Just hit a bump in the road hoping its not a roadblock

[Guest guest]

My son was given a dx by a marriage and family therapist of Asperger's

because according to the tests, I answered yes to pretty much all the

questions. Plus he didn't click with her and showed him how he behaves

when he has a meltdown. Plus he toe walks and has poor motor skills.

Today he was seen by a psychiatrist for further evaluations. My son

was having a good day and liked the man. But this Dr. doesn't like to

label at such an early age and since he doesn't hand flap and can look

him in the eye for brief amounts of time he just can't have

Asperger's...also because he has some of his parents and uncle's

tendencies we could have just rubbed off some of our behaviors on

him.WHAT?? I'm pretty sure asperger's is a genetic trait...And because

he toe walks he could become a really good athlete.Ummm All this from

a Dr. who says he has 30 asperger's patients.

The hardest part is the school pscychologist is waiting for this Dr.'s

dx so the school doesn't duplicate any testing. Now my only hope is

the local Regional Centers evaluation...that is if they ever stop

having temps call me to ask questions and actually schedule a meeting.

Any suggestions?

[Guest guest]

Do you live in Southern California? If so, what was the doctor's

name. I had a worthless doctor that said my son couldn't be autistic

because he was non-violent. Give me a break! When regional center

saw him a month later, they said he was most definately autistic.

Yes, my autistic son does flap his arms but my oldest son and I am

aspergers and we never flapped our arms. I toe walked (because I

wanted to be a ballerina) but am way too uncoordinated to be an

athlete. My 5 year old toe walks but he is not on the spectrum.

Both my autistic and asperger sons never toe walked. My autistic son

would not look us in the eye whatsoever when he was first diagnosed

but after about a week on the GFCF diet, he no longer had difficulty

with eye contact. I can look at someone in the eye but if it is too

long or in certain situations, it gets uncomfortable. My asperger

son is similar to me in this respect.

I have 5 kids with two on the spectrum. Those that are neurotypical

have not picked up behaviours from their brothers on the spectrum.

My 5 year old will sometimes copy them but it will accompany laughter

while he will point out who he is pretending to be. I did have a

hard time potty training him to where he would say his older brother

doesn't use the potty so why do I. It was very obvious though that

this was an excuse to be lazy. To say behaviours have rubbed off is

ridiculous.

Autism & aspergers are a combination of symptoms. There is not a

single symptom that all on the spectrum has. If you ever have an

assessment where the doctor says your child could not be on the

spectrum because he does not have _____ symptom, I would not take

anything he says seriously. Hopefully you have better luck with

regional center. I found my son's assessment with them was right on

the money.

>

> My son was given a dx by a marriage and family therapist of

Asperger's

> because according to the tests, I answered yes to pretty much all

the

> questions. Plus he didn't click with her and showed him how he

behaves

> when he has a meltdown. Plus he toe walks and has poor motor skills.

> Today he was seen by a psychiatrist for further evaluations. My son

> was having a good day and liked the man. But this Dr. doesn't like

to

> label at such an early age and since he doesn't hand flap and can

look

> him in the eye for brief amounts of time he just can't have

> Asperger's...also because he has some of his parents and uncle's

> tendencies we could have just rubbed off some of our behaviors on

> him.WHAT?? I'm pretty sure asperger's is a genetic trait...And

because

> he toe walks he could become a really good athlete.Ummm All this

from

> a Dr. who says he has 30 asperger's patients.

> The hardest part is the school pscychologist is waiting for this

Dr.'s

> dx so the school doesn't duplicate any testing. Now my only hope is

> the local Regional Centers evaluation...that is if they ever stop

> having temps call me to ask questions and actually schedule a

meeting.

> Any suggestions?

>

[Guest guest]

the next time a temp calls you tell them you and your child will be in to talk that day,. They are wasting your valuable time with nonsense when you could be getting the services you need for your son. As for the Dr. I don't know what to say. I hade a neurologists tell me that Avery was MR and he did not perform one test on him. So.....anyway make them get into gear. This is your child they are dealing with and you want nothing but the best of everything.

Hope StudentPineville, Louisianamsyogi@...

Just hit a bump in the road hoping its not a roadblock

My son was given a dx by a marriage and family therapist of Asperger's because according to the tests, I answered yes to pretty much all the questions. Plus he didn't click with her and showed him how he behaves when he has a meltdown. Plus he toe walks and has poor motor skills.Today he was seen by a psychiatrist for further evaluations. My son was having a good day and liked the man. But this Dr. doesn't like to label at such an early age and since he doesn't hand flap and can look him in the eye for brief amounts of time he just can't have Asperger's...also because he has some of his parents and uncle's tendencies we could have just rubbed off some of our behaviors on him.WHAT?? I'm pretty sure asperger's is a genetic trait...And because he toe walks he could become a really good athlete.Ummm All this from a Dr. who says he has 30 asperger's patients.The hardest part is the school pscychologist is waiting for this Dr.'s dx so the school doesn't duplicate any testing. Now my only hope is the local Regional Centers evaluation...that is if they ever stop having temps call me to ask questions and actually schedule a meeting.Any suggestions?

[Guest guest]

Hi ,

>>My son was given a dx by a marriage and family therapist of Asperger's

because according to the tests, I answered yes to pretty much all the

questions. Plus he didn't click with her and showed him how he behaves

when he has a meltdown. Plus he toe walks and has poor motor skills.

Today he was seen by a psychiatrist for further evaluations. My son

was having a good day and liked the man. But this Dr. doesn't like to

label at such an early age and since he doesn't hand flap and can look

him in the eye for brief amounts of time he just can't have

Asperger's<<

This man does not know much about ASD then, despite what he claims. All the

evidence says that early intervention is vital, so " labels " MUST be given at

an early age. A child doesn't have to hand flap or completely lack eye

contact to be ASD, my son has never hand flapped but he definitely has that

different brain we call ASD. A proper evaluation would include a lengthy

observation (preferably by more than one person), using one of the protocols

like ADOS or DISCO; a full interview with you, using questionnaires like ADI

or those in Tony Attwood's book; an evaluation by a speech and language

therapist to assess his receptive and expressive language and his receptive

and expressive prosody; and possibly an evaluation by an occupational or

physiotherapist to assess his fine and gross motor control.

>>...also because he has some of his parents and uncle's

tendencies we could have just rubbed off some of our behaviors on

him.WHAT?? I'm pretty sure asperger's is a genetic trait.<<

You are right, it is genetic, so you would expect to see some 'traits' in

other family members. If you look into their childhood histories you would

no doubt find that some or many were like him as a child and probably would

have got the dx themselves.

>>Any suggestions?

Yes, bite the bullet and find someone else to assess him properly.

in England

[Guest guest]

Now my only hope is

> the local Regional Centers evaluation...that is if they ever stop

> having temps call me to ask questions and actually schedule a

meeting.

When you get a meeting with the Regional Center people, make sure you

insist that they do a real evaluation. My daughter has been

classified as having autism by two sources, and the psychologist at

our regional center thought she was too active to do an evaluation,

and just wanted to watch her and talk to me (for about a half hour)

Without any further evaluations on his part he sent me a letter saying

she is not autistic. (I wish I had insisted that he do a formal

evaluation using ADOS or something like that)

[Guest guest]

My daughter Hope is autistic, and he she doesn't hand flap at all. She appears to make eye contact but if you pay attention you will see that she looks off to one side. As our pdoc says, Aspergers kids are the ones that will come over and stand in your space and talk your ear off about train schedules. Autism dx's must have speech delay. You have to get a dx to get services, and interventions along with the IEP in school - it is absolutely crucial. Rowell <nancy@...> wrote: Hi ,>>My son was given a dx by a marriage and family therapist of Asperger'sbecause according to the tests, I answered yes to pretty much all thequestions. Plus he didn't click with her and showed him how he behaveswhen he has a meltdown. Plus he toe walks and has poor motor skills.Today he was seen by a psychiatrist for further evaluations. My sonwas having a good day and liked the man. But this Dr. doesn't like tolabel at such an early age and since he doesn't hand flap and can lookhim in the eye for brief amounts of time he just can't haveAsperger's<<This man does not know much about ASD then, despite what he claims. All the evidence says that early intervention is vital, so "labels" MUST be given at an early age. A child doesn't have to hand flap or completely lack eye contact to be ASD, my son has never hand flapped but he definitely has that different brain we

call ASD. A proper evaluation would include a lengthy observation (preferably by more than one person), using one of the protocols like ADOS or DISCO; a full interview with you, using questionnaires like ADI or those in Tony Attwood's book; an evaluation by a speech and language therapist to assess his receptive and expressive language and his receptive and expressive prosody; and possibly an evaluation by an occupational or physiotherapist to assess his fine and gross motor control.>>...also because he has some of his parents and uncle'stendencies we could have just rubbed off some of our behaviors onhim.WHAT?? I'm pretty sure asperger's is a genetic trait.<<You are right, it is genetic, so you would expect to see some 'traits' in other family members. If you look into their childhood histories you would no doubt find that some or many were like him as a child and probably would have got the dx

themselves.>>Any suggestions?Yes, bite the bullet and find someone else to assess him properly. in England If there are no dogs in Heaven, then when I die I want to go where they wentWill There is no psychiatrist in the world like a puppy licking your face.Ben A dog is the only thing on earth that loves you more than he loveshimself.Josh Billings

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[Guest guest]

On my son’s last neuropsych eval,

the Dr. wrote all through the report how he met the Dx criteria for AS but then

at the end of the report gave him NVLD (WITHOUT A POINT SPREAD) because….in

her own words……”he appears to be considerably more animated

and socially engaged than is typically found in the Asperger’s population”

so he cant possibly be on the spectrum. His OT said she had a HFA boy just

like my son. He now he holds a dual diagnosis because his psychiatrist thought

that was stupid and maintained his medical AS Dx.

Charlotte

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of cubicmonica

Sent: Wednesday, June 21, 2006

8:45 PM

Autism and Aspergers Treatment

Subject: Re:

Just hit a bump in the road hoping its not a roadblock

Do you live in Southern

California? If so, what was the doctor's

name. I had a worthless doctor that said my son couldn't be autistic

because he was non-violent. Give me a break! When regional center

saw him a month later, they said he was most definately autistic.

Yes, my autistic son does flap his arms but my oldest son and I am

aspergers and we never flapped our arms. I toe walked (because I

wanted to be a ballerina) but am way too uncoordinated to be an

athlete. My 5 year old toe walks but he is not on the spectrum.

Both my autistic and asperger sons never toe walked. My autistic son

would not look us in the eye whatsoever when he was first diagnosed

but after about a week on the GFCF diet, he no longer had difficulty

with eye contact. I can look at someone in the eye but if it is too

long or in certain situations, it gets uncomfortable. My asperger

son is similar to me in this respect.

I have 5 kids with two on the spectrum. Those that are neurotypical

have not picked up behaviours from their brothers on the spectrum.

My 5 year old will sometimes copy them but it will accompany laughter

while he will point out who he is pretending to be. I did have a

hard time potty training him to where he would say his older brother

doesn't use the potty so why do I. It was very obvious though that

this was an excuse to be lazy. To say behaviours have rubbed off is

ridiculous.

Autism & aspergers are a combination of symptoms. There is not a

single symptom that all on the spectrum has. If you ever have an

assessment where the doctor says your child could not be on the

spectrum because he does not have _____ symptom, I would not take

anything he says seriously. Hopefully you have better luck with

regional center. I found my son's assessment with them was right on

the money.

>

> My son was given a dx by a marriage and family therapist of

Asperger's

> because according to the tests, I answered yes to pretty much all

the

> questions. Plus he didn't click with her and showed him how he

behaves

> when he has a meltdown. Plus he toe walks and has poor motor skills.

> Today he was seen by a psychiatrist for further evaluations. My son

> was having a good day and liked the man. But this Dr. doesn't like

to

> label at such an early age and since he doesn't hand flap and can

look

> him in the eye for brief amounts of time he just can't have

> Asperger's...also because he has some of his parents and uncle's

> tendencies we could have just rubbed off some of our behaviors on

> him.WHAT?? I'm pretty sure asperger's is a genetic trait...And

because

> he toe walks he could become a really good athlete.Ummm All this

from

> a Dr. who says he has 30 asperger's patients.

> The hardest part is the school pscychologist is waiting for this

Dr.'s

> dx so the school doesn't duplicate any testing. Now my only hope is

> the local Regional Centers evaluation...that is if they ever stop

> having temps call me to ask questions and actually schedule a

meeting.

> Any suggestions?

>

[Guest guest]

As a mom who spent over 10 years trying to get the correct dx for my daughter and we have gone through the list here, I must say, get another opinion, and keep doing it until you are satisfied that whatever the dx they give your son, he is getting the help he needs. I went through psychiatrists, psychologists, clinical social workers, and therapists. We started with an ADHD dx and then to ODD, depression, bi polar, mood disorder nos, OCD and now AS with ADHD, ODD and mood disorder nos. (that last one I say can describe pretty much any teenager lol) but I digress. I really feel that we have the correct dx now and it was like a lightbulb going on. "YES, this is it, we can help her now!!" She was 12 and a half at the time of this diagnosis. We are coming up on a year. She takes Adderall XR and Namenda (that is actually an Alzheimers drug they are using on AS kids to help with clarity of thinking and limit obessive behaviors) Our dr here has over 80 AS kids using it. The

best part is, either it helps or it doesn't. There are no side affects with it. ANYWAY, the point is, as a mom, you know your child best. If you feel the dx is correct and he is being helped. Go with it. If not, keep fighting, I really wish she had been diagnosed correctly earlier, it is very hard to get a rigid teenager to accept something new like this, she has major denial and does not think she should take meds so the rest of the world can get along with her. Then factor in puberty....... PMS and AS DO NOT go together in her case. OH well, as I said, do what feels right, even if the whole world is against you. (or it seems that way) Who else will advocate for your child if you do not. Good luck and God Bless! DeeDee <tyris620@...> wrote: My son was given a dx by a marriage and family therapist of Asperger's because according to the tests, I answered yes to pretty much all the questions. Plus he didn't click with her and showed him how he behaves when he has a meltdown. Plus he toe walks and has poor motor skills.Today he was seen by a psychiatrist for further evaluations. My son was having a good day and liked the man. But this Dr. doesn't like to label at such an early age and since he doesn't hand flap and can look him in the eye for brief amounts of time he just can't have Asperger's...also because he has some of his parents and uncle's tendencies we could have just rubbed off some

of our behaviors on him.WHAT?? I'm pretty sure asperger's is a genetic trait...And because he toe walks he could become a really good athlete.Ummm All this from a Dr. who says he has 30 asperger's patients.The hardest part is the school pscychologist is waiting for this Dr.'s dx so the school doesn't duplicate any testing. Now my only hope is the local Regional Centers evaluation...that is if they ever stop having temps call me to ask questions and actually schedule a meeting.Any suggestions?

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