Re: , sick again.....

[Guest guest]

Dear

Also DR. is a pediatric ENT at Mayo and was wonderful, before her

had a 2 yr. sinus infection and no one could touch it with PICC lines,

surgeries, antibiotics etc. Her and DR. Weiler made a great team, DR.

Elyosef is great for GERD/reflux which contributes to sinus problems because

it changes the mucousa of the sinuses, a vicious cycle in many PIDD pt's.

IF you ever want to call me let me know because I would love to talk about

it all with you. Or email me privately ajunes@... for my #

Amy Junes

, sick again.....

>

>Hi all, was up 1 1/2 hours during the night, rubbing his

>tummy......crying out in pain...wimpering....pitiful. Cough worse this

>morning, called, got in to ped at 8:45 and he fell asleep on the way.

>Once ped got into room, he got cute and playful.....thinks he might have

>a resistant sinus infection, found 8 blisters in his mouth that look

>like herpes...thinks we should restart pulmicort nebs, acyclovir, gave

>me a script for Biaxin if he gets worse.....UGH, no labs, no CXR,

>etc....no sinus films....What is going on here...Then I asked him about

>the email from Cincy, he says if you saw 5 different immunologists you

>would get 5 different answers and we are " managing pretty

>well " .......27 scripts in 6 months???????????????? I work w/e and my

>hubby works during the week??????????? I am so frustrated.....

>

>so, I ran to the grocery store, jacob is increasingly fussy, get home

>and temp is 100.4 axillary, left message and just got called back that I

>am to start the Biaxin.....reinforce to them that he looks really

>sick,,,,,told to try the Biaxin and see if that helps....

>

>

>I don't know how I can leave Warren with and Libby????????????????

>Do people not get this??????????? Am I just nuts???????????????? I am

>calling my boss to see what she says....I think I need to stay home....I

>can go tomorrow for a 16 if he is a ok.

>

>Talk at you later...

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