Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 My daughter saw the Immunologist at Emory on Monday and had her blood tested again, as she does about once a year to see if there are any changes. She is IgA Deficient. The doctor called yesterday while I was out, and told me to call back because she had her lab results. I did, and the nurse told me all of her levels were NORMAL. I asked specifically " her IgA level is NORMAL??? " , and she said yes, that's what the doctor told me to tell you. I asked her specifically " is it the same as always, or are they all within a normal range? " , and she said she was pretty sure everything was normal. I wasn't so sure about that, as that would be a big change, but I know there is a chance they can outgrow it around age 6 (or so I've heard). I asked her to have the doctor back to confirm. I was ELATED! I started crying I was so happy, I called my husband, my sister, my mother, my mother-in-law; then the nurse called back about an hour later. She said everything was normal EXCEPT the IgA. I could have killed her. How could someone be so careless when giving test results to a patient's mother? I've always expected that she would outgrow it, although consciously I know that it may never happen. So we're just the same as before, which I can deal with, but I was so elated for about an hour yesterday thinking that she didn't have a PID anymore. If that nurse was standing in front of me I think I would have hurt her. So I still have my beautiful daughter and I love her, but that " false hope " can hurt a little bit. , Mom to , 5, IgA Deficient, Asthma, Chronic Ear Infections and Connor, 6 Quote Link to comment Share on other sites More sharing options...
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