Bri's IVIG/Ursula

[Guest guest]

In a message dated 2/1/2005 10:40:51 AM Pacific Standard Time,

uahollem1@... writes:

Running at a slower rate could

in no way jeopardize his care. Asking to run it faster to say speed up the

appointment and go off to do something else would be a poor request but not

slowing it down. It might be that the appointment would need to be moved up

earlier in the day to allow for the lengthened stay but something should be

able to be done.

Hi Ursula,

I did stand my ground. I mentioned that I would like a slower rate run

today and he said something like he hasn't needed to do that before. So, I

remembered (thanks ) and asked, " Is it contraindicated to run it

slowly? "

He said no, okay, he would do it. Slow for him was running it at 72--I would

have preferred slower. So, I will see how Bri does and take it from there.

So far, no headache. With the first infusion, he left the office with one.

Sandi, Mom to , age 11. Polysaccharide deficiency, IgG1 subclass

deficiency, Tetrology of Fallot, Pulmonary valve transplant (2003), Mitral valve

stenosis, chronic ear, nose and throat infections--including strep, COPD,

asthma,

severe allergies (including meds), Carnitine deficiency, GERD, suspected

Velocardiofacial syndrome.

[Guest guest]

" So far, no headache. With the first infusion, he left the office with one. "

Sandi-

At only 50 cc/h my daughter got aseptic meningits but 72 cc/h is great progress

for Bri. If Bri develops headaches over the next 48 hours, or gets really

fussy, you could suggest that the rate be turned down a little more. " Would it

be contraindicated...would it harm him... " . = ) If he did not get the

shakes/headache/fever during the IVIG, he will probably not get the same acute

reaction that he did last time. But, he might act cruddy for a bit.

sassykay59@... wrote:

In a message dated 2/1/2005 10:40:51 AM Pacific Standard Time,

uahollem1@... writes:

Running at a slower rate could

in no way jeopardize his care. Asking to run it faster to say speed up the

appointment and go off to do something else would be a poor request but not

slowing it down. It might be that the appointment would need to be moved up

earlier in the day to allow for the lengthened stay but something should be

able to be done.

Hi Ursula,

I did stand my ground. I mentioned that I would like a slower rate run

today and he said something like he hasn't needed to do that before. So, I

remembered (thanks ) and asked, " Is it contraindicated to run it

slowly? "

He said no, okay, he would do it. Slow for him was running it at 72--I would

have preferred slower. So, I will see how Bri does and take it from there.

So far, no headache. With the first infusion, he left the office with one.

Sandi, Mom to , age 11. Polysaccharide deficiency, IgG1 subclass

deficiency, Tetrology of Fallot, Pulmonary valve transplant (2003), Mitral valve

stenosis, chronic ear, nose and throat infections--including strep, COPD,

asthma,

severe allergies (including meds), Carnitine deficiency, GERD, suspected

Velocardiofacial syndrome.