Sent:

Tue, April 5, 2011 7:26:47 AM

Subject:

Re: 10.6 for Bexon!!! Last

cast!

 

Heidi,

Yippeee for Bexon!!!  I can't tell you how much

Bexon's story means to me - he is my hero!  Thank

you for being so transparent in your scoli journey

and sharing with those of us who are following in

your footsteps. 

-Patrice

mom to Simon, age 2 yrs. 10 mo., currently 34

degrees in cast, down from 57

On 04/04/2011 6:47 PM, NIck Guthe wrote:

 

Bex got

down to 10.6 "in cast" today in cast #10- over

2 years of casting and worth every singe

minute of it!!!

We're over the moon (he was 14.6 three months

ago). Our little buckeroo will be switched to

a brace in July. We can't thank you

and Liv, Shriners Hospital and of course the

miracle workers- the pioneer Dr. Mehta and our

beloved Doctor D'A at SLC.

And thank you, our CAST friends. Without you

we would have been lost and we are so very

grateful. Our hearts are full. Yay!!!

 

Heidi, Bexon's Mommy, (3.5 years old, in

9th cast from Salt Lake City Shriners,

currently down from 63 degrees to 10.9 in

cast. You can read Bexon's Story on www.GirltoMom.com)

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Yay for Bex!!! You must be so happy Heidi. I remember that feeling almost 4

years ago. It is wonderful.

Rochelle

> >

> >> Bex got down to 10.6 " in cast " today in cast #10- over 2 years of

> >> casting and worth every singe minute of it!!!

> >>

> >> We're over the moon (he was 14.6 three months ago). Our little

> >> buckeroo will be switched to a brace in July. We can't thank you

> >> and Liv, Shriners Hospital and of course the miracle workers-

> >> the pioneer Dr. Mehta and our beloved Doctor D'A at SLC.

> >>

> >> And thank you, our CAST friends. Without you we would have been lost

> >> and we are so very grateful. Our hearts are full. Yay!!!

> >> Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City

> >> Shriners, currently down from 63 degrees to 10.9 in cast. You can

> >> read Bexon's Story on www.GirltoMom.com <http://www.GirltoMom.com>)

> >>

> >>

> >

> >

>

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Wow! congratulations!

From:

ryan_condon <ryan_condon@...>;

To:

<infantile scoliosis treatment >;

Subject:

Re: 10.6 for Bexon!!! Last cast!

Sent:

Tue, Apr 5, 2011 8:24:57 PM

Congratulations!! That is great news.

>

>

> From: NIck Guthe <nickguthe@...>

> Subject: 10.6 for Bexon!!! Last cast!

> infantile scoliosis treatment

> Cc: " Montoya " <isop06@...>

> Date: Tuesday, April 5, 2011, 12:47 AM

>

>

>  

>

>

>

>

> Bex got down to 10.6 " in cast " today in cast #10- over 2 years of casting and worth every singe minute of it!!!

>

> We're over the moon (he was 14.6 three months ago). Our little buckeroo will be switched to a brace in July. We can't thank you and Liv, Shriners Hospital and of course the miracle workers- the pioneer Dr. Mehta and our beloved Doctor D'A at SLC.

>

> And thank you, our CAST friends. Without you we would have been lost and we are so very grateful. Our hearts are full. Yay!!!

>

>  Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)

>

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Wow! congratulations!

From:

ryan_condon <ryan_condon@...>;

To:

<infantile scoliosis treatment >;

Subject:

Re: 10.6 for Bexon!!! Last cast!

Sent:

Tue, Apr 5, 2011 8:24:57 PM

Congratulations!! That is great news.

>

>

> From: NIck Guthe <nickguthe@...>

> Subject: 10.6 for Bexon!!! Last cast!

> infantile scoliosis treatment

> Cc: " Montoya " <isop06@...>

> Date: Tuesday, April 5, 2011, 12:47 AM

>

>

>  

>

>

>

>

> Bex got down to 10.6 " in cast " today in cast #10- over 2 years of casting and worth every singe minute of it!!!

>

> We're over the moon (he was 14.6 three months ago). Our little buckeroo will be switched to a brace in July. We can't thank you and Liv, Shriners Hospital and of course the miracle workers- the pioneer Dr. Mehta and our beloved Doctor D'A at SLC.

>

> And thank you, our CAST friends. Without you we would have been lost and we are so very grateful. Our hearts are full. Yay!!!

>

>  Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)

>

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Wow! congratulations!

From:

ryan_condon <ryan_condon@...>;

To:

<infantile scoliosis treatment >;

Subject:

Re: 10.6 for Bexon!!! Last cast!

Sent:

Tue, Apr 5, 2011 8:24:57 PM

Congratulations!! That is great news.

>

>

> From: NIck Guthe <nickguthe@...>

> Subject: 10.6 for Bexon!!! Last cast!

> infantile scoliosis treatment

> Cc: " Montoya " <isop06@...>

> Date: Tuesday, April 5, 2011, 12:47 AM

>

>

>  

>

>

>

>

> Bex got down to 10.6 " in cast " today in cast #10- over 2 years of casting and worth every singe minute of it!!!

>

> We're over the moon (he was 14.6 three months ago). Our little buckeroo will be switched to a brace in July. We can't thank you and Liv, Shriners Hospital and of course the miracle workers- the pioneer Dr. Mehta and our beloved Doctor D'A at SLC.

>

> And thank you, our CAST friends. Without you we would have been lost and we are so very grateful. Our hearts are full. Yay!!!

>

>  Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)

>

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Heidi, That is wonderful news! Thanks for the reminder of the lag in progress. It sure emphasized that the perseverance pays off!BeckyBecky Stuckless, Sign Language InterpreterDoug Reimneitz519.818.3203 From: NIck Guthe <nickguthe@...>Sender: infantile scoliosis treatment Date: Tue, 5 Apr 2011 16:27:40 -0700 (PDT)<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: 10.6 for Bexon!!! Last cast! We just got home back to L.A. and it is so weird...2 years and 2 months of casts and this is now gonna be the last one...I just want to mention that we had NO correction for over a year of casting- that was a long haul in the middle of our process- but then his spine just opened up. I hope that gives hope to other parents to go the distance with a solid block of casts without long breaks, we have gotten almost 10 degrees of correction in the last 2 casts. No brace breaks because he started at such a high degree.I almost can't believe it- but this time I can celebrate it. Heidi, Bexon's Mommy, (3.5 years old, in 10th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)From: "heather@..." <heather@...>infantile scoliosis treatment Sent: Tue, April 5, 2011 8:56:56 AMSubject: Re: 10.6 for Bexon!!! Last cast! Great week for SLC patients! Nick and Heidi, Im over the moon for youboth and am thrilled that your precious darling didnt fall through thecracks. Thanks to the both of you. You were determined, had faith in thetreatment and doc, and stayed the course. No it wasnt easy, but it wasworth every second of fear, anxiety, etc....This is what its all about!Much love to lil Bex! He made it!!!!! You did it!!! Homestretch & a funsummer!!!!XXOOHRH> Bex got down to 10.6 "in cast" today in cast #10- over 2 years of casting> and> worth every singe minute of it!!!>> We're over the moon (he was 14.6 three months ago). Our little buckeroo> will be> switched to a brace in July. We can't thank you and Liv, Shriners> Hospital and of course the miracle workers- the pioneer Dr. Mehta and our> beloved Doctor D'A at SLC.>> And thank you, our CAST friends. Without you we would have been lost and> we are> so very grateful. Our hearts are full. Yay!!!>> Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City> Shriners,> currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story> on> www.GirltoMom.com)>>>>

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Thanks for sharing that Heidi.  Min always says to keep going….I have seen so many kiddos plateau for a year or more, then just when the consensus is that there will be no more correction….THERE IS!   If the casts are constant (solid block) the spine, tissues & muscles are being retrained  continually and eventually all work together…… and the body does what it wants/needs to heal itself.  I think this would be a nice addition to Bex’s update, when you’re ready.(hugs)HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of NIck GutheSent: Tuesday, April 05, 2011 5:28 PMinfantile scoliosis treatment Subject: Re: 10.6 for Bexon!!! Last cast! We just got home back to L.A. and it is so weird...2 years and 2 months of casts and this is now gonna be the last one...I just want to mention that we had NO correction for over a year of casting- that was a long haul in the middle of our process- but then his spine just opened up. I hope that gives hope to other parents to go the distance with a solid block of casts without long breaks, we have gotten almost 10 degrees of correction in the last 2 casts. No brace breaks because he started at such a high degree.I almost can't believe it- but this time I can celebrate it. Heidi, Bexon's Mommy, (3.5 years old, in 10th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com) From: " heather@... " <heather@...>infantile scoliosis treatment Sent: Tue, April 5, 2011 8:56:56 AMSubject: Re: 10.6 for Bexon!!! Last cast! Great week for SLC patients! Nick and Heidi, Im over the moon for youboth and am thrilled that your precious darling didnt fall through thecracks. Thanks to the both of you. You were determined, had faith in thetreatment and doc, and stayed the course. No it wasnt easy, but it wasworth every second of fear, anxiety, etc....This is what its all about!Much love to lil Bex! He made it!!!!! You did it!!! Homestretch & a funsummer!!!!XXOOHRH> Bex got down to 10.6 " in cast " today in cast #10- over 2 years of casting> and> worth every singe minute of it!!!>> We're over the moon (he was 14.6 three months ago). Our little buckeroo> will be> switched to a brace in July. We can't thank you and Liv, Shriners> Hospital and of course the miracle workers- the pioneer Dr. Mehta and our> beloved Doctor D'A at SLC.>> And thank you, our CAST friends. Without you we would have been lost and> we are> so very grateful. Our hearts are full. Yay!!!>> Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City> Shriners,> currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story> on> www.GirltoMom.com)>>>>

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Definitely, I'll get to updating soon! Slow and steady wins the race...but zero degrees does not have to be the goal, just quality of life. Heidi, Bexon's Mommy, (3.5 years old, in 10th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com)From: Hyatt

<heather@...>infantile scoliosis treatment Sent: Wed, April 6, 2011 7:51:59 AMSubject: RE: 10.6 for Bexon!!! Last cast!

Thanks for sharing that Heidi. Min always says to keep going….I have seen so many kiddos plateau for a year or more, then just when the consensus is that there will be no more correction….THERE IS! If the casts are constant (solid block) the spine, tissues & muscles are being retrained continually and eventually all work together…… and the body does what it wants/needs to heal itself. I think this would be a nice addition to Bex’s update, when you’re ready.(hugs)HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of NIck GutheSent: Tuesday, April 05, 2011 5:28 PMinfantile scoliosis treatment Subject: Re: 10.6 for Bexon!!! Last cast! We just got home back to L.A. and it is so weird...2 years and 2 months of casts and this is now gonna be the last one...I just want to mention that we had NO correction for over a year of casting- that was a long haul in the middle of our process- but then his spine just opened up. I hope that gives

hope to other parents to go the distance with a solid block of casts without long breaks, we have gotten almost 10 degrees of correction in the last 2 casts. No brace breaks because he started at such a high degree.I almost can't believe it- but this time I can celebrate it. Heidi, Bexon's Mommy, (3.5 years old, in 10th cast from Salt Lake City Shriners, currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on www.GirltoMom.com) From: "heather@..."

<heather@...>infantile scoliosis treatment Sent: Tue, April 5, 2011 8:56:56 AMSubject: Re: 10.6 for Bexon!!! Last cast! Great week for SLC patients! Nick and Heidi, Im over the moon for youboth and am thrilled that your precious darling didnt fall through thecracks. Thanks to the both of you. You were determined, had faith in thetreatment and doc, and stayed the course. No it wasnt easy, but it wasworth every second of fear, anxiety, etc....This is what its all about!Much love to lil Bex! He made it!!!!! You did it!!! Homestretch & a funsummer!!!!XXOOHRH> Bex got down to 10.6 "in cast" today in cast #10- over 2 years of casting> and> worth every singe minute of it!!!>> We're over the moon (he was 14.6 three months ago). Our little

buckeroo> will be> switched to a brace in July. We can't thank you and Liv, Shriners> Hospital and of course the miracle workers- the pioneer Dr. Mehta and our> beloved Doctor D'A at SLC.>> And thank you, our CAST friends. Without you we would have been lost and> we are> so very grateful. Our hearts are full. Yay!!!>> Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City> Shriners,> currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story> on> www.GirltoMom.com)>>>>

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So happy that this is your son's last cast!!! I just have a question. I am

still relatively new at this casting thing. My daughter has only been in casts

since last November. She is in her 3rd cast now. I thought that a chld had to

be casted until they reached 0 or at least 5 and under in degrees? I am

confused. You can quit csating at 10 degrees? My daughter is currently at 20

degrees and her doctor is telling us that she will never reach 0. But, he says

that she might possibly get down to close to 10 degrees. How long will Bexon

have to wear his brace? And will it ever only be at night time that he wears

it? Sorry for so many questions. I am just wondering and trying to look ahead

to my daughter's future to try and figure out if she will ever be down low

enough to only wear it at night. Thanks!

- , mom of Abby (20 Months old) 48* down to 20* in 3rd cast

>

> Bex got down to 10.6 " in cast " today in cast #10- over 2 years of casting and

> worth every singe minute of it!!!

>

> We're over the moon (he was 14.6 three months ago). Our little buckeroo will

be

> switched to a brace in July. We can't thank you and Liv, Shriners

> Hospital and of course the miracle workers- the pioneer Dr. Mehta and our

> beloved Doctor D'A at SLC.

>

> And thank you, our CAST friends. Without you we would have been lost and we

are

> so very grateful. Our hearts are full. Yay!!!

>

> Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City

Shriners,

> currently down from 63 degrees to 10.9 in cast. You can read Bexon's Story on

> www.GirltoMom.com)

>

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