Re: IgA Kids Smaller?

September 6, 2004

In a message dated 9/6/2004 11:55:07 PM Eastern Daylight Time,

ercokat@... writes:

Are other IgA Deficient kids (or Pid kids in general) small? is 4, and

she is so small. Other kids her age are taller and so much bigger.

Brittany is tall enough but she is VERY thin. She also has the dark circles,

like we talked about. She is 13 weighs 85lbs. The other kids her age are all

over 100lbs. Her feet are big she wears a 8 1/2 shoe. I hope with the IVIG

treatments she will put on weight. We go for number 5 this Thursday.

Janet, mom to Brittany, CVID, age 13

September 6, 2004

:

is a very picky eater, too. She's somewhat tall (can't explain that

because I'm 5'4 " and DH is 5'7 " ) and just a little slim but not too much.

Because

she's so picky, I've had to be creative. I am always throwing things in to

try to round out her diet. I make homemade muffins (it's easier than it sounds)

and sneak in things that she normally wouldn't touch with a ten foot pole

(like zuchini), but you can't get too much in or it's obvious. A favorite

breakfast is slices of apple she can dip in peanut butter, with a Silk soy

smoothie to

drink.

She likes chicken noodle soup so now I make it with a lot of vegetables in

the stock (but not in the soup, Heaven forbid!), hoping some vitamins get

through.

I give her a couple choices at lunch and dinner but if she doesn't like what

we are eating for dinner (most likely!), I tell her she has to try a bite of

everything and after that her only option is fruit. She won't eat any vegetable

(not even corn or potatoes!), so fruit is the only completely healthy thing

she eats. I make sure she has a protein (cheese, eggs or chicken, she doesn't

like beef or pork) at every meal.

We used to have a bad habit of giving her a whole cup of soy milk with dinner

(my kids can't tolerate cow's milk to drink), and she'd wolf the whole thing

first and have no appetite for food. She has always grown well though! Now I

give her water with dinner and she eats better, but still is so picky. We used

to let her just pick at her dinner and then have a snack later, but my SIL

never let her kids eat after dinner, in order to make them eat better at dinner

time (worked for her). So now after dinner the " kitchen is closed " but fruit is

always allowed, any time during waking hours.

I try my best on the real food and hope vitamins fill in some of the blanks.

My kids love Flintstones Complete vitamins, they think it tastes like candy!

Most of all though, I try not to make an issue of it. I do my best and try to

get as many wholesome things in as I can, but then I try to let it go. I hope

some day my example may rub off, because I like pretty much every food on the

planet including 99% of the vegetables. So I try to set a good example,

though since the only vegetables DH eats are corn, potatoes, celery, carrots and

onion, he's not exactly helping me!

(mom to , age 5-1/2, dairy intolerant-related GERD -- currently

has polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs... and also to Kate, born 9/19/02, dairy intolerant)

September 7, 2004

Nick is tall and thin for his age. He is 20 months and 24 lbs but 34 inches

tall. He is also still on formula to help gain weight. I am 5'4 and my husband

is 5'9. My other children are very tall and skinny too. Kayla is almost 9 and

barely 50 lbs soaking wet, she is 52 inches and Noah is 5 and 39 lbs and 41 or

42 inches tall. So it may be genetics here. My husband is about 140lbs so they

all might just be taking after him.. unfortunately, I am not as thin as they all

are hehehehe..

Amy, mom to:

, 20 months old. CVID, MSPI, GERD, Asthma.. on Neocate, prevacid,

claritin, flovent, xopenex, and IVIG sub Q every two weeks (Carimune NF)

Re: IgA Kids Smaller?

In a message dated 9/6/2004 11:55:07 PM Eastern Daylight Time,

ercokat@...<mailto:ercokat@...> writes:

Are other IgA Deficient kids (or Pid kids in general) small? is 4, and

she is so small. Other kids her age are taller and so much bigger.

Brittany is tall enough but she is VERY thin. She also has the dark circles,

like we talked about. She is 13 weighs 85lbs. The other kids her age are all

over 100lbs. Her feet are big she wears a 8 1/2 shoe. I hope with the IVIG

treatments she will put on weight. We go for number 5 this Thursday.

Janet, mom to Brittany, CVID, age 13

September 7, 2004

My Rebekah is tall for her age! Go figure! By the time she was diagnosed,

she had stopped growing, but she was a 90th percentile 1yo. At age 2, she

was in the 10th percentile. Now, she is back in the 90th percentile. She

grew inches once we started treatment. She is low in IgA and IgG and has a

complement disorder.

Pam

wife to (17 years)

mother to , 10, Hannah, 8, Rebekah, 5, and Leah, 2

Rebekah has CVID and maybe some other stuff

IgA Kids Smaller?

Hi All -

Just added my 's photo to the bunch! They are all so cute!!!

Are other IgA Deficient kids (or Pid kids in general) small?

September 7, 2004

I have 2 kids on opposite ends of spectrum. My older son is 3 years old and

just resolved Failure to Thrive. he was 19# at 1, 22# at 2 and 28 # at 3,

now 30# at 40 months, and 36 " tall. He had severe food allergies most of

which have resolved and GI issues which are also resolved. He is doing

better now, but still small, and has low IgA amd IgG but not " severe enough "

to treat and rarely gets sick.

My baby is 12 months, 24#, 30 " , low IgA and IgM, does get sick often enough

for me to worry, has severe allergies and GI Issues but is a BIG boy.

So, I think MOST of these immune compromised kiddies are on the smaller side

but my baby is an exception (from all that I have heard).

Mom to:

Hunter, 8/23/03, allergic to milk, soy, egg, wheat, corn, rice, oat, lamb,

turkey, ham, veal, beef, banana, pear, squash (and maybe more?!); EG, EC,

colon nodules, eczema, reflux, IgA and IgM deficient; on Elecare only (and

Prevacid 30mg, 4mg Singulair & 1 tsp. Zyrtec daily)

*and* Tyler, 5/6/01, allergic to milk and fish; outgrew soy and egg; Low IgA

and IgG; EAs to trees, grass, mold, dogs; asthma

" My sons are my greatest accomplishment and the opportunity to raise them is

my greatest challenge "

" Mothers of sons work from son up to son down! "

IgA Kids Smaller?

>

> Hi All -

>

> Just added my 's photo to the bunch! They are all so cute!!!

>

> Are other IgA Deficient kids (or Pid kids in general) small?

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

> To unsubscribe -unsubscribegroups (DOT)

> To search group archives go to:

/messages

>

September 8, 2004

Hi ,

Just saw your post, is 9 and is 52 lbs and 50 inches, she is and has

been one of the smallest kids in her grade throughout school. I have watched all

her friends outgrow her. To think of it she is smaller than her cousins as

well, even the ones who are a year or two younger. Most of them are 1/2 to a

full head taller and all outweigh her. She doesn't like food, well that is if it

isn't pbj or chicken nuggets. But she has a lot of stomach pain and reflux. She

is on a supplement to augment her calories. I think these kids bodies are

fighting so much infection they don't take in enough calories to grow as well.

Well that is my 2 cents.

mom to - CVID, GERD, asthma

IgA Kids Smaller?

Hi All -

Just added my 's photo to the bunch! They are all so cute!!!

Are other IgA Deficient kids (or Pid kids in general) small? is 4, and

she is so small. Other kids her age are taller and so much bigger. I haven't

measured her height recently, but she only weighs 32 pounds. Other kids her age

are a good 8 lbs or more than that, and seem to tower over her. In April they

said she was in the 35th percentile .. I think it was the same for height and

weight ... but all of her friends are so much bigger. She doesn't eat well ...

just really isn't very interested in food (except junk food). My husband is

tall (6' 3 " , and I am 5' 6 " ), so we're not sure why she is so little.

My 6 yr old son (isn't IgA Deficient) is a little short for his age (no pun

intended there!), but he isn't skinny.

also has those terrible dark circles all the time. I think we discussed

that within the last couple of months.

How do I get her to eat better? Think I could get her bigger, or is she small

because of the immune issues and having infections all the time?

, Mom to , 4, asthma, IgA Deficient, chronic ear/sinus infections

September 8, 2004

Pam, A quick ?, I saw you said your daughter had a port? We are considering one

for , if her last IVIG is any peek into the future, it will come sooner

than later. The nurses blew her first IV last week, so it took 1/2 hour to calm

her down enough to even let them look for another site, than 4 people to hold

her down for the second stick. This is with Valium on board. She gets so

distraught, she cried with me cuddling her for an hour afterwards. We both shed

some tears. I don't think I can go through many more times like that, let alone

her. Any help would be appreciated. I don't really know much about ports

etc.Thanks

mom to - CVID, GERD, asthma

IgA Kids Smaller?

Hi All -

Just added my 's photo to the bunch! They are all so cute!!!

Are other IgA Deficient kids (or Pid kids in general) small?

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe

-unsubscribe@groups<mailto:-unsubscribe@groups>.

To search group archives go to:

/messages<PedP\

ID/messages>

September 9, 2004

It funny you asked this question, because I have wondered it myself all along.

is 8 (CVID) he is only about 48 pounds and about 46 inches tall. My 5

year old is the same size and weighs more. He is only in the 5th percentile.

To complicate things, he has ADHD and is on Ritalin (which can cut his appetite

and long term use can affect your overall adult height by about 1 inch. ) Well,

his Dr. says, " What's one inch? " Well, that one inch might matter for him as a

male adult.

Anyway, I think there is a connection. My two other (healthy) children are big

for their age and is tiny. My Drs. won't say it's related, but I think

so.

Kim - Mom to 8 (CVID, ADHD); Nick, 10 and 5

IgA Kids Smaller?

> Hi All -

>

> Just added my 's photo to the bunch! They are all so cute!!!

>

> Are other IgA Deficient kids (or Pid kids in general) small?

> is 4, and she is so small. Other kids her age are taller and so

> much bigger. I haven't measured her height recently, but she only

> weighs 32 pounds. Other kids her age are a good 8 lbs or more

> than that, and seem to tower over her. In April they said she was

> in the 35th percentile ... I think it was the same for height and

> weight ... but all of her friends are so much bigger. She doesn't

> eat well ... just really isn't very interested in food (except

> junk food). My husband is tall (6' 3 " , and I am 5' 6 " ), so we're

> not sure why she is so little.

>

> My 6 yr old son (isn't IgA Deficient) is a little short for his

> age (no pun intended there!), but he isn't skinny.

>

> also has those terrible dark circles all the time. I think

> we discussed that within the last couple of months.

>

> How do I get her to eat better? Think I could get her bigger, or

> is she small because of the immune issues and having infections

> all the time?

>

> , Mom to , 4, asthma, IgA Deficient, chronic ear/sinus

> infections

>

September 9, 2004

Hi

I am so glad you asked this question. I have wondered it myself for quite a

while. is 8 with CVID. He is about 48 pounds and about 46 inches tall

and in the 5th percentile. My 5 yr. old daughter is the same height and weighs

more. To complicate matters, he is on Ritalin for ADHD which can affect your

appetite and long term, can shorten your overall height by about 1 inch. (Which

matters more for boys, I think.)

Anyway, my Drs. say there is probably no connection, but I think there must be.

I have three kids and the other two are big for their age and is the total

opposite. People that don't know us, think is younger than my 5 yr. old

(and think my 5 year old is older...)

Kim - Mom to 8 (CVID, ADHD); Nick, 10 and , 5