Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Can anyone tell me why the doc's want james on antibiotics 48 hours before they do his IVIG on Friday he is already two day's late as they could not fit him in on Wednesday,they do not do this on a weekend so it would be Friday before they could do it,i am worried that it is to long between the infusion that he will get really sick,and it will turn to pnuemonia.(he has 3 weekly infusions since december prior to that he was on weekly sub-q)since being on IVIG he has needed 4 lot's of antibiotics. Thanks Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 from Dale, Mom to Katy, CVID, age 19 Pat, the IVIG contains antibodies to a lot of common bugs -- viruses and bacterial. So when you get an infusion of IVIG all those antibodies just start attacking whatever infection they see. That's what causes a lot of flu-like symptoms and fevers and all the other junk that sometimes happens with IVIG (that is not allergy related). So, if has a current infection, it would help for the antibiotics to start treating the infection. That way the IVIG can do it's job without as big of a side-effect on the infection. Does that make sense?. Usually our kids need IVIG plus antibiotics to fight things. The doctor is just hoping that the antibiotic will make the infusion less likely to give him severe fever or flu-like symptoms if he has a current infection. However, a current infection is not cause for not giving the IVIG -- it means they need it badly -- but the antibiotic might make it less of a reaction. Hope that helps. I've been sitting too long. If that's clear as mud -- ask me to explain it better tomorrow. In His service, Dale mipatj wrote: >Can anyone tell me why the doc's want james on antibiotics 48 hours >before they do his IVIG on Friday he is already two day's late as > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Dale Weatherford <dale@...> wrote: from Dale, Mom to Katy, CVID, age 19 Pat, the IVIG contains antibodies to a lot of common bugs -- viruses and bacterial. So when you get an infusion of IVIG all those antibodies just start attacking whatever infection they see. That's what causes a lot of flu-like symptoms and fevers and all the other junk that sometimes happens with IVIG (that is not allergy related). So, if has a current infection, it would help for the antibiotics to start treating the infection. That way the IVIG can do it's job without as big of a side-effect on the infection. Does that make sense?. Usually our kids need IVIG plus antibiotics to fight things. The doctor is just hoping that the antibiotic will make the infusion less likely to give him severe fever or flu-like symptoms if he has a current infection. However, a current infection is not cause for not giving the IVIG -- it means they need it badly -- but the antibiotic might make it less of a reaction. Hope that helps. I've been sitting too long. If that's clear as mud -- ask me to explain it better tomorrow. In His service, Dale Hi Yes i had to read it twice,but then the penny dropped,and yes does get the aches andpains+flu like symptoms as you described. Also the doc's think that he is either not getting enough IVIG or it might need to be done more often,the only thing that concerns me is that his veins might give up,they have at present and for the for see-able future decided not to put a port in as still suffers from too many infections and they fear it might go straight to his port as he has very little or none at all to heamophilus/tetanus toxoid/meningitis/no IgA very low IgM and am still waiting to hear re sub set's IgG,he used to have sub-q but that was really messing his head and had started to regress so i am hoping that is not a root that we have to go down again,at the moment he gets 5grams of Flebogamma(100 mils in total after being mixed) every three weeks . Thankyou Pat mipatj wrote: >Can anyone tell me why the doc's want on antibiotics 48 hours >before they do his IVIG on Friday he is already two day's late as > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 from Dale, Mom to Katy, CVID, age 19 Pat, what we found is that Katy's veins were terrible until she actually began growing and getting healthier -- about 18 months after starting IVIG. Then she has periodically had some trouble, but so far -- after 5 years -- we're still using veins. What I'm reading about sub-Q is that it's better after you have some body fat -- and most of our kids don't qualify!!!! I know Katy was skin and bones. And I have a healthy fear of ports -- they are not for everyone! I'm hoping you can get enough IVIG into him either at 4 weeks or 3 to start him growing and getting stronger. That's the best treatment for veins you can have! Don't forget to push liquids before infusion so that the veins are nice and fat -- and avoid cafeeine and decongestants -- things that shrink the veins and make them fragile. Also, it helps Katy's veins to apply heat just before the needle stick -- that brings the veins up closer to the surface so that nurse can better judge their quality. In His service, Dale >Also the doc's think that he is either not getting enough IVIG or it might need to be done more often,the only thing that concerns me is that his veins might give up,they have at present and for the for see-able future decided not to put a port in as still suffers from too many infections and they fear it might go straight to his port as he has very little or none at all to heamophilus/tetanus toxoid/meningitis/no IgA very low IgM and am still waiting to hear re sub set's IgG,he used to have sub-q but that was really messing his head and had started to regress so i am hoping that is not a root that we have to go down again,at the moment he gets 5grams of Flebogamma(100 mils in total after being mixed) every three weeks . > >Thankyou Pat >mipatj wrote: > > > > Quote Link to comment Share on other sites More sharing options...
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