Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Hello All. In reading through the stories and experiences parents have shared on ISOP, Sophia's story sounds very similar to what we are experiencing with our little Ben. Does anyone still keep in touch with Sophia's parents? I know they posted an update last September, but I'm not sure how often they are on CAST. If anyone is still in contact with them, would you please ask if they would be willing to talk to us more? I would love to better understand how they dealt with casting while addressing issues of low tone. Thanks for your support and help. Benson's mom: 11 months 48 degree curve, hypotonia, respiratory weakness, hydronephrosis and VUR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Hi ,Sophia’s mum’s name is Tina and she is a real ET advocate. I would title a post to Tina and Im sure she’ll see it and get in touch w/ you. If not, I’ll shoot her an amail.HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of heather_mcvaySent: Tuesday, March 29, 2011 8:58 AMinfantile scoliosis treatment Subject: Sophia's story on ISOP Hello All. In reading through the stories and experiences parents have shared on ISOP, Sophia's story sounds very similar to what we are experiencing with our little Ben. Does anyone still keep in touch with Sophia's parents? I know they posted an update last September, but I'm not sure how often they are on CAST. If anyone is still in contact with them, would you please ask if they would be willing to talk to us more? I would love to better understand how they dealt with casting while addressing issues of low tone. Thanks for your support and help.Benson's mom: 11 months 48 degree curve, hypotonia, respiratory weakness, hydronephrosis and VUR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 , I am friends with her on FB. I hope it is OK with you....I am going to send her a message and give her your email address. Hopefully you will hear from her soon. TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, Texas. After being treated in a series of 6 casts for 14 months he is now in a brace and has been since September 2007. EARLY Treatment does work if done properly. You can read 's story at.... http://www.infantilescoliosis.org/stories.html Or follow our family one day at a time......http://thefontenotslife.blogspot.com/ From: heather_mcvay <heather_mcvay@...>infantile scoliosis treatment Sent: Tue, March 29, 2011 9:57:45 AMSubject: Sophia's story on ISOP Hello All. In reading through the stories and experiences parents have shared on ISOP, Sophia's story sounds very similar to what we are experiencing with our little Ben. Does anyone still keep in touch with Sophia's parents? I know they posted an update last September, but I'm not sure how often they are on CAST. If anyone is still in contact with them, would you please ask if they would be willing to talk to us more? I would love to better understand how they dealt with casting while addressing issues of low tone. Thanks for your support and help.Benson's mom: 11 months 48 degree curve, hypotonia, respiratory weakness, hydronephrosis and VUR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Thank you so much Tasha! I've sent Tina an email and I'm excited to be in touch. I appreciate your help! > > , > I am friends with her on FB.  I hope it is OK with you....I am going to send her > a message and give her your email address. > Hopefully you will hear from her soon. > >  > Tasha > Mommy of 5 year old twin boys- and > Fort Worth, Texas > is treated at Texas ish Rite Hospital in Dallas, Texas. After being > treated in a series of 6 casts for 14 months he is now in a brace and has been > since September 2007. > > EARLY Treatment does work if done properly. > You can read 's story at.... http://www.infantilescoliosis.org/stories.html > Or follow our family one day at a > time......http://thefontenotslife.blogspot.com/ > > > > >  > > > > > ________________________________ > From: heather_mcvay <heather_mcvay@...> > infantile scoliosis treatment > Sent: Tue, March 29, 2011 9:57:45 AM > Subject: Sophia's story on ISOP > >  > Hello All. In reading through the stories and experiences parents have shared on > ISOP, Sophia's story sounds very similar to what we are experiencing with our > little Ben. Does anyone still keep in touch with Sophia's parents? I know they > posted an update last September, but I'm not sure how often they are on CAST. If > anyone is still in contact with them, would you please ask if they would be > willing to talk to us more? I would love to better understand how they dealt > with casting while addressing issues of low tone. Thanks for your support and > help. > > > Benson's mom: 11 months 48 degree curve, hypotonia, respiratory weakness, > hydronephrosis and VUR > Quote Link to comment Share on other sites More sharing options...
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