Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Xan to add to what Wenoka said. The subq nurse at this office is Sue. She came to the Emory clinic our first two infusions and met with Dr. K and us. Did the infusions and made sure I was comfortable with the process. She may know someone in your area of closer. If you talk to her tell her Ursula said hey. Ursula Holleman mom to (12 yrs old) and Macey (9 yr. old with CVID, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org IDF Patient/Family Handbook http://www.primaryimmune.org/pubs/book_pats/book_pats.htm / Ursula > > > Hi Everyone. This is Xan from SC. Kaitlyn is CVID, 11 years old going > on 30 and (my healthy child) 16 1/2 going on 45. Ursula, I have a > few questions for you about Sub Q. We are still fighting to get it > started and I need to know some doctors in Georgia. Please e-mail me at > nxakmo@... > > > Thanx, > > Xan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Xan to add to what Wenoka said. The subq nurse at this office is Sue. She came to the Emory clinic our first two infusions and met with Dr. K and us. Did the infusions and made sure I was comfortable with the process. She may know someone in your area of closer. If you talk to her tell her Ursula said hey. Ursula Holleman mom to (12 yrs old) and Macey (9 yr. old with CVID, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org IDF Patient/Family Handbook http://www.primaryimmune.org/pubs/book_pats/book_pats.htm / Ursula > > > Hi Everyone. This is Xan from SC. Kaitlyn is CVID, 11 years old going > on 30 and (my healthy child) 16 1/2 going on 45. Ursula, I have a > few questions for you about Sub Q. We are still fighting to get it > started and I need to know some doctors in Georgia. Please e-mail me at > nxakmo@... > > > Thanx, > > Xan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Hi Xan, If you are not able to make contact with the doctor that Ursula recommended, perhaps you can contact one of the companies that provides the Ig product for subq. We use Accredo Therapeutics. They have an office in South Carolina, but no phone # was given. However, there is contact info in their office in Georgia: Georgia 5980 Unity Drive, Suite G Norcross, GA 30071 Phone: 770.441.7995 Toll Free: 800.310.7995 Fax: 800.554.5545 South Carolina 100 Northeast Dr. Suite 113 Columbia, SC 29203 http://www.accredohealth.net/ati/ivig/ivig_map.html shows a map of all of their locations in the U.S. Good luck! God bless, Wenoka Ursula Hi Everyone. This is Xan from SC. Kaitlyn is CVID, 11 years old going on 30 and (my healthy child) 16 1/2 going on 45. Ursula, I have a few questions for you about Sub Q. We are still fighting to get it started and I need to know some doctors in Georgia. Please e-mail me at nxakmo@... Thanx, Xan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 In a message dated 5/25/2005 9:44:46 AM Central Standard Time, nxakmo@... writes: > I am also on it and if I can blame my weight > gain on that, then that is what I will do Xan, Hee hee hee!! Thanks for the laugh! (mom to , age 6, dairy intolerant-related GERD -- currently has polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other defs... and also to Kate, age 2, more dairy intolerant but very healthy!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 In a message dated 5/25/2005 9:44:46 AM Central Standard Time, nxakmo@... writes: > I am also on it and if I can blame my weight > gain on that, then that is what I will do Xan, Hee hee hee!! Thanks for the laugh! (mom to , age 6, dairy intolerant-related GERD -- currently has polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other defs... and also to Kate, age 2, more dairy intolerant but very healthy!) Quote Link to comment Share on other sites More sharing options...
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