Guest guest Posted January 12, 2003 Report Share Posted January 12, 2003 on 1/6/03 12:19 AM, TLC at wega2@... wrote: Just want to say " thank you " to all of you for answering my question about having the chills & sweats at the same time. So, what's going on? The disease is making a comeback? I won't allow it! I'll kill that $%*%^ dragon before I go through another " heated round. " Kill it with MTX, Enbrel, Kineret, whatever it takes...Dragon, get ready for a fight!!!!!!!!!!!!!! Melt, you too are feeling like you are having some problems where the disease is maybe making some sort of a comeback?? Have you ever been diagnosed with CostoChondritis?? This is what I was diagnosed with when I get the chest pains, and it hurts in the bones, and the heart get a sharp pain from time to time, etc. The only thing that relieves it is extra steroids. The pain gets so bad. It mimics a heart attack, so if I ever have a heart attack, I won't believe that's what it is. It comes on for me with getting overtired and/or overstressed. 2, so sorry to hear you aren't doing so great either! I am praying you will feel better real soon. Like tomorrow. Love & hugs to all of you, Your friend, tricia p.s. It's finally snowing here. I have to admit, it is beautiful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Hi It's Dave, I live in South Florida. So we don't get that horrible snow and winter!!! We do get a cold snaps and it can drop down to the high 30's at night. and the 70's -80's in the day time but,, not always. It's usually beautiful. I've lived in south fla. for 9 yrs now going on ten soon. I'm originately from and born In Massachusetts. So I know how bad it can get in the north eastern part of the country. and New England!!! I was accepted to a college up in Boston and right now I'm sopposed to be their now. But I can't due too my AOSD. So I know how cold it can get . Hopfully I will be able to get to college next fall. The admissions at the college changed my acceptence too next fall. I was also just switched to Enbrel from kineret that kineret didn't help me at all. They cahnged my pain meds again and put me on Oxycontin. twice daily THANK GOD!!! well I hope everybody is doing some what ok and PAIN FREE! Take care ----Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Tanks fer da humor BS Dan, Yah, I know. I already seen some of dese..but not da rest. Tanks for da smiles! ~~tricia~ Wisonsin..home of da Hiney! (Hinekin beer dat is..and I tink it is speeled right..ya? ) -- Tricia Cold here in Montana too. SNOW too, but just a little bit. Here is something you might get a kick out of. Hope you are weathering the weather in good shape. BS Dan You know you're from Da Nort when: 1. You only own three spices - salt, pepper, and ketchup 2. You design your Halloween costumes to fit over a snowsuit 3. The mosquitoes have landing lights 4. You have more miles on your snowblower than your car 5. You have 10 favorite recipes for venison (deer meat) 6. You thought " Grumpy Old Men " was a documentary 7. Driving is better in the winter because the potholes get filled in with snow 8. You think everyone from the city has an accent 9. You think sexy lingerie is tube socks and a flannel nightie with only eight buttons 10. You owe more money on your snowmobile than your car 11. The local paper covers national and international headlines on one page, but requires six pages for sports (primarily hockey) 12. At least twice a year, the kitchen doubles as a meat processing plant 13. The most effective mosquito repellent is a shotgun 14. Your snowblower gets stuck on the roof 15. You think the start of deer season is a national holiday 16. You head south to go to your cottage 17. You frequently clean grease off your barbecue so the bears won't prowl on your deck 18. You know which leaves make good toilet paper 19. The mayor greets you by your first name on the street 20. There is only one shopping plaza in town 21. The municipality buys a zamboni before a bus 22. The major parish fund-raiser isn't bingo - it's sausage-making 23. You find 40-below a " might chilly " 24. The trunk of your car doubles as a deep freezer 25. You attended a formal event in your best clothes, your finest jewelr and your Sorrels 26. You can play street (or more likely " road " ) hockey on skates 27. You can tell the difference between a chipmunk and a squirrel from 300 yards away 28. Shoveling the driveway constitutes a great upper body workout 29. You know the 4 seasons: Almost Winter, Winter, Still Winter, and Under Construction 30. You actually understand these jokes, and forward them to all your Northern friends Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2003 Report Share Posted February 4, 2003 thank you sweetie, and I will let you and everyone know what this injection is. I am very curious. I am making a list to accompany my visit. I am writing down everyone's meds for the same problems that I have and will discuss it with him because so far, I want to buy some stock in Tums! Love you dearly sweetie. Love.Sue #2 -- Re: acid reflux, left side pain/muscle injections Dear Sue, I get the " acid reflux " problem very severely after I have a bit too much (and I don't think it's much..but my body must!) chocolate, and/or sugar. Even the decaf coffee bothers if I have more than a couple of cups. It was much worse when I was on high doses of Medrol. Then I had to take Tagamet to protect the stomach. (my body rebelled against that after a couple of years) About that shot he's talking of giving you...find out what it is called would you?? I don't need one, but am interested in just what it is he's talking about. I wouldn't think it would be cortisone, that usually stays in a small area around where it is given. Your friend, tricia Wisconsin *************************************************************************** acid reflux, left side pain/muscle injections > Hello friends, > I have been having a lot of problems with acid reflux all of the sudden. It > s been horrible since I started my MTX. Does anyone else have this > problem? I have heard that the MTX is a large culprit against the esophagus > wall lining. Anyway, I have an appointment with my rheumy about this, and > my headaches are just getting worse. I have never had migraine headaches > the way I do with MTX. How many people here have had to get a prescription > for Immitrex or other medicine for Migraines? I know that we have talked > about this many of times, but there is just so much information here, that > sometimes you just forget it...thanks to all the wonderful meds affecting my > memory loss! I swear, these drugs are making me stupid and very forgetful. > I also told my rheumy that I have been having extreme left side pain in my > body, and the right side seems fine. It starts at my left shoulder and > radiates completely down my arm into my hands and fingers, and at times, I > experience internal left side pain. I like the MTX, and I feel after some > time of truly getting into my system, that it has helped, but my rheumy > feels not enough, and I still wait to get approved from Enbrel. It has > already been a little over a month, but nothing yet, and I still sit at 25 > mg of prednisone. Just cannot seem to go down. As for the left side pain, > he said that he will give me injections into the muscle to hold me over > until Enbrel comes through. Does this sound right to anyone, and have you > ever had this done before for muscle pain? I have no idea where he plans to > inject me. I have had cortisone injections before, but this cannot be the > same right? The acid reflux wakes me up usually every night, so I am sure > that he will give me a script for nexium, prevacid or something. I hope > soon...what a horrible feeling. My diet now consist of Tums and other > lovely stomach and acid tablets. It seems that when you are attacking one > problem and you think it's working wonderful, another just sneaks up on you. > A walking medicine cabinet, I swear........... > Love,Sue #2 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Tricia...who loves you??? I missed you so much. That foot...fix that foot!!! It will be okay. I am so worried for you. I will write you later. Love and hugs sweetie! Love, Sue #2 -- "welcome back Sue, etc" (Sorry, I am getting behind in my mail, ) Welcome back Sue!! You were missed very much Welcome to the group Lorie! Congratulations for being accepted for the Humira Caroline! Louise, I am so sorry the "dragon" pushed you two steps back, hoping you soon feel well enough to give him a good "kick!" Hugs to all of you! ~~tricia~~ Wisconsin ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 Hey thank you for the post Tricia..Yes I have been told I have fibromyalgia too....great....one rheumy thinks that I might have NASH...non alcoholic steatohepatitis...( sp?? )...supposedly you can only tell by biopsy which soo many gastroenterologists wince about cause the test is dangerous...soo this one guy said that I should have this nuclear medicine scan..it will show the functioning of my liver without the biopsy..well here's the good news..it was normal!! I was so anxious about this test. Friday I am having female surgery will not go into detail as it will " skeeve " even the women...just another thing to be nervous about...its a cyst and they need to remove it..they thinkit is causing my b;ladder pain...anyone with fibromyalgia and bladder pain...my bladder..she is messed up..takes only half of what is normal and then leaves half in..can't get it out...what a mess one can be....this week certainly is bothering me...Hope everyone gets a good nights rest....Liz NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 Liz, I have fibromyalgia and NASH. They did do a biopsy for the NASH. The biopsy was NO BIG DEAL. Nevertheless, I'm glad you found out that you don't have it! I'm going in for a BIG surgery myself (a panniculectomy - a more extensive abdominoplasty that will go almost completely around my midsection) on May 22nd. This seems to be surgery month!!! We'll all have to get through it together. Don't worry. Love is around you! Jul lilac_rose@... Stoughton, Wisconsin Re: Tricia Hey thank you for the post Tricia..Yes I have been told I have fibromyalgia too....great....one rheumy thinks that I might have NASH...non alcoholic steatohepatitis...( sp?? )...supposedly you can only tell by biopsy which soo many gastroenterologists wince about cause the test is dangerous...soo this one guy said that I should have this nuclear medicine scan..it will show the functioning of my liver without the biopsy..well here's the good news..it was normal!! I was so anxious about this test. Friday I am having female surgery will not go into detail as it will " skeeve " even the women...just another thing to be nervous about...its a cyst and they need to remove it..they thinkit is causing my b;ladder pain...anyone with fibromyalgia and bladder pain...my bladder..she is messed up..takes only half of what is normal and then leaves half in..can't get it out...what a mess one can be....this week certainly is bothering me...Hope everyone gets a good nights rest....Liz NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 Oh Liz, So sorry to hear about your surgery on Friday. Doesn't it seem if it's not one thing out to get us it's another? Just get something squared away, and then...oops..another problem. Praying for your surgery to be over with fast, everything to go really well, and that you recover very quickly! Many in this group also have the bonus of Fibromyalgia. Sometimes I wonder why? I never heard of NASH, and I hope I never do hear that come from my doctor's lips. I spent so many years getting books from the library and doing research, but I was only trying to find out why I had fevers, etc. etc. I did *not* receive a correct diagnosis from the onset (1971) until 1987. (with two nice remissions in between) What ever a person has it's a bit easier to deal with if you know what it is. Anyhow it was for me. You hang in there now Liz, and as soon as possible please let us know how you are feeling after that surgery. Remember you will be in my thoughts and prayers. (((((((((((((((Liz))))))))))))))))))))) ~~tricia~~ Wisconsin ****************************************************** -- Re: Tricia Hey thank you for the post Tricia..Yes I have been told I have fibromyalgia too....great....one rheumy thinks that I might have NASH...non alcoholic steatohepatitis...( sp?? )...supposedly you can only tell by biopsy which soo many gastroenterologists wince about cause the test is dangerous...soo this one guy said that I should have this nuclear medicine scan..it will show the functioning of my liver without the biopsy..well here's the good news..it was normal!! I was so anxious about this test. Friday I am having female surgery will not go into detail as it will " skeeve " even the women...just another thing to be nervous about...its a cyst and they need to remove it..they thinkit is causing my b;ladder pain...anyone with fibromyalgia and bladder pain...my bladder..she is messed up..takes only half of what is normal and then leaves half in..can't get it out...what a mess one can be....this week certainly is bothering me...Hope everyone gets a good nights rest....Liz NJ .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 Hi Liz, hope all goes well, no I know all will go well with your surgery on Friday! I too suffer from Fribromyalgia, Rheumatoid Arthritis (among other things) and as suffer from cysts in my ovaries and uterus. Doc's not too bothered with them as they aren't bothering me but they just jump out at the technicians who do kidney (and area) ultrasounds as I suffer from kidney stones too. I know you explained what NASH stood for but what does it actually mean? Take care, Marilyn From: lizdaly101@... Hey thank you for the post Tricia..Yes I have been told I have fibromyalgia too....great....one rheumy thinks that I might have NASH...non alcoholic steatohepatitis...( sp?? )...supposedly you can only tell by biopsy which soo many gastroenterologists wince about cause the test is dangerous...soo this one guy said that I should have this nuclear medicine scan..it will show the functioning of my liver without the biopsy..well here's the good news..it was normal!! I was so anxious about this test. Friday I am having female surgery will not go into detail as it will " skeeve " even the women...just another thing to be nervous about...its a cyst and they need to remove it..they thinkit is causing my b;ladder pain...anyone with fibromyalgia and bladder pain...my bladder..she is messed up..takes only half of what is normal and then leaves half in..can't get it out...what a mess one can be....this week certainly is bothering me...Hope everyone gets a good nights rest....Liz NJ _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2003 Report Share Posted May 14, 2003 Tricia..hang in there with your mom...it is not her being mean..it is her disease....try to remember some of your favorite times with her...even if it was a long time ago .........(((((((( tricia))))))))).............Liz NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Tricia..I read Marilyns post..actually could not find yours..but..I just went through the same thing in the last 5 years..My mom lived with me was very ill..and my brother and sister did not help me..I was shocked at how they felt comfortable with doing Zip !! It hurts..Write to me anytime about this...I have been there...and even tho my adorable momma died in Janujary (buried last week..frozen ground)..I still can't believe it! Hang in there Liz NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 My dad had alzheimers...some things just could not be accepted by him...but with positive things that I know he wanted to remember..I would leave him notes..to fill in the blanks....it is soo hard...(((((((TTricia )))))) and your (((mom )))) too Liz NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Hey Tricia, I am in Chippewa Falls, about 20 minutes north of Eau . I have been to s Point before and went to youth conservation camp with a girl from Waupaca. Love the Waupaca cheese spread. The trip really did tire me out. I am going to wear my knee braces on the return trip tomorrow and try and stop at a rest area and walk around a bit and see if that makes a difference. Luv ya Lynn -- Lynn -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Lynn hon, Stopping often is the way (the only way) I get through long car trips. When we go to The Mayo Clinic, we stop at least 3 times on the way there, and the same for on the way back. Even if it's just a 10 minute stop to stretch it will make a world of difference. Wisconsin is the "cheesehead" state. There's a little dairy in a small town Southeast of us that makes the most addictive "hot pepper" cheese. Have a safe trip! Hugs, tricia ****************************************************************************************** -- Re: Tricia Hey Tricia,I am in Chippewa Falls, about 20 minutes north of Eau . I have been to s Point before and went to youth conservation camp with a girl from Waupaca. Love the Waupaca cheese spread. The trip really did tire me out. I am going to wear my knee braces on the return trip tomorrow and try and stop at a rest area and walk around a bit and see if that makes a difference.Luv yaLynn--Lynn --. ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Thanks Tricia!! ----- Re: Tricia > >Hey Tricia, >I am in Chippewa Falls, about 20 minutes north of Eau . I have been to >s Point before and went to youth conservation camp with a girl from >Waupaca. Love the Waupaca cheese spread. >The trip really did tire me out. I am going to wear my knee braces on the >return trip tomorrow and try and stop at a rest area and walk around a bit >and see if that makes a difference. >Luv ya >Lynn > >-- >Lynn >-- > > > > >. > > -- Lynn -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2003 Report Share Posted June 5, 2003 ((((((((TRICIA))))))))))) Hi.. You have sooo much going on in your life right now.. I truly wish that there was something that I could do for you to help you out.. Please let me know if there is anything I can do.. You are in my thoughts and prayers.. Sometimes it feels like we are never meant to stay without any stress, huh? I pray that things get better for you and your family.. LOVE YOU!!! Kelley in Colorado Kelleyak31@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2003 Report Share Posted June 5, 2003 Hang in there, and if you ever want to compare notes on dysfuntional families let me know. I am the product of a doozy!! Hugs Lynn Renae Dudenhoefer lynndude@... -On any path that you may stroll, -keep your angel in your soul! -- pain hi friends,once again i need to say i'm sorry for not answering mail sent on my behalf Caroline,i meant to ask about the get together at Carmen's,she is in Michigan and so am i,and we had talked a little about Tricia and a few others getting together who were in driving distance of Carmen.I am in such pain, I think every joint on my right side from my ankles to my fingers is non-stop hurting.Why do I bother to take so many meds and still hurt so much Today I am being a whiner and I'm sorry.I'm sure tomorrow will be a better day!Thanks for listening. Love Elly .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 Tricia, thanks dear friend, as always. I am still hoping that Enbrel pulls through. We will see. I will have a better outlook on things by Wednesday hopefully I am truly frustrated and just tired of the whole thing. I was in such a horrible mood today. Just not well, over tired and stressed...wanting to throw in the towel mood I guess...wanting to just give up, but anyway..I truly love you, you know that..and thank you. Love, Sue #2 -- Remicade questions I know that some of you are on Remicade and that we have talked about it several times, but now that I am possibly facing it, can we update more about it, and the ones on it, can you tell me any side effects that you have had, or the side effects that it holds. He tells me that it will be every six weeks for the injection which is fine with me. I am anxious to know more about it now, now that I am possibly facing this. Thanks as always. Love, Sue #2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2003 Report Share Posted June 22, 2003 Tricia, thank you as always friend. You know how much I have been whining about this for so long. I am very excited. I love you dearly friend..very much. Love, Sue #2 -- Re: IT CAME THROUGH!!!! YIPEE....YIPEE sue this is such great news, I pray that this will work well for you, I had to start the enbrel back this week, guess I spoke too soon when I announced that I hadn't taken enbrel in 4 months :-) but Im not suprised, this always happens, I can usually go about 4 months without meds but then about the 4th month I start having more pains and then morning stiffness and my elbows lock up, it alwasy starts in my wrists and elbows. And from past experience I know that it doesnt take long to become a full blown flare so I started it right back, Im still having morning stiffness but not too bad, I think after another week or two of enbrel and I will be back to normal for me.. When I first got married 6 yrs ago, I had been off the mtx for about 4 months and I started this same pattern, well I was stubborn and still didnt take the meds and ended up in a bad flare like my onset, my husband had to carry me upstairs at night and it just broke his heart becasue he had never really seen what the disease could do, so after that I promised to never let that happen again, not to mention all the damage that I was doing to my joints, like an idiot. that was before I got smart. Take care Sue and again Im so happy for you. GO DAWGS !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Tricia, Thanks so much for the hug. Been crying on and off all morning so that really helped. Don't know what I would do without you guys. As long as I stay totally off the foot it is okay. Once I walk on it, ouch! The pain shoots right down across the heel of my foot. Oh well, I guess I will attribute it to the dragon. I think it is a good time for a nap, getting kind of warm here today. How is it over there? Lynn Renae Dudenhoefer lynndude@... -On any path that you may stroll, -keep your angel in your soul! -- Re: Hey all, Urgent care waste of time Hi Lynn First of all I think you need a big hug (((((((((((((((((Lynn)))))))))))))))) There...now, I don't blame you one bit for feeling like whining, and you don't need to be sorry for doing it either That's two days ago when you went for the walk. You didn't twist your foot, or anything? Pain is pain, and darn it hurts! Didn't they tell you at urgent care " to like put heat on it or something? I too have had, and still get pain for no apparent reason. The doc at the " pain clinic " told me the pain I was experiencing in my hands, and feet was caused from the disease. Sometimes I used to get pain like you are talking about in my left ankle. I found out that by slowly and carefully massaging the foot and ankle, and then turning it very gently (if this causes too much pain..stop.) the pain would go away for awhile. Finally, that ankle doesn't pain anymore. Now it's the right one! From time to time. Hopfefully the pain will just " go away " very soon. Love you hon, ~~tricia~~ " one state over from you, in WIsconsin " ***************************************************************************** -text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2003 Report Share Posted August 20, 2003 Tricia, I didn't know that they used you for a test lab rat with all those bone marrow tests. I was shocked and riddled with the thought of pain, bringing back horrible memories with my bone marrow test. God friend, I cannot believe that they did that to you. I think the bone marrow was the hardest thing that I ever had to do, besides the kidney failure with the stones. Those two pains are the worse I feel. You went through so much Tricia. I don't blame you one bit about the liver biopsy. What a shame. Love you friend, and hugs. Love, Sue #2 -- Re: Oncologist Today Hi Dennis, When I spent 10 weeks in the Wisconsin University Hospital in Wisconsin, (a teaching hospital) they managed to do a " bone marrow " test on me every week! They either did them in the chest area or the back. The one that I will never forget...is the one where this one student took his first try..and it was in my back. (I did not stick up for myself back then, but , I did learn that they could *not* do anymore than I allowed them to...and when I asserted that knowledge...they sent me home! Jerks!! ) Anyhow, he poked around in my back for what seemed like forever, but was in reality about 1/2 hour. Finally the already licensed doctor watching took over, and did the job in a short time. They had several students standing around observing, and I now know " learning how to torture other humans. " I have not allowed a bone marrow test since that hospital stay. In fact when they suggested they should do a " liver biopsy, " I told them... " let my liver rot, " no one is doing a biopsy of any kind. ..you people are *mean! " They sent me home the following day even though I was still running the undiagnosed fevers etc. I do know however that many times these tests are very necessary and the doctors are professions who do them. Hoping the MTX helps you to feel better. You might need another med or two to find the correct " cocktail " for you though. Take care Dennis! ~~tricia~~ Wisconsin ************************** CplBrock wrote: > I am not sure everyone knows my story. I am a 30 year old male that > has had been diagnosed with stills about 6 weeks ago. My last blood > and urine test showed a abnormal protein strand. To make a long > story short I soon had a appointment with a oncologist. Today I > went and had to my suprise a bone marrow(aspiration) to check for > cancer. That was unbelievably painful,they took it from my back. I > have been doing fairly decect I havent had a flair in two weeks but > I still hurt badly. So I go see my Rhuemy tommorow and back to the > oncologist in two weeks. For all who have been going through flairs > as of late my best wishes on you to be painfree. I have recieved so > much from you all in the lst week as seeing the freindship between > you all. Thanks for haveing me and maybe I can get on the ntx > tommorow and get off this plaqenuil. Best wishes all. > > Dennis > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2003 Report Share Posted August 20, 2003 Tricia, I didn't know that they used you for a test lab rat with all those bone marrow tests. I was shocked and riddled with the thought of pain, bringing back horrible memories with my bone marrow test. God friend, I cannot believe that they did that to you. I think the bone marrow was the hardest thing that I ever had to do, besides the kidney failure with the stones. Those two pains are the worse I feel. You went through so much Tricia. I don't blame you one bit about the liver biopsy. What a shame. Love you friend, and hugs. Love, Sue #2 -- Re: Oncologist Today Hi Dennis, When I spent 10 weeks in the Wisconsin University Hospital in Wisconsin, (a teaching hospital) they managed to do a " bone marrow " test on me every week! They either did them in the chest area or the back. The one that I will never forget...is the one where this one student took his first try..and it was in my back. (I did not stick up for myself back then, but , I did learn that they could *not* do anymore than I allowed them to...and when I asserted that knowledge...they sent me home! Jerks!! ) Anyhow, he poked around in my back for what seemed like forever, but was in reality about 1/2 hour. Finally the already licensed doctor watching took over, and did the job in a short time. They had several students standing around observing, and I now know " learning how to torture other humans. " I have not allowed a bone marrow test since that hospital stay. In fact when they suggested they should do a " liver biopsy, " I told them... " let my liver rot, " no one is doing a biopsy of any kind. ..you people are *mean! " They sent me home the following day even though I was still running the undiagnosed fevers etc. I do know however that many times these tests are very necessary and the doctors are professions who do them. Hoping the MTX helps you to feel better. You might need another med or two to find the correct " cocktail " for you though. Take care Dennis! ~~tricia~~ Wisconsin ************************** CplBrock wrote: > I am not sure everyone knows my story. I am a 30 year old male that > has had been diagnosed with stills about 6 weeks ago. My last blood > and urine test showed a abnormal protein strand. To make a long > story short I soon had a appointment with a oncologist. Today I > went and had to my suprise a bone marrow(aspiration) to check for > cancer. That was unbelievably painful,they took it from my back. I > have been doing fairly decect I havent had a flair in two weeks but > I still hurt badly. So I go see my Rhuemy tommorow and back to the > oncologist in two weeks. For all who have been going through flairs > as of late my best wishes on you to be painfree. I have recieved so > much from you all in the lst week as seeing the freindship between > you all. Thanks for haveing me and maybe I can get on the ntx > tommorow and get off this plaqenuil. Best wishes all. > > Dennis > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2003 Report Share Posted November 4, 2003 Oh (((((((((((((((((Tricia))))))))))))))))) I am soo sorry to hear about ha....... You are in my thoughts......... If you need to talk or need anything I am here for you..... She is in a much better place now, out of pain...... I LOVE YOU.... Kelley in Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2003 Report Share Posted November 4, 2003 Oh (((((((((((((((((Tricia))))))))))))))))) I am soo sorry to hear about ha....... You are in my thoughts......... If you need to talk or need anything I am here for you..... She is in a much better place now, out of pain...... I LOVE YOU.... Kelley in Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2003 Report Share Posted November 6, 2003 Hi Tricia, For some reason, I have not received any of your posts to the group. None !! I have to scroll down when someone answers a question from you. Why do you think that is? I can receive your personal ones but not those to the group. ( ( ( Carmen Quote Link to comment Share on other sites More sharing options...
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