Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 > > > > > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A? > N. Megson, M.D., F.A.A.P > interesting this article being from 1998/99 when i was researching how i could posssibly help my son the internet was pretty new so what you could find out there was more limited. there was this angle and the cultler ala angle out there so i immediately went for it in both ways without a doctor other than approval from his neurologist not knowing the dynamics behind either one but not caring either... well my son is considered recovered no longer fitting the diagnostic criteria although has some little issues still there. his neurologist has also told me he was absolutely convinced he was severely autistic and has never seen a child change like mine has. so in treating my second son i of course tried all the same things and he seems to not tollerate the clo treatments plus not having the same gains as his brother. so i have just recently began to examine further into why the treatments would work for one but not the other and after re reading all this information i have come to the speculation that there are two other factors to consider one was at the time the brother was also on a reflux med not urocholine but probably same type of action as the urocholine plus a choline supplement that could have made the difference. along with different seizure meds that may have had a role in the brain cell synapsis process i am convinced of this difference because why else would it not work on basically the same genetic make up brother? when i had researched reflux meds to try to find a link, i found one study that kids were more social on it. that's it but in the case with this g alpha hypotheisis it has a whole different role and with the ala i was not on the protocal of today i dont think it was developed as much he was on low dose every day so one could not really scientifically say what brought about his recovery as both were done at once. as well as the reflux ans seizure meds we were already gfcf b/c of such severe reflux and therefore failure to thrive. as crazy as it sounds did a trial of the anti seizure med 6 months for the youngest with no change either way so i am left to conclude that it was the other vit A and reflux together process and i just had an appointment with doc who is not so convinced of the bethanocol treatment but has a few trying it. i think i will ask for the reflux med next visit and see what he thinks??? we are not on any clo just cant tollerate it and maybe this is why he cant b/c needing the action of the reflux med to activate the cells to absorb and repair. it is exciting to finally realise at least in part the differences now and have a route to see if it can be fixed! i have hope that in the case study of the 10 year old that could be us as he already talks a little (just turned 7) but not like his brother with the improvements happening within months of treatments. well i also have just had an apifany(sp?) are those children who are improving from the gfcf be the ones that could be recovering on this treatment therefore having the g alpha problem and others who try the diet but have no improvements are dealing more with the metals or viruses??? though my older is now fixing those little gains with the valtrex therapy he obviously has the issues but maybe it was the second in line minor attack to his body and the alpha thing first. btw i have nightblindness and hypothyroidism as does my mother hmmmm! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 > > > > > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A? > N. Megson, M.D., F.A.A.P > interesting this article being from 1998/99 when i was researching how i could posssibly help my son the internet was pretty new so what you could find out there was more limited. there was this angle and the cultler ala angle out there so i immediately went for it in both ways without a doctor other than approval from his neurologist not knowing the dynamics behind either one but not caring either... well my son is considered recovered no longer fitting the diagnostic criteria although has some little issues still there. his neurologist has also told me he was absolutely convinced he was severely autistic and has never seen a child change like mine has. so in treating my second son i of course tried all the same things and he seems to not tollerate the clo treatments plus not having the same gains as his brother. so i have just recently began to examine further into why the treatments would work for one but not the other and after re reading all this information i have come to the speculation that there are two other factors to consider one was at the time the brother was also on a reflux med not urocholine but probably same type of action as the urocholine plus a choline supplement that could have made the difference. along with different seizure meds that may have had a role in the brain cell synapsis process i am convinced of this difference because why else would it not work on basically the same genetic make up brother? when i had researched reflux meds to try to find a link, i found one study that kids were more social on it. that's it but in the case with this g alpha hypotheisis it has a whole different role and with the ala i was not on the protocal of today i dont think it was developed as much he was on low dose every day so one could not really scientifically say what brought about his recovery as both were done at once. as well as the reflux ans seizure meds we were already gfcf b/c of such severe reflux and therefore failure to thrive. as crazy as it sounds did a trial of the anti seizure med 6 months for the youngest with no change either way so i am left to conclude that it was the other vit A and reflux together process and i just had an appointment with doc who is not so convinced of the bethanocol treatment but has a few trying it. i think i will ask for the reflux med next visit and see what he thinks??? we are not on any clo just cant tollerate it and maybe this is why he cant b/c needing the action of the reflux med to activate the cells to absorb and repair. it is exciting to finally realise at least in part the differences now and have a route to see if it can be fixed! i have hope that in the case study of the 10 year old that could be us as he already talks a little (just turned 7) but not like his brother with the improvements happening within months of treatments. well i also have just had an apifany(sp?) are those children who are improving from the gfcf be the ones that could be recovering on this treatment therefore having the g alpha problem and others who try the diet but have no improvements are dealing more with the metals or viruses??? though my older is now fixing those little gains with the valtrex therapy he obviously has the issues but maybe it was the second in line minor attack to his body and the alpha thing first. btw i have nightblindness and hypothyroidism as does my mother hmmmm! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 > > > > > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A? > N. Megson, M.D., F.A.A.P > interesting this article being from 1998/99 when i was researching how i could posssibly help my son the internet was pretty new so what you could find out there was more limited. there was this angle and the cultler ala angle out there so i immediately went for it in both ways without a doctor other than approval from his neurologist not knowing the dynamics behind either one but not caring either... well my son is considered recovered no longer fitting the diagnostic criteria although has some little issues still there. his neurologist has also told me he was absolutely convinced he was severely autistic and has never seen a child change like mine has. so in treating my second son i of course tried all the same things and he seems to not tollerate the clo treatments plus not having the same gains as his brother. so i have just recently began to examine further into why the treatments would work for one but not the other and after re reading all this information i have come to the speculation that there are two other factors to consider one was at the time the brother was also on a reflux med not urocholine but probably same type of action as the urocholine plus a choline supplement that could have made the difference. along with different seizure meds that may have had a role in the brain cell synapsis process i am convinced of this difference because why else would it not work on basically the same genetic make up brother? when i had researched reflux meds to try to find a link, i found one study that kids were more social on it. that's it but in the case with this g alpha hypotheisis it has a whole different role and with the ala i was not on the protocal of today i dont think it was developed as much he was on low dose every day so one could not really scientifically say what brought about his recovery as both were done at once. as well as the reflux ans seizure meds we were already gfcf b/c of such severe reflux and therefore failure to thrive. as crazy as it sounds did a trial of the anti seizure med 6 months for the youngest with no change either way so i am left to conclude that it was the other vit A and reflux together process and i just had an appointment with doc who is not so convinced of the bethanocol treatment but has a few trying it. i think i will ask for the reflux med next visit and see what he thinks??? we are not on any clo just cant tollerate it and maybe this is why he cant b/c needing the action of the reflux med to activate the cells to absorb and repair. it is exciting to finally realise at least in part the differences now and have a route to see if it can be fixed! i have hope that in the case study of the 10 year old that could be us as he already talks a little (just turned 7) but not like his brother with the improvements happening within months of treatments. well i also have just had an apifany(sp?) are those children who are improving from the gfcf be the ones that could be recovering on this treatment therefore having the g alpha problem and others who try the diet but have no improvements are dealing more with the metals or viruses??? though my older is now fixing those little gains with the valtrex therapy he obviously has the issues but maybe it was the second in line minor attack to his body and the alpha thing first. btw i have nightblindness and hypothyroidism as does my mother hmmmm! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 Have you done genetic testing on the two boys and found them similar? Gayatri > > > > > > > > > > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A? > > N. Megson, M.D., F.A.A.P > > > interesting this article being from 1998/99 when i was researching > how i could posssibly help my son the internet was pretty new so what > you could find out there was more limited. there was this angle and > the cultler ala angle out there so i immediately went for it in both > ways without a doctor other than approval from his neurologist not > knowing the dynamics behind either one but not caring either... well > my son is considered recovered no longer fitting the diagnostic > criteria although has some little issues still there. his neurologist > has also told me he was absolutely convinced he was severely autistic > and has never seen a child change like mine has. so in treating my > second son i of course tried all the same things and he seems to not > tollerate the clo treatments plus not having the same gains as his > brother. so i have just recently began to examine further into why the > treatments would work for one but not the other and after re reading > all this information i have come to the speculation that there are two > other factors to consider one was at the time the brother was also on > a reflux med not urocholine but probably same type of action as the > urocholine plus a choline supplement that could have made the > difference. along with different seizure meds that may have had a role > in the brain cell synapsis process i am convinced of this difference > because why else would it not work on basically the same genetic make > up brother? when i had researched reflux meds to try to find a link, i > found one study that kids were more social on it. that's it but in the > case with this g alpha hypotheisis it has a whole different role and > with the ala i was not on the protocal of today i dont think it was > developed as much he was on low dose every day so one could not really > scientifically say what brought about his recovery as both were done > at once. as well as the reflux ans seizure meds we were already gfcf > b/c of such severe reflux and therefore failure to thrive. as crazy as > it sounds did a trial of the anti seizure med 6 months for the > youngest with no change either way so i am left to conclude that it > was the other vit A and reflux together process and i just had an > appointment with doc who is not so convinced of the bethanocol > treatment but has a few trying it. i think i will ask for the reflux > med next visit and see what he thinks??? we are not on any clo just > cant tollerate it and maybe this is why he cant b/c needing the > action of the reflux med to activate the cells to absorb and repair. > it is exciting to finally realise at least in part the differences now > and have a route to see if it can be fixed! i have hope that in the > case study of the 10 year old that could be us as he already talks a > little (just turned 7) but not like his brother with the improvements > happening within months of treatments. well i also have just had an > apifany(sp?) are those children who are improving from the gfcf be the > ones that could be recovering on this treatment therefore having the g > alpha problem and others who try the diet but have no improvements are > dealing more with the metals or viruses??? though my older is now > fixing those little gains with the valtrex therapy he obviously has > the issues but maybe it was the second in line minor attack to his > body and the alpha thing first. btw i have nightblindness and > hypothyroidism as does my mother hmmmm! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 Have you done genetic testing on the two boys and found them similar? Gayatri > > > > > > > > > > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A? > > N. Megson, M.D., F.A.A.P > > > interesting this article being from 1998/99 when i was researching > how i could posssibly help my son the internet was pretty new so what > you could find out there was more limited. there was this angle and > the cultler ala angle out there so i immediately went for it in both > ways without a doctor other than approval from his neurologist not > knowing the dynamics behind either one but not caring either... well > my son is considered recovered no longer fitting the diagnostic > criteria although has some little issues still there. his neurologist > has also told me he was absolutely convinced he was severely autistic > and has never seen a child change like mine has. so in treating my > second son i of course tried all the same things and he seems to not > tollerate the clo treatments plus not having the same gains as his > brother. so i have just recently began to examine further into why the > treatments would work for one but not the other and after re reading > all this information i have come to the speculation that there are two > other factors to consider one was at the time the brother was also on > a reflux med not urocholine but probably same type of action as the > urocholine plus a choline supplement that could have made the > difference. along with different seizure meds that may have had a role > in the brain cell synapsis process i am convinced of this difference > because why else would it not work on basically the same genetic make > up brother? when i had researched reflux meds to try to find a link, i > found one study that kids were more social on it. that's it but in the > case with this g alpha hypotheisis it has a whole different role and > with the ala i was not on the protocal of today i dont think it was > developed as much he was on low dose every day so one could not really > scientifically say what brought about his recovery as both were done > at once. as well as the reflux ans seizure meds we were already gfcf > b/c of such severe reflux and therefore failure to thrive. as crazy as > it sounds did a trial of the anti seizure med 6 months for the > youngest with no change either way so i am left to conclude that it > was the other vit A and reflux together process and i just had an > appointment with doc who is not so convinced of the bethanocol > treatment but has a few trying it. i think i will ask for the reflux > med next visit and see what he thinks??? we are not on any clo just > cant tollerate it and maybe this is why he cant b/c needing the > action of the reflux med to activate the cells to absorb and repair. > it is exciting to finally realise at least in part the differences now > and have a route to see if it can be fixed! i have hope that in the > case study of the 10 year old that could be us as he already talks a > little (just turned 7) but not like his brother with the improvements > happening within months of treatments. well i also have just had an > apifany(sp?) are those children who are improving from the gfcf be the > ones that could be recovering on this treatment therefore having the g > alpha problem and others who try the diet but have no improvements are > dealing more with the metals or viruses??? though my older is now > fixing those little gains with the valtrex therapy he obviously has > the issues but maybe it was the second in line minor attack to his > body and the alpha thing first. btw i have nightblindness and > hypothyroidism as does my mother hmmmm! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 Have you done genetic testing on the two boys and found them similar? Gayatri > > > > > > > > > > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A? > > N. Megson, M.D., F.A.A.P > > > interesting this article being from 1998/99 when i was researching > how i could posssibly help my son the internet was pretty new so what > you could find out there was more limited. there was this angle and > the cultler ala angle out there so i immediately went for it in both > ways without a doctor other than approval from his neurologist not > knowing the dynamics behind either one but not caring either... well > my son is considered recovered no longer fitting the diagnostic > criteria although has some little issues still there. his neurologist > has also told me he was absolutely convinced he was severely autistic > and has never seen a child change like mine has. so in treating my > second son i of course tried all the same things and he seems to not > tollerate the clo treatments plus not having the same gains as his > brother. so i have just recently began to examine further into why the > treatments would work for one but not the other and after re reading > all this information i have come to the speculation that there are two > other factors to consider one was at the time the brother was also on > a reflux med not urocholine but probably same type of action as the > urocholine plus a choline supplement that could have made the > difference. along with different seizure meds that may have had a role > in the brain cell synapsis process i am convinced of this difference > because why else would it not work on basically the same genetic make > up brother? when i had researched reflux meds to try to find a link, i > found one study that kids were more social on it. that's it but in the > case with this g alpha hypotheisis it has a whole different role and > with the ala i was not on the protocal of today i dont think it was > developed as much he was on low dose every day so one could not really > scientifically say what brought about his recovery as both were done > at once. as well as the reflux ans seizure meds we were already gfcf > b/c of such severe reflux and therefore failure to thrive. as crazy as > it sounds did a trial of the anti seizure med 6 months for the > youngest with no change either way so i am left to conclude that it > was the other vit A and reflux together process and i just had an > appointment with doc who is not so convinced of the bethanocol > treatment but has a few trying it. i think i will ask for the reflux > med next visit and see what he thinks??? we are not on any clo just > cant tollerate it and maybe this is why he cant b/c needing the > action of the reflux med to activate the cells to absorb and repair. > it is exciting to finally realise at least in part the differences now > and have a route to see if it can be fixed! i have hope that in the > case study of the 10 year old that could be us as he already talks a > little (just turned 7) but not like his brother with the improvements > happening within months of treatments. well i also have just had an > apifany(sp?) are those children who are improving from the gfcf be the > ones that could be recovering on this treatment therefore having the g > alpha problem and others who try the diet but have no improvements are > dealing more with the metals or viruses??? though my older is now > fixing those little gains with the valtrex therapy he obviously has > the issues but maybe it was the second in line minor attack to his > body and the alpha thing first. btw i have nightblindness and > hypothyroidism as does my mother hmmmm! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 What seizure meds was your first and then second son on? What age did they start or time in relationship to regression? Did the older son have seizures/abnormal EEG, what was the reason? I really believe that the right anti-convulsant started early enough is key for a specific sub-group of children considered ASD or possibly suffering from an inflammatory disease process that mimics ASD (most likely malabsorption, gastrointestinal, inflammatory process producing abnormal brain chemistry and thus, seizures or epileptic-like EEGs). My theory is that if this process is causing the ASD and it is treated super aggressively (with short-term anti-convulsants, GI treatments, anti-inflammatories, supplements like CLO-which is also a powerful anti-inflammatory, etc…) in a relatively quick time frame from its onset, the better the outcome and sometimes complete reversal of ASD….. I find your older son’s experience very interesting….I too have been really interested in Megson’s theory… Re: Fw: IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A? > > > > > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A? > N. Megson, M.D., F.A.A.P > interesting this article being from 1998/99 when i was researching how i could posssibly help my son the internet was pretty new so what you could find out there was more limited. there was this angle and the cultler ala angle out there so i immediately went for it in both ways without a doctor other than approval from his neurologist not knowing the dynamics behind either one but not caring either... well my son is considered recovered no longer fitting the diagnostic criteria although has some little issues still there. his neurologist has also told me he was absolutely convinced he was severely autistic and has never seen a child change like mine has. so in treating my second son i of course tried all the same things and he seems to not tollerate the clo treatments plus not having the same gains as his brother. so i have just recently began to examine further into why the treatments would work for one but not the other and after re reading all this information i have come to the speculation that there are two other factors to consider one was at the time the brother was also on a reflux med not urocholine but probably same type of action as the urocholine plus a choline supplement that could have made the difference. along with different seizure meds that may have had a role in the brain cell synapsis process i am convinced of this difference because why else would it not work on basically the same genetic make up brother? when i had researched reflux meds to try to find a link, i found one study that kids were more social on it. that's it but in the case with this g alpha hypotheisis it has a whole different role and with the ala i was not on the protocal of today i dont think it was developed as much he was on low dose every day so one could not really scientifically say what brought about his recovery as both were done at once. as well as the reflux ans seizure meds we were already gfcf b/c of such severe reflux and therefore failure to thrive. as crazy as it sounds did a trial of the anti seizure med 6 months for the youngest with no change either way so i am left to conclude that it was the other vit A and reflux together process and i just had an appointment with doc who is not so convinced of the bethanocol treatment but has a few trying it. i think i will ask for the reflux med next visit and see what he thinks??? we are not on any clo just cant tollerate it and maybe this is why he cant b/c needing the action of the reflux med to activate the cells to absorb and repair. it is exciting to finally realise at least in part the differences now and have a route to see if it can be fixed! i have hope that in the case study of the 10 year old that could be us as he already talks a little (just turned 7) but not like his brother with the improvements happening within months of treatments. well i also have just had an apifany(sp?) are those children who are improving from the gfcf be the ones that could be recovering on this treatment therefore having the g alpha problem and others who try the diet but have no improvements are dealing more with the metals or viruses??? though my older is now fixing those little gains with the valtrex therapy he obviously has the issues but maybe it was the second in line minor attack to his body and the alpha thing first. btw i have nightblindness and hypothyroidism as does my mother hmmmm! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 What seizure meds was your first and then second son on? What age did they start or time in relationship to regression? Did the older son have seizures/abnormal EEG, what was the reason? I really believe that the right anti-convulsant started early enough is key for a specific sub-group of children considered ASD or possibly suffering from an inflammatory disease process that mimics ASD (most likely malabsorption, gastrointestinal, inflammatory process producing abnormal brain chemistry and thus, seizures or epileptic-like EEGs). My theory is that if this process is causing the ASD and it is treated super aggressively (with short-term anti-convulsants, GI treatments, anti-inflammatories, supplements like CLO-which is also a powerful anti-inflammatory, etc…) in a relatively quick time frame from its onset, the better the outcome and sometimes complete reversal of ASD….. I find your older son’s experience very interesting….I too have been really interested in Megson’s theory… Re: Fw: IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A? > > > > > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A? > N. Megson, M.D., F.A.A.P > interesting this article being from 1998/99 when i was researching how i could posssibly help my son the internet was pretty new so what you could find out there was more limited. there was this angle and the cultler ala angle out there so i immediately went for it in both ways without a doctor other than approval from his neurologist not knowing the dynamics behind either one but not caring either... well my son is considered recovered no longer fitting the diagnostic criteria although has some little issues still there. his neurologist has also told me he was absolutely convinced he was severely autistic and has never seen a child change like mine has. so in treating my second son i of course tried all the same things and he seems to not tollerate the clo treatments plus not having the same gains as his brother. so i have just recently began to examine further into why the treatments would work for one but not the other and after re reading all this information i have come to the speculation that there are two other factors to consider one was at the time the brother was also on a reflux med not urocholine but probably same type of action as the urocholine plus a choline supplement that could have made the difference. along with different seizure meds that may have had a role in the brain cell synapsis process i am convinced of this difference because why else would it not work on basically the same genetic make up brother? when i had researched reflux meds to try to find a link, i found one study that kids were more social on it. that's it but in the case with this g alpha hypotheisis it has a whole different role and with the ala i was not on the protocal of today i dont think it was developed as much he was on low dose every day so one could not really scientifically say what brought about his recovery as both were done at once. as well as the reflux ans seizure meds we were already gfcf b/c of such severe reflux and therefore failure to thrive. as crazy as it sounds did a trial of the anti seizure med 6 months for the youngest with no change either way so i am left to conclude that it was the other vit A and reflux together process and i just had an appointment with doc who is not so convinced of the bethanocol treatment but has a few trying it. i think i will ask for the reflux med next visit and see what he thinks??? we are not on any clo just cant tollerate it and maybe this is why he cant b/c needing the action of the reflux med to activate the cells to absorb and repair. it is exciting to finally realise at least in part the differences now and have a route to see if it can be fixed! i have hope that in the case study of the 10 year old that could be us as he already talks a little (just turned 7) but not like his brother with the improvements happening within months of treatments. well i also have just had an apifany(sp?) are those children who are improving from the gfcf be the ones that could be recovering on this treatment therefore having the g alpha problem and others who try the diet but have no improvements are dealing more with the metals or viruses??? though my older is now fixing those little gains with the valtrex therapy he obviously has the issues but maybe it was the second in line minor attack to his body and the alpha thing first. btw i have nightblindness and hypothyroidism as does my mother hmmmm! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 > > > > > > > > > > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A? > > N. Megson, M.D., F.A.A.P > > > interesting this article being from 1998/99 when i was researching > how i could posssibly help my son the internet was pretty new so what > you could find out there was more limited. there was this angle and > the cultler ala angle out there so i immediately went for it in both > ways without a doctor other than approval from his neurologist not > knowing the dynamics behind either one but not caring either... well > my son is considered recovered no longer fitting the diagnostic > criteria although has some little issues still there. his neurologist > has also told me he was absolutely convinced he was severely autistic > and has never seen a child change like mine has. so in treating my > second son i of course tried all the same things and he seems to not > tollerate the clo treatments plus not having the same gains as his > brother. so i have just recently began to examine further into why the > treatments would work for one but not the other and after re reading > all this information i have come to the speculation that there are two > other factors to consider one was at the time the brother was also on > a reflux med not urocholine but probably same type of action as the > urocholine plus a choline supplement that could have made the > difference. along with different seizure meds that may have had a role > in the brain cell synapsis process i am convinced of this difference > because why else would it not work on basically the same genetic make > up brother? when i had researched reflux meds to try to find a link, i > found one study that kids were more social on it. that's it but in the > case with this g alpha hypotheisis it has a whole different role and > with the ala i was not on the protocal of today i dont think it was > developed as much he was on low dose every day so one could not really > scientifically say what brought about his recovery as both were done > at once. as well as the reflux ans seizure meds we were already gfcf > b/c of such severe reflux and therefore failure to thrive. as crazy as > it sounds did a trial of the anti seizure med 6 months for the > youngest with no change either way so i am left to conclude that it > was the other vit A and reflux together process and i just had an > appointment with doc who is not so convinced of the bethanocol > treatment but has a few trying it. i think i will ask for the reflux > med next visit and see what he thinks??? we are not on any clo just > cant tollerate it and maybe this is why he cant b/c needing the > action of the reflux med to activate the cells to absorb and repair. > it is exciting to finally realise at least in part the differences now > and have a route to see if it can be fixed! i have hope that in the > case study of the 10 year old that could be us as he already talks a > little (just turned 7) but not like his brother with the improvements > happening within months of treatments. well i also have just had an > apifany(sp?) are those children who are improving from the gfcf be the > ones that could be recovering on this treatment therefore having the g > alpha problem and others who try the diet but have no improvements are > dealing more with the metals or viruses??? though my older is now > fixing those little gains with the valtrex therapy he obviously has > the issues but maybe it was the second in line minor attack to his > body and the alpha thing first. btw i have nightblindness and > hypothyroidism as does my mother hmmmm! > WELL, longish story, he had seizures from 4 months on i beleive a vaccination reaction as coinciding with it but it was not diagnosed until just about 4 yrs old as with absence ones are hard to recognize, some go undiagnosed up to 7 or8 yrs old. he also had a periventricular localolamasia(sp?) basically a brain type injury showing on mri as a dead or blank black space/spot. neurologist said cp brains show many of these spots and he does hold his feet slightly and hands like a cp person(my cousin has that so i have seen the posturing to see it ever so little in him). on another eeg 2 years after meds this spot was gone, meaning the neuropathways and wirings had rerouted to cover this spot not that it left it still is a brain injury just that the brain has adapted with wirings!!! what was it from? a good guess, maybe birth he had struggled prior and post delivery, maybe so many seizures for so long, maybe not enough nutrients being absorbed or maybe the severe reflux that put him in the hospital as he couldnt breathe afterwards, all senarios for lack of oxygen to the brain that is proven to cause the dead spots???just dont know for sure!!! we tried many a med to no avail and finally are currently on clobazam which is holding seizure pattern at under ten a day down from in and out and again every 3-5 minutes, though lasting anywhere from 10 seconds to 1 minute. he had gi, malabsorption, failure to thrive and gross motor delay but he was and still is asd to a trained eye and someone who looks beyond the diagnostic criteria. no mimic there as his social and communication defecits are still present as well as fine motor co ordination and motor planning as well as sensory regulation still a problem at times, though everything has improved enough to not be on the diagnostic standard but again maybe if the test were to be given in 2 years he may meet it again depending on his ability to keep up and adapt to the faster pace and expectations as you age. he is an interesting case and his neurologist is still amazed everytime we come in that he is progressing and holding steady to his path of development and recently the gains, always sat developmentally at half his cronological age but now is about 3 years back so a gain of 2 yrs in a one year period. having all the underlying medical issues of the gi and reflux and growth and brain problems resolved it is my belief this enabled him/his body and brain to subsequently heal not only all those things but the asd things as well.not completely which is why we still seek and i had sorta given up until i came across the valtrex thing. the brother has no seizure activity but we did try clobazam to see if it was a missing link to improvment. there was no change and i didnt really think it would but couldnt not try so i guess i think the health issues facing each child being resolved to let the body heal the other brain and body pathways in the asd is such a factor as he still struggles with yeast and absorption despite diet and meds.we havent gone at it as aggressively as some just starting that. this is how i look at it now just b/c that has been our expereince and hoping that the virals are the final thing to resolve. i think we just havent found the underlying medical problems with the brother ...YET. another interesting note my sisters little girl got a diagnoses also and had been seeing a naturopath who started treating with an anti vaccine concoction which was so many drops per day increasing etc etc and changing to organic foods. within a month she said her first word 3yrs 7 months old and within 4 months she was talking and now 8 months since starting treatment she talks up a storm and has no other asd difficulties perhaps a bit adhd though hard to say at this stage. mimic of asd in her case maybe or maybe only the viral issue being there as underlying health problem so once that was resolved her body/brain was able to heal.i just hope these things are more brought forth to a conncetion to or possibly the real reasons asd is happening as if the body has all these dyfunctions how can it follow normal developmental path and when the health issues arise is when the development stalls/reverses being asd????? my son was at 4 months, his brother at one year, my niece at 20 months and yes how quickly these things are healed is in conjunction to reversal or healing the asd??? 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Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 > > > > > > > > > > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A? > > N. Megson, M.D., F.A.A.P > > > interesting this article being from 1998/99 when i was researching > how i could posssibly help my son the internet was pretty new so what > you could find out there was more limited. there was this angle and > the cultler ala angle out there so i immediately went for it in both > ways without a doctor other than approval from his neurologist not > knowing the dynamics behind either one but not caring either... well > my son is considered recovered no longer fitting the diagnostic > criteria although has some little issues still there. his neurologist > has also told me he was absolutely convinced he was severely autistic > and has never seen a child change like mine has. so in treating my > second son i of course tried all the same things and he seems to not > tollerate the clo treatments plus not having the same gains as his > brother. so i have just recently began to examine further into why the > treatments would work for one but not the other and after re reading > all this information i have come to the speculation that there are two > other factors to consider one was at the time the brother was also on > a reflux med not urocholine but probably same type of action as the > urocholine plus a choline supplement that could have made the > difference. along with different seizure meds that may have had a role > in the brain cell synapsis process i am convinced of this difference > because why else would it not work on basically the same genetic make > up brother? when i had researched reflux meds to try to find a link, i > found one study that kids were more social on it. that's it but in the > case with this g alpha hypotheisis it has a whole different role and > with the ala i was not on the protocal of today i dont think it was > developed as much he was on low dose every day so one could not really > scientifically say what brought about his recovery as both were done > at once. as well as the reflux ans seizure meds we were already gfcf > b/c of such severe reflux and therefore failure to thrive. as crazy as > it sounds did a trial of the anti seizure med 6 months for the > youngest with no change either way so i am left to conclude that it > was the other vit A and reflux together process and i just had an > appointment with doc who is not so convinced of the bethanocol > treatment but has a few trying it. i think i will ask for the reflux > med next visit and see what he thinks??? we are not on any clo just > cant tollerate it and maybe this is why he cant b/c needing the > action of the reflux med to activate the cells to absorb and repair. > it is exciting to finally realise at least in part the differences now > and have a route to see if it can be fixed! i have hope that in the > case study of the 10 year old that could be us as he already talks a > little (just turned 7) but not like his brother with the improvements > happening within months of treatments. well i also have just had an > apifany(sp?) are those children who are improving from the gfcf be the > ones that could be recovering on this treatment therefore having the g > alpha problem and others who try the diet but have no improvements are > dealing more with the metals or viruses??? though my older is now > fixing those little gains with the valtrex therapy he obviously has > the issues but maybe it was the second in line minor attack to his > body and the alpha thing first. btw i have nightblindness and > hypothyroidism as does my mother hmmmm! > WELL, longish story, he had seizures from 4 months on i beleive a vaccination reaction as coinciding with it but it was not diagnosed until just about 4 yrs old as with absence ones are hard to recognize, some go undiagnosed up to 7 or8 yrs old. he also had a periventricular localolamasia(sp?) basically a brain type injury showing on mri as a dead or blank black space/spot. neurologist said cp brains show many of these spots and he does hold his feet slightly and hands like a cp person(my cousin has that so i have seen the posturing to see it ever so little in him). on another eeg 2 years after meds this spot was gone, meaning the neuropathways and wirings had rerouted to cover this spot not that it left it still is a brain injury just that the brain has adapted with wirings!!! what was it from? a good guess, maybe birth he had struggled prior and post delivery, maybe so many seizures for so long, maybe not enough nutrients being absorbed or maybe the severe reflux that put him in the hospital as he couldnt breathe afterwards, all senarios for lack of oxygen to the brain that is proven to cause the dead spots???just dont know for sure!!! we tried many a med to no avail and finally are currently on clobazam which is holding seizure pattern at under ten a day down from in and out and again every 3-5 minutes, though lasting anywhere from 10 seconds to 1 minute. he had gi, malabsorption, failure to thrive and gross motor delay but he was and still is asd to a trained eye and someone who looks beyond the diagnostic criteria. no mimic there as his social and communication defecits are still present as well as fine motor co ordination and motor planning as well as sensory regulation still a problem at times, though everything has improved enough to not be on the diagnostic standard but again maybe if the test were to be given in 2 years he may meet it again depending on his ability to keep up and adapt to the faster pace and expectations as you age. he is an interesting case and his neurologist is still amazed everytime we come in that he is progressing and holding steady to his path of development and recently the gains, always sat developmentally at half his cronological age but now is about 3 years back so a gain of 2 yrs in a one year period. having all the underlying medical issues of the gi and reflux and growth and brain problems resolved it is my belief this enabled him/his body and brain to subsequently heal not only all those things but the asd things as well.not completely which is why we still seek and i had sorta given up until i came across the valtrex thing. the brother has no seizure activity but we did try clobazam to see if it was a missing link to improvment. there was no change and i didnt really think it would but couldnt not try so i guess i think the health issues facing each child being resolved to let the body heal the other brain and body pathways in the asd is such a factor as he still struggles with yeast and absorption despite diet and meds.we havent gone at it as aggressively as some just starting that. this is how i look at it now just b/c that has been our expereince and hoping that the virals are the final thing to resolve. i think we just havent found the underlying medical problems with the brother ...YET. another interesting note my sisters little girl got a diagnoses also and had been seeing a naturopath who started treating with an anti vaccine concoction which was so many drops per day increasing etc etc and changing to organic foods. within a month she said her first word 3yrs 7 months old and within 4 months she was talking and now 8 months since starting treatment she talks up a storm and has no other asd difficulties perhaps a bit adhd though hard to say at this stage. mimic of asd in her case maybe or maybe only the viral issue being there as underlying health problem so once that was resolved her body/brain was able to heal.i just hope these things are more brought forth to a conncetion to or possibly the real reasons asd is happening as if the body has all these dyfunctions how can it follow normal developmental path and when the health issues arise is when the development stalls/reverses being asd????? my son was at 4 months, his brother at one year, my niece at 20 months and yes how quickly these things are healed is in conjunction to reversal or healing the asd??? 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