Recent improvements - LONG

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Hi all, a while ago I posted about our sonÕs massive improvements on

Inflammation Control by VRP. We have added some other things since and

have now had almost 6 weeks of continuous improvements. We are very

pleased with what we are seeing and decided to share more details in

case someone recognises his ÔprofileÕ and can benefit in some way.

Also, as two of the new supplements we have introduced are relatively

ÔunknownÕ, I would love to hear from anyone who has used them or is

planning to try.

Although we do not consider him ÔrecoveredÕ, and there is still a long

way to go, for the first time now we feel like he has got a Ôfoot in

the doorÕ recovery-wise. On particularly good days it feels like both

his feet are firmly in the door!!! Like we are seeing more and more of

the real child inside him.

He has been on LDN since late February (half dose only, as could not

tolerate the full dose after a while). We saw good things with it, in

most areas, mostly social and communication. About 6 weeks ago we

started Inlammation Control and saw great improvements straight away,

as if all those good effects of LDN just amplified tenfold. We also saw

some rashes, runny nose and cough, and decided to added Candex, as per

viral protocols. A week or so later we added a herbal supplement

Scutellaria B (by Solgar), another chinese herb that is supposed to

inhibit inflammation. It is also a good antioxidant, antibacterial etcÉ

as usual I have tons of papers on this one and can forward Shortly

after that we started HoustonÕs Zyme Prime and saw a FLAT belly for the

first time ever!! (thanks Mandi, I honestly had no idea there was such

thing as a tastles enzymes )

As I said he has been doing very well on the above combo. I am

researching some more herbs at the moment (having seen the Ômagic of

herbsÕ in action I am now a convert!), will let you know of results, if

any.

LukaÕs Ôsymptoms and interventionsÕ profile:

Luka was always a big ÔgutÕ baby. Massive appetite with very poor

digestion. Had diarrheas from the day he was born. Bad reflux à

although unfortunatelly we did not know that at the time always

screamed when put in horizontal possition. Always had a red ring around

annus (went away on LDN).

He has also belonged to the Ôhyperimmune catergoryÕ à hardly ever had

colds or runny nose, on few occasions that he did develop a fever he

would regress in every way.

Met all his physical milestones on time, or often before time à he

crawled (ran!) at the age of 5 months, at about the same time he

started to prop himself up against furniture. As soon as he could stand

up he stood on his toes! Started teething at 4 months, by the end of

his 6th month had EIGHT fully grown teeth in all. Walked (ran!) at 11

months, mostly on toes again.

He was never severe, in terms of always having some, although minimal,

eye contact, also liked physical contact with parents à cuddles and

rough and tumble, liked presence of other people (although as Darla

said he did not feel any need to communicate or Ôshare experiencesÕ),

also liked other kids, but only for as long as they would engage in

physical 'play'. Mostly this meant him running in circles and them

chasing after him! As soon as a kid would get tired Luka would lose

interest in the ÔplayÕ. He also loved having Ôscreaming exchanges' with

other kids (and still does lol, the difference being that now he looks

them in the eyes and laughs, whereas before he used to scream and laugh

while running away from them)

He never really regressed but never developed normally à he bubbled

less than other babies, and showed less interest in toys (or more, as

in obsessing over one or two toys or videos), and he missed out on

pointing and waving phase. When he was around 13-14 months of age he

did go through a short period of waving by-by and sometimes pointing to

things. That soon dissapeared and he started to show lots of OCD, and

more and more stimming. He would spin his cups for hours and hours on

end, literally. He also started to develop VERY bad ADHD à his focus

and attention were almost non-existant by the time he was 18 months

old. Became manic and quite agressive. When not manic then looking

deeply anxious. He also develped ezcema. His tantrums and transition

problems got worse and worse, he was just getting impossible to handle.

No language or any form of communication, when he e.g. wanted a biscuit

he would just go into the kitchen, stand there and scream.

He did not have the MMR or the single vaccines during this period (he did have all the early childhood vacs on schedule).

We ÔunknowinglyÕ started interventions when he was about 17 months à as

we were looking to find the source of his allergy (what was causing the

eczema), we cut out dairy completely. No more formula milk before

bedtime. Unexpected to us he started sleeping better - less waking up

screaming during the night, less screaming and sitting up in bed while

trying to fall asleep. (soooo painfully obvious now in retrospect).

At 20 months, after realising that he definitely WAS on the spectrum,

we started gfcf sugar free. He responded very well, with drastic

reduction of ADHD. He just seemed to sober up within days of starting

the diet. His eczema cleared completely!

His lab tests at the time showed bad gut dysbiosis, next to 0 good

bacteria. His OAT test markers were all over the place, hardly anything

in the normal range. His blood results were mostly fine, but he did

have markers of chronic inflammation. Some B vitamins were poor or

borderline, as were his omega 3Õs. The thing that was most surprising

(to our DAN at least, as we did not know what to expect anyway) was

that his provoked urine challenge came out fine. Everything within

range.

A short summary of sucessful and unsucessful treatments:

He has done well on gfcf and sugar free and later SCD (dairy free). He

regressed on Supernutera, and all other 'multies' we tried introducing,

also had a VERY bad regression on calcium supplements. Had nosebleed

the day we tried adding Taurine.

We did mb12 shots for 7-8 months - saw some great things about a month

into them but then benefits leveled off... no bad things from it

either. No other methylation support. No chelation.

Apart from those mentioned above these are the sups he has been doing

well on lately: cp-1 probiotics, benfothiamine, nadh (powder form, have

run out recently), riboflavin, p5p, zinc picolinate, magnesium

glycinate, selenium, l-carnitine, milk thistle. td-gluthatione. All

this was introduced between January and March this year.

Hope this information can one day be of help to someone else.

Natasa

p.s. will be posting this on other boards, sorry for repeats.

PostPosted: Wed Jun 07, 2006 11:44 pm Post subject: Reply with quote Edit/Delete this post

Hi and others,

just to let you know that I have found a 'western' product with these

ingredients. It also contains luteolin extract from another plant,

which has many amazing properties as well (I can forward abstracts and

a few complete studies if anyone interested). The product is called

Inflammation Control by Vitamin Research Product.

Our story (short version, in case it helps with "profile for seeing benefits"):

Luka has been making very good progress lately on LDN - we started it

in March and have seen LOTS of good things. We have added this

Inflammation Control a couple of weeks ago and since then his progress

has eccelerated tenfold!!! We have not started or stopped anything else

in these past two weeks (we stopped mb12 shots but that was almost a

month ago).

Of course it could all be a coincidence. And it could be temporary (I

soooo pray it isn't!!!). Or could be things of the past months finally

coming together, but I do feel these herbs have a lot to do with it.

We have not done his genetics yet. He has always been a 'gut kid' with

bad reflux and a 'hyperimmune kid' (hardly ever sick, when he was sick

he would regress and be EXTREMELY irritable and hard to handle - I

suspect his immune system grossly overworked and overinflammed). I also

suspect he is COMT++ and probably some VDR issues, as history of VDR

related issues in my family. He never regressed into autism, didn't

have MMR but I believe now each of his early childhood vaccines made

him cry a bit louder and longer for days afterwards Sad He is not

severe but lots of OCD (less and less nowdays) and very short-fuse

temper.

He has done well on gfcf and sugar free and later SCD dairy free. He

regressed on Supernutera, and all other 'multies' we tried introducing,

also had a very bad regression on calcium supplements. Had nosebleed

the day we tried adding Taurine.

We did mb12 shots for 7-8 months - saw some great things about a month

into them but then benefits leveled off... no bad things from it

either. No other methylation support at present.

Apart from LDN these are the sups he has been doing well on lately:

benfothiamine, nadh (powder form), riboflavin, p5p, zinc picolinate,

magnesium glycinate, selenium, l-carnitine, milk thistle.

td-gluthatione. All this was introduced between January and March.

Hope this information can one day be of help to someone else.

Best,

Natasa