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Re: Fw: IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A?

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>

>

>

>

> IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A?

> N. Megson, M.D., F.A.A.P

>

interesting this article being from 1998/99 when i was researching

how i could posssibly help my son the internet was pretty new so what

you could find out there was more limited. there was this angle and

the cultler ala angle out there so i immediately went for it in both

ways without a doctor other than approval from his neurologist not

knowing the dynamics behind either one but not caring either... well

my son is considered recovered no longer fitting the diagnostic

criteria although has some little issues still there. his neurologist

has also told me he was absolutely convinced he was severely autistic

and has never seen a child change like mine has. so in treating my

second son i of course tried all the same things and he seems to not

tollerate the clo treatments plus not having the same gains as his

brother. so i have just recently began to examine further into why the

treatments would work for one but not the other and after re reading

all this information i have come to the speculation that there are two

other factors to consider one was at the time the brother was also on

a reflux med not urocholine but probably same type of action as the

urocholine plus a choline supplement that could have made the

difference. along with different seizure meds that may have had a role

in the brain cell synapsis process i am convinced of this difference

because why else would it not work on basically the same genetic make

up brother? when i had researched reflux meds to try to find a link, i

found one study that kids were more social on it. that's it but in the

case with this g alpha hypotheisis it has a whole different role and

with the ala i was not on the protocal of today i dont think it was

developed as much he was on low dose every day so one could not really

scientifically say what brought about his recovery as both were done

at once. as well as the reflux ans seizure meds we were already gfcf

b/c of such severe reflux and therefore failure to thrive. as crazy as

it sounds did a trial of the anti seizure med 6 months for the

youngest with no change either way so i am left to conclude that it

was the other vit A and reflux together process and i just had an

appointment with doc who is not so convinced of the bethanocol

treatment but has a few trying it. i think i will ask for the reflux

med next visit and see what he thinks??? we are not on any clo just

cant tollerate it and maybe this is why he cant b/c needing the

action of the reflux med to activate the cells to absorb and repair.

it is exciting to finally realise at least in part the differences now

and have a route to see if it can be fixed! i have hope that in the

case study of the 10 year old that could be us as he already talks a

little (just turned 7) but not like his brother with the improvements

happening within months of treatments. well i also have just had an

apifany(sp?) are those children who are improving from the gfcf be the

ones that could be recovering on this treatment therefore having the g

alpha problem and others who try the diet but have no improvements are

dealing more with the metals or viruses??? though my older is now

fixing those little gains with the valtrex therapy he obviously has

the issues but maybe it was the second in line minor attack to his

body and the alpha thing first. btw i have nightblindness and

hypothyroidism as does my mother hmmmm!

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Guest guest

>

>

>

>

> IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A?

> N. Megson, M.D., F.A.A.P

>

interesting this article being from 1998/99 when i was researching

how i could posssibly help my son the internet was pretty new so what

you could find out there was more limited. there was this angle and

the cultler ala angle out there so i immediately went for it in both

ways without a doctor other than approval from his neurologist not

knowing the dynamics behind either one but not caring either... well

my son is considered recovered no longer fitting the diagnostic

criteria although has some little issues still there. his neurologist

has also told me he was absolutely convinced he was severely autistic

and has never seen a child change like mine has. so in treating my

second son i of course tried all the same things and he seems to not

tollerate the clo treatments plus not having the same gains as his

brother. so i have just recently began to examine further into why the

treatments would work for one but not the other and after re reading

all this information i have come to the speculation that there are two

other factors to consider one was at the time the brother was also on

a reflux med not urocholine but probably same type of action as the

urocholine plus a choline supplement that could have made the

difference. along with different seizure meds that may have had a role

in the brain cell synapsis process i am convinced of this difference

because why else would it not work on basically the same genetic make

up brother? when i had researched reflux meds to try to find a link, i

found one study that kids were more social on it. that's it but in the

case with this g alpha hypotheisis it has a whole different role and

with the ala i was not on the protocal of today i dont think it was

developed as much he was on low dose every day so one could not really

scientifically say what brought about his recovery as both were done

at once. as well as the reflux ans seizure meds we were already gfcf

b/c of such severe reflux and therefore failure to thrive. as crazy as

it sounds did a trial of the anti seizure med 6 months for the

youngest with no change either way so i am left to conclude that it

was the other vit A and reflux together process and i just had an

appointment with doc who is not so convinced of the bethanocol

treatment but has a few trying it. i think i will ask for the reflux

med next visit and see what he thinks??? we are not on any clo just

cant tollerate it and maybe this is why he cant b/c needing the

action of the reflux med to activate the cells to absorb and repair.

it is exciting to finally realise at least in part the differences now

and have a route to see if it can be fixed! i have hope that in the

case study of the 10 year old that could be us as he already talks a

little (just turned 7) but not like his brother with the improvements

happening within months of treatments. well i also have just had an

apifany(sp?) are those children who are improving from the gfcf be the

ones that could be recovering on this treatment therefore having the g

alpha problem and others who try the diet but have no improvements are

dealing more with the metals or viruses??? though my older is now

fixing those little gains with the valtrex therapy he obviously has

the issues but maybe it was the second in line minor attack to his

body and the alpha thing first. btw i have nightblindness and

hypothyroidism as does my mother hmmmm!

Link to comment
Share on other sites

Guest guest

>

>

>

>

> IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A?

> N. Megson, M.D., F.A.A.P

>

interesting this article being from 1998/99 when i was researching

how i could posssibly help my son the internet was pretty new so what

you could find out there was more limited. there was this angle and

the cultler ala angle out there so i immediately went for it in both

ways without a doctor other than approval from his neurologist not

knowing the dynamics behind either one but not caring either... well

my son is considered recovered no longer fitting the diagnostic

criteria although has some little issues still there. his neurologist

has also told me he was absolutely convinced he was severely autistic

and has never seen a child change like mine has. so in treating my

second son i of course tried all the same things and he seems to not

tollerate the clo treatments plus not having the same gains as his

brother. so i have just recently began to examine further into why the

treatments would work for one but not the other and after re reading

all this information i have come to the speculation that there are two

other factors to consider one was at the time the brother was also on

a reflux med not urocholine but probably same type of action as the

urocholine plus a choline supplement that could have made the

difference. along with different seizure meds that may have had a role

in the brain cell synapsis process i am convinced of this difference

because why else would it not work on basically the same genetic make

up brother? when i had researched reflux meds to try to find a link, i

found one study that kids were more social on it. that's it but in the

case with this g alpha hypotheisis it has a whole different role and

with the ala i was not on the protocal of today i dont think it was

developed as much he was on low dose every day so one could not really

scientifically say what brought about his recovery as both were done

at once. as well as the reflux ans seizure meds we were already gfcf

b/c of such severe reflux and therefore failure to thrive. as crazy as

it sounds did a trial of the anti seizure med 6 months for the

youngest with no change either way so i am left to conclude that it

was the other vit A and reflux together process and i just had an

appointment with doc who is not so convinced of the bethanocol

treatment but has a few trying it. i think i will ask for the reflux

med next visit and see what he thinks??? we are not on any clo just

cant tollerate it and maybe this is why he cant b/c needing the

action of the reflux med to activate the cells to absorb and repair.

it is exciting to finally realise at least in part the differences now

and have a route to see if it can be fixed! i have hope that in the

case study of the 10 year old that could be us as he already talks a

little (just turned 7) but not like his brother with the improvements

happening within months of treatments. well i also have just had an

apifany(sp?) are those children who are improving from the gfcf be the

ones that could be recovering on this treatment therefore having the g

alpha problem and others who try the diet but have no improvements are

dealing more with the metals or viruses??? though my older is now

fixing those little gains with the valtrex therapy he obviously has

the issues but maybe it was the second in line minor attack to his

body and the alpha thing first. btw i have nightblindness and

hypothyroidism as does my mother hmmmm!

Link to comment
Share on other sites

Guest guest

Have you done genetic testing on the two boys and found them

similar?

Gayatri

> >

> >

> >

> >

> > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL

VITAMIN A?

> > N. Megson, M.D., F.A.A.P

> >

> interesting this article being from 1998/99 when i was

researching

> how i could posssibly help my son the internet was pretty new so

what

> you could find out there was more limited. there was this angle

and

> the cultler ala angle out there so i immediately went for it in

both

> ways without a doctor other than approval from his neurologist not

> knowing the dynamics behind either one but not caring either...

well

> my son is considered recovered no longer fitting the diagnostic

> criteria although has some little issues still there. his

neurologist

> has also told me he was absolutely convinced he was severely

autistic

> and has never seen a child change like mine has. so in treating my

> second son i of course tried all the same things and he seems to

not

> tollerate the clo treatments plus not having the same gains as his

> brother. so i have just recently began to examine further into why

the

> treatments would work for one but not the other and after re

reading

> all this information i have come to the speculation that there are

two

> other factors to consider one was at the time the brother was also

on

> a reflux med not urocholine but probably same type of action as

the

> urocholine plus a choline supplement that could have made the

> difference. along with different seizure meds that may have had a

role

> in the brain cell synapsis process i am convinced of this

difference

> because why else would it not work on basically the same genetic

make

> up brother? when i had researched reflux meds to try to find a

link, i

> found one study that kids were more social on it. that's it but in

the

> case with this g alpha hypotheisis it has a whole different role

and

> with the ala i was not on the protocal of today i dont think it

was

> developed as much he was on low dose every day so one could not

really

> scientifically say what brought about his recovery as both were

done

> at once. as well as the reflux ans seizure meds we were already

gfcf

> b/c of such severe reflux and therefore failure to thrive. as

crazy as

> it sounds did a trial of the anti seizure med 6 months for the

> youngest with no change either way so i am left to conclude that

it

> was the other vit A and reflux together process and i just had an

> appointment with doc who is not so convinced of the bethanocol

> treatment but has a few trying it. i think i will ask for the

reflux

> med next visit and see what he thinks??? we are not on any clo

just

> cant tollerate it and maybe this is why he cant b/c needing the

> action of the reflux med to activate the cells to absorb and

repair.

> it is exciting to finally realise at least in part the differences

now

> and have a route to see if it can be fixed! i have hope that in

the

> case study of the 10 year old that could be us as he already talks

a

> little (just turned 7) but not like his brother with the

improvements

> happening within months of treatments. well i also have just had

an

> apifany(sp?) are those children who are improving from the gfcf be

the

> ones that could be recovering on this treatment therefore having

the g

> alpha problem and others who try the diet but have no improvements

are

> dealing more with the metals or viruses??? though my older is now

> fixing those little gains with the valtrex therapy he obviously

has

> the issues but maybe it was the second in line minor attack to his

> body and the alpha thing first. btw i have nightblindness and

> hypothyroidism as does my mother hmmmm!

>

Link to comment
Share on other sites

Guest guest

Have you done genetic testing on the two boys and found them

similar?

Gayatri

> >

> >

> >

> >

> > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL

VITAMIN A?

> > N. Megson, M.D., F.A.A.P

> >

> interesting this article being from 1998/99 when i was

researching

> how i could posssibly help my son the internet was pretty new so

what

> you could find out there was more limited. there was this angle

and

> the cultler ala angle out there so i immediately went for it in

both

> ways without a doctor other than approval from his neurologist not

> knowing the dynamics behind either one but not caring either...

well

> my son is considered recovered no longer fitting the diagnostic

> criteria although has some little issues still there. his

neurologist

> has also told me he was absolutely convinced he was severely

autistic

> and has never seen a child change like mine has. so in treating my

> second son i of course tried all the same things and he seems to

not

> tollerate the clo treatments plus not having the same gains as his

> brother. so i have just recently began to examine further into why

the

> treatments would work for one but not the other and after re

reading

> all this information i have come to the speculation that there are

two

> other factors to consider one was at the time the brother was also

on

> a reflux med not urocholine but probably same type of action as

the

> urocholine plus a choline supplement that could have made the

> difference. along with different seizure meds that may have had a

role

> in the brain cell synapsis process i am convinced of this

difference

> because why else would it not work on basically the same genetic

make

> up brother? when i had researched reflux meds to try to find a

link, i

> found one study that kids were more social on it. that's it but in

the

> case with this g alpha hypotheisis it has a whole different role

and

> with the ala i was not on the protocal of today i dont think it

was

> developed as much he was on low dose every day so one could not

really

> scientifically say what brought about his recovery as both were

done

> at once. as well as the reflux ans seizure meds we were already

gfcf

> b/c of such severe reflux and therefore failure to thrive. as

crazy as

> it sounds did a trial of the anti seizure med 6 months for the

> youngest with no change either way so i am left to conclude that

it

> was the other vit A and reflux together process and i just had an

> appointment with doc who is not so convinced of the bethanocol

> treatment but has a few trying it. i think i will ask for the

reflux

> med next visit and see what he thinks??? we are not on any clo

just

> cant tollerate it and maybe this is why he cant b/c needing the

> action of the reflux med to activate the cells to absorb and

repair.

> it is exciting to finally realise at least in part the differences

now

> and have a route to see if it can be fixed! i have hope that in

the

> case study of the 10 year old that could be us as he already talks

a

> little (just turned 7) but not like his brother with the

improvements

> happening within months of treatments. well i also have just had

an

> apifany(sp?) are those children who are improving from the gfcf be

the

> ones that could be recovering on this treatment therefore having

the g

> alpha problem and others who try the diet but have no improvements

are

> dealing more with the metals or viruses??? though my older is now

> fixing those little gains with the valtrex therapy he obviously

has

> the issues but maybe it was the second in line minor attack to his

> body and the alpha thing first. btw i have nightblindness and

> hypothyroidism as does my mother hmmmm!

>

Link to comment
Share on other sites

Guest guest

Have you done genetic testing on the two boys and found them

similar?

Gayatri

> >

> >

> >

> >

> > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL

VITAMIN A?

> > N. Megson, M.D., F.A.A.P

> >

> interesting this article being from 1998/99 when i was

researching

> how i could posssibly help my son the internet was pretty new so

what

> you could find out there was more limited. there was this angle

and

> the cultler ala angle out there so i immediately went for it in

both

> ways without a doctor other than approval from his neurologist not

> knowing the dynamics behind either one but not caring either...

well

> my son is considered recovered no longer fitting the diagnostic

> criteria although has some little issues still there. his

neurologist

> has also told me he was absolutely convinced he was severely

autistic

> and has never seen a child change like mine has. so in treating my

> second son i of course tried all the same things and he seems to

not

> tollerate the clo treatments plus not having the same gains as his

> brother. so i have just recently began to examine further into why

the

> treatments would work for one but not the other and after re

reading

> all this information i have come to the speculation that there are

two

> other factors to consider one was at the time the brother was also

on

> a reflux med not urocholine but probably same type of action as

the

> urocholine plus a choline supplement that could have made the

> difference. along with different seizure meds that may have had a

role

> in the brain cell synapsis process i am convinced of this

difference

> because why else would it not work on basically the same genetic

make

> up brother? when i had researched reflux meds to try to find a

link, i

> found one study that kids were more social on it. that's it but in

the

> case with this g alpha hypotheisis it has a whole different role

and

> with the ala i was not on the protocal of today i dont think it

was

> developed as much he was on low dose every day so one could not

really

> scientifically say what brought about his recovery as both were

done

> at once. as well as the reflux ans seizure meds we were already

gfcf

> b/c of such severe reflux and therefore failure to thrive. as

crazy as

> it sounds did a trial of the anti seizure med 6 months for the

> youngest with no change either way so i am left to conclude that

it

> was the other vit A and reflux together process and i just had an

> appointment with doc who is not so convinced of the bethanocol

> treatment but has a few trying it. i think i will ask for the

reflux

> med next visit and see what he thinks??? we are not on any clo

just

> cant tollerate it and maybe this is why he cant b/c needing the

> action of the reflux med to activate the cells to absorb and

repair.

> it is exciting to finally realise at least in part the differences

now

> and have a route to see if it can be fixed! i have hope that in

the

> case study of the 10 year old that could be us as he already talks

a

> little (just turned 7) but not like his brother with the

improvements

> happening within months of treatments. well i also have just had

an

> apifany(sp?) are those children who are improving from the gfcf be

the

> ones that could be recovering on this treatment therefore having

the g

> alpha problem and others who try the diet but have no improvements

are

> dealing more with the metals or viruses??? though my older is now

> fixing those little gains with the valtrex therapy he obviously

has

> the issues but maybe it was the second in line minor attack to his

> body and the alpha thing first. btw i have nightblindness and

> hypothyroidism as does my mother hmmmm!

>

Link to comment
Share on other sites

Guest guest

What

seizure meds was your first and then second son on? What age did they start or time in

relationship to regression? Did the

older son have seizures/abnormal EEG, what was the reason? I really believe that the right

anti-convulsant started early enough is key for a specific sub-group of

children considered ASD or possibly suffering from an inflammatory disease

process that mimics ASD (most likely malabsorption, gastrointestinal,

inflammatory process producing abnormal brain chemistry and thus, seizures or

epileptic-like EEGs). My theory is

that if this process is causing the ASD and it is treated super aggressively

(with short-term anti-convulsants, GI treatments, anti-inflammatories, supplements

like CLO-which is also a powerful anti-inflammatory, etc…) in a relatively quick time

frame from its onset, the better the outcome and sometimes complete reversal of

ASD….. I find your older son’s experience very interesting….I

too have been really interested in Megson’s theory…

Re: Fw: IS

AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A?

>

>

>

>

> IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A?

> N. Megson, M.D., F.A.A.P

>

interesting this article being from 1998/99 when i was researching

how i could posssibly help my son the internet was pretty new so what

you could find out there was more limited. there was this angle and

the cultler ala angle out there so i immediately went for it in both

ways without a doctor other than approval from his neurologist not

knowing the dynamics behind either one but not caring either... well

my son is considered recovered no longer fitting the diagnostic

criteria although has some little issues still there. his neurologist

has also told me he was absolutely convinced he was severely autistic

and has never seen a child change like mine has. so in treating my

second son i of course tried all the same things and he seems to not

tollerate the clo treatments plus not having the same gains as his

brother. so i have just recently began to examine further into why the

treatments would work for one but not the other and after re reading

all this information i have come to the speculation that there are two

other factors to consider one was at the time the brother was also on

a reflux med not urocholine but probably same type of action as the

urocholine plus a choline supplement that could have made the

difference. along with different seizure meds that may have had a role

in the brain cell synapsis process i am convinced of this difference

because why else would it not work on basically the same genetic make

up brother? when i had researched reflux meds to try to find a link, i

found one study that kids were more social on it. that's it but in the

case with this g alpha hypotheisis it has a whole different role and

with the ala i was not on the protocal of today i dont think it was

developed as much he was on low dose every day so one could not really

scientifically say what brought about his recovery as both were done

at once. as well as the reflux ans seizure meds we were already gfcf

b/c of such severe reflux and therefore failure to thrive. as crazy as

it sounds did a trial of the anti seizure med 6 months for the

youngest with no change either way so i am left to conclude that it

was the other vit A and reflux together process and i just had an

appointment with doc who is not so convinced of the bethanocol

treatment but has a few trying it. i think i will ask for the reflux

med next visit and see what he thinks??? we are not on any clo just

cant tollerate it and maybe this is why he cant b/c needing the

action of the reflux med to activate the cells to absorb and repair.

it is exciting to finally realise at least in part the differences now

and have a route to see if it can be fixed! i have hope that in the

case study of the 10 year old that could be us as he already talks a

little (just turned 7) but not like his brother with the improvements

happening within months of treatments. well i also have just had an

apifany(sp?) are those children who are improving from the gfcf be the

ones that could be recovering on this treatment therefore having the g

alpha problem and others who try the diet but have no improvements are

dealing more with the metals or viruses??? though my older is now

fixing those little gains with the valtrex therapy he obviously has

the issues but maybe it was the second in line minor attack to his

body and the alpha thing first. btw i have nightblindness and

hypothyroidism as does my mother hmmmm!

Link to comment
Share on other sites

Guest guest

What

seizure meds was your first and then second son on? What age did they start or time in

relationship to regression? Did the

older son have seizures/abnormal EEG, what was the reason? I really believe that the right

anti-convulsant started early enough is key for a specific sub-group of

children considered ASD or possibly suffering from an inflammatory disease

process that mimics ASD (most likely malabsorption, gastrointestinal,

inflammatory process producing abnormal brain chemistry and thus, seizures or

epileptic-like EEGs). My theory is

that if this process is causing the ASD and it is treated super aggressively

(with short-term anti-convulsants, GI treatments, anti-inflammatories, supplements

like CLO-which is also a powerful anti-inflammatory, etc…) in a relatively quick time

frame from its onset, the better the outcome and sometimes complete reversal of

ASD….. I find your older son’s experience very interesting….I

too have been really interested in Megson’s theory…

Re: Fw: IS

AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A?

>

>

>

>

> IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A?

> N. Megson, M.D., F.A.A.P

>

interesting this article being from 1998/99 when i was researching

how i could posssibly help my son the internet was pretty new so what

you could find out there was more limited. there was this angle and

the cultler ala angle out there so i immediately went for it in both

ways without a doctor other than approval from his neurologist not

knowing the dynamics behind either one but not caring either... well

my son is considered recovered no longer fitting the diagnostic

criteria although has some little issues still there. his neurologist

has also told me he was absolutely convinced he was severely autistic

and has never seen a child change like mine has. so in treating my

second son i of course tried all the same things and he seems to not

tollerate the clo treatments plus not having the same gains as his

brother. so i have just recently began to examine further into why the

treatments would work for one but not the other and after re reading

all this information i have come to the speculation that there are two

other factors to consider one was at the time the brother was also on

a reflux med not urocholine but probably same type of action as the

urocholine plus a choline supplement that could have made the

difference. along with different seizure meds that may have had a role

in the brain cell synapsis process i am convinced of this difference

because why else would it not work on basically the same genetic make

up brother? when i had researched reflux meds to try to find a link, i

found one study that kids were more social on it. that's it but in the

case with this g alpha hypotheisis it has a whole different role and

with the ala i was not on the protocal of today i dont think it was

developed as much he was on low dose every day so one could not really

scientifically say what brought about his recovery as both were done

at once. as well as the reflux ans seizure meds we were already gfcf

b/c of such severe reflux and therefore failure to thrive. as crazy as

it sounds did a trial of the anti seizure med 6 months for the

youngest with no change either way so i am left to conclude that it

was the other vit A and reflux together process and i just had an

appointment with doc who is not so convinced of the bethanocol

treatment but has a few trying it. i think i will ask for the reflux

med next visit and see what he thinks??? we are not on any clo just

cant tollerate it and maybe this is why he cant b/c needing the

action of the reflux med to activate the cells to absorb and repair.

it is exciting to finally realise at least in part the differences now

and have a route to see if it can be fixed! i have hope that in the

case study of the 10 year old that could be us as he already talks a

little (just turned 7) but not like his brother with the improvements

happening within months of treatments. well i also have just had an

apifany(sp?) are those children who are improving from the gfcf be the

ones that could be recovering on this treatment therefore having the g

alpha problem and others who try the diet but have no improvements are

dealing more with the metals or viruses??? though my older is now

fixing those little gains with the valtrex therapy he obviously has

the issues but maybe it was the second in line minor attack to his

body and the alpha thing first. btw i have nightblindness and

hypothyroidism as does my mother hmmmm!

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> >

> >

> >

> >

> > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL

VITAMIN A?

> > N. Megson, M.D., F.A.A.P

> >

> interesting this article being from 1998/99 when i was researching

> how i could posssibly help my son the internet was pretty new so

what

> you could find out there was more limited. there was this angle

and

> the cultler ala angle out there so i immediately went for it in

both

> ways without a doctor other than approval from his neurologist not

> knowing the dynamics behind either one but not caring either...

well

> my son is considered recovered no longer fitting the diagnostic

> criteria although has some little issues still there. his

neurologist

> has also told me he was absolutely convinced he was severely

autistic

> and has never seen a child change like mine has. so in treating my

> second son i of course tried all the same things and he seems to

not

> tollerate the clo treatments plus not having the same gains as his

> brother. so i have just recently began to examine further into why

the

> treatments would work for one but not the other and after re

reading

> all this information i have come to the speculation that there are

two

> other factors to consider one was at the time the brother was also

on

> a reflux med not urocholine but probably same type of action as

the

> urocholine plus a choline supplement that could have made the

> difference. along with different seizure meds that may have had a

role

> in the brain cell synapsis process i am convinced of this

difference

> because why else would it not work on basically the same genetic

make

> up brother? when i had researched reflux meds to try to find a

link, i

> found one study that kids were more social on it. that's it but in

the

> case with this g alpha hypotheisis it has a whole different role

and

> with the ala i was not on the protocal of today i dont think it

was

> developed as much he was on low dose every day so one could not

really

> scientifically say what brought about his recovery as both were

done

> at once. as well as the reflux ans seizure meds we were already

gfcf

> b/c of such severe reflux and therefore failure to thrive. as

crazy as

> it sounds did a trial of the anti seizure med 6 months for the

> youngest with no change either way so i am left to conclude that

it

> was the other vit A and reflux together process and i just had an

> appointment with doc who is not so convinced of the bethanocol

> treatment but has a few trying it. i think i will ask for the

reflux

> med next visit and see what he thinks??? we are not on any clo

just

> cant tollerate it and maybe this is why he cant b/c needing the

> action of the reflux med to activate the cells to absorb and

repair.

> it is exciting to finally realise at least in part the differences

now

> and have a route to see if it can be fixed! i have hope that in

the

> case study of the 10 year old that could be us as he already talks

a

> little (just turned 7) but not like his brother with the

improvements

> happening within months of treatments. well i also have just had

an

> apifany(sp?) are those children who are improving from the gfcf be

the

> ones that could be recovering on this treatment therefore having

the g

> alpha problem and others who try the diet but have no improvements

are

> dealing more with the metals or viruses??? though my older is now

> fixing those little gains with the valtrex therapy he obviously

has

> the issues but maybe it was the second in line minor attack to his

> body and the alpha thing first. btw i have nightblindness and

> hypothyroidism as does my mother hmmmm!

>

WELL, longish story, he had seizures from 4 months on i beleive a

vaccination reaction as coinciding with it but it was not diagnosed

until just about 4 yrs old as with absence ones are hard to

recognize, some go undiagnosed up to 7 or8 yrs old. he also had a

periventricular localolamasia(sp?) basically a brain type injury

showing on mri as a dead or blank black space/spot. neurologist said

cp brains show many of these spots and he does hold his feet

slightly and hands like a cp person(my cousin has that so i have

seen the posturing to see it ever so little in him). on another eeg

2 years after meds this spot was gone, meaning the neuropathways and

wirings had rerouted to cover this spot not that it left it still is

a brain injury just that the brain has adapted with wirings!!! what

was it from? a good guess, maybe birth he had struggled prior and

post delivery, maybe so many seizures for so long, maybe not enough

nutrients being absorbed or maybe the severe reflux that put him in

the hospital as he couldnt breathe afterwards, all senarios for lack

of oxygen to the brain that is proven to cause the dead spots???just

dont know for sure!!! we tried many a med to no avail and finally

are currently on clobazam which is holding seizure pattern at under

ten a day down from in and out and again every 3-5 minutes, though

lasting anywhere from 10 seconds to 1 minute. he had gi,

malabsorption, failure to thrive and gross motor delay but he was

and still is asd to a trained eye and someone who looks beyond the

diagnostic criteria. no mimic there as his social and communication

defecits are still present as well as fine motor co ordination and

motor planning as well as sensory regulation still a problem at

times, though everything has improved enough to not be on the

diagnostic standard but again maybe if the test were to be given in

2 years he may meet it again depending on his ability to keep up and

adapt to the faster pace and expectations as you age. he is an

interesting case and his neurologist is still amazed everytime we

come in that he is progressing and holding steady to his path of

development and recently the gains, always sat developmentally at

half his cronological age but now is about 3 years back so a gain of

2 yrs in a one year period. having all the underlying medical issues

of the gi and reflux and growth and brain problems resolved it is my

belief this enabled him/his body and brain to subsequently heal not

only all those things but the asd things as well.not completely

which is why we still seek and i had sorta given up until i came

across the valtrex thing. the brother has no seizure activity but we

did try clobazam to see if it was a missing link to improvment.

there was no change and i didnt really think it would but couldnt

not try so i guess i think the health issues facing each child being

resolved to let the body heal the other brain and body pathways in

the asd is such a factor as he still struggles with yeast and

absorption despite diet and meds.we havent gone at it as

aggressively as some just starting that. this is how i look at it

now just b/c that has been our expereince and hoping that the virals

are the final thing to resolve. i think we just havent found the

underlying medical problems with the brother ...YET. another

interesting note my sisters little girl got a diagnoses also and had

been seeing a naturopath who started treating with an anti vaccine

concoction which was so many drops per day increasing etc etc and

changing to organic foods. within a month she said her first word

3yrs 7 months old and within 4 months she was talking and now 8

months since starting treatment she talks up a storm and has no

other asd difficulties perhaps a bit adhd though hard to say at this

stage. mimic of asd in her case maybe or maybe only the viral issue

being there as underlying health problem so once that was resolved

her body/brain was able to heal.i just hope these things are more

brought forth to a conncetion to or possibly the real reasons asd is

happening as if the body has all these dyfunctions how can it follow

normal developmental path and when the health issues arise is when

the development stalls/reverses being asd????? my son was at 4

months, his brother at one year, my niece at 20 months and yes how

quickly these things are healed is in conjunction to reversal or

healing the asd???

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Share on other sites

Guest guest

> >

> >

> >

> >

> > IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL

VITAMIN A?

> > N. Megson, M.D., F.A.A.P

> >

> interesting this article being from 1998/99 when i was researching

> how i could posssibly help my son the internet was pretty new so

what

> you could find out there was more limited. there was this angle

and

> the cultler ala angle out there so i immediately went for it in

both

> ways without a doctor other than approval from his neurologist not

> knowing the dynamics behind either one but not caring either...

well

> my son is considered recovered no longer fitting the diagnostic

> criteria although has some little issues still there. his

neurologist

> has also told me he was absolutely convinced he was severely

autistic

> and has never seen a child change like mine has. so in treating my

> second son i of course tried all the same things and he seems to

not

> tollerate the clo treatments plus not having the same gains as his

> brother. so i have just recently began to examine further into why

the

> treatments would work for one but not the other and after re

reading

> all this information i have come to the speculation that there are

two

> other factors to consider one was at the time the brother was also

on

> a reflux med not urocholine but probably same type of action as

the

> urocholine plus a choline supplement that could have made the

> difference. along with different seizure meds that may have had a

role

> in the brain cell synapsis process i am convinced of this

difference

> because why else would it not work on basically the same genetic

make

> up brother? when i had researched reflux meds to try to find a

link, i

> found one study that kids were more social on it. that's it but in

the

> case with this g alpha hypotheisis it has a whole different role

and

> with the ala i was not on the protocal of today i dont think it

was

> developed as much he was on low dose every day so one could not

really

> scientifically say what brought about his recovery as both were

done

> at once. as well as the reflux ans seizure meds we were already

gfcf

> b/c of such severe reflux and therefore failure to thrive. as

crazy as

> it sounds did a trial of the anti seizure med 6 months for the

> youngest with no change either way so i am left to conclude that

it

> was the other vit A and reflux together process and i just had an

> appointment with doc who is not so convinced of the bethanocol

> treatment but has a few trying it. i think i will ask for the

reflux

> med next visit and see what he thinks??? we are not on any clo

just

> cant tollerate it and maybe this is why he cant b/c needing the

> action of the reflux med to activate the cells to absorb and

repair.

> it is exciting to finally realise at least in part the differences

now

> and have a route to see if it can be fixed! i have hope that in

the

> case study of the 10 year old that could be us as he already talks

a

> little (just turned 7) but not like his brother with the

improvements

> happening within months of treatments. well i also have just had

an

> apifany(sp?) are those children who are improving from the gfcf be

the

> ones that could be recovering on this treatment therefore having

the g

> alpha problem and others who try the diet but have no improvements

are

> dealing more with the metals or viruses??? though my older is now

> fixing those little gains with the valtrex therapy he obviously

has

> the issues but maybe it was the second in line minor attack to his

> body and the alpha thing first. btw i have nightblindness and

> hypothyroidism as does my mother hmmmm!

>

WELL, longish story, he had seizures from 4 months on i beleive a

vaccination reaction as coinciding with it but it was not diagnosed

until just about 4 yrs old as with absence ones are hard to

recognize, some go undiagnosed up to 7 or8 yrs old. he also had a

periventricular localolamasia(sp?) basically a brain type injury

showing on mri as a dead or blank black space/spot. neurologist said

cp brains show many of these spots and he does hold his feet

slightly and hands like a cp person(my cousin has that so i have

seen the posturing to see it ever so little in him). on another eeg

2 years after meds this spot was gone, meaning the neuropathways and

wirings had rerouted to cover this spot not that it left it still is

a brain injury just that the brain has adapted with wirings!!! what

was it from? a good guess, maybe birth he had struggled prior and

post delivery, maybe so many seizures for so long, maybe not enough

nutrients being absorbed or maybe the severe reflux that put him in

the hospital as he couldnt breathe afterwards, all senarios for lack

of oxygen to the brain that is proven to cause the dead spots???just

dont know for sure!!! we tried many a med to no avail and finally

are currently on clobazam which is holding seizure pattern at under

ten a day down from in and out and again every 3-5 minutes, though

lasting anywhere from 10 seconds to 1 minute. he had gi,

malabsorption, failure to thrive and gross motor delay but he was

and still is asd to a trained eye and someone who looks beyond the

diagnostic criteria. no mimic there as his social and communication

defecits are still present as well as fine motor co ordination and

motor planning as well as sensory regulation still a problem at

times, though everything has improved enough to not be on the

diagnostic standard but again maybe if the test were to be given in

2 years he may meet it again depending on his ability to keep up and

adapt to the faster pace and expectations as you age. he is an

interesting case and his neurologist is still amazed everytime we

come in that he is progressing and holding steady to his path of

development and recently the gains, always sat developmentally at

half his cronological age but now is about 3 years back so a gain of

2 yrs in a one year period. having all the underlying medical issues

of the gi and reflux and growth and brain problems resolved it is my

belief this enabled him/his body and brain to subsequently heal not

only all those things but the asd things as well.not completely

which is why we still seek and i had sorta given up until i came

across the valtrex thing. the brother has no seizure activity but we

did try clobazam to see if it was a missing link to improvment.

there was no change and i didnt really think it would but couldnt

not try so i guess i think the health issues facing each child being

resolved to let the body heal the other brain and body pathways in

the asd is such a factor as he still struggles with yeast and

absorption despite diet and meds.we havent gone at it as

aggressively as some just starting that. this is how i look at it

now just b/c that has been our expereince and hoping that the virals

are the final thing to resolve. i think we just havent found the

underlying medical problems with the brother ...YET. another

interesting note my sisters little girl got a diagnoses also and had

been seeing a naturopath who started treating with an anti vaccine

concoction which was so many drops per day increasing etc etc and

changing to organic foods. within a month she said her first word

3yrs 7 months old and within 4 months she was talking and now 8

months since starting treatment she talks up a storm and has no

other asd difficulties perhaps a bit adhd though hard to say at this

stage. mimic of asd in her case maybe or maybe only the viral issue

being there as underlying health problem so once that was resolved

her body/brain was able to heal.i just hope these things are more

brought forth to a conncetion to or possibly the real reasons asd is

happening as if the body has all these dyfunctions how can it follow

normal developmental path and when the health issues arise is when

the development stalls/reverses being asd????? my son was at 4

months, his brother at one year, my niece at 20 months and yes how

quickly these things are healed is in conjunction to reversal or

healing the asd???

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