Guest guest Posted April 24, 2005 Report Share Posted April 24, 2005 Janet, We are praying for Brittany. I am sorry to hear about the problems with getting her IV started. Ashton is so thin, she has a port. She had it put in last June. She has not had any problems with it. It is all internal, and the doctor said she can still play soccer. It has been much easier with her treatments. We numb it before, and she doesn't really feel it. It has made life easier. You can see it some, because she is so thin. It is not something another person would really notice. Hers is right near the armpit. You can barely see it through a shirt that is fitted. Under most things it doesn't show. I hope Brittany is feeling better. Do they think that having the IVIG's closer together will help? I know Ashton receives hers every two weeks. On every three weeks she was still getting infections frequently. They checked her levels right before a treatment and they were still low, so they increased the frequency of it. I think it is great that sub q means people can keep the levels stable. Ashton is too thin for that. L Mom to Ashton 11 CVID, Asthma, Dyslexia & Marina 9 Asthma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2005 Report Share Posted April 24, 2005 In a message dated 4/24/2005 12:42:33 P.M. Eastern Daylight Time, Nanashmar@... writes: We are praying for Brittany. I am sorry to hear about the problems with getting her IV started. Ashton is so thin, she has a port. She had it put in last June. She has not had any problems with it. It is all internal, and the doctor said she can still play soccer. It has been much easier with her treatments. We numb it before, and she doesn't really feel it. It has made life easier. This is great! If they decide to do it, maybe Britt can talk with Ashton about it first. Thank you for letting me know this. I am so happy it is working so well for Ashton! Every 2 weeks, wow, how long do her infusions last? Janet, Mom to Brittany, CVID, age 14 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2005 Report Share Posted April 24, 2005 In a message dated 4/24/2005 12:42:33 P.M. Eastern Daylight Time, Nanashmar@... writes: We are praying for Brittany. I am sorry to hear about the problems with getting her IV started. Ashton is so thin, she has a port. She had it put in last June. She has not had any problems with it. It is all internal, and the doctor said she can still play soccer. It has been much easier with her treatments. We numb it before, and she doesn't really feel it. It has made life easier. This is great! If they decide to do it, maybe Britt can talk with Ashton about it first. Thank you for letting me know this. I am so happy it is working so well for Ashton! Every 2 weeks, wow, how long do her infusions last? Janet, Mom to Brittany, CVID, age 14 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2005 Report Share Posted April 24, 2005 Dear , I think it's a misconception people have about being to thin for sub q. If he had diabetes you would need to give insulin sub q no matter how thin they are. They usually make the kids who are thinner do the daily instead of the every week dosing. I don't know many kids thinner than , he is very tall for his age and pure bone and muscle. He tolerates sub q just fine, but we can only do his thighs. He was much thinner before we switched to sub q and it has helped him thrive. So Ashton should be fine if you ever need or want to consider sub q. Amy Junes Re: Britt > >Janet, > We are praying for Brittany. I am sorry to hear about the problems with >getting her IV started. Ashton is so thin, she has a port. She had it put in >last June. She has not had any problems with it. It is all internal, and the >doctor said she can still play soccer. It has been much easier with her >treatments. We numb it before, and she doesn't really feel it. It has made life >easier. You can see it some, because she is so thin. It is not something another >person would really notice. Hers is right near the armpit. You can barely see >it through a shirt that is fitted. Under most things it doesn't show. > I hope Brittany is feeling better. Do they think that having the >IVIG's closer together will help? I know Ashton receives hers every two weeks. On >every three weeks she was still getting infections frequently. They checked >her levels right before a treatment and they were still low, so they increased >the frequency of it. I think it is great that sub q means people can keep the >levels stable. Ashton is too thin for that. > > L > >Mom to Ashton 11 CVID, Asthma, Dyslexia & Marina 9 Asthma > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2005 Report Share Posted April 24, 2005 Dear , I think it's a misconception people have about being to thin for sub q. If he had diabetes you would need to give insulin sub q no matter how thin they are. They usually make the kids who are thinner do the daily instead of the every week dosing. I don't know many kids thinner than , he is very tall for his age and pure bone and muscle. He tolerates sub q just fine, but we can only do his thighs. He was much thinner before we switched to sub q and it has helped him thrive. So Ashton should be fine if you ever need or want to consider sub q. Amy Junes Re: Britt > >Janet, > We are praying for Brittany. I am sorry to hear about the problems with >getting her IV started. Ashton is so thin, she has a port. She had it put in >last June. She has not had any problems with it. It is all internal, and the >doctor said she can still play soccer. It has been much easier with her >treatments. We numb it before, and she doesn't really feel it. It has made life >easier. You can see it some, because she is so thin. It is not something another >person would really notice. Hers is right near the armpit. You can barely see >it through a shirt that is fitted. Under most things it doesn't show. > I hope Brittany is feeling better. Do they think that having the >IVIG's closer together will help? I know Ashton receives hers every two weeks. On >every three weeks she was still getting infections frequently. They checked >her levels right before a treatment and they were still low, so they increased >the frequency of it. I think it is great that sub q means people can keep the >levels stable. Ashton is too thin for that. > > L > >Mom to Ashton 11 CVID, Asthma, Dyslexia & Marina 9 Asthma > > > Quote Link to comment Share on other sites More sharing options...
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