RE: Update on results/

[Guest guest]

Update on results/

Just talked with Dr. K from Univ of Mn. Some of the results are

back, but not all. His t cell function tests are normal. Good

news. Still awaiting the NK function tests which probable won't be

back until Christmas. His IGA is down to 16 now, from 23. Wants to

repeat the immunoglobins in January so we are > 3 months from his

IVIG and see what that plays out. He is leaning towards IGA

deficiency, even though he isn't quite low enough to truly say

this. Also with my hubby being insulin dep diabetic and that is an

autoimmune disease, it coorelates with the iga deficiency. His plan

is to wait for the rest of the labs from cincinatti and the cyclic

neutropenia genetic testing from GeneDX. Once that is done, recheck

the immunoglobins, and then possibly proceed with IVIG treatment

every 3-4 weeks.....I don't know if that is the right response or

not. has seemed better, but we have had a conjunctivitis and

croup in the last month, so I guess he is still having some minor

infections even on the prophylactic antibiotics. The mouth sores

still happen, but don't seem to be as bad right now....his activity

has been better the last week....is that because he is off the

acyclovir, or because we started pediasure and he asks for that 3

times a day and is actually getting some better nutrition????

Anyway, I need a nap, worked last night and haven't slept yet.

Wishing you all a very Merry Christmas and Happy New year. The best

present for me, would have been some clear cut answers for ,

but i think we are on the right road, with the right doctors who are

working closely with my ped. THanks for the support.

This forum is open to parents and caregivers of children diagnosed with

a Primary Immune Deficiency. Opinions or medical advice stated here are

the sole responsibility of the poster and should not be taken as

professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to:

/messages