Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 Hi Vicki, I was lucky in that I had my hubby to help when I was fatigued. Do you have anyone you could call to help you with those things? It really would be to your advantage. The best thing you can do when you're feeling that way is just what you're doing. Laying back and relaxing (or sleeping if you can). Tracey > so.....im hitting the fatigue stage which i know is part of > recovery. how did you guys gets thru it. any advice? how long did it > last. i need to clean my kitchen and i keep looking at it and laying > back down. this sucks > > vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 Lots of sleep, lots of exercise. fatigue so.....im hitting the fatigue stage which i know is part of recovery. how did you guys gets thru it. any advice? how long did it last. i need to clean my kitchen and i keep looking at it and laying back down. this sucks vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 > Hi Vicki, > > I was lucky in that I had my hubby to help when I was fatigued. Do > you have anyone you could call to help you with those things? It > really would be to your advantage. The best thing you can do when > you're feeling that way is just what you're doing. Laying back and > relaxing (or sleeping if you can). > > Tracey > > *************************************************** my hubby has been great. guess i just want my energy back. vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 > so.....im hitting the fatigue stage which i know is part of > recovery. how did you guys gets thru it. any advice? how long did it > last. i need to clean my kitchen and i keep looking at it and laying > back down. this sucks > > vicki Vicki, you cracked me up with this one! RFLMAO! That is a perfectly normal day for me! You should see my kitchen right now. I am waiting until tomorrow to tackle it as I will need to give it my undivided attention for an entire day! Marta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 > > so.....im hitting the fatigue stage which i know is part of > > recovery. how did you guys gets thru it. any advice? how long did > it > > last. i need to clean my kitchen and i keep looking at it and > ************************************************ doc- you have an excuse. you work long hours. ive been on the couch all day.........lol. vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 > > so.....im hitting the fatigue stage which i know is part of > > recovery. how did you guys gets thru it. any advice? how long did > it > > last. i need to clean my kitchen and i keep looking at it and > ************************************************ doc- you have an excuse. you work long hours. ive been on the couch all day.........lol. vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 > doc- you have an excuse. you work long hours. ive been on the couch > all day.........lol. > > vicki True. I ordered pizza tonight. Ever try to get a pizza inside the house while only opening the door a crack??? Can't be done. Need to actually clean. I just issued a decree that the house gets cleaned tomorrow, you know, that pre-op cleaning! LOL! Oh, those of weak will: DO NOT order the cinnamon sticks from Pizza Hut. I predict agony tonight for a certain person.... Marta Looking forward to a lovely night of up and down, gas and trips to the throne room. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 > doc- you have an excuse. you work long hours. ive been on the couch > all day.........lol. > > vicki True. I ordered pizza tonight. Ever try to get a pizza inside the house while only opening the door a crack??? Can't be done. Need to actually clean. I just issued a decree that the house gets cleaned tomorrow, you know, that pre-op cleaning! LOL! Oh, those of weak will: DO NOT order the cinnamon sticks from Pizza Hut. I predict agony tonight for a certain person.... Marta Looking forward to a lovely night of up and down, gas and trips to the throne room. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2003 Report Share Posted October 25, 2003 > > doc- you have an excuse. you work long hours. ive been on the > couch > > all day.........lol. > > > > vicki > > True. I ordered pizza tonight. Ever try to get a pizza inside the > house while only opening the door a crack??? Can't be done. Need > to actually clean. I just issued a decree that the house gets > cleaned tomorrow, you know, that pre-op cleaning! LOL! > >**************************************************** ive tried those things. hard on the tummy. have you tried those p'zones. those are sssssooooooooooooo good. vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2011 Report Share Posted February 26, 2011 In addition to the issues that has mentioned, there are others that are external to your body. These include a poor mattress, a noisy sleeping environment, inability to fully darken the bedroom at night time, and a bed partner who is restless or snores (or both). Any of these factors can result in poor sleep and chronic fatigue. Also, if you work out late in the day or in the evening, that can cause sleep problems. Similarly with caffeine after noon, including most soft drinks!! One way to test the physical factors is to spend a few nights sleeping alone at a really good hotel that has new and high quality beds such as the Sleep Number Bed, blackout curtains, very low background noise, and a relaxing environment. If you can afford it the Sonoma Mission Inn would be a great choice. If after a few days at such a place you feel noticeably more refreshed and energetic, you may have some circumstances at home that you can change. I also recommend Swedish massage. The real thing. Find a certified massage therapist (CMT) who is certified in Swedish massage among other modalities. Get the massage late in the day, drink lots of water, and be prepared to sink into a deep satisfying sleep when you get home. Don't plan anything for after the massage. If you are in the SF Bay Area there are many legitimate highly skilled massage therapists. Most of them are not on the massage m4m site, although a few are. I can recommend an excellent CMT in SF if you check with me. If you are hep C (HCV) genotype II, a 12-month course of pegylated Interferon plus ribavirin could cure the infection with a fairly high probability. Genotype I is much tougher to clear. Also, do you know your degree of fibrosis? If it is level 3 (one stage before fibrosis) it may be wise to go on the current "gold standard" for treating HIV/HCV coinfected individuals (peg plus Ribavirin) to stop the disease in its tracks and allow for some regression of the fibrosis. Viral suppression is effective, although the treatment is expensive unless you have insurance, and is physically challenging. (My colleagues at NIH refer to this as the "silver standard"; they don't think it is good enough to be called "gold" for those of us who are coinfected with HCV-1.) Check out the HCV Advocate Newsletter if you don't already get it (free on line). http://www.hcvadvocate.org/news/newsletter.asp I have gone through this treatment twice. In both cases the fibrosis regressed (as evidenced by liver biopsies), but the virus came back. Yes, your doctor is right about the two especially advanced protease inhibitors (Telaprevir and Boceprevir) for treatment of hep C, but you may not have the luxury of time. After fibrosis level 3 comes cirrhosis, then liver cancer, and then death. Find out where you are and then take action as appropriate. To underscore what said, get checked for sleep apnea. If you have it, get treatment asap. or sooner. Good luck! Jerome In a message dated 2/26/2011 10:43:27 P.M. Eastern Standard Time, Vergel@... writes: Dear Copper I am assuming that you have undetectable HIV viral load and that your liver is still in pretty good shape (by the way, have you had any liver work up done?) Fatigue can have so many causes! Had sleep habits, sleep apnea, depression, medications, cardiovascular problems, low testosterone, problems with thyroid function, and several other factors could be an issue. Have you gotten any of them looked at? Many people have to try different antidepressants before they find one (or combination of two) that works. For low energy, many doctors prescribe Celexa or Wellbutrin. Nuvigil is also a popular energy drug (go to nuvigil.com). I love the supplement SAMe, which is good for the liver and it increases energy ( you can read more about it here :http://www.biomedcentral.com/1471-244X/4/38/ ) Let us know if you have answers to any of the issues I talked about in this email. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2011 Report Share Posted February 26, 2011 In addition to the issues that has mentioned, there are others that are external to your body. These include a poor mattress, a noisy sleeping environment, inability to fully darken the bedroom at night time, and a bed partner who is restless or snores (or both). Any of these factors can result in poor sleep and chronic fatigue. Also, if you work out late in the day or in the evening, that can cause sleep problems. Similarly with caffeine after noon, including most soft drinks!! One way to test the physical factors is to spend a few nights sleeping alone at a really good hotel that has new and high quality beds such as the Sleep Number Bed, blackout curtains, very low background noise, and a relaxing environment. If you can afford it the Sonoma Mission Inn would be a great choice. If after a few days at such a place you feel noticeably more refreshed and energetic, you may have some circumstances at home that you can change. I also recommend Swedish massage. The real thing. Find a certified massage therapist (CMT) who is certified in Swedish massage among other modalities. Get the massage late in the day, drink lots of water, and be prepared to sink into a deep satisfying sleep when you get home. Don't plan anything for after the massage. If you are in the SF Bay Area there are many legitimate highly skilled massage therapists. Most of them are not on the massage m4m site, although a few are. I can recommend an excellent CMT in SF if you check with me. If you are hep C (HCV) genotype II, a 12-month course of pegylated Interferon plus ribavirin could cure the infection with a fairly high probability. Genotype I is much tougher to clear. Also, do you know your degree of fibrosis? If it is level 3 (one stage before fibrosis) it may be wise to go on the current "gold standard" for treating HIV/HCV coinfected individuals (peg plus Ribavirin) to stop the disease in its tracks and allow for some regression of the fibrosis. Viral suppression is effective, although the treatment is expensive unless you have insurance, and is physically challenging. (My colleagues at NIH refer to this as the "silver standard"; they don't think it is good enough to be called "gold" for those of us who are coinfected with HCV-1.) Check out the HCV Advocate Newsletter if you don't already get it (free on line). http://www.hcvadvocate.org/news/newsletter.asp I have gone through this treatment twice. In both cases the fibrosis regressed (as evidenced by liver biopsies), but the virus came back. Yes, your doctor is right about the two especially advanced protease inhibitors (Telaprevir and Boceprevir) for treatment of hep C, but you may not have the luxury of time. After fibrosis level 3 comes cirrhosis, then liver cancer, and then death. Find out where you are and then take action as appropriate. To underscore what said, get checked for sleep apnea. If you have it, get treatment asap. or sooner. Good luck! Jerome In a message dated 2/26/2011 10:43:27 P.M. Eastern Standard Time, Vergel@... writes: Dear Copper I am assuming that you have undetectable HIV viral load and that your liver is still in pretty good shape (by the way, have you had any liver work up done?) Fatigue can have so many causes! Had sleep habits, sleep apnea, depression, medications, cardiovascular problems, low testosterone, problems with thyroid function, and several other factors could be an issue. Have you gotten any of them looked at? Many people have to try different antidepressants before they find one (or combination of two) that works. For low energy, many doctors prescribe Celexa or Wellbutrin. Nuvigil is also a popular energy drug (go to nuvigil.com). I love the supplement SAMe, which is good for the liver and it increases energy ( you can read more about it here :http://www.biomedcentral.com/1471-244X/4/38/ ) Let us know if you have answers to any of the issues I talked about in this email. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2011 Report Share Posted February 26, 2011 Dear CopperI am assuming that you have undetectable  HIV viral load and that your liver is still in pretty good shape (by the way, have you had any liver work up done?) Fatigue can have so many causes! Had sleep habits, sleep apnea, depression, medications, cardiovascular problems, low testosterone, problems with thyroid function, and several other factors could be an issue. Have you gotten any of them looked at? Many people have to try different antidepressants before they find one (or combination of two) that works.  For low energy, many doctors prescribe Celexa or Wellbutrin. Nuvigil is also a popular energy drug (go to nuvigil.com). I love the supplement SAMe, which is good for the liver and it increases energy  ( you can read more about it here :http://www.biomedcentral.com/1471-244X/4/38/ ) Let  us know if you have answers to any of the issues I talked about in this email. On Sat, Feb 26, 2011 at 1:28 PM, G <muscledcoopersf@...> wrote: Hi, I am Hep C Type II positive and tested HUV+ in '87. I am now sleeping 14-16 hoursx a day (sometimes more). The docs can't decide if it is depression, Hep C or a combo. I am still going through tweaking the anti-depression meds and am frustrated as hell. Been on disability since 4/10 and it's not something I want to continue. My primary doc is reluctant for me to do interferon because he says that medication in trials now will be availablke in two years and I won't have to put my body through interferon. I haven't been to the gym in a month and I am completely frustrated. Has anyone been through this and can offer auggestions on a way out? Thanks, ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2011 Report Share Posted February 26, 2011 Dear CopperI am assuming that you have undetectable  HIV viral load and that your liver is still in pretty good shape (by the way, have you had any liver work up done?) Fatigue can have so many causes! Had sleep habits, sleep apnea, depression, medications, cardiovascular problems, low testosterone, problems with thyroid function, and several other factors could be an issue. Have you gotten any of them looked at? Many people have to try different antidepressants before they find one (or combination of two) that works.  For low energy, many doctors prescribe Celexa or Wellbutrin. Nuvigil is also a popular energy drug (go to nuvigil.com). I love the supplement SAMe, which is good for the liver and it increases energy  ( you can read more about it here :http://www.biomedcentral.com/1471-244X/4/38/ ) Let  us know if you have answers to any of the issues I talked about in this email. On Sat, Feb 26, 2011 at 1:28 PM, G <muscledcoopersf@...> wrote: Hi, I am Hep C Type II positive and tested HUV+ in '87. I am now sleeping 14-16 hoursx a day (sometimes more). The docs can't decide if it is depression, Hep C or a combo. I am still going through tweaking the anti-depression meds and am frustrated as hell. Been on disability since 4/10 and it's not something I want to continue. My primary doc is reluctant for me to do interferon because he says that medication in trials now will be availablke in two years and I won't have to put my body through interferon. I haven't been to the gym in a month and I am completely frustrated. Has anyone been through this and can offer auggestions on a way out? Thanks, ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2011 Report Share Posted September 29, 2011 I am very interested to read your story. If you read the message I just posted, #9901, you will see what I went through in the past 10 years and that now my doc is pressuring me into taking a statin again. I found this group years ago, and am so greatful for these members and their experiences and sharing of articles and links. Some members have shared with me that statins have never been proven beneficial to women of any age, which I was shocked to hear. Your story of taking a statins for all those years and having 2 heart attacks despite having a low level of cholesterol is a prime example of the fact these drugs don't prevent HA's, just lower the cholesterol. You should also read 's reply to my message. This fact, that statin use doesn't prevent HA's and is just driven by money and the greed of the Big Phama industry is just more evidence of the greed of big corporations in this country. Also, the fact that the FDA does seem to be in bed with the drug companies and drug studies are funded by the drug companies and any negative results are usually not published and hidden. Just make more money without regard of the damage to consumer's quality of life. In the last few years, 2 specialists I have seen have shared with me that they too had trouble with muscle aches while taking Zocor. My podiatrist just said he stops taking it for a few weeks til he feels better and an ortho I saw for my tendon issues said he quit the Zocor and was now taking Vytorin, which is a combo of Zocor and Zetia. Zetia is supposed to work in your digestive track and absorb cholesterol from foods. You should investigate the fact that a study involving Vytorin actually showed an increase in the size of plaque formations in arteries and this evidence was hidden for 2 years after the study was concluded. After this evidence was finally released under pressure, the sales of Vytorin plummeted. I did try the prastatin for about 5 days this week, and my body is starting to ache all over, lower back, knees and thigh muscles, and an ongoing problem I have had with my right wrist, a ganglion and inflammation around the thumb, seems to be getting worse. By the way, my elderly mother took Lipitor for many years and I think had many side effects, widespread pain, insomnia, depression, and forgetfulness. She was diagnosed with congestive heart failure about 3 years ago, which means her heart is not working as well as it used to, which I think is muscle damage to the heart. A rheumatologist, the same one who told me I should expect to have pain since I'm in my 50's, did check a blood enzyme called CPK on my mother. This tests shows muscle tissue breakdown that is caused by statins. The test showed that the CPK level was increased and she was " allowed " by her gp to stop the statins at the time. This same muscle breakdown is what happens in statin-induced rhabdomyolysis. This is a term you should research if you never heard it before, very eye-opening. I first googled the term " unexplained muscle pain or weakness when taking Lipitor " and found out all about statin damage. I was also tested for many things, like you were, for Lyme, Rheumatoid arthritis, thyroid, etc. Just last year though, I did test positive for underactive thyroid, which can cause an increase in choltesterol levels. And, I did test positive for proteins in a urinalysis years ago, which I was told was related to my diabetes, but I think was caused by my muscle destruction. The muscle breakdown causes fibers from the muscles to circulate throughout the blood and is then filtered through the kidneys which collect there and clog the kidneys causing failure. I hope if anyone can explain this better, would share the info here. I hope you find some relief after the Lipitor starts to leave your body. I think some members here, unfortunately, have lasting damage to their bodies. Just wondering, would you mind sharing your age range? Any other health concerns, like diabetes? If you'd rather not, I understand. Connie > > Hi, I am a new member of this group and in search of more information. I was just given info last weekend concerning the statin controversy and now I am intrigued. I have been on Lipitor since the late 1990s and have suffered major and chronic fatigue since the early 2000s. As I grew more fatigued, I gained weight, developed sleep apnea, then type 2 diabetes, and then, despite the Lipitor having kept my cholesterol low, I had 2 heart attacks 3 years ago within 2 hours of each other, then a quadruple bypass 3 days later, having had a 90% blockage in one artery and a 70% in the other. > > I am still on Lipitor and still have low cholesterol. And still sleep excessively, 9-11 hours a night. During the day, I feel at about 70% capacity. When I asked my doctor how could I possibly have had such plaque build up despite my very low cholesterol, he said it was " probably genetic. " > > I am at wits end about the quality of life issue with the fatigue and excessive sleeping. I work 9 hours a day, commute 2 hours a day, and so you can see there's not much time for anything else after working and sleeping. My social life has become nil. > > After reading that 50% of those who suffered heart attacks had low cholesterol, I figured what the heck. Low cholesterol doesn't SEEM to control plaque build up. Is this right? > > I stopped taking my Lipitor last Saturday and take my aspirin, still am taking my Tricor (not a statin) and am now taking vitamin supplements and CoQ10 (300mgs). > > IF my chronic fatigue is statin induced, can anyone tell me what the possibility of reversing this scourge? I feel strongly at this point that if by stopping my statin AND if I start to get a better quality of life back, it's a good thing. But, if there is no change, then I will have to reconsider my actions. I have been tested for everything possible--Lyme disease, thyroid, anemia, etc. > > Still have not discussed with my PCP. I see my pulmonoligist in 2 weeks to discuss my sleep apnea. I had lapband surgery 2 years ago and have dropped from 250 pounds to 185 (I am 5'5 " ) and despite the weight loss, I need more sleep than ever and still have no more energy. She isn't sure why... > > At any rate, what a relief to discover this site and the info you provide. I am reading as fast as my little eyes can go! Please, if someone who also has any thoughts to share, I am wide open to hear them! best, Jay in Maine. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2011 Report Share Posted September 29, 2011 Jay, welcome to the group.I read your opening post with great interest. Obviously you have already done some homework, recognizing 50% of heart attacks happen to people with low cholesterol. This whole cholesterol thing was a theory embraced by the public as the accepted truth. The theory sounded so good.. "Elevated blood levels of cholesterol cause artery plaque and leads to heart attacks and stokes"...but it was never proven. Public acceptance created a new market. It snowballed from there. But it was all just public perception. Statins have not been shown to prevent heart disease or heart attacks and strokes. To date, there is no pill on the planet that is proven to stop the growth of artery plaque. It simply doesn't exists. Maybe someday, but not today.If artery plaque is going to form, it does so independent of what cholesterol levels are. I have been studying this for 10 years now. My eyes have been opened wide. Jay, if you are wide open to hear what I have to say, hang on tight. This is gonna rock the boat with some very interesting eye opening facts.Wishing you the best for recovery,Bobby in Texas Alternate email: marooned@...Bobby- Your Caribbean Travel Plannerwww.pinkystravel.com International Destinations, Resorts, Vacation PackagesPhilippine Destination SpecialistFrom: Jay <jselber1@...>Lipitor Sent: Wednesday, September 28, 2011 8:45 AMSubject: fatigue Hi, I am a new member of this group and in search of more information. I was just given info last weekend concerning the statin controversy and now I am intrigued. I have been on Lipitor since the late 1990s and have suffered major and chronic fatigue since the early 2000s. As I grew more fatigued, I gained weight, developed sleep apnea, then type 2 diabetes, and then, despite the Lipitor having kept my cholesterol low, I had 2 heart attacks 3 years ago within 2 hours of each other, then a quadruple bypass 3 days later, having had a 90% blockage in one artery and a 70% in the other. I am still on Lipitor and still have low cholesterol. And still sleep excessively, 9-11 hours a night. During the day, I feel at about 70% capacity. When I asked my doctor how could I possibly have had such plaque build up despite my very low cholesterol, he said it was "probably genetic." I am at wits end about the quality of life issue with the fatigue and excessive sleeping. I work 9 hours a day, commute 2 hours a day, and so you can see there's not much time for anything else after working and sleeping. My social life has become nil. After reading that 50% of those who suffered heart attacks had low cholesterol, I figured what the heck. Low cholesterol doesn't SEEM to control plaque build up. Is this right? I stopped taking my Lipitor last Saturday and take my aspirin, still am taking my Tricor (not a statin) and am now taking vitamin supplements and CoQ10 (300mgs). IF my chronic fatigue is statin induced, can anyone tell me what the possibility of reversing this scourge? I feel strongly at this point that if by stopping my statin AND if I start to get a better quality of life back, it's a good thing. But, if there is no change, then I will have to reconsider my actions. I have been tested for everything possible--Lyme disease, thyroid, anemia, etc. Still have not discussed with my PCP. I see my pulmonoligist in 2 weeks to discuss my sleep apnea. I had lapband surgery 2 years ago and have dropped from 250 pounds to 185 (I am 5'5") and despite the weight loss, I need more sleep than ever and still have no more energy. She isn't sure why... At any rate, what a relief to discover this site and the info you provide. I am reading as fast as my little eyes can go! Please, if someone who also has any thoughts to share, I am wide open to hear them! best, Jay in Maine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2011 Report Share Posted September 29, 2011 One solution is to stop taking Lipitor....that stuff damned near killed me...Once I stopped (two years ago) the aches and pains stopped, a good night's rest returned and my strength started to get back to normal......Cholesterol does NOT cause plaque buildup. I've had two heart attacks since 1991 and my cholesterol has never exceeded 147.... Lee... On 9/28/2011 6:45 AM, Jay wrote: Hi, I am a new member of this group and in search of more information. I was just given info last weekend concerning the statin controversy and now I am intrigued. I have been on Lipitor since the late 1990s and have suffered major and chronic fatigue since the early 2000s. As I grew more fatigued, I gained weight, developed sleep apnea, then type 2 diabetes, and then, despite the Lipitor having kept my cholesterol low, I had 2 heart attacks 3 years ago within 2 hours of each other, then a quadruple bypass 3 days later, having had a 90% blockage in one artery and a 70% in the other. I am still on Lipitor and still have low cholesterol. And still sleep excessively, 9-11 hours a night. During the day, I feel at about 70% capacity. When I asked my doctor how could I possibly have had such plaque build up despite my very low cholesterol, he said it was "probably genetic." I am at wits end about the quality of life issue with the fatigue and excessive sleeping. I work 9 hours a day, commute 2 hours a day, and so you can see there's not much time for anything else after working and sleeping. My social life has become nil. After reading that 50% of those who suffered heart attacks had low cholesterol, I figured what the heck. Low cholesterol doesn't SEEM to control plaque build up. Is this right? I stopped taking my Lipitor last Saturday and take my aspirin, still am taking my Tricor (not a statin) and am now taking vitamin supplements and CoQ10 (300mgs). IF my chronic fatigue is statin induced, can anyone tell me what the possibility of reversing this scourge? I feel strongly at this point that if by stopping my statin AND if I start to get a better quality of life back, it's a good thing. But, if there is no change, then I will have to reconsider my actions. I have been tested for everything possible--Lyme disease, thyroid, anemia, etc. Still have not discussed with my PCP. I see my pulmonoligist in 2 weeks to discuss my sleep apnea. I had lapband surgery 2 years ago and have dropped from 250 pounds to 185 (I am 5'5") and despite the weight loss, I need more sleep than ever and still have no more energy. She isn't sure why... At any rate, what a relief to discover this site and the info you provide. I am reading as fast as my little eyes can go! Please, if someone who also has any thoughts to share, I am wide open to hear them! best, Jay in Maine. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2011 Report Share Posted September 29, 2011 One solution is to stop taking Lipitor....that stuff damned near killed me...Once I stopped (two years ago) the aches and pains stopped, a good night's rest returned and my strength started to get back to normal......Cholesterol does NOT cause plaque buildup. I've had two heart attacks since 1991 and my cholesterol has never exceeded 147.... Lee... On 9/28/2011 6:45 AM, Jay wrote: Hi, I am a new member of this group and in search of more information. I was just given info last weekend concerning the statin controversy and now I am intrigued. I have been on Lipitor since the late 1990s and have suffered major and chronic fatigue since the early 2000s. As I grew more fatigued, I gained weight, developed sleep apnea, then type 2 diabetes, and then, despite the Lipitor having kept my cholesterol low, I had 2 heart attacks 3 years ago within 2 hours of each other, then a quadruple bypass 3 days later, having had a 90% blockage in one artery and a 70% in the other. I am still on Lipitor and still have low cholesterol. And still sleep excessively, 9-11 hours a night. During the day, I feel at about 70% capacity. When I asked my doctor how could I possibly have had such plaque build up despite my very low cholesterol, he said it was "probably genetic." I am at wits end about the quality of life issue with the fatigue and excessive sleeping. I work 9 hours a day, commute 2 hours a day, and so you can see there's not much time for anything else after working and sleeping. My social life has become nil. After reading that 50% of those who suffered heart attacks had low cholesterol, I figured what the heck. Low cholesterol doesn't SEEM to control plaque build up. Is this right? I stopped taking my Lipitor last Saturday and take my aspirin, still am taking my Tricor (not a statin) and am now taking vitamin supplements and CoQ10 (300mgs). IF my chronic fatigue is statin induced, can anyone tell me what the possibility of reversing this scourge? I feel strongly at this point that if by stopping my statin AND if I start to get a better quality of life back, it's a good thing. But, if there is no change, then I will have to reconsider my actions. I have been tested for everything possible--Lyme disease, thyroid, anemia, etc. Still have not discussed with my PCP. I see my pulmonoligist in 2 weeks to discuss my sleep apnea. I had lapband surgery 2 years ago and have dropped from 250 pounds to 185 (I am 5'5") and despite the weight loss, I need more sleep than ever and still have no more energy. She isn't sure why... At any rate, what a relief to discover this site and the info you provide. I am reading as fast as my little eyes can go! Please, if someone who also has any thoughts to share, I am wide open to hear them! best, Jay in Maine. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2011 Report Share Posted September 29, 2011 Jay, the absolute best place for you to get answers is the following website: http://www.spacedoc.com/ put together by a retired physician who was also an astronaut and space medicine researcher and is a victim himself, this site is the gold standard when it comes to statin damage join the forum there and ask away > > Hi, I am a new member of this group and in search of more information. I was just given info last weekend concerning the statin controversy and now I am intrigued. I have been on Lipitor since the late 1990s and have suffered major and chronic fatigue since the early 2000s. As I grew more fatigued, I gained weight, developed sleep apnea, then type 2 diabetes, and then, despite the Lipitor having kept my cholesterol low, I had 2 heart attacks 3 years ago within 2 hours of each other, then a quadruple bypass 3 days later, having had a 90% blockage in one artery and a 70% in the other. > > I am still on Lipitor and still have low cholesterol. And still sleep excessively, 9-11 hours a night. During the day, I feel at about 70% capacity. When I asked my doctor how could I possibly have had such plaque build up despite my very low cholesterol, he said it was " probably genetic. " > > I am at wits end about the quality of life issue with the fatigue and excessive sleeping. I work 9 hours a day, commute 2 hours a day, and so you can see there's not much time for anything else after working and sleeping. My social life has become nil. > > After reading that 50% of those who suffered heart attacks had low cholesterol, I figured what the heck. Low cholesterol doesn't SEEM to control plaque build up. Is this right? > > I stopped taking my Lipitor last Saturday and take my aspirin, still am taking my Tricor (not a statin) and am now taking vitamin supplements and CoQ10 (300mgs). > > IF my chronic fatigue is statin induced, can anyone tell me what the possibility of reversing this scourge? I feel strongly at this point that if by stopping my statin AND if I start to get a better quality of life back, it's a good thing. But, if there is no change, then I will have to reconsider my actions. I have been tested for everything possible--Lyme disease, thyroid, anemia, etc. > > Still have not discussed with my PCP. I see my pulmonoligist in 2 weeks to discuss my sleep apnea. I had lapband surgery 2 years ago and have dropped from 250 pounds to 185 (I am 5'5 " ) and despite the weight loss, I need more sleep than ever and still have no more energy. She isn't sure why... > > At any rate, what a relief to discover this site and the info you provide. I am reading as fast as my little eyes can go! Please, if someone who also has any thoughts to share, I am wide open to hear them! best, Jay in Maine. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2011 Report Share Posted September 29, 2011 Jay, the absolute best place for you to get answers is the following website: http://www.spacedoc.com/ put together by a retired physician who was also an astronaut and space medicine researcher and is a victim himself, this site is the gold standard when it comes to statin damage join the forum there and ask away > > Hi, I am a new member of this group and in search of more information. I was just given info last weekend concerning the statin controversy and now I am intrigued. I have been on Lipitor since the late 1990s and have suffered major and chronic fatigue since the early 2000s. As I grew more fatigued, I gained weight, developed sleep apnea, then type 2 diabetes, and then, despite the Lipitor having kept my cholesterol low, I had 2 heart attacks 3 years ago within 2 hours of each other, then a quadruple bypass 3 days later, having had a 90% blockage in one artery and a 70% in the other. > > I am still on Lipitor and still have low cholesterol. And still sleep excessively, 9-11 hours a night. During the day, I feel at about 70% capacity. When I asked my doctor how could I possibly have had such plaque build up despite my very low cholesterol, he said it was " probably genetic. " > > I am at wits end about the quality of life issue with the fatigue and excessive sleeping. I work 9 hours a day, commute 2 hours a day, and so you can see there's not much time for anything else after working and sleeping. My social life has become nil. > > After reading that 50% of those who suffered heart attacks had low cholesterol, I figured what the heck. Low cholesterol doesn't SEEM to control plaque build up. Is this right? > > I stopped taking my Lipitor last Saturday and take my aspirin, still am taking my Tricor (not a statin) and am now taking vitamin supplements and CoQ10 (300mgs). > > IF my chronic fatigue is statin induced, can anyone tell me what the possibility of reversing this scourge? I feel strongly at this point that if by stopping my statin AND if I start to get a better quality of life back, it's a good thing. But, if there is no change, then I will have to reconsider my actions. I have been tested for everything possible--Lyme disease, thyroid, anemia, etc. > > Still have not discussed with my PCP. I see my pulmonoligist in 2 weeks to discuss my sleep apnea. I had lapband surgery 2 years ago and have dropped from 250 pounds to 185 (I am 5'5 " ) and despite the weight loss, I need more sleep than ever and still have no more energy. She isn't sure why... > > At any rate, what a relief to discover this site and the info you provide. I am reading as fast as my little eyes can go! Please, if someone who also has any thoughts to share, I am wide open to hear them! best, Jay in Maine. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2011 Report Share Posted October 2, 2011 good luck Jay. I stopped my statins back in 2003 after they caused severe nerve damage. I take a regular aspirin when I remember, about once every 2 weeks. I also take every day Serrapeptase, a 60,000 IU capsule and 500mg Vitamin C. My sense of balance is still somewhat shot but I have no problem with energy other than being a man of 69.From: Jay <jselber1@...>Lipitor Sent: Wednesday, September 28, 2011 6:45 AMSubject: fatigue Hi, I am a new member of this group and in search of more information. I was just given info last weekend concerning the statin controversy and now I am intrigued. I have been on Lipitor since the late 1990s and have suffered major and chronic fatigue since the early 2000s. As I grew more fatigued, I gained weight, developed sleep apnea, then type 2 diabetes, and then, despite the Lipitor having kept my cholesterol low, I had 2 heart attacks 3 years ago within 2 hours of each other, then a quadruple bypass 3 days later, having had a 90% blockage in one artery and a 70% in the other. I am still on Lipitor and still have low cholesterol. And still sleep excessively, 9-11 hours a night. During the day, I feel at about 70% capacity. When I asked my doctor how could I possibly have had such plaque build up despite my very low cholesterol, he said it was "probably genetic." I am at wits end about the quality of life issue with the fatigue and excessive sleeping. I work 9 hours a day, commute 2 hours a day, and so you can see there's not much time for anything else after working and sleeping. My social life has become nil. After reading that 50% of those who suffered heart attacks had low cholesterol, I figured what the heck. Low cholesterol doesn't SEEM to control plaque build up. Is this right? I stopped taking my Lipitor last Saturday and take my aspirin, still am taking my Tricor (not a statin) and am now taking vitamin supplements and CoQ10 (300mgs). IF my chronic fatigue is statin induced, can anyone tell me what the possibility of reversing this scourge? I feel strongly at this point that if by stopping my statin AND if I start to get a better quality of life back, it's a good thing. But, if there is no change, then I will have to reconsider my actions. I have been tested for everything possible--Lyme disease, thyroid, anemia, etc. Still have not discussed with my PCP. I see my pulmonoligist in 2 weeks to discuss my sleep apnea. I had lapband surgery 2 years ago and have dropped from 250 pounds to 185 (I am 5'5") and despite the weight loss, I need more sleep than ever and still have no more energy. She isn't sure why... At any rate, what a relief to discover this site and the info you provide. I am reading as fast as my little eyes can go! Please, if someone who also has any thoughts to share, I am wide open to hear them! best, Jay in Maine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2011 Report Share Posted October 5, 2011 Thanks so much, Lee, good to hear from you. How is your heart now and are you taking anything to prevent future issues? That, of course, is my big concern. thanks, Jay One solution is to stop taking Lipitor....that stuff damned near killed me...Once I stopped (two years ago) the aches and pains stopped, a good night's rest returned and my strength started to get back to normal......Cholesterol does NOT cause plaque buildup. I've had two heart attacks since 1991 and my cholesterol has never exceeded 147....Lee... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2011 Report Share Posted October 5, 2011 Thanks so much, Lee, good to hear from you. How is your heart now and are you taking anything to prevent future issues? That, of course, is my big concern. thanks, Jay One solution is to stop taking Lipitor....that stuff damned near killed me...Once I stopped (two years ago) the aches and pains stopped, a good night's rest returned and my strength started to get back to normal......Cholesterol does NOT cause plaque buildup. I've had two heart attacks since 1991 and my cholesterol has never exceeded 147....Lee... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2011 Report Share Posted October 5, 2011 If you look carefully at the Lipitor statistics, the actual difference from their stuff is between about 2% and 3%, and the actual death rates in most studies show all-cause mortality rates higher in statin use. In older women, statin use has no benefit and highe death rates. I also had horrible muscle pain, hand tremor, a worsened cataract, memory impairment, all of which went away when I got off Mevacor. The difference was very noticeable within 2 weeks, and almost totally reversed in about a year. I suspect that there is still some residual memory impairment. check out the latest www.spacedoc.com. Linden  Re: fatigue   One solution is to stop taking Lipitor....that stuff damned near killed me...Once I stopped (two years ago) the aches and pains stopped, a good night's rest returned and my strength started to get back to normal......Cholesterol does NOT cause plaque buildup. I've had two heart attacks since 1991 and my cholesterol has never exceeded 147....  Lee...  On 9/28/2011 6:45 AM, Jay wrote:  Hi, I am a new member of this group and in search of more information. I was just given info last weekend concerning the statin controversy and now I am intrigued. I have been on Lipitor since the late 1990s and have suffered major and chronic fatigue since the early 2000s. As I grew more fatigued, I gained weight, developed sleep apnea, then type 2 diabetes, and then, despite the Lipitor having kept my cholesterol low, I had 2 heart attacks 3 years ago within 2 hours of each other, then a quadruple bypass 3 days later, having had a 90% blockage in one artery and a 70% in the other.  I am still on Lipitor and still have low cholesterol. And still sleep excessively, 9-11 hours a night. During the day, I feel at about 70% capacity. When I asked my doctor how could I possibly have had such plaque build up despite my very low cholesterol, he said it was " probably genetic. "   I am at wits end about the quality of life issue with the fatigue and excessive sleeping. I work 9 hours a day, commute 2 hours a day, and so you can see there's not much time for anything else after working and sleeping. My social life has become nil.  After reading that 50% of those who suffered heart attacks had low cholesterol, I figured what the heck. Low cholesterol doesn't SEEM to control plaque build up. Is this right?  I stopped taking my Lipitor last Saturday and take my aspirin, still am taking my Tricor (not a statin) and am now taking vitamin supplements and CoQ10 (300mgs).  IF my chronic fatigue is statin induced, can anyone tell me what the possibility of reversing this scourge? I feel strongly at this point that if by stopping my statin AND if I start to get a better quality of life back, it's a good thing. But, if there is no change, then I will have to reconsider my actions. I have been tested for everything possible--Lyme disease, thyroid, anemia, etc.  Still have not discussed with my PCP. I see my pulmonoligist in 2 weeks to discuss my sleep apnea. I had lapband surgery 2 years ago and have dropped from 250 pounds to 185 (I am 5'5 " ) and despite the weight loss, I need more sleep than ever and still have no more energy. She isn't sure why...  At any rate, what a relief to discover this site and the info you provide. I am reading as fast as my little eyes can go! Please, if someone who also has any thoughts to share, I am wide open to hear them! best, Jay in Maine.   ------------------------------------  Quote Link to comment Share on other sites More sharing options...
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