Re: ' 3 month check with the immuno

[Guest guest]

from Dale, Mom to Katy, CVID, age 20

Amy, I'm so glad you are getting some progress. I looked up his

web-page and what a cutie! Hope he's feeling better soon.

In His service,

Dale

[Guest guest]

hey, how is it going? we go for the first IVIG tommorow,,,, wish us luck with

finding a vein... food trials failed again... but other than that we are goood.

how is nick> and the rest of your family..

' 3 month check with the immuno

Hi all! Well Nick went to the immuno for his 3 months checkup after starting

the SubQ. He was not at all pleased since in the three months he has still been

sick almost all the time. So Friday they are going to try and give Nick a boost

with a IVIG treatment thru the vein and then go back to subQ again. He said tho

that they would just see how his veins looked. If they didn't get it Friday they

would just keep looking each time he goes in until they are sure they will get

the IV started on one poke.

Also Nick will be starting rotating phrophlaxic abx. He will do 21 days

amoxicillin and then 21 days Septra (if I spelled all the right) He will do

this until April. He also put him on some other med, but I can't think of the

name and the pharmacy didn't have it in so I will get it tomorrow. I think it

was a decongestant of some sort.

I hope this does the trick. The immuno's office called last night and heard

Nick coughing and the nurse talked to the immuno and called back because they

were concerned that it sounded like whooping cough. I called the ER and talked

to a nurse there for an hour, she was so nice. She called our ped and he said

to just up his flovent an xopenex treatments and he settled down finally at 1

am. That was the first sleep he had gotten in almost 40 hours. We were so

glad.

Amy, mom to:

, 22 months old. CVID, MSPI, GERD, Asthma.. On claritin, flovent,

xopenex, and SubQIG every two weeks (Carimune NF)

visit Nick's website:

http://www3.caringbridge.org/ne/nicholasb/<http://www3.caringbridge.org/ne/nicho\

lasb/><http://www3.caringbridge.org/ne/nicholasb/<http://www3.caringbridge.org/n\

e/nicholasb/>>

[Guest guest]

Thanks Kathleen, we are all doing okay. Nick has one heck of a sinus infection

and bronchitis again. We will be doing the vein thing tomorrow too. Good luck

and we will keep Conan in our thoughts tomorrow. Post an update when you can.

Amy

' 3 month check with the immuno

Hi all! Well Nick went to the immuno for his 3 months checkup after

starting the SubQ. He was not at all pleased since in the three months he has

still been sick almost all the time. So Friday they are going to try and give

Nick a boost with a IVIG treatment thru the vein and then go back to subQ again.

He said tho that they would just see how his veins looked. If they didn't get it

Friday they would just keep looking each time he goes in until they are sure

they will get the IV started on one poke.

Also Nick will be starting rotating phrophlaxic abx. He will do 21 days

amoxicillin and then 21 days Septra (if I spelled all the right) He will do

this until April. He also put him on some other med, but I can't think of the

name and the pharmacy didn't have it in so I will get it tomorrow. I think it

was a decongestant of some sort.

I hope this does the trick. The immuno's office called last night and heard

Nick coughing and the nurse talked to the immuno and called back because they

were concerned that it sounded like whooping cough. I called the ER and talked

to a nurse there for an hour, she was so nice. She called our ped and he said

to just up his flovent an xopenex treatments and he settled down finally at 1

am. That was the first sleep he had gotten in almost 40 hours. We were so

glad.

Amy, mom to:

, 22 months old. CVID, MSPI, GERD, Asthma.. On claritin, flovent,

xopenex, and SubQIG every two weeks (Carimune NF)

visit Nick's website:

http://www3.caringbridge.org/ne/nicholasb/<http://www3.caringbridge.org/ne/nicho\

lasb/><http://www3.caringbridge.org/ne/nicholasb/<http://www3.caringbridge.org/n\

e/nicholasb/>><http://www3.caringbridge.org/ne/nicholasb/<http://www3.caringbrid\

ge.org/ne/nicholasb/><http://www3.caringbridge.org/ne/nicholasb/<http://www3.car\

ingbridge.org/ne/nicholasb/>>>

[Guest guest]

hey, IVIG, went well how bout you guys...

' 3 month check with the immuno

Hi all! Well Nick went to the immuno for his 3 months checkup after

starting the SubQ. He was not at all pleased since in the three months he has

still been sick almost all the time. So Friday they are going to try and give

Nick a boost with a IVIG treatment thru the vein and then go back to subQ again.

He said tho that they would just see how his veins looked. If they didn't get it

Friday they would just keep looking each time he goes in until they are sure

they will get the IV started on one poke.

Also Nick will be starting rotating phrophlaxic abx. He will do 21 days

amoxicillin and then 21 days Septra (if I spelled all the right) He will do

this until April. He also put him on some other med, but I can't think of the

name and the pharmacy didn't have it in so I will get it tomorrow. I think it

was a decongestant of some sort.

I hope this does the trick. The immuno's office called last night and

heard Nick coughing and the nurse talked to the immuno and called back because

they were concerned that it sounded like whooping cough. I called the ER and

talked to a nurse there for an hour, she was so nice. She called our ped and he

said to just up his flovent an xopenex treatments and he settled down finally at

1 am. That was the first sleep he had gotten in almost 40 hours. We were so

glad.

Amy, mom to:

, 22 months old. CVID, MSPI, GERD, Asthma.. On claritin, flovent,

xopenex, and SubQIG every two weeks (Carimune NF)

visit Nick's website:

http://www3.caringbridge.org/ne/nicholasb/<http://www3.caringbridge.org/ne/nicho\

lasb/><http://www3.caringbridge.org/ne/nicholasb/<http://www3.caringbridge.org/n\

e/nicholasb/>><http://www3.caringbridge.org/ne/nicholasb/<http://www3.caringbrid\

ge.org/ne/nicholasb/><http://www3.caringbridge.org/ne/nicholasb/<http://www3.car\

ingbridge.org/ne/nicholasb/>>><http://www3.caringbridge.org/ne/nicholasb/<http:/\

/www3.caringbridge.org/ne/nicholasb/><http://www3.caringbridge.org/ne/nicholasb/\

<http://www3.caringbridge.org/ne/nicholasb/>><http://www3.caringbridge.org/ne/ni\

cholasb/<http://www3.caringbridge.org/ne/nicholasb/><http://www3.caringbridge.or\

g/ne/nicholasb/<http://www3.caringbridge.org/ne/nicholasb/>>>>