Guest guest Posted August 28, 2004 Report Share Posted August 28, 2004 I have a question, maybe some of the nurses on this site can help me...My family and I want to start donating blood regularly. I understand I need to make arrangements to donate Plasma. Is that what I want to donate for IVIG production or do I donate whole blood for IVIG. I may be able to donate both, but I believe the IVIG comes from plasma. I am not sure if that is a separate donation, or do they separate it from a whole blood donation??? I recently had a new friend ask me, " OH, I guess you must donate blood regularly due to your sons condition and treatment needed. I felt pretty awful saying, no - actually I don't. So now I'm going to... Thanks! Kim (Mom to CVID) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2004 Report Share Posted August 28, 2004 don't worry about feeling guilty. Actually plasma is the source of IVIG and from what I've been told donating whole blood actually produces very little IgG. So the plasma centers are the ones that provide much of the product needed to produce the different brands. To me though considering how many of these patients have to have surgery and how sometimes you need blood given during surgery it can't hurt to encourage people to donate blood. It's just better touted as needed for their " disease " than for their " treatment " . Ursula Holleman mom to (11 yrs old) and Macey (9 yr. old with CVID, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 Hi Kim, I saw your post on blood donations. What you need to do is find out if there is a apheresis center near you, they are the centers that take out the plasma versus whole blood. With plasma donation you can donate several times a week ( I believe) instead of once in 3 months. It takes longer to donate than a regular donation, but they only take the plasma. I am in the process of writing a letter about , an update really, since her new diagnosis, and asking friends and family to think about donating either way, whole blood or plasma. It can only help if they can do it, I feel one person can make a difference, it is a start anyway. We are in the process of finding an apheresis center here, upstate NY to start donating as well. I hope is healthy now. Don't worry about not donating yourself, we Mom's have so much to do and on our minds trying to keep our kids healthy and happy, we don't always have time for anything else. We just do the best we can. Take care. mom to - CVID, GERD, asthma Blood Donation Question I have a question, maybe some of the nurses on this site can help me...My family and I want to start donating blood regularly. I understand I need to make arrangements to donate Plasma. Is that what I want to donate for IVIG production or do I donate whole blood for IVIG. I may be able to donate both, but I believe the IVIG comes from plasma. I am not sure if that is a separate donation, or do they separate it from a whole blood donation??? I recently had a new friend ask me, " OH, I guess you must donate blood regularly due to your sons condition and treatment needed. I felt pretty awful saying, no - actually I don't. So now I'm going to... Thanks! Kim (Mom to CVID) This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribe@groups<mailto:-unsubscribe@groups>. To search group archives go to: /messages<PedP\ ID/messages> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 , Thanks for the info. I will be calling the local red cross Monday to see what is available in my area. I do believe one person can make a difference and I hope to rally some of my friends and family to do the same. It is very easy to put things off because we are so busy...but when I stop and think how important IVIG is to these kids, (life or death to many of them) it's worth the effort to keep our kids and others healthy! Hope your daughter is doing well and thanks again. Kim (Mom to -CVID) Blood Donation Question > > > I have a question, maybe some of the nurses on this site can > help > me...My family and I want to start donating blood regularly. I > understand I need to make arrangements to donate Plasma. Is > that > what I want to donate for IVIG production or do I donate whole > blood > for IVIG. I may be able to donate both, but I believe the IVIG > comes from plasma. I am not sure if that is a separate > donation, or > do they separate it from a whole blood donation??? > > I recently had a new friend ask me, " OH, I guess you must donate > blood regularly due to your sons condition and treatment needed. > I > felt pretty awful saying, no - actually I don't. So now I'm > going > to... > > Thanks! > > Kim (Mom to CVID) > > > > > This forum is open to parents and caregivers of children > diagnosed with a Primary Immune Deficiency. Opinions or medical > advice stated here are the sole responsibility of the poster and > should not be taken as professional advice. > > To unsubscribe -unsubscribe@groups<- > unsubscribe@groups>. To search group archives go to: > /messages<PedP\ ID/messages> > Quote Link to comment Share on other sites More sharing options...
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