Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 You have really laid alot of my worries to rest, and have made my decision so much easier!! <<We do take , for one we don't like leaving her, especailly if we are far away, and also because we feel it is good for her to meet other kids that are like her.>> I totally agree with this statement.I have only had 3 nights away from Zachary since he was born, and that was to head to Louisana when my husband was deployed, and was leaving for Iraq. I left him in the care of a very dear and trusted friend. Not to many people would offer to take him. Just recently Zachary met for the first time a little boy at his school who also has a port, and since I have not had him once say, when is it coming out, or why do I have one and no one else.He actually said the last time he got his infusion that he was so happy he had it. They really do pick up that they are different, and its so nice for them to know that they aren't the only ones who are struggling. <<Hope to see you there.>> I'm looking forward to meeting whoever decides to come from the list also!! ~MG & Zach(5-7-99)monthly IVIG,IgG total deficiency,IgG1 & 4deficiency, IgA deficiency,Antibiody Dysfunction, Asthma,GERD,Chronic Sinus,Diarrhea and skin infections,FTT,Speech and Fine Motor Delays,central apnea,hypoapnea,bowel and urine incontience, and way too much more..... Quote Link to comment Share on other sites More sharing options...
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