Re: IVIG almost due again!

[Guest guest]

In a message dated 10/24/2004 12:00:20 AM Eastern Daylight Time,

dale@... writes:

Remember that as her parents, you have a right

to say something has to change!!!!

I have done this Dale. Now, I just Pray that he is willing to change

product. I would hate to see a delay of her IVIG because of his stubbornness.

Because she has benefited from it. She hasn't had any infections lately, which

is

SUPER! But she has been miserable and out of school since her infusion due to

side effects.

Janet, mom to Brittany, CVID, age 13

[Guest guest]

from Dale, Mom to Katy, CVID, age 20

Janet, I'll be praying. Remember that as her parents, you have a right

to say something has to change!!!! Keep fighting for Brittany - there

will be a remedy -- it may be a change of brands, it may be Sub-Q -- but

something has GOT to improve.

I'll be praying.

In His service,

Dale

[Guest guest]

-Wow, so sorry you have been going through this. I will pray that

this next infusion goes much better. Do you think she will be

admitted for the infusion?

mom to Buddy 2 1/2 going Wed for our infusion.

-- In , BBsmart2@a... wrote:

> Finally after three weeks Brittany has recovered from her IVIG!

Now in one

> week she is due again. She has in these three weeks been to the ER

once. She

> has been hospitalized for three days also. I am very nervous about

doing this

> again. The DR here is going to call her Immune DR. and see what

his plans are

> for her next infusion. I can't imagine him not wanting to switch

brands

> after all this! My hubby is going to call the Immune DR. on Monday

also. I am

> totally exhausted from the hospital and worrying constantly about

this IVIG

> issue.

>

> Janet, mom to Brittany, CVID, age 13

>

>

>

>

[Guest guest]

-Wow, so sorry you have been going through this. I will pray that

this next infusion goes much better. Do you think she will be

admitted for the infusion?

mom to Buddy 2 1/2 going Wed for our infusion.

-- In , BBsmart2@a... wrote:

> Finally after three weeks Brittany has recovered from her IVIG!

Now in one

> week she is due again. She has in these three weeks been to the ER

once. She

> has been hospitalized for three days also. I am very nervous about

doing this

> again. The DR here is going to call her Immune DR. and see what

his plans are

> for her next infusion. I can't imagine him not wanting to switch

brands

> after all this! My hubby is going to call the Immune DR. on Monday

also. I am

> totally exhausted from the hospital and worrying constantly about

this IVIG

> issue.

>

> Janet, mom to Brittany, CVID, age 13

>

>

>

>