Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 hi Netty, i know how you feel. i just found out hat my son has autism. they 1st thought i was ADHD. my son is only 4yrs old. i know it can be hard to deal with so much. the best advice that i can tell you is go to the library, go on-line or ask your son doctor more about son mental health. you need to take it easy. you are your son's advocate. try to get as much information about it. once you get all your questions answered you will feel better . i hope my advice help you in some way. if anything you have a friend you can talk to. take care!! New Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Hi Nettie I completely understand how you feel as it was just voiced (not actually dx) that my son has tourettes. He is now 9. He was dx with adhd, odd since 4, then learning dissabillities (non specified). i also found out about 6months ago he has CAPD. The doc and i suspect aspegers although not dx officially. And we recently took my son off night meds as i was certain they were giving him seizures. Too my suprise your son was dx oppossite of what most kids are dx. I've read a lot of children with aspegers are first dx. as adhd. If you find any good sites on Tourettes let me know, although since it's not bad I haven't been too concerned. But when the doc said the word torettes i just waited for my baby to go to bed to cry. i know it's not life threatening, but i'm sure he'll get teaseed and bullied even more. take care dandyliondawn > > Hello Everyone, > > I havn't been on the group for a long time now, due to personal > circumstances, but i have a dilemma and not sure where to start > serching for the best. My son BJ age 9 yrs was diagnosed with > aspergers and semantic pragmatic disorder a few yrs back, now i have > just found out that he hasn't got this at all. Its ADHD and Tourette's > syndrome. I just dont know how to explain to my partner how i feel > about it all because i feel devastated all over again, not sure if > that is possible but i do. I don't even know which is the best site to > start looking at the information about the tourette's. Can anybody out > there advise me PLEASE. > > from a desperate mother > Netty xx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Aspergers actually lists as a SYMPTOM tics - it may be that your doc is a "splitter" rather than a "clumper" - case in point - at one point my 14 yo daughter carrried to following dx's. BP type 1, ADD, ODD, Tourette Syndrome and PTSD. Aspergers in and by itself encompasses all of these symptoms (I was given a book to borrow from my psychiatrist) and it is very clear about it. It is however helpful to have the split dxs as subtypes so that whoever is dealing with your child understand the symptomology as it were. midnightshadow10 <nettysmith10@...> wrote: Hello Everyone,I havn't been on the group for a long time now, due to personal circumstances, but i have a dilemma and not sure where to start serching for the best. My son BJ age 9 yrs was diagnosed with aspergers and semantic pragmatic disorder a few yrs back, now i have just found out that he hasn't got this at all. Its ADHD and Tourette's syndrome. I just dont know how to explain to my partner how i feel about it all because i feel devastated all over again, not sure if that is possible but i do. I don't even know which is the best site to start looking at the information about the tourette's. Can anybody out there advise me PLEASE. from a desperate motherNetty xx http://myspace.com/diegowench New Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Netty, What do you feel in your gut is your son's disability?Depending on the Dr.'s experience & own interest that is what they will diagnose.I have 2 asd kids who also have add & adhd.I have had mulitiple evals to help with the school situation.All evals are slightly different based on the psych,so they attribute symptoms to their area of specialty. A desperate mother > Hello Everyone, > > I havn't been on the group for a long time now, due to personal > circumstances, but i have a dilemma and not sure where to start > serching for the best. My son BJ age 9 yrs was diagnosed with > aspergers and semantic pragmatic disorder a few yrs back, now i have > just found out that he hasn't got this at all. Its ADHD and Tourette's > syndrome. I just dont know how to explain to my partner how i feel > about it all because i feel devastated all over again, not sure if > that is possible but i do. I don't even know which is the best site to > start looking at the information about the tourette's. Can anybody out > there advise me PLEASE. > > from a desperate mother > Netty xx > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 -------Original Message------- From: midnightshadow10 Date: 05/07/06 07:18:40 Hello Everyone, I havn't been on the group for a long time now, due to personal circumstances, but i have a dilemma and not sure where to start serching for the best. My son BJ age 9 yrs was diagnosed with aspergers and semantic pragmatic disorder a few yrs back, now i have just found out that he hasn't got this at all. Its ADHD and Tourette's syndrome. I just dont know how to explain to my partner how i feel about it all because i feel devastated all over again, not sure if that is possible but i do. I don't even know which is the best site to start looking at the information about the tourette's. Can anybody out there advise me PLEASE. from a desperate mother Netty xx ************************ ADHD and Aspergers can occur together. They also have behaviours in common, although maybe the behaviours occur for a different reason in each. How qualified was the person making the diagnosis to rule out Aspergers? Did they check for both, or simply stop when they found something that fitted most of the problems? How much do you trust the previous diagnosis? Riley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Netty At this point i don't really know what dx. my son actually has as he has so many symptoms. he could likely be dx. with 15 different ones. I relate better to parents with kids with aspegers usually over adhd kids. I suppose because my son is so socially awkward. The reason we do need labels is to learn where too find info. The schools need them to help them program. I have heard that adhd may be added to the autism spectrum. They are both neurologically based. dandyliondawn > > Netty, > What do you feel in your gut is your son's disability?Depending on the Dr.'s > experience & own interest that is what they will diagnose.I have 2 asd kids > who also have add & adhd.I have had mulitiple evals to help with the school > situation.All evals are slightly different based on the psych,so they > attribute symptoms to their area of specialty. > A desperate mother > > > > Hello Everyone, > > > > I havn't been on the group for a long time now, due to personal > > circumstances, but i have a dilemma and not sure where to start > > serching for the best. My son BJ age 9 yrs was diagnosed with > > aspergers and semantic pragmatic disorder a few yrs back, now i have > > just found out that he hasn't got this at all. Its ADHD and Tourette's > > syndrome. I just dont know how to explain to my partner how i feel > > about it all because i feel devastated all over again, not sure if > > that is possible but i do. I don't even know which is the best site to > > start looking at the information about the tourette's. Can anybody out > > there advise me PLEASE. > > > > from a desperate mother > > Netty xx > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 >>I was convinced my son had aspergers, he still shows alot of resemblences now but great ormand street said what we have told them it is aspergers but what they've seen on videos its tourettes<< So the most likely thing is that he has ASD and Tourettes. It is very hard to establish where a 'stim' becomes a 'tic' and there is a huge amount of overlap between the two. Different doctors will have different opinions. GOSH are not experts on everything, and you would probably have got different opinions from different doctors there. You might want to seek a referral to the NAS diagnostic service at Elliot House. For now you need to work on getting him the appropriate help at school. It doesn't actually matter what his dx is, or even if he has one, for this because they need to be looking at him as an individual and giving help tailored to him. in England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Focus on him as being a person with ASD and the nervous ticks. First and foremost, he is a human being and person. I hope the MDs are able to find meds that will benefit him. in Minnesota, USA Rowell <nancy@...> wrote: >>I was convinced my son had aspergers, he still shows alot of resemblencesnow but great ormand street said what we have told them it is aspergers butwhat they've seen on videos its tourettes<<So the most likely thing is that he has ASD and Tourettes. It is very hard to establish where a 'stim' becomes a 'tic' and there is a huge amount of overlap between the two. Different doctors will have different opinions. GOSH are not experts on everything, and you would probably have got different opinions from different doctors there. You might want to seek a referral to the NAS diagnostic service at Elliot House.For now you need to work on getting him the appropriate help at school. It doesn't actually matter what his dx is, or even if he has one, for this because they need to be looking at him as an individual and giving help tailored to him. in England How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Absolutely - the book is called, "A Guide to Asperger Syndrome" by Gillberg. This is something that the pdoc got at an Autism Convention.jeanette smith <nettysmith10@...> wrote: hello jennifer,you wouldn't remember the name or author of the book would you?thanks and best wishesnetty xx>From: Jen <diegowench@...>>Reply-Autism and Aspergers Treatment >Autism and Aspergers Treatment >Subject: Re: A desperate mother>Date: Mon, 8 May 2006 16:08:17 -0700 (PDT)>>Aspergers actually lists as a SYMPTOM tics - it may be that your doc is a >"splitter" rather than a "clumper" - case in point - at one point my 14 yo >daughter carrried to following dx's. BP type 1, ADD, ODD, Tourette >Syndrome and PTSD. Aspergers in and by itself encompasses all of these >symptoms (I was given a book to borrow from my psychiatrist) and it is very >clear about it. It is however helpful to have the split dxs as subtypes so >that whoever is dealing with your child understand the symptomology as it >were.>> >>midnightshadow10 <nettysmith10@...> wrote:> Hello Everyone,>>I havn't been on the group for a long time now, due to personal>circumstances, but i have a dilemma and not sure where to start>serching for the best. My son BJ age 9 yrs was diagnosed with>aspergers and semantic pragmatic disorder a few yrs back, now i have>just found out that he hasn't got this at all. Its ADHD and Tourette's>syndrome. I just dont know how to explain to my partner how i feel>about it all because i feel devastated all over again, not sure if>that is possible but i do. I don't even know which is the best site to>start looking at the information about the tourette's. Can anybody out>there advise me PLEASE.>>from a desperate mother>Netty xx>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 In addition to that, there is the Tourette Syndrome Association - I get their newsletter. I did find that my daughters tics subsided greatly over time - in 3rd - 5th grade they were REALLY bad - interfering with her ability to write and so forth, but now you only see them when she is really nervous.jeanette smith <nettysmith10@...> wrote: Hi Dandyliondawn,Thankyou for replying. I see your in the same dilema has myself. At the moment i still haven't cried, because mt partner seems tothink that it's a step forward in knowing whats wrong, but i don't see it like that wished i could.BJ has been fine on his meds so far, so im lucky with that.I will def let you know if i find some tourette web sites that are any good.Take care and best wishes with your stuggle tooNetty xx>From: "dandyliondawn" <ddoherty@...>>Reply-Autism and Aspergers Treatment >Autism and Aspergers Treatment >Subject: Re: A desperate mother>Date: Mon, 08 May 2006 14:47:47 -0000>>Hi Nettie>>I completely understand how you feel as it was just voiced (not>actually dx) that my son has tourettes. He is now 9. He was dx with>adhd, odd since 4, then learning dissabillities (non specified). i>also found out about 6months ago he has CAPD. The doc and i suspect>aspegers although not dx officially. And we recently took my son>off night meds as i was certain they were giving him seizures.>>Too my suprise your son was dx oppossite of what most kids are dx.>I've read a lot of children with aspegers are first dx. as adhd.>>If you find any good sites on Tourettes let me know, although since>it's not bad I haven't been too concerned. But when the doc said the>word torettes i just waited for my baby to go to bed to cry. i know>it's not life threatening, but i'm sure he'll get teaseed and>bullied even more.>>take care>dandyliondawn>>>>>>>>>> >> > Hello Everyone,> >> > I havn't been on the group for a long time now, due to personal> > circumstances, but i have a dilemma and not sure where to start> > serching for the best. My son BJ age 9 yrs was diagnosed with> > aspergers and semantic pragmatic disorder a few yrs back, now i>have> > just found out that he hasn't got this at all. Its ADHD and>Tourette's> > syndrome. I just dont know how to explain to my partner how i feel> > about it all because i feel devastated all over again, not sure if> > that is possible but i do. I don't even know which is the best>site to> > start looking at the information about the tourette's. Can anybody>out> > there advise me PLEASE.> >> > from a desperate mother> > Netty xx> >>>>>> http://myspace.com/diegowench Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 I only found a few books at the library on tourettes and they didnt' look too good, believe me i have read lots of books. I did find a book that i just started but it looks real interesting. It's called " kids in the Syndrome Mix of ADHD,ld,aspeger's,Tourettes, bipolar, and more. by L.kulscher md it also has contributions from Tony Attwood, r. Wolff, and Dr. Rosse green. it explains why all these " dissabillities " are comorbid and mis dx. it looks good. take care dandyliondawn > > > > > > Hello Everyone, > > > > > > I havn't been on the group for a long time now, due to personal > > > circumstances, but i have a dilemma and not sure where to start > > > serching for the best. My son BJ age 9 yrs was diagnosed with > > > aspergers and semantic pragmatic disorder a few yrs back, now i > >have > > > just found out that he hasn't got this at all. Its ADHD and > >Tourette's > > > syndrome. I just dont know how to explain to my partner how i feel > > > about it all because i feel devastated all over again, not sure if > > > that is possible but i do. I don't even know which is the best > >site to > > > start looking at the information about the tourette's. Can anybody > >out > > > there advise me PLEASE. > > > > > > from a desperate mother > > > Netty xx > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Netty I can't remember if I mentioned this book. I'm on chapter 6 and it's explained a few things about the similarities. I really like it it is newer. " kids in the Syndrome mix' of Aspegers, Tourettes, Bipolar, and more. by L. Kutscher md. excellent read, so far dandyliondawn > > Hello > > I was convinced my son had aspergers, he still shows alot of resemblences > now but great ormand street said what we have told them it is aspergers but > what they've seen on videos its tourettes because the school keep saying he > doesnt have a problem then he has etc. > > > > >From: <puresleep1@...> > >Reply-Autism and Aspergers Treatment > ><Autism and Aspergers Treatment > > >Subject: Re: A desperate mother > >Date: Mon, 08 May 2006 19:42:18 -0400 > > > >Netty, > >What do you feel in your gut is your son's disability?Depending on the > >Dr.'s > >experience & own interest that is what they will diagnose.I have 2 asd kids > >who also have add & adhd.I have had mulitiple evals to help with the school > >situation.All evals are slightly different based on the psych,so they > >attribute symptoms to their area of specialty. > > A desperate mother > > > > > > > Hello Everyone, > > > > > > I havn't been on the group for a long time now, due to personal > > > circumstances, but i have a dilemma and not sure where to start > > > serching for the best. My son BJ age 9 yrs was diagnosed with > > > aspergers and semantic pragmatic disorder a few yrs back, now i have > > > just found out that he hasn't got this at all. Its ADHD and Tourette's > > > syndrome. I just dont know how to explain to my partner how i feel > > > about it all because i feel devastated all over again, not sure if > > > that is possible but i do. I don't even know which is the best site to > > > start looking at the information about the tourette's. Can anybody out > > > there advise me PLEASE. > > > > > > from a desperate mother > > > Netty xx > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.