Re: information for schools

[Guest guest]

Kathleen, I don't have the info for schools, but you can all your

school and ask about a 504 plan and who the 504 coordinator is. All

school districts are to have one, and not all do. A 504 plan is for

people with disabilities and it is federal law to make accommodations..

I think it was an 's mom who has one for her. I don't remember who

that is on this group, but this is something that I am working on for

. is on IDEA part C right now and I'm working on

transitional planning now as we move into section B of IDEA.

probably won't qualify for anything as he doesn't have delays..But that

is what the 504's are for. Anyway, that's a little bit of info. Hope it

helps.

, age 2 cyclic neutropenia, igg def, subclass 3 def, severe

secretory igA deficiency..blah, blah blah

information for schools

does anyone have any information regarding PID for elemenatary

schools.. for teachers and principals re: what it is etc.. and does

anyone with school age childre, how do you manage outbreaks in your

healthy childs classroom,( and bringing home flu, gastritis) . last

year we just pulled my older daughter out of school if there was an

epidemic.. which there was of the stomach flu// what documentation

do I need...kathleen mom to conan

This forum is open to parents and caregivers of children diagnosed with

a Primary Immune Deficiency. Opinions or medical advice stated here are

the sole responsibility of the poster and should not be taken as

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[Guest guest]

WOW what a good question! If anyone gets this type of information

please pass it on to me too, if you don't post it up here. I will

make copies and give it to the Directors at my child's preschool,

what a help this would be to us all.

>

> does anyone have any information regarding PID for elemenatary

> schools.. for teachers and principals re: what it is etc.. and does

> anyone with school age childre, how do you manage outbreaks in your

> healthy childs classroom,( and bringing home flu, gastritis) .

last

> year we just pulled my older daughter out of school if there was an

> epidemic.. which there was of the stomach flu// what documentation

> do I need...kathleen mom to conan

[Guest guest]

Hi Kathleen,

I give the school a copy of the IDF patient handbook with 's illness

highlighted as well as the treatment pages etc. I also have one for each new

teacher to read along with the " A Day in the Life " video, this year I also had

the Bayer video as well. I always have a meeting with the Principal, new teacher

before the school year ends to just talk and let her/him know what to expect(

ie; more than normal absences, keeping the classroom clean, letting me know if

someone in the class is sick etc). I also have a good relationship with the

school nurse and she keeps in touch with me on things I need to know. I also

meet with the teacher just before school starts to see if she has any questions

for me. We also have under a 504 plan for accommodations and we all

meet about that each year as well. We did pull out of school for the

flu outbreak we had last year, here it was bad!, they sent tutors to the house

to keep her up. The school nurse, principal and I talked about flu season ahead

of time and we all decided to pull her if it got into the school. The nurse kept

watch of the sick calls and even called parents when kids were just labeled sick

to see what they had. They called me to come get and take her home when

it hit our school. You can get a note from your ped to pull your child for any

serious contagious disease. Hope that helps.

mom to - CVID, asthma, GERD

information for schools

does anyone have any information regarding PID for elemenatary

schools.. for teachers and principals re: what it is etc.. and does

anyone with school age childre, how do you manage outbreaks in your

healthy childs classroom,( and bringing home flu, gastritis) . last

year we just pulled my older daughter out of school if there was an

epidemic.. which there was of the stomach flu// what documentation

do I need...kathleen mom to conan

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe

-unsubscribe@groups<mailto:-unsubscribe@groups>.

To search group archives go to:

/messages<PedP\

ID/messages>

[Guest guest]

, where do you get the videos??? Are they from the IDF?? Let me

know. Thanks.

Re: information for schools

Hi Kathleen,

I give the school a copy of the IDF patient handbook with 's

illness highlighted as well as the treatment pages etc. I also have one

for each new teacher to read along with the " A Day in the Life " video,

this year I also had the Bayer video as well. I always have a meeting

with the Principal, new teacher before the school year ends to just talk

and let her/him know what to expect( ie; more than normal absences,

keeping the classroom clean, letting me know if someone in the class is

sick etc). I also have a good relationship with the school nurse and she

keeps in touch with me on things I need to know. I also meet with the

teacher just before school starts to see if she has any questions for

me. We also have under a 504 plan for accommodations and we all

meet about that each year as well. We did pull out of school

for the flu outbreak we had last year, here it was bad!, they sent

tutors to the house to keep her up. The school nurse, principal and I

talked about flu season ahead of time and we all decided to pull her if

it got into the school. The nurse kept watch of the sick calls and even

called parents when kids were just labeled sick to see what they had.

They called me to come get and take her home when it hit our

school. You can get a note from your ped to pull your child for any

serious contagious disease. Hope that helps.

mom to - CVID, asthma, GERD

information for schools

does anyone have any information regarding PID for elemenatary

schools.. for teachers and principals re: what it is etc.. and does

anyone with school age childre, how do you manage outbreaks in your

healthy childs classroom,( and bringing home flu, gastritis) . last

year we just pulled my older daughter out of school if there was an

epidemic.. which there was of the stomach flu// what documentation

do I need...kathleen mom to conan

This forum is open to parents and caregivers of children diagnosed

with a Primary Immune Deficiency. Opinions or medical advice stated

here are the sole responsibility of the poster and should not be taken

as professional advice.

To unsubscribe

-unsubscribe@groups<mailto:-unsubscribe@groups>.

To search group archives go to:

/messages<gr

oup//messages>

[Guest guest]

> , where do you get the videos??? Are they from the IDF?? Let

me

> know. Thanks.

>

>

>

> Re: information for schools

>

>

lisa thanks I will also give them a copy of handbook, etc.. etc..

>

> Hi Kathleen,

> I give the school a copy of the IDF patient handbook with

's

> illness highlighted as well as the treatment pages etc. I also

have one

> for each new teacher to read along with the " A Day in the Life "

video,

> this year I also had the Bayer video as well. I always have a

meeting

> with the Principal, new teacher before the school year ends to

just talk

> and let her/him know what to expect( ie; more than normal absences,

> keeping the classroom clean, letting me know if someone in the

class is

> sick etc). I also have a good relationship with the school nurse

and she

> keeps in touch with me on things I need to know. I also meet with

the

> teacher just before school starts to see if she has any questions

for

> me. We also have under a 504 plan for accommodations and

we all

> meet about that each year as well. We did pull out of

school

> for the flu outbreak we had last year, here it was bad!, they sent

> tutors to the house to keep her up. The school nurse, principal

and I

> talked about flu season ahead of time and we all decided to pull

her if

> it got into the school. The nurse kept watch of the sick calls and

even

> called parents when kids were just labeled sick to see what they

had.

> They called me to come get and take her home when it hit

our

> school. You can get a note from your ped to pull your child for any

> serious contagious disease. Hope that helps.

> mom to - CVID, asthma, GERD

> information for schools

>

>

>

>

> does anyone have any information regarding PID for elemenatary

> schools.. for teachers and principals re: what it is etc.. and

does

> anyone with school age childre, how do you manage outbreaks in

your

> healthy childs classroom,( and bringing home flu, gastritis) .

last

> year we just pulled my older daughter out of school if there was

an

> epidemic.. which there was of the stomach flu// what

documentation

> do I need...kathleen mom to conan

>

>

>

>

>

>

> This forum is open to parents and caregivers of children

diagnosed

> with a Primary Immune Deficiency. Opinions or medical advice

stated

> here are the sole responsibility of the poster and should not be

taken

> as professional advice.

>

> To unsubscribe

> -unsubscribe@groups<mailto:-

unsubscribe@groups>.

> To search group archives go to:

>

/messages<http://

/gr

> oup//messages>

>