Re: Newbie wanting advice (long)

[Guest guest]

Hi ,

Welcome! It sounds like you're doing a lot of good things. I'm sure you're going to get a lot of good advice here. I notice you mentioned it's time to refill your TD-DMSA script. Are you seeing any positives from it? The reason I ask is because both of my boys, ages 3 and 5, were on it for quite awhile. We really didn't see much of anything behaviorally or in their labs. When I spoke to my DAN about it, she said she was going to recommend changing them to the DMSA suppositories anyway. It seems some DAN docs are feeling that the TD-DMSA is not reaping enough benefits and are switching their patients to the suppositories. It's only 1x/day instead of 3. We like them better and feel we are seeing positives that we didn't on the transdermal. Just our experience. Best of luck!

Dana R.

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of CasselsSent: Friday, August 18, 2006 12:58 PMmb12 valtrex Subject: Newbie wanting advice (long)

Hi everyone!I have been reading the posts for a few weeks and this looks like a great group! I'm excited to become part of it! I have a 10 yr old son dx'd w/aspergers and have been working with a great DAN! doc for about 2 years. We are getting to the point where I have some questions and I hope that a few of these groups that I have joined lately will help me find answers. Here's our story...I am 30 yr old single parent of my son, only child. I was dx'd w/BiPolar and ADHD about 5 years ago. My son was orginally dx'd w/mild-moderate autism at 3 and currently aspergers/ADHD/generalized anxiety. Being a single mom and working 2 jobs, I have avoided the GFCF diet up untill a few mths ago. It is alot of work for a mom that was heavily relying on fast food! We have been GF for a good mth and CF for longer. Our DAN! said we could probably stop worrying to much about CF b/c not seeing any change. At this point not seeing anything with the GF either, but she wants me to give it at least 3 mths and I am willing to do that. When we began with our DAN! doc I saw a HUGE improvement in my son in just a few weeks w/just supplements! I am looking into alot of different things at this point b/c I feel like we have stopped seeing that progress. He did oral DMSA on and off for about a year, but it was too hard on his gut, so switched to transdermal DMSA. Its time to refill that currently, and I'm looking into the NCD as an option also. I did a round of valtrex w/him and saw nothing, but since reading posts I have realized that w/out the yeast meds, I may have been wasting my time. So, our doc is sending a script for Nystatin to go along w/the Valtrex. He's been on diflucan for a while (before the valtrex) and she dosent like to use it too long b/c of the stress on the liver. So, I'm looking into beginning that again soon. When he first began the MB12 nasal spray it was great. Now, I'm not seeing that anymore. I give him 1 puff in each nostril in the am and in the early pm. Could it be too much, b/c I started w/once a day? My main questions are about the actual treatments we are using. I love our DAN! she is awesome, but I feel somtimes like I am left to figure out alot on my own and I am floundering. I unfortunately, do not have as much time as I would like to research on the web. I want to make sure I am supporting him w/everything he needs to do these treatments and I want to look into the nasal spray for myself as well. I am currently taking ritalin and welbutrin and would love to be able to stop. With my son and I both, I feel, the ADHD symptoms tend to wreck the most havoc. I am also looking into trying to find any of the supplements he is taking a bit cheaper, possibly different brands as long as they are good quality. I will list what I currently give him also. Any advice anyone has is greatly appreciated! I found you guys from listening to Stan's podcast and learned alot from it! Thanks for being such great parents and a great group! Current supplements for my son:10yrs and 135 lbsKirkmans cod liver oil 2 in the am and 2 in the pmMetabolic Maintenance by Designs for Health2 in the am and 2 in the pmCal/Mag/Zinc by Metabolic Maintenance2 in the am and 2 in the pmIgG 2000 DF by Xymogen (probiotics)1 in the am 1 in the pmKirkmans Complete DPPIV enzymes 1 w/each mealMB12 nasal spray i puff in each nostril 2 x's dailyclonidine for sleep/zyrtec/singulair at bedtimeHave currently discontinued: valtrex 500 mg 2 x's a daydiflucan 100 mg 1 xdailyDMSAWe have tried other things here and there as well. I'm open to any advice, suggestions, etc. Thanks, in NCPS-the original reason I started valtrex w/my son is b/c about 3 mths before we began w/the DAN! doc he broke out into a rash. the drema said gutate psyrosis (sp?). It will not go away, so I was thinnking maybe viral.?? I'm also wondering If there are some test out there I should have ran on him that I have not? We've only done the basics: urine and stool metals, CBC w/liver panel, testosterone level, and a few others that I cant think of right now. I'm not at home where my paperwork is!

[Guest guest]

Hi ,

Welcome! It sounds like you're doing a lot of good things. I'm sure you're going to get a lot of good advice here. I notice you mentioned it's time to refill your TD-DMSA script. Are you seeing any positives from it? The reason I ask is because both of my boys, ages 3 and 5, were on it for quite awhile. We really didn't see much of anything behaviorally or in their labs. When I spoke to my DAN about it, she said she was going to recommend changing them to the DMSA suppositories anyway. It seems some DAN docs are feeling that the TD-DMSA is not reaping enough benefits and are switching their patients to the suppositories. It's only 1x/day instead of 3. We like them better and feel we are seeing positives that we didn't on the transdermal. Just our experience. Best of luck!

Dana R.

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of CasselsSent: Friday, August 18, 2006 12:58 PMmb12 valtrex Subject: Newbie wanting advice (long)

Hi everyone!I have been reading the posts for a few weeks and this looks like a great group! I'm excited to become part of it! I have a 10 yr old son dx'd w/aspergers and have been working with a great DAN! doc for about 2 years. We are getting to the point where I have some questions and I hope that a few of these groups that I have joined lately will help me find answers. Here's our story...I am 30 yr old single parent of my son, only child. I was dx'd w/BiPolar and ADHD about 5 years ago. My son was orginally dx'd w/mild-moderate autism at 3 and currently aspergers/ADHD/generalized anxiety. Being a single mom and working 2 jobs, I have avoided the GFCF diet up untill a few mths ago. It is alot of work for a mom that was heavily relying on fast food! We have been GF for a good mth and CF for longer. Our DAN! said we could probably stop worrying to much about CF b/c not seeing any change. At this point not seeing anything with the GF either, but she wants me to give it at least 3 mths and I am willing to do that. When we began with our DAN! doc I saw a HUGE improvement in my son in just a few weeks w/just supplements! I am looking into alot of different things at this point b/c I feel like we have stopped seeing that progress. He did oral DMSA on and off for about a year, but it was too hard on his gut, so switched to transdermal DMSA. Its time to refill that currently, and I'm looking into the NCD as an option also. I did a round of valtrex w/him and saw nothing, but since reading posts I have realized that w/out the yeast meds, I may have been wasting my time. So, our doc is sending a script for Nystatin to go along w/the Valtrex. He's been on diflucan for a while (before the valtrex) and she dosent like to use it too long b/c of the stress on the liver. So, I'm looking into beginning that again soon. When he first began the MB12 nasal spray it was great. Now, I'm not seeing that anymore. I give him 1 puff in each nostril in the am and in the early pm. Could it be too much, b/c I started w/once a day? My main questions are about the actual treatments we are using. I love our DAN! she is awesome, but I feel somtimes like I am left to figure out alot on my own and I am floundering. I unfortunately, do not have as much time as I would like to research on the web. I want to make sure I am supporting him w/everything he needs to do these treatments and I want to look into the nasal spray for myself as well. I am currently taking ritalin and welbutrin and would love to be able to stop. With my son and I both, I feel, the ADHD symptoms tend to wreck the most havoc. I am also looking into trying to find any of the supplements he is taking a bit cheaper, possibly different brands as long as they are good quality. I will list what I currently give him also. Any advice anyone has is greatly appreciated! I found you guys from listening to Stan's podcast and learned alot from it! Thanks for being such great parents and a great group! Current supplements for my son:10yrs and 135 lbsKirkmans cod liver oil 2 in the am and 2 in the pmMetabolic Maintenance by Designs for Health2 in the am and 2 in the pmCal/Mag/Zinc by Metabolic Maintenance2 in the am and 2 in the pmIgG 2000 DF by Xymogen (probiotics)1 in the am 1 in the pmKirkmans Complete DPPIV enzymes 1 w/each mealMB12 nasal spray i puff in each nostril 2 x's dailyclonidine for sleep/zyrtec/singulair at bedtimeHave currently discontinued: valtrex 500 mg 2 x's a daydiflucan 100 mg 1 xdailyDMSAWe have tried other things here and there as well. I'm open to any advice, suggestions, etc. Thanks, in NCPS-the original reason I started valtrex w/my son is b/c about 3 mths before we began w/the DAN! doc he broke out into a rash. the drema said gutate psyrosis (sp?). It will not go away, so I was thinnking maybe viral.?? I'm also wondering If there are some test out there I should have ran on him that I have not? We've only done the basics: urine and stool metals, CBC w/liver panel, testosterone level, and a few others that I cant think of right now. I'm not at home where my paperwork is!

[Guest guest]

Hi Dana!

Thanks so much for the welcome! We have only been on the TD-DMSA for

a short period, but I didnt see anything with it or the oral

actually. The only thing the oral really did for him was mess with

his gut. I have been quite surprised at the lack of changes with

anything other than the initial improvements with supplements and

MB12. This is one of the reasons I'm turning for advice, b/c i'm

thinking maybe I'm going about somethings wrong. My son is 10 so I'm

thinking the suppositories would not be an option for him, but would

love for you to keep us up to date on the improvements you are seeing!

Thanks!

RE: Newbie wanting advice (long)

mb12 valtrex

> Hi ,

>

> Welcome! It sounds like you're doing a lot of good things. I'm

> sure you're

> going to get a lot of good advice here. I notice you mentioned

> it's time to

> refill your TD-DMSA script. Are you seeing any positives from it?

> The

> reason I ask is because both of my boys, ages 3 and 5, were on it

> for quite

> awhile. We really didn't see much of anything behaviorally or in

> theirlabs. When I spoke to my DAN about it, she said she was

> going to recommend

> changing them to the DMSA suppositories anyway. It seems some DAN

> docs are

> feeling that the TD-DMSA is not reaping enough benefits and are

> switchingtheir patients to the suppositories. It's only 1x/day

> instead of 3. We

> like them better and feel we are seeing positives that we didn't

> on the

> transdermal. Just our experience. Best of luck!

>

> Dana R.

>

>

>

>

>

[Guest guest]

Hi Dana!

Thanks so much for the welcome! We have only been on the TD-DMSA for

a short period, but I didnt see anything with it or the oral

actually. The only thing the oral really did for him was mess with

his gut. I have been quite surprised at the lack of changes with

anything other than the initial improvements with supplements and

MB12. This is one of the reasons I'm turning for advice, b/c i'm

thinking maybe I'm going about somethings wrong. My son is 10 so I'm

thinking the suppositories would not be an option for him, but would

love for you to keep us up to date on the improvements you are seeing!

Thanks!

RE: Newbie wanting advice (long)

mb12 valtrex

> Hi ,

>

> Welcome! It sounds like you're doing a lot of good things. I'm

> sure you're

> going to get a lot of good advice here. I notice you mentioned

> it's time to

> refill your TD-DMSA script. Are you seeing any positives from it?

> The

> reason I ask is because both of my boys, ages 3 and 5, were on it

> for quite

> awhile. We really didn't see much of anything behaviorally or in

> theirlabs. When I spoke to my DAN about it, she said she was

> going to recommend

> changing them to the DMSA suppositories anyway. It seems some DAN

> docs are

> feeling that the TD-DMSA is not reaping enough benefits and are

> switchingtheir patients to the suppositories. It's only 1x/day

> instead of 3. We

> like them better and feel we are seeing positives that we didn't

> on the

> transdermal. Just our experience. Best of luck!

>

> Dana R.

>

>

>

>

>

[Guest guest]

Hi . You mentioned you had testosterone levels checked on your son. Were they high? I have two little boys and their levels were off the charts high for testosterone. So now they have "precocious puberty" added to their list of labels. I'm trying to decide the best course of treatment for this. Are you familiar with the Dr. Geiers' protocol? Thanks,

Newbie wanting advice (long)

Hi everyone!I have been reading the posts for a few weeks and this looks like a great group! I'm excited to become part of it! I have a 10 yr old son dx'd w/aspergers and have been working with a great DAN! doc for about 2 years. We are getting to the point where I have some questions and I hope that a few of these groups that I have joined lately will help me find answers. Here's our story...I am 30 yr old single parent of my son, only child. I was dx'd w/BiPolar and ADHD about 5 years ago. My son was orginally dx'd w/mild-moderate autism at 3 and currently aspergers/ADHD/generalized anxiety. Being a single mom and working 2 jobs, I have avoided the GFCF diet up untill a few mths ago. It is alot of work for a mom that was heavily relying on fast food! We have been GF for a good mth and CF for longer. Our DAN! said we could probably stop worrying to much about CF b/c not seeing any change. At this point not seeing anything with the GF either, but she wants me to give it at least 3 mths and I am willing to do that. When we began with our DAN! doc I saw a HUGE improvement in my son in just a few weeks w/just supplements! I am looking into alot of different things at this point b/c I feel like we have stopped seeing that progress. He did oral DMSA on and off for about a year, but it was too hard on his gut, so switched to transdermal DMSA. Its time to refill that currently, and I'm looking into the NCD as an option also. I did a round of valtrex w/him and saw nothing, but since reading posts I have realized that w/out the yeast meds, I may have been wasting my time. So, our doc is sending a script for Nystatin to go along w/the Valtrex. He's been on diflucan for a while (before the valtrex) and she dosent like to use it too long b/c of the stress on the liver. So, I'm looking into beginning that again soon. When he first began the MB12 nasal spray it was great. Now, I'm not seeing that anymore. I give him 1 puff in each nostril in the am and in the early pm. Could it be too much, b/c I started w/once a day? My main questions are about the actual treatments we are using. I love our DAN! she is awesome, but I feel somtimes like I am left to figure out alot on my own and I am floundering. I unfortunately, do not have as much time as I would like to research on the web. I want to make sure I am supporting him w/everything he needs to do these treatments and I want to look into the nasal spray for myself as well. I am currently taking ritalin and welbutrin and would love to be able to stop. With my son and I both, I feel, the ADHD symptoms tend to wreck the most havoc. I am also looking into trying to find any of the supplements he is taking a bit cheaper, possibly different brands as long as they are good quality. I will list what I currently give him also. Any advice anyone has is greatly appreciated! I found you guys from listening to Stan's podcast and learned alot from it! Thanks for being such great parents and a great group! Current supplements for my son:10yrs and 135 lbsKirkmans cod liver oil 2 in the am and 2 in the pmMetabolic Maintenance by Designs for Health2 in the am and 2 in the pmCal/Mag/Zinc by Metabolic Maintenance2 in the am and 2 in the pmIgG 2000 DF by Xymogen (probiotics)1 in the am 1 in the pmKirkmans Complete DPPIV enzymes 1 w/each mealMB12 nasal spray i puff in each nostril 2 x's dailyclonidine for sleep/zyrtec/singulair at bedtimeHave currently discontinued: valtrex 500 mg 2 x's a daydiflucan 100 mg 1 xdailyDMSAWe have tried other things here and there as well. I'm open to any advice, suggestions, etc. Thanks, in NCPS-the original reason I started valtrex w/my son is b/c about 3 mths before we began w/the DAN! doc he broke out into a rash. the drema said gutate psyrosis (sp?). It will not go away, so I was thinnking maybe viral.?? I'm also wondering If there are some test out there I should have ran on him that I have not? We've only done the basics: urine and stool metals, CBC w/liver panel, testosterone level, and a few others that I cant think of right now. I'm not at home where my paperwork is!

[Guest guest]

Hi . You mentioned you had testosterone levels checked on your son. Were they high? I have two little boys and their levels were off the charts high for testosterone. So now they have "precocious puberty" added to their list of labels. I'm trying to decide the best course of treatment for this. Are you familiar with the Dr. Geiers' protocol? Thanks,

Newbie wanting advice (long)

Hi everyone!I have been reading the posts for a few weeks and this looks like a great group! I'm excited to become part of it! I have a 10 yr old son dx'd w/aspergers and have been working with a great DAN! doc for about 2 years. We are getting to the point where I have some questions and I hope that a few of these groups that I have joined lately will help me find answers. Here's our story...I am 30 yr old single parent of my son, only child. I was dx'd w/BiPolar and ADHD about 5 years ago. My son was orginally dx'd w/mild-moderate autism at 3 and currently aspergers/ADHD/generalized anxiety. Being a single mom and working 2 jobs, I have avoided the GFCF diet up untill a few mths ago. It is alot of work for a mom that was heavily relying on fast food! We have been GF for a good mth and CF for longer. Our DAN! said we could probably stop worrying to much about CF b/c not seeing any change. At this point not seeing anything with the GF either, but she wants me to give it at least 3 mths and I am willing to do that. When we began with our DAN! doc I saw a HUGE improvement in my son in just a few weeks w/just supplements! I am looking into alot of different things at this point b/c I feel like we have stopped seeing that progress. He did oral DMSA on and off for about a year, but it was too hard on his gut, so switched to transdermal DMSA. Its time to refill that currently, and I'm looking into the NCD as an option also. I did a round of valtrex w/him and saw nothing, but since reading posts I have realized that w/out the yeast meds, I may have been wasting my time. So, our doc is sending a script for Nystatin to go along w/the Valtrex. He's been on diflucan for a while (before the valtrex) and she dosent like to use it too long b/c of the stress on the liver. So, I'm looking into beginning that again soon. When he first began the MB12 nasal spray it was great. Now, I'm not seeing that anymore. I give him 1 puff in each nostril in the am and in the early pm. Could it be too much, b/c I started w/once a day? My main questions are about the actual treatments we are using. I love our DAN! she is awesome, but I feel somtimes like I am left to figure out alot on my own and I am floundering. I unfortunately, do not have as much time as I would like to research on the web. I want to make sure I am supporting him w/everything he needs to do these treatments and I want to look into the nasal spray for myself as well. I am currently taking ritalin and welbutrin and would love to be able to stop. With my son and I both, I feel, the ADHD symptoms tend to wreck the most havoc. I am also looking into trying to find any of the supplements he is taking a bit cheaper, possibly different brands as long as they are good quality. I will list what I currently give him also. Any advice anyone has is greatly appreciated! I found you guys from listening to Stan's podcast and learned alot from it! Thanks for being such great parents and a great group! Current supplements for my son:10yrs and 135 lbsKirkmans cod liver oil 2 in the am and 2 in the pmMetabolic Maintenance by Designs for Health2 in the am and 2 in the pmCal/Mag/Zinc by Metabolic Maintenance2 in the am and 2 in the pmIgG 2000 DF by Xymogen (probiotics)1 in the am 1 in the pmKirkmans Complete DPPIV enzymes 1 w/each mealMB12 nasal spray i puff in each nostril 2 x's dailyclonidine for sleep/zyrtec/singulair at bedtimeHave currently discontinued: valtrex 500 mg 2 x's a daydiflucan 100 mg 1 xdailyDMSAWe have tried other things here and there as well. I'm open to any advice, suggestions, etc. Thanks, in NCPS-the original reason I started valtrex w/my son is b/c about 3 mths before we began w/the DAN! doc he broke out into a rash. the drema said gutate psyrosis (sp?). It will not go away, so I was thinnking maybe viral.?? I'm also wondering If there are some test out there I should have ran on him that I have not? We've only done the basics: urine and stool metals, CBC w/liver panel, testosterone level, and a few others that I cant think of right now. I'm not at home where my paperwork is!

[Guest guest]

,

Our DAN is hesitant to suggest the Geier's protocol because of the serious side effects of Lupron (i.e., decreasing bone density). I really don't know much about it but it was enough info for me to put it on hold until I have the time to learn more. My boys have not had theirs tested yet but my oldest has many signs that point to high testosterone.

Best,

'

Dana R

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of Dr. Graham-GarzaSent: Saturday, August 19, 2006 10:27 AMmb12 valtrex Subject: Re: Newbie wanting advice (long)

Hi . You mentioned you had testosterone levels checked on your son. Were they high? I have two little boys and their levels were off the charts high for testosterone. So now they have "precocious puberty" added to their list of labels. I'm trying to decide the best course of treatment for this. Are you familiar with the Dr. Geiers' protocol? Thanks,

Newbie wanting advice (long)

Hi everyone!I have been reading the posts for a few weeks and this looks like a great group! I'm excited to become part of it! I have a 10 yr old son dx'd w/aspergers and have been working with a great DAN! doc for about 2 years. We are getting to the point where I have some questions and I hope that a few of these groups that I have joined lately will help me find answers. Here's our story...I am 30 yr old single parent of my son, only child. I was dx'd w/BiPolar and ADHD about 5 years ago. My son was orginally dx'd w/mild-moderate autism at 3 and currently aspergers/ADHD/generalized anxiety. Being a single mom and working 2 jobs, I have avoided the GFCF diet up untill a few mths ago. It is alot of work for a mom that was heavily relying on fast food! We have been GF for a good mth and CF for longer. Our DAN! said we could probably stop worrying to much about CF b/c not seeing any change. At this point not seeing anything with the GF either, but she wants me to give it at least 3 mths and I am willing to do that. When we began with our DAN! doc I saw a HUGE improvement in my son in just a few weeks w/just supplements! I am looking into alot of different things at this point b/c I feel like we have stopped seeing that progress. He did oral DMSA on and off for about a year, but it was too hard on his gut, so switched to transdermal DMSA. Its time to refill that currently, and I'm looking into the NCD as an option also. I did a round of valtrex w/him and saw nothing, but since reading posts I have realized that w/out the yeast meds, I may have been wasting my time. So, our doc is sending a script for Nystatin to go along w/the Valtrex. He's been on diflucan for a while (before the valtrex) and she dosent like to use it too long b/c of the stress on the liver. So, I'm looking into beginning that again soon. When he first began the MB12 nasal spray it was great. Now, I'm not seeing that anymore. I give him 1 puff in each nostril in the am and in the early pm. Could it be too much, b/c I started w/once a day? My main questions are about the actual treatments we are using. I love our DAN! she is awesome, but I feel somtimes like I am left to figure out alot on my own and I am floundering. I unfortunately, do not have as much time as I would like to research on the web. I want to make sure I am supporting him w/everything he needs to do these treatments and I want to look into the nasal spray for myself as well. I am currently taking ritalin and welbutrin and would love to be able to stop. With my son and I both, I feel, the ADHD symptoms tend to wreck the most havoc. I am also looking into trying to find any of the supplements he is taking a bit cheaper, possibly different brands as long as they are good quality. I will list what I currently give him also. Any advice anyone has is greatly appreciated! I found you guys from listening to Stan's podcast and learned alot from it! Thanks for being such great parents and a great group! Current supplements for my son:10yrs and 135 lbsKirkmans cod liver oil 2 in the am and 2 in the pmMetabolic Maintenance by Designs for Health2 in the am and 2 in the pmCal/Mag/Zinc by Metabolic Maintenance2 in the am and 2 in the pmIgG 2000 DF by Xymogen (probiotics)1 in the am 1 in the pmKirkmans Complete DPPIV enzymes 1 w/each mealMB12 nasal spray i puff in each nostril 2 x's dailyclonidine for sleep/zyrtec/singulair at bedtimeHave currently discontinued: valtrex 500 mg 2 x's a daydiflucan 100 mg 1 xdailyDMSAWe have tried other things here and there as well. I'm open to any advice, suggestions, etc. Thanks, in NCPS-the original reason I started valtrex w/my son is b/c about 3 mths before we began w/the DAN! doc he broke out into a rash. the drema said gutate psyrosis (sp?). It will not go away, so I was thinnking maybe viral.?? I'm also wondering If there are some test out there I should have ran on him that I have not? We've only done the basics: urine and stool metals, CBC w/liver panel, testosterone level, and a few others that I cant think of right now. I'm not at home where my paperwork is!

[Guest guest]

,

Our DAN is hesitant to suggest the Geier's protocol because of the serious side effects of Lupron (i.e., decreasing bone density). I really don't know much about it but it was enough info for me to put it on hold until I have the time to learn more. My boys have not had theirs tested yet but my oldest has many signs that point to high testosterone.

Best,

'

Dana R

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of Dr. Graham-GarzaSent: Saturday, August 19, 2006 10:27 AMmb12 valtrex Subject: Re: Newbie wanting advice (long)

Hi . You mentioned you had testosterone levels checked on your son. Were they high? I have two little boys and their levels were off the charts high for testosterone. So now they have "precocious puberty" added to their list of labels. I'm trying to decide the best course of treatment for this. Are you familiar with the Dr. Geiers' protocol? Thanks,

Newbie wanting advice (long)

Hi everyone!I have been reading the posts for a few weeks and this looks like a great group! I'm excited to become part of it! I have a 10 yr old son dx'd w/aspergers and have been working with a great DAN! doc for about 2 years. We are getting to the point where I have some questions and I hope that a few of these groups that I have joined lately will help me find answers. Here's our story...I am 30 yr old single parent of my son, only child. I was dx'd w/BiPolar and ADHD about 5 years ago. My son was orginally dx'd w/mild-moderate autism at 3 and currently aspergers/ADHD/generalized anxiety. Being a single mom and working 2 jobs, I have avoided the GFCF diet up untill a few mths ago. It is alot of work for a mom that was heavily relying on fast food! We have been GF for a good mth and CF for longer. Our DAN! said we could probably stop worrying to much about CF b/c not seeing any change. At this point not seeing anything with the GF either, but she wants me to give it at least 3 mths and I am willing to do that. When we began with our DAN! doc I saw a HUGE improvement in my son in just a few weeks w/just supplements! I am looking into alot of different things at this point b/c I feel like we have stopped seeing that progress. He did oral DMSA on and off for about a year, but it was too hard on his gut, so switched to transdermal DMSA. Its time to refill that currently, and I'm looking into the NCD as an option also. I did a round of valtrex w/him and saw nothing, but since reading posts I have realized that w/out the yeast meds, I may have been wasting my time. So, our doc is sending a script for Nystatin to go along w/the Valtrex. He's been on diflucan for a while (before the valtrex) and she dosent like to use it too long b/c of the stress on the liver. So, I'm looking into beginning that again soon. When he first began the MB12 nasal spray it was great. Now, I'm not seeing that anymore. I give him 1 puff in each nostril in the am and in the early pm. Could it be too much, b/c I started w/once a day? My main questions are about the actual treatments we are using. I love our DAN! she is awesome, but I feel somtimes like I am left to figure out alot on my own and I am floundering. I unfortunately, do not have as much time as I would like to research on the web. I want to make sure I am supporting him w/everything he needs to do these treatments and I want to look into the nasal spray for myself as well. I am currently taking ritalin and welbutrin and would love to be able to stop. With my son and I both, I feel, the ADHD symptoms tend to wreck the most havoc. I am also looking into trying to find any of the supplements he is taking a bit cheaper, possibly different brands as long as they are good quality. I will list what I currently give him also. Any advice anyone has is greatly appreciated! I found you guys from listening to Stan's podcast and learned alot from it! Thanks for being such great parents and a great group! Current supplements for my son:10yrs and 135 lbsKirkmans cod liver oil 2 in the am and 2 in the pmMetabolic Maintenance by Designs for Health2 in the am and 2 in the pmCal/Mag/Zinc by Metabolic Maintenance2 in the am and 2 in the pmIgG 2000 DF by Xymogen (probiotics)1 in the am 1 in the pmKirkmans Complete DPPIV enzymes 1 w/each mealMB12 nasal spray i puff in each nostril 2 x's dailyclonidine for sleep/zyrtec/singulair at bedtimeHave currently discontinued: valtrex 500 mg 2 x's a daydiflucan 100 mg 1 xdailyDMSAWe have tried other things here and there as well. I'm open to any advice, suggestions, etc. Thanks, in NCPS-the original reason I started valtrex w/my son is b/c about 3 mths before we began w/the DAN! doc he broke out into a rash. the drema said gutate psyrosis (sp?). It will not go away, so I was thinnking maybe viral.?? I'm also wondering If there are some test out there I should have ran on him that I have not? We've only done the basics: urine and stool metals, CBC w/liver panel, testosterone level, and a few others that I cant think of right now. I'm not at home where my paperwork is!

[Guest guest]

Anyone know anything else, good or bad, about using Lupron to lower testosterone? Has anyone out there tried this yet? Thanks,

Newbie wanting advice (long)

Hi everyone!I have been reading the posts for a few weeks and this looks like a great group! I'm excited to become part of it! I have a 10 yr old son dx'd w/aspergers and have been working with a great DAN! doc for about 2 years. We are getting to the point where I have some questions and I hope that a few of these groups that I have joined lately will help me find answers. Here's our story...I am 30 yr old single parent of my son, only child. I was dx'd w/BiPolar and ADHD about 5 years ago. My son was orginally dx'd w/mild-moderate autism at 3 and currently aspergers/ADHD/generalized anxiety. Being a single mom and working 2 jobs, I have avoided the GFCF diet up untill a few mths ago. It is alot of work for a mom that was heavily relying on fast food! We have been GF for a good mth and CF for longer. Our DAN! said we could probably stop worrying to much about CF b/c not seeing any change. At this point not seeing anything with the GF either, but she wants me to give it at least 3 mths and I am willing to do that. When we began with our DAN! doc I saw a HUGE improvement in my son in just a few weeks w/just supplements! I am looking into alot of different things at this point b/c I feel like we have stopped seeing that progress. He did oral DMSA on and off for about a year, but it was too hard on his gut, so switched to transdermal DMSA. Its time to refill that currently, and I'm looking into the NCD as an option also. I did a round of valtrex w/him and saw nothing, but since reading posts I have realized that w/out the yeast meds, I may have been wasting my time. So, our doc is sending a script for Nystatin to go along w/the Valtrex. He's been on diflucan for a while (before the valtrex) and she dosent like to use it too long b/c of the stress on the liver. So, I'm looking into beginning that again soon. When he first began the MB12 nasal spray it was great. Now, I'm not seeing that anymore. I give him 1 puff in each nostril in the am and in the early pm. Could it be too much, b/c I started w/once a day? My main questions are about the actual treatments we are using. I love our DAN! she is awesome, but I feel somtimes like I am left to figure out alot on my own and I am floundering. I unfortunately, do not have as much time as I would like to research on the web. I want to make sure I am supporting him w/everything he needs to do these treatments and I want to look into the nasal spray for myself as well. I am currently taking ritalin and welbutrin and would love to be able to stop. With my son and I both, I feel, the ADHD symptoms tend to wreck the most havoc. I am also looking into trying to find any of the supplements he is taking a bit cheaper, possibly different brands as long as they are good quality. I will list what I currently give him also. Any advice anyone has is greatly appreciated! I found you guys from listening to Stan's podcast and learned alot from it! Thanks for being such great parents and a great group! Current supplements for my son:10yrs and 135 lbsKirkmans cod liver oil 2 in the am and 2 in the pmMetabolic Maintenance by Designs for Health2 in the am and 2 in the pmCal/Mag/Zinc by Metabolic Maintenance2 in the am and 2 in the pmIgG 2000 DF by Xymogen (probiotics)1 in the am 1 in the pmKirkmans Complete DPPIV enzymes 1 w/each mealMB12 nasal spray i puff in each nostril 2 x's dailyclonidine for sleep/zyrtec/singulair at bedtimeHave currently discontinued: valtrex 500 mg 2 x's a daydiflucan 100 mg 1 xdailyDMSAWe have tried other things here and there as well. I'm open to any advice, suggestions, etc. Thanks, in NCPS-the original reason I started valtrex w/my son is b/c about 3 mths before we began w/the DAN! doc he broke out into a rash. the drema said gutate psyrosis (sp?). It will not go away, so I was thinnking maybe viral.?? I'm also wondering If there are some test out there I should have ran on him that I have not? We've only done the basics: urine and stool metals, CBC w/liver panel, testosterone level, and a few others that I cant think of right now. I'm not at home where my paperwork is!

[Guest guest]

Anyone know anything else, good or bad, about using Lupron to lower testosterone? Has anyone out there tried this yet? Thanks,

Newbie wanting advice (long)

Hi everyone!I have been reading the posts for a few weeks and this looks like a great group! I'm excited to become part of it! I have a 10 yr old son dx'd w/aspergers and have been working with a great DAN! doc for about 2 years. We are getting to the point where I have some questions and I hope that a few of these groups that I have joined lately will help me find answers. Here's our story...I am 30 yr old single parent of my son, only child. I was dx'd w/BiPolar and ADHD about 5 years ago. My son was orginally dx'd w/mild-moderate autism at 3 and currently aspergers/ADHD/generalized anxiety. Being a single mom and working 2 jobs, I have avoided the GFCF diet up untill a few mths ago. It is alot of work for a mom that was heavily relying on fast food! We have been GF for a good mth and CF for longer. Our DAN! said we could probably stop worrying to much about CF b/c not seeing any change. At this point not seeing anything with the GF either, but she wants me to give it at least 3 mths and I am willing to do that. When we began with our DAN! doc I saw a HUGE improvement in my son in just a few weeks w/just supplements! I am looking into alot of different things at this point b/c I feel like we have stopped seeing that progress. He did oral DMSA on and off for about a year, but it was too hard on his gut, so switched to transdermal DMSA. Its time to refill that currently, and I'm looking into the NCD as an option also. I did a round of valtrex w/him and saw nothing, but since reading posts I have realized that w/out the yeast meds, I may have been wasting my time. So, our doc is sending a script for Nystatin to go along w/the Valtrex. He's been on diflucan for a while (before the valtrex) and she dosent like to use it too long b/c of the stress on the liver. So, I'm looking into beginning that again soon. When he first began the MB12 nasal spray it was great. Now, I'm not seeing that anymore. I give him 1 puff in each nostril in the am and in the early pm. Could it be too much, b/c I started w/once a day? My main questions are about the actual treatments we are using. I love our DAN! she is awesome, but I feel somtimes like I am left to figure out alot on my own and I am floundering. I unfortunately, do not have as much time as I would like to research on the web. I want to make sure I am supporting him w/everything he needs to do these treatments and I want to look into the nasal spray for myself as well. I am currently taking ritalin and welbutrin and would love to be able to stop. With my son and I both, I feel, the ADHD symptoms tend to wreck the most havoc. I am also looking into trying to find any of the supplements he is taking a bit cheaper, possibly different brands as long as they are good quality. I will list what I currently give him also. Any advice anyone has is greatly appreciated! I found you guys from listening to Stan's podcast and learned alot from it! Thanks for being such great parents and a great group! Current supplements for my son:10yrs and 135 lbsKirkmans cod liver oil 2 in the am and 2 in the pmMetabolic Maintenance by Designs for Health2 in the am and 2 in the pmCal/Mag/Zinc by Metabolic Maintenance2 in the am and 2 in the pmIgG 2000 DF by Xymogen (probiotics)1 in the am 1 in the pmKirkmans Complete DPPIV enzymes 1 w/each mealMB12 nasal spray i puff in each nostril 2 x's dailyclonidine for sleep/zyrtec/singulair at bedtimeHave currently discontinued: valtrex 500 mg 2 x's a daydiflucan 100 mg 1 xdailyDMSAWe have tried other things here and there as well. I'm open to any advice, suggestions, etc. Thanks, in NCPS-the original reason I started valtrex w/my son is b/c about 3 mths before we began w/the DAN! doc he broke out into a rash. the drema said gutate psyrosis (sp?). It will not go away, so I was thinnking maybe viral.?? I'm also wondering If there are some test out there I should have ran on him that I have not? We've only done the basics: urine and stool metals, CBC w/liver panel, testosterone level, and a few others that I cant think of right now. I'm not at home where my paperwork is!

[Guest guest]

Hi !

My sons testosterone level was high, but we havent even really

investigated it at this point. I have not heard of Dr. Geiers'

protocol. Do you have a website for it? It was kinda my

understanding that w/these high levels came behaviors. If there is

one thing my son isnt its aggressive, etc. So I'm not sure if that is

why our doc pushed it to the back burner at this point or what. I

have been a bit overwhelmed (as you can tell from my post! so, I

was fine w/not getting an explination, but since she has asked for it

to be tested again, I'm becomming curious. I have a friend who's son

is the same age as mine and has high testerone levels also and is very

aggressive along w/other bahaviors, and she is currently trying out a

treatment. I dont have much info on it, but to my understanding he

will get a shot every 3 months. Not sure of what, but its supposed to

bring down the hormone level. She and I are trying to plan to have

lunch when she comes back from vacation,

so I'm sure I'll have more info then and will be glad (w/her

permission, of course) to share.

Thanks,

Re: Newbie wanting advice (long)

mb12 valtrex

> Hi . You mentioned you had testosterone levels checked on

> your son. Were they high? I have two little boys and their levels

> were off the charts high for testosterone. So now they have

> " precocious puberty " added to their list of labels. I'm trying to

> decide the best course of treatment for this. Are you familiar

> with the Dr. Geiers' protocol? Thanks,

>

>

>

>