Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 We go a day either way. That is the advantage of SubQ, we control it, not the disease controlling us! From: beckymcclure825@... Date: Sun, 23 Aug 2009 21:13:06 -0400 Subject: question about sub-q When we started Maddie's sub-q infusions in June, we had to start on Monday because that was when home health could get here- My question is-now that school has started it would be much easier to do the infusion on Sunday evening-Mondays are very homework and activity heavy. We live in a rural area and although sub-q is portable-what middle school girls wants to go to a football game with all that stuff-and it is hard to find a place to take it all out and be sanitary etc. Would it cause a problem to switch to Sunday's? I have been swamped at work so have not had time to check with our dr-but since Maddie was one of his first that he actually prescribed sub-q for he does not always have the answers- Thanks-Becky in IN-mom to Maddie-age 13, cvid, asthma, gerd...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 You have a 3 day window on either side in which to infuse but once you infuse it restarts the 7 day clock. So if you infuse on Mondays you could infuse as early as Friday or as late as Wednesday and still be fine. question about sub-q > When we started Maddie's sub-q infusions in June, we had to start on > Monday because that was when home health could get here- > > My question is-now that school has started it would be much easier to do > the infusion on Sunday evening-Mondays are very homework and activity > heavy. We live in a rural area and although sub-q is portable-what middle > school girls wants to go to a football game with all that stuff-and it is > hard to find a place to take it all out and be sanitary etc. > > Would it cause a problem to switch to Sunday's? I have been swamped at > work so have not had time to check with our dr-but since Maddie was one of > his first that he actually prescribed sub-q for he does not always have > the answers- > > Thanks-Becky in IN-mom to Maddie-age 13, cvid, asthma, gerd...... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 In the 5 years she has done it we've fudged several days in either direction. Depends on her schedule. If something grueling is coming up or she's going to holed up with a bunch of kids in a confined space (band bus to an away game) then we'll bump it up and do it early. If she's off for the weekend with friends and gets home and has a busy start to her week it might be midweek before we infuse. Macey's most recent trough is 1109. I'm not saying everyone has the leway that we have to do this but her levels are pretty established by now that we know the signs of needing it early or being able to judge when she can put it off. Ursula - mom to (16) and Macey (CVID, 14) > > You have a 3 day window on either side in which to infuse but once you > infuse it restarts the 7 day clock. So if you infuse on Mondays you could > infuse as early as Friday or as late as Wednesday and still be fine. > > > > question about sub-q > > > > When we started Maddie's sub-q infusions in June, we had to start on > > Monday because that was when home health could get here- > > > > My question is-now that school has started it would be much easier to do > > the infusion on Sunday evening-Mondays are very homework and activity > > heavy. We live in a rural area and although sub-q is portable-what middle > > school girls wants to go to a football game with all that stuff-and it is > > hard to find a place to take it all out and be sanitary etc. > > > > Would it cause a problem to switch to Sunday's? I have been swamped at > > work so have not had time to check with our dr-but since Maddie was one of > > his first that he actually prescribed sub-q for he does not always have > > the answers- > > > > Thanks-Becky in IN-mom to Maddie-age 13, cvid, asthma, gerd...... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 In the 5 years she has done it we've fudged several days in either direction. Depends on her schedule. If something grueling is coming up or she's going to holed up with a bunch of kids in a confined space (band bus to an away game) then we'll bump it up and do it early. If she's off for the weekend with friends and gets home and has a busy start to her week it might be midweek before we infuse. Macey's most recent trough is 1109. I'm not saying everyone has the leway that we have to do this but her levels are pretty established by now that we know the signs of needing it early or being able to judge when she can put it off. Ursula - mom to (16) and Macey (CVID, 14) > > You have a 3 day window on either side in which to infuse but once you > infuse it restarts the 7 day clock. So if you infuse on Mondays you could > infuse as early as Friday or as late as Wednesday and still be fine. > > > > question about sub-q > > > > When we started Maddie's sub-q infusions in June, we had to start on > > Monday because that was when home health could get here- > > > > My question is-now that school has started it would be much easier to do > > the infusion on Sunday evening-Mondays are very homework and activity > > heavy. We live in a rural area and although sub-q is portable-what middle > > school girls wants to go to a football game with all that stuff-and it is > > hard to find a place to take it all out and be sanitary etc. > > > > Would it cause a problem to switch to Sunday's? I have been swamped at > > work so have not had time to check with our dr-but since Maddie was one of > > his first that he actually prescribed sub-q for he does not always have > > the answers- > > > > Thanks-Becky in IN-mom to Maddie-age 13, cvid, asthma, gerd...... > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.