Xan

[Guest guest]

Xan - who are you seeing at Duke? Will you be there for just the day?

Ursula Holleman

mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

IDF Patient/Family Handbook

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

/

[Guest guest]

Ursula: We will be seeing Dr. Buckley. We will be there for at least two

days. I am about at the end of my rope trying to get all this situated. We

started working on it in October when we left the Retreat. It has been one

roadblock after another.

On Singulair - Kaitlyn has been on it constantly for about 7 years or so

and I have not noticed any significant weight gain that could be attributed

to the med. It seems to work. I am also on it and if I can blame my weight

gain on that, then that is what I will do. I really don't think it has

anything to do with it for either of us.

Hope all are doing well.

Hugs,

Xan

Xan

> Xan - who are you seeing at Duke? Will you be there for just the day?

>

> Ursula Holleman

> mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes

> Insipidus, colonic inertia)

> http://members.cox.net/maceyh

>

> Immune Deficiency Foundation - Peer Contact for GA

> http://www.primaryimmune.org

>

> IDF Patient/Family Handbook

> http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

>

> /

>

>

>

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

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