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First day with gammanex

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We are doing our first infusion with gammanex. I hate change! Rebekah had

a lot of trouble when we first started to infuse, so I'm a bit nervous

today. Our old nurse if coming to do the infusion and to stay all day. We

decided NOT to return to Maris for the infusion since we would have to

have our ped order the gammanex and have to deal with the hemo who diagnosed

Rebekah but didn't know beans about how to treat her. Did I mention that I

hate change yet? So, we've gotten new epipens, rearranged work times, slept

poorly and are about to slap the emla (what Rebekah called " elmo " ) on for

the day. But, I hate change (did I mention that yet) and, although my brain

understands that changing to gammanex is probably going to be better in the

long run, my heart dreads returning to the headaches and pains and vomiting.

Praying for Zachary here, too!

Pam

mom to 4

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