Re: Re: MB12--side effects; mood swings

[Guest guest]

Hi I would like to jump in here as we had a horrific start to MB12 and I it took us almost 5 months to tweak and get to where my son (and our family) could handle it. I think overemotional and crying are very good things (per Dr. Neubrander) that means that the child is feeling things for the very first time. It is mild in some children but in others (like with us), it can be really extreme. One day my son sat in a corner for almost an hour crying and saying "I just can't take it anymore." I was devastated but Dr. Nuebrander said it was a positive. Another issue is that MB 12 increases the need for zinc in some kids, particularly those with high histamines, plus most ASD kids are low in zinc any way. It is my understanding that some side effects are normal in the first 4-6 months of MB12 and are considered

positive (albeit with a negative twist), including: Hyperness Increased stimming Pinching the mouth and mouthing things (sensation returns to the mouth first; many ASD kids drool because of lack of sensation in their mouth) Overemotional, crying (more rare but hard on families that live through it) That being said, there are many things you can do to really help (and maximize the effectiveness) and the biggest one is zinc; zinc monomethionine is the most absorbable. For some kids (especially those with high histamines), they can not tolerate MB12 without zinc supplementation -- some can get so bad they have really severe outbursts and will start hand biting or attacking themselves (when the behavior had not existed before). The zinc monomethionine resolves the issue. At several DAN conferences they said kids can handle zinc

up to 2 times body weight in mgs daily. I would only do that dose if you have checked the zinc level in the blood plasma to verify that your child is low. My son was 40 pounds and we worked up to 80 mgs of zinc per day, given three times throughout the day. After a while his zinc levels normalized, the mood swings stopped and now we are back down to about 40 mgs per day (my son now weighs 50 pounds). The other things that really help to tolerate MB12 (for those kids having issues) are magnesium sulfate cream (we use Kirkman's), taurine and buffered vitamin C -- Perque is one of the best. My son could not tolerate folinic so we had to switch to folate. Also, many kids can not tolerate TMG + MB12, so we had to stop the TMG as it made him way too hyper (per the DAN, that is very common) and you can try to replace TMG with DMG. Some increased hyperactivity is good but at

some point it goes over the top and the short-term negatives become intolerable side effects. Just my 2 cents and experience. We did work through it and he has made awesome strides including losing a 50% expressive communication delay on MB12. MB12 definitely triggered the mood swings, emotional outbursts and rage, and we found that it was all triggered by an increased need for zinc. We also tested his blood, and it came back positive for high histamines. Since we started treating for it, we also have discovered that he no longer needs Claritin for seasonal allergies (could be a coincidence, but we found it is related). Vera Stan Kurtz <stankurtz@...> wrote: Typically MB12 is good for your mood. Can't say I've seen reports of random crying but I don't see anything in your post that I am personally worried about.Typically there is NOT a healing-regression period with MB12. Alot has to do with finding the right dose.- Stan>> > We gave my son his first injection last night. (He wouldn't cooperate with the nasal spray, so we decided to try this first.) Today wasn't a BAD day, but my son's behavior was unusual. He had a few unexplained bouts of crying (pretty short, but out

of the blue), and he was a little irritable. > > I'd expected hyperactivity--and been frightened of the possibility of aggression--but I hadn't read that MB12 typically causes moodiness. Is what I'm describing common--or likely to be unrelated to the shot? Is there generally an adjustment period--and how long does it last? I've seen lots of info about the Valtrex "healing" period, but not much on B12.> > We know that we have to give this intervention a chance (a couple of months?), but we'd like to know what to watch for. Thanks in advance for any insight!> > >

[Guest guest]

Hi I would like to jump in here as we had a horrific start to MB12 and I it took us almost 5 months to tweak and get to where my son (and our family) could handle it. I think overemotional and crying are very good things (per Dr. Neubrander) that means that the child is feeling things for the very first time. It is mild in some children but in others (like with us), it can be really extreme. One day my son sat in a corner for almost an hour crying and saying "I just can't take it anymore." I was devastated but Dr. Nuebrander said it was a positive. Another issue is that MB 12 increases the need for zinc in some kids, particularly those with high histamines, plus most ASD kids are low in zinc any way. It is my understanding that some side effects are normal in the first 4-6 months of MB12 and are considered

positive (albeit with a negative twist), including: Hyperness Increased stimming Pinching the mouth and mouthing things (sensation returns to the mouth first; many ASD kids drool because of lack of sensation in their mouth) Overemotional, crying (more rare but hard on families that live through it) That being said, there are many things you can do to really help (and maximize the effectiveness) and the biggest one is zinc; zinc monomethionine is the most absorbable. For some kids (especially those with high histamines), they can not tolerate MB12 without zinc supplementation -- some can get so bad they have really severe outbursts and will start hand biting or attacking themselves (when the behavior had not existed before). The zinc monomethionine resolves the issue. At several DAN conferences they said kids can handle zinc

up to 2 times body weight in mgs daily. I would only do that dose if you have checked the zinc level in the blood plasma to verify that your child is low. My son was 40 pounds and we worked up to 80 mgs of zinc per day, given three times throughout the day. After a while his zinc levels normalized, the mood swings stopped and now we are back down to about 40 mgs per day (my son now weighs 50 pounds). The other things that really help to tolerate MB12 (for those kids having issues) are magnesium sulfate cream (we use Kirkman's), taurine and buffered vitamin C -- Perque is one of the best. My son could not tolerate folinic so we had to switch to folate. Also, many kids can not tolerate TMG + MB12, so we had to stop the TMG as it made him way too hyper (per the DAN, that is very common) and you can try to replace TMG with DMG. Some increased hyperactivity is good but at

some point it goes over the top and the short-term negatives become intolerable side effects. Just my 2 cents and experience. We did work through it and he has made awesome strides including losing a 50% expressive communication delay on MB12. MB12 definitely triggered the mood swings, emotional outbursts and rage, and we found that it was all triggered by an increased need for zinc. We also tested his blood, and it came back positive for high histamines. Since we started treating for it, we also have discovered that he no longer needs Claritin for seasonal allergies (could be a coincidence, but we found it is related). Vera Stan Kurtz <stankurtz@...> wrote: Typically MB12 is good for your mood. Can't say I've seen reports of random crying but I don't see anything in your post that I am personally worried about.Typically there is NOT a healing-regression period with MB12. Alot has to do with finding the right dose.- Stan>> > We gave my son his first injection last night. (He wouldn't cooperate with the nasal spray, so we decided to try this first.) Today wasn't a BAD day, but my son's behavior was unusual. He had a few unexplained bouts of crying (pretty short, but out

of the blue), and he was a little irritable. > > I'd expected hyperactivity--and been frightened of the possibility of aggression--but I hadn't read that MB12 typically causes moodiness. Is what I'm describing common--or likely to be unrelated to the shot? Is there generally an adjustment period--and how long does it last? I've seen lots of info about the Valtrex "healing" period, but not much on B12.> > We know that we have to give this intervention a chance (a couple of months?), but we'd like to know what to watch for. Thanks in advance for any insight!> > >