Re: members attending the conference

Posted May 24, 2005 · May 24, 2005

We are arriving Thursday and staying at the Contemporary Resort till Sunday

and then at the Comfort suites maingate till thursdayThe 30th

Dennis and Amy Junes with kids Christian Connor Elaina and maybe baby

Gavin

members attending the conference

>I'd like to start a name list of those group members attending the IDF

>conference in Orlando.

>

>Date of arrival

>Hotel

>Date of Departure

>

>also if you want to list the sessions you chose that's fine.

>

>We're arriving on Wed. staying at the Contemporary and leaving on Sunday.

>

>I believe the IDF is issuing colored name lanyards based on geographic

>region. We can do the ribbons as before.

>

>Dale was there a certain color used?

>

>Start sending in those names.

>

>Ursula Holleman

>mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes

>Insipidus, colonic inertia)

>http://members.cox.net/maceyh

>

>Immune Deficiency Foundation - Peer Contact for GA

>http://www.primaryimmune.org

>

>IDF Patient/Family Handbook

>http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

>

>/

>

>This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>To unsubscribe -unsubscribegroups (DOT)

>To search group archives go to:

/messages

>

Posted May 24, 2005 · May 24, 2005

Ursula,

I'm arriving on Wed

Staying at Disney Magic (Contemporary was booked)

Flying out Early Sunday.....

Glad to finally meet you....

Quoting Ursula Holleman <uahollem1@...>:

>

> I'd like to start a name list of those group members attending the IDF

>

> conference in Orlando.

>

> Date of arrival

>

> Hotel

>

> Date of Departure

>

> also if you want to list the sessions you chose that's fine.

>

> We're arriving on Wed. staying at the Contemporary and leaving on Sunday.

>

> I believe the IDF is issuing colored name lanyards based on geographic

>

> region. We can do the ribbons as before.

>

> Dale was there a certain color used?

>

> Start sending in those names.

>

> Ursula Holleman

>

> mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes

>

> Insipidus, colonic inertia)

>

> http://members.cox.net/maceyh

>

> Immune Deficiency Foundation - Peer Contact for GA

>

> http://www.primaryimmune.org

>

> IDF Patient/Family Handbook

>

> http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

>

> /

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

>

> To unsubscribe -unsubscribegroups (DOT)

>

> To search group archives go to:

> /messages

>

Posted May 24, 2005 · May 24, 2005

and I are flying in Wednes. - staying at COntemporary

Resort... Flying out Monday.

Dayna

>

> Ursula,

>

> I'm arriving on Wed

> Staying at Disney Magic (Contemporary was booked)

> Flying out Early Sunday.....

>

> Glad to finally meet you....

>

> Quoting Ursula Holleman <uahollem1@c...>:

>

> >

> > I'd like to start a name list of those group members attending

the IDF

> >

> > conference in Orlando.

> >

> > Date of arrival

> >

> > Hotel

> >

> > Date of Departure

> >

> > also if you want to list the sessions you chose that's fine.

> >

> > We're arriving on Wed. staying at the Contemporary and leaving

on Sunday.

> >

> > I believe the IDF is issuing colored name lanyards based on

geographic

> >

> > region. We can do the ribbons as before.

> >

> > Dale was there a certain color used?

> >

> > Start sending in those names.

> >

> > Ursula Holleman

> >

> > mom to (12 yrs old) and Macey (10 yr. old with CVID,

Diabetes

> >

> > Insipidus, colonic inertia)

> >

> > http://members.cox.net/maceyh

> >

> > Immune Deficiency Foundation - Peer Contact for GA

> >

> > http://www.primaryimmune.org

> >

> > IDF Patient/Family Handbook

> >

> > http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

> >

> > /

> >

> > This forum is open to parents and caregivers of children

diagnosed with a

> > Primary Immune Deficiency. Opinions or medical advice stated

here are the

> > sole responsibility of the poster and should not be taken as

professional

> > advice.

> >

> > To unsubscribe -unsubscribegroups (DOT)

> >

> > To search group archives go to:

> > /messages

> >

Posted May 25, 2005 · May 25, 2005

Hi

and i(Pat(mum))from the UK are arriving on tuesday afternoon

and because we are staying untill the 5th July we are staying at the

sunspree resort.

It's the first time we have been on a plane,the heat is going to be a

tough for to deal with but we have got the hat's sun screen

etc,is there anything else i should bring or do.

What are the coloured lanyards ??

It will be great to meet everyone and i am sure my eyes will be opend

wide as to this condition (CVID)amongst everything else.

Also can someone tell me what the box lunches are , because all i

have received so far is the reciept for payment and intinery.

Thanks Pat

-- In , " Ursula Holleman " <uahollem1@c...>

wrote:

> I'd like to start a name list of those group members attending the

IDF

> conference in Orlando.

>

> Date of arrival

> Hotel

> Date of Departure

>

> also if you want to list the sessions you chose that's fine.

>

> We're arriving on Wed. staying at the Contemporary and leaving on

Sunday.

>

> I believe the IDF is issuing colored name lanyards based on

geographic

> region. We can do the ribbons as before.

>

> Dale was there a certain color used?

>

> Start sending in those names.

>

> Ursula Holleman

> mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes

> Insipidus, colonic inertia)

> http://members.cox.net/maceyh

>

> Immune Deficiency Foundation - Peer Contact for GA

> http://www.primaryimmune.org

>

> IDF Patient/Family Handbook

> http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

>

> /

Posted May 25, 2005 · May 25, 2005

Jill

and husband Jeff

and daughter Emma are coming on

June 23 and leaving on 26.

Can't wait to get there, what is the deal with

the ribbons, my husband must have deleted

a message of mine.

Re: members attending the conference

and I are flying in Wednes. - staying at COntemporary

Resort... Flying out Monday.

Dayna

>

> Ursula,

>

> I'm arriving on Wed

> Staying at Disney Magic (Contemporary was booked)

> Flying out Early Sunday.....

>

> Glad to finally meet you....

>

> Quoting Ursula Holleman <uahollem1@c...>:

>

> >

> > I'd like to start a name list of those group members attending

the IDF

> >

> > conference in Orlando.

> >

> > Date of arrival

> >

> > Hotel

> >

> > Date of Departure

> >

> > also if you want to list the sessions you chose that's fine.

> >

> > We're arriving on Wed. staying at the Contemporary and leaving

on Sunday.

> >

> > I believe the IDF is issuing colored name lanyards based on

geographic

> >

> > region. We can do the ribbons as before.

> >

> > Dale was there a certain color used?

> >

> > Start sending in those names.

> >

> > Ursula Holleman

> >

> > mom to (12 yrs old) and Macey (10 yr. old with CVID,

Diabetes

> >

> > Insipidus, colonic inertia)

> >

> > http://members.cox.net/maceyh

> >

> > Immune Deficiency Foundation - Peer Contact for GA

> >

> > http://www.primaryimmune.org

> >

> > IDF Patient/Family Handbook

> >

> > http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

> >

> > /

> >

> > This forum is open to parents and caregivers of children

diagnosed with a

> > Primary Immune Deficiency. Opinions or medical advice stated

here are the

> > sole responsibility of the poster and should not be taken as

professional

> > advice.

> >

> > To unsubscribe -unsubscribegroups (DOT)

> >

> > To search group archives go to:

> > /messages

> >

Posted May 25, 2005 · May 25, 2005

Hi Ursula,

We are arriving Monday and staying at the All Star Music Resort for Mon and

Tues, than we are transferred to the Contemporary for Wed thru Sun, we are

driving.

mom to - CVID, asthma, GERD

members attending the conference

I'd like to start a name list of those group members attending the IDF

conference in Orlando.

Date of arrival

Hotel

Date of Departure

also if you want to list the sessions you chose that's fine.

We're arriving on Wed. staying at the Contemporary and leaving on Sunday.

I believe the IDF is issuing colored name lanyards based on geographic

region. We can do the ribbons as before.

Dale was there a certain color used?

Start sending in those names.

Ursula Holleman

mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh<http://members.cox.net/maceyh>

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org<http://www.primaryimmune.org/>

IDF Patient/Family Handbook

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm<http://www.primaryimmu\

ne.org/pubs/book_pats/book_pats.htm>

/</>

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe

-unsubscribe@groups<mailto:-unsubscribe@groups>.

To search group archives go to:

/messages<PedP\

ID/messages>

Posted May 25, 2005 · May 25, 2005

Hi J ill,

At the last conference the PedPid group wore green ribbons so we could find each

other, Dale's suggestion. we had them on our name tags, which you are supposed

to wear at all times. Was a good idea, easy to spot.

mom to - CVID, asthma, GERD( 9 years old, horse whisperer, animal

lover, Pokemon fanatic and all around great kid).

Re: members attending the conference

and I are flying in Wednes. - staying at COntemporary

Resort... Flying out Monday.

Dayna

>

> Ursula,

>

> I'm arriving on Wed

> Staying at Disney Magic (Contemporary was booked)

> Flying out Early Sunday.....

>

> Glad to finally meet you....

>

> Quoting Ursula Holleman <uahollem1@c<mailto:uahollem1@c>...>:

>

> >

> > I'd like to start a name list of those group members attending

the IDF

> >

> > conference in Orlando.

> >

> > Date of arrival

> >

> > Hotel

> >

> > Date of Departure

> >

> > also if you want to list the sessions you chose that's fine.

> >

> > We're arriving on Wed. staying at the Contemporary and leaving

on Sunday.

> >

> > I believe the IDF is issuing colored name lanyards based on

geographic

> >

> > region. We can do the ribbons as before.

> >

> > Dale was there a certain color used?

> >

> > Start sending in those names.

> >

> > Ursula Holleman

> >

> > mom to (12 yrs old) and Macey (10 yr. old with CVID,

Diabetes

> >

> > Insipidus, colonic inertia)

> >

> > http://members.cox.net/maceyh<http://members.cox.net/maceyh>

> >

> > Immune Deficiency Foundation - Peer Contact for GA

> >

> > http://www.primaryimmune.org<http://www.primaryimmune.org/>

> >

> > IDF Patient/Family Handbook

> >

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm<http://www.primaryimmu\

ne.org/pubs/book_pats/book_pats.htm>

> >

/</>

> >

> > This forum is open to parents and caregivers of children

diagnosed with a

> > Primary Immune Deficiency. Opinions or medical advice stated

here are the

> > sole responsibility of the poster and should not be taken as

professional

> > advice.

> >

> > To unsubscribe

-unsubscribe@groups<mailto:-unsubscribe@groups>.

> >

> > To search group archives go to:

> >

/messages<PedP\

ID/messages>

> >

Posted May 25, 2005 · May 25, 2005

thanks for updating me...

I will put ribbons on our tags,

if you tell me what color to buy...

hope to get to meet all of you in June,

and for those that don't get to come,

we will update you on the " new horizon "

for all of us.

I think this group is so important, and love

it when you all update me about things

and what, when, where, etc to try next.

Thanks to everyone for being a member

and helping all our kids!!!

Jill

Re: members attending the conference

and I are flying in Wednes. - staying at COntemporary

Resort... Flying out Monday.

Dayna

>

> Ursula,

>

> I'm arriving on Wed

> Staying at Disney Magic (Contemporary was booked)

> Flying out Early Sunday.....

>

> Glad to finally meet you....

>

> Quoting Ursula Holleman <uahollem1@c<mailto:uahollem1@c>...>:

>

> >

> > I'd like to start a name list of those group members attending

the IDF

> >

> > conference in Orlando.

> >

> > Date of arrival

> >

> > Hotel

> >

> > Date of Departure

> >

> > also if you want to list the sessions you chose that's fine.

> >

> > We're arriving on Wed. staying at the Contemporary and leaving

on Sunday.

> >

> > I believe the IDF is issuing colored name lanyards based on

geographic

> >

> > region. We can do the ribbons as before.

> >

> > Dale was there a certain color used?

> >

> > Start sending in those names.

> >

> > Ursula Holleman

> >

> > mom to (12 yrs old) and Macey (10 yr. old with CVID,

Diabetes

> >

> > Insipidus, colonic inertia)

> >

> > http://members.cox.net/maceyh<http://members.cox.net/maceyh>

> >

> > Immune Deficiency Foundation - Peer Contact for GA

> >

> > http://www.primaryimmune.org<http://www.primaryimmune.org/>

> >

> > IDF Patient/Family Handbook

> >

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm<http://www.primaryimmu\

ne.org/pubs/book_pats/book_pats.htm>

> >

/</>

> >

> > This forum is open to parents and caregivers of children

diagnosed with a

> > Primary Immune Deficiency. Opinions or medical advice stated

here are the

> > sole responsibility of the poster and should not be taken as

professional

> > advice.

> >

> > To unsubscribe

-unsubscribe@groups<mailto:-unsubscribe@groups>.

> >

> > To search group archives go to:

> >

/messages<PedP\

ID/messages>

> >

Posted May 25, 2005 · May 25, 2005

thanks for updating me...

I will put ribbons on our tags,

if you tell me what color to buy...

hope to get to meet all of you in June,

and for those that don't get to come,

we will update you on the " new horizon "

for all of us.

I think this group is so important, and love

it when you all update me about things

and what, when, where, etc to try next.

Thanks to everyone for being a member

and helping all our kids!!!

Jill

Re: members attending the conference

and I are flying in Wednes. - staying at COntemporary

Resort... Flying out Monday.

Dayna

>

> Ursula,

>

> I'm arriving on Wed

> Staying at Disney Magic (Contemporary was booked)

> Flying out Early Sunday.....

>

> Glad to finally meet you....

>

> Quoting Ursula Holleman <uahollem1@c<mailto:uahollem1@c>...>:

>

> >

> > I'd like to start a name list of those group members attending

the IDF

> >

> > conference in Orlando.

> >

> > Date of arrival

> >

> > Hotel

> >

> > Date of Departure

> >

> > also if you want to list the sessions you chose that's fine.

> >

> > We're arriving on Wed. staying at the Contemporary and leaving

on Sunday.

> >

> > I believe the IDF is issuing colored name lanyards based on

geographic

> >

> > region. We can do the ribbons as before.

> >

> > Dale was there a certain color used?

> >

> > Start sending in those names.

> >

> > Ursula Holleman

> >

> > mom to (12 yrs old) and Macey (10 yr. old with CVID,

Diabetes

> >

> > Insipidus, colonic inertia)

> >

> > http://members.cox.net/maceyh<http://members.cox.net/maceyh>

> >

> > Immune Deficiency Foundation - Peer Contact for GA

> >

> > http://www.primaryimmune.org<http://www.primaryimmune.org/>

> >

> > IDF Patient/Family Handbook

> >

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm<http://www.primaryimmu\

ne.org/pubs/book_pats/book_pats.htm>

> >

/</>

> >

> > This forum is open to parents and caregivers of children

diagnosed with a

> > Primary Immune Deficiency. Opinions or medical advice stated

here are the

> > sole responsibility of the poster and should not be taken as

professional

> > advice.

> >

> > To unsubscribe

-unsubscribe@groups<mailto:-unsubscribe@groups>.

> >

> > To search group archives go to:

> >

/messages<PedP\

ID/messages>

> >

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